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Mar 19, 2009 03:40PM juliag8199 wrote:
Port Pain is real. When I had my surgery to place port in, I had been receiving chemo weekly for a year, Had 1 more year to go, Dr.never informed me about port as an option, I saw them on my weekly chemo dates with a great group of ladies, That's how I found out by this time I was stuck so many times that I felt like a human pin cushion,,, I asked for one they scheduled port placement on the morning of my Chemotherapy transfusion. I had no clue as to how invasive it was Surgery for placement of port this was a true operation, I never thought it was going to be so difficult all I saw was how easy it was for the ladies during chemo,,, No collapsed veins, missed entries,etc,,I awoke being pushe down a corridor on the bed headed for chemo treatment 8 hours worth, I couldn't believe the hellacious situation I was in nor did I think I was having chemo that day on top of placement I figured a day or so after.. The port was easier when it came to chemo time but the other 61/2 days were filled with pain, aggrevation, even trying to put on the seatbelt in the car was not only difficult but life threatning as the placement was above heart and I was told after placement that If it was to be hit it would could damage heart amongst other anatomy specifics, and I can't stand it when the Dr,'s, Nurses, medical teams question your pain complaints, How they feel they can tell you what level you will be at and if it is not where you feel it is,,, This was infuriating and degrading also, How dare they look at you when you are speaking about how different parts of your body where feeling,, I kept complaining of this pain I was having in my big toe yes big toe well it turned out to be Lupus and the chemo auto immune attack system was triggered to a point I thought I would keel do to the pain,,,, And I did have other legitimate pains I still feel a lot of pain from when I 1st started treatment 5 years ago, phantom to them real to me!!!! Don't diminish how you feel for anyone and when you are in the throws of cancer sometimes the pain may be related to other problems not just the cancer, and the pain can be caused by the chemo,,, I didn't have much naseau at all, they had a hard time digesting that also,,, so be good to yourself dangle a prize in front of yourself for the end of each cycle, treatment support the economy charge it if you have to but treat yourself to something you would have waited to do,,, YOU DESERVE IT!!!!
Dx 7/7/2002, IDC, 5cm, Stage IIIc, Grade 3, HER2+