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Topic: High grade DCIS and mastectomy/future risk

Forum: DCIS (Ductal Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for DCIS.

Posted on: Oct 19, 2013 03:53PM

Beverly0714 wrote:

I had a mastectomy in August of 2012.  I now have a palpable mass on the other side which was biopsied.  The surgeons office called and said they needed me back right away to do more biopsies.  Am I at higher risk now?  Does anyone know the likelihoodof developing bc on the other side?

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Oct 21, 2013 03:05PM MCbeach wrote:

Hi Beverly-

I believe you do (but I could be wrong too). I'm new, just diagnosed with DCIS gr 3, so I'd love to know this too! I'm sure one of these lovely ladies will know.

And very sorry to hear you are going through this again. :(

Dx 10/11/2013, DCIS, <1cm, Stage 0, Grade 3, ER+/PR+Dx 11/19/2013, DCIS, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+Surgery 11/14/2013 Mastectomy (Both); Lymph Node Removal (Left); Reconstruction: Tissue expander placement (Both)Surgery 03/17/2014 Reconstruction: Breast implants (permanent) (Both)
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Oct 21, 2013 07:09PM, edited Oct 21, 2013 07:10PM by Beesie

What my oncologist told me is that once someone has been diagnosed with BC one time (including DCIS), her risk to be diagnosed again with a new primary in either breast is about double that of the average woman the same age. I was 49 when I was diagnosed; the average 49 year old has about an 11% remaining life time risk (to the age of 90). That made my risk about 22%.

I'm now 8 years past my diagnosis, so my 'remaining lifetime risk' is now about 18%. It goes down over time simply because as we get older, we have fewer years left in our 'remaining lifetime'.

I've seen some articles that quote a higher risk than what my oncologist told me, but I've seen other articles (and one recent study) that suggested a lower risk. And of course personal factors - any related health issues, family history, other risk factors - also play into what your risk is estimated to be.

So the answer is "yes", you are higher risk. But there are differing opinions on how much higher the risk is.

Dx 9/15/05, DCIS-MI, 6cm+ Gr3 DCIS w/IDC microinvasion, Stage I, 0/3 nodes, ER+/PR- “No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke

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Oct 21, 2013 07:47PM AmyQ wrote:

I believe you are at higher risk as Beesie outlined which is one of the main reasons I chose prophylactic removal of my other breast even though only one was necessary. As it turned out, early stage cancer was found, therefore it was just a matter of time. I am sorry you need to go through this again. Never fun...never!

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2-Surgery 02/21/2013 Mastectomy (Both); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Both)Surgery 03/19/2013 Mastectomy (Both)Chemotherapy 03/19/2013 Cytoxan, TaxotereHormonal Therapy 07/19/2013 FemaraSurgery 09/16/2013 Reconstruction: Breast implants (permanent) (Both)Surgery 01/13/2014 Reconstruction: Breast implants (permanent) (Both)