Dilemma . . . . . I have been newly diagnosed with low grade DCIS. Symptoms of bleeding nipple led to mammogram and U/S scan. This was followed by excision of ducts. Histology results show DCIS and it involves the margins of the excision. I have been given the option of "do nothing v further excision". I am confused as I have read many posts on here and it looks like most women are treated actively. How safe would I be to "do nothing" as the DCIS is low grade? I'm not sure what to do and am very confused. Rather than scour all the different threads I have started a new one which is very selfish but thought it would alleviate my initial feelings of panic. Thanks in anticipation.
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redsox Joined: Jun 2009 Posts: 21 |
Nov 5, 2009 10:26 am
redsox wrote:
At the least you should have a re-excision to get clear margins and be sure that it is all low grade DCIS. "Do nothing" should not be an option at this point. Diagnosis: 5/2009, DCIS, <1cm, Stage 0, Grade 1, ER+/PR+, HER2- |
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baywatcher Joined: Nov 2008 Posts: 353 |
Nov 5, 2009 10:38 am
baywatcher wrote:
I would watch and wait. |
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dol123 Joined: Nov 2009 Posts: 2 |
Nov 6, 2009 12:21 pm
dol123 wrote:
Thanks for the replies so far. However, I guess I still don't know what to do. I have an appointment on 2nd Dec so I have got time to think about it. Thank you anyway. By the way my mother had mastectomy aged 50 years, still alive and well at age 69 years. I think I have family history to consider in all this. |
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CatbirdC Joined: Sep 2009 Posts: 59 |
Nov 6, 2009 01:08 pm
CatbirdC wrote:
I would get a second opinion. CatbirdC
Diagnosis: 5/19/2009, DCIS, Stage 0, 0/3 nodes, ER+/PR+, HER2- |
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desdemona22… Joined: Dec 2008 Posts: 558 |
Nov 6, 2009 02:23 pm
desdemona222b wrote:
I'd get that re-excision done so you'll have the peace of mind knowing they got good margins. Diagnosis: 11/17/2001, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR-, HER2+ |
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Jelson Joined: May 2009 Posts: 70 |
Nov 6, 2009 02:29 pm
Jelson wrote:
Low grade DCIS is one thing - radiation is not always recommended after an excisional biopsy, however, I would think that lack of clean margins is something else. Do you know if you are ER/PR + and if so, was tamoxifen recommended? There is movement in the medical community to ratchet down the aggressiveness of treatment for DCIS and maybe your doctor is of that mindset. I also encourage you to get a second opinion. And no need to apologize for starting a new thread! Julie E Diagnosis: 4/17/2009, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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debintn749 Joined: Sep 2009 Posts: 27 |
Nov 8, 2009 11:09 am
debintn749 wrote:
I had a lumpectomy first, and when the margins didnt come back clear , my dr gave me the option to either do another lumpectomy or mastectomy and I chose mastectomy. Do nothing would not be an option for me. I wanted it gone. And my mother also had it and died if it. I would get rid of the dcis rather than let it sit there and continue to grow. |
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Janets1 Joined: Nov 2009 Posts: 13 |
Nov 11, 2009 01:13 pm
Janets1 wrote:
Re-excision much easier and quicker than original surgery. My surgeon told me that a recent study out of Sloan-Kettering stated that 40% of women must undergo re-excisions for clear margins. So really no reason not to do it - and with low-grade DCIS and clear margins you will be in good shape. |
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