Posted on: Mar 28, 2012 08:05 AM
Many of us are just starting the T/C cycles and will be going through this together. All TCs gather and share your ups and downs! I started last week and am hoping to be one of those who claim, "It really wasn't that hard." But so far I've had heart palpitations, swollen lips and antibiotics for a chest infection. Trying to use all my 'up' time to do happier things. Let's pool our wisdom, support and woes here.
Your spring comrade,
Posts 121 - 150 (770 total)
Apr 25, 2012 09:09 AM Melrosemelrose wrote:
Thanks.... My new Vitamix is on its way to my house!!! Just ordered it from Costco the other day. Can hardly wait to play with my new toy!!!!!.
Apr 25, 2012 09:13 AM StayShiny wrote:
Way to go Melrose. Sounds like you had the royal treatment! Private room, private session, wig! I think I need to come to Houston. My place will give you a free juice + warm blanket. I thought that was nice but now I know what I am missing. My first time was the longest. Once they figure out how well you tolerate the drugs it will go a little quicker next time. Stay on top of those SE's. Like I mentioned above, day 3-5 have been my worst but everyone is different.
Apr 25, 2012 09:23 AM Melrosemelrose wrote:
Yep.... I'm waiting for the other shoe to drop in the next day or so. Until then, I will rest up and drink that water.
The hosptial's infusion center is really really nice. There are private rooms with tv and cd player plus a room with multiple chairs. It's bright and cheery and at the same time calm and quiet.. On my previous tours of the center, I hadn't noticed the gold loungers until they put me in a private room. That wig thing caught me off guard since I hadn't planned to wig at all--- just a la natural. I thought I was just trying them on to see what they look like, not actually get one!
Apr 25, 2012 11:06 AM Melrosemelrose wrote:
onvacation- I'm at Methodist Hospital. Where are you having treatment at?
Apr 25, 2012 11:45 AM Melrosemelrose wrote:
I love looking out the window to look at the rest of the world and Rice University. We are close for sure!
Apr 25, 2012 11:58 AM Melrosemelrose wrote:
A meet up would be so fun!!!!
Feeling ok but of course I'm waiting for what will come during the next few days.......
Drinking water and napping a lot,
Apr 25, 2012 12:03 PM Melrosemelrose wrote:
That baby will be here tomorrow or Friday!!!!! It will be time to play in the kitchen when it comes!!!! I can almost taste that smoothie now!!!!!
Apr 25, 2012 12:24 PM onvacation wrote:
Melrose - I make a very healthy and tasty smoothie in my vitamix - it is called a glowing green smoothie - water, celery, cucumber, spinach, romaine, apple, banana and lemon juice. It is very green! My other fav is almond milk, protein powder, frozen blue berries, frozen banana and a big handful of spinach. I haven't tried making any soups in mine yet, but that is on the list!
Apr 25, 2012 12:42 PM Melrosemelrose wrote:
Those sound like some really yummy combos!!!! I'll have to try them!!!!!!
Apr 26, 2012 02:46 AM StayShiny wrote:
Kim, those smoothies do sound good and healthy. I make fruit ones often but need to start getting better about eating more greens. Seems like every anti cancer book talks them up. I wonder if my Kitchen Aide blender could handle the greens. How are those feet doing?
I am having a bad mood moment. Don't really know why. Just feel in a sad funk. Maybe it is the let down from tx. Can't seem to remember this happening last time but then again I think I had so many more appts that it kept me going. I think I need to soak up some sunshine if it comes out today.
Hope everyone else is doing well
Apr 26, 2012 05:26 AM janiemomof2 wrote:
Stayshiny - OMG! I was just jumping on to say the same thing!! I literally couldn't get out of bed yesterday and I was weeping at the drop of a hat. I'm the opposite of a depressed person so it kinda freaked me out! I'm having a serious pity party... all I thought about yesterday is how sad I am, all the things I don't have energy for, how alone I feel, how I wish some of my friends would call to check on me. I'm not kidding - it was bad! Today is a bit better, though I'm definitely still "down". THis didn't happen like this exactly last time, this seems "more". Last time I had a moment of being overwhelmed about the side effects and cried to my hubby but this time feels a bit more isolating. I actually called the Breast Center and made an appointment with the psychologist, maybe I just need to get it all off my chest.
Hope you can turn a corner... all we can do is put one foot in front of the other I guess... UGH!
Apr 26, 2012 06:45 AM onvacation wrote:
Stayshiney - the feet don't hurt today but now the little toe is a bit numb! I tried to find glutamine yesterday at walgreens and couldn't find it - will check out whole foods this weekend.
janie - hang in there! I know what you mean, I am generally an upbeat happy person, but I had one of those days yesterday! I must say a little retail therapy helped me! LOL
Hugs to everyone who needs one!
Apr 26, 2012 12:04 PM StayShiny wrote:
At least we have each other to go through these rough spots. I too am a very positive person always trying to put a good spin on the challenges. But i was feeling so blue and "broken" today. I guess with all these chemo drugs in our system it messes up our normal balance. I did spend a few minutes in the sun, watched the birds at the feeders and watered my herbs + lettuce. I am feeling a little better now. Maybe a funny movie or tv show for this evening.
Good idea about the psych appointment. I don't even know if mine has any such support. Seems like they all should. Hopefully it helps. I tried the retail therapy yesterday but I must not have bought the right things because it didn't do the trick. I did have a BC survivor tell me to go out and buy myself something nice after each treatment.
Kim, I need to look for the glutatime too. Thought I would try Trader Joes. My heels seem to be getting more sensitive. I really will be walking on the balls of my feet by the end.
Here's to one foot in front of the other
Apr 26, 2012 02:07 PM Summer51 wrote:
Hi ladies. Had my first TC March 22nd with a ton of SEs. MO reduced my dosageby 20% for the 2nd round and it made a world of difference-minimal SEs. Even the Neulasta seemed to have less pain associated with it. Perhaps the Claritan helped the 2nd time around.
Saw my MO today. My red cell counts are dropping rapidly so she is trying to get my insurance company to approve Procrit shots.
I just read the side effects and I am freaking out. The pharmaceutical company actually makes you sign a waiver before you receive the shot. Want to make sure you know you are at risk for stroke, blood clots, heart attach and alerting you to the fact that "you may die sooner if you are treated with Procrit". Really???
If cancer doesn't kill me and I survive chemo and radiation, I still stand a chance of Procrit putting a nail in my coffin.
Has anyone heard of Procrit? Anyone try another course of treatment to raise red cell counts?
Any info you can provide would be helpful.
Apr 26, 2012 03:03 PM StayShiny wrote:
Welcome Dianne, we can go through this adventure together. The fun thing about these drugs is that they all have side effects. I have not heard of Procit but i would ask your MO about other options. I know chemo could be delayed to allow your body longer to recover but that may not be desired. Some don't tolerate the 4 high doses of Taxatore well and can be put on a lower weekly regime. I just have to believe there are other options.
Is your rbc that low compared to the range or is your MO just trying to be proactive to a trend they see? My rbc is a little on the low side too so I asked what I could to bring it up and they said really nothing. Interesting that your MO is wanting to jump to drug and mine doesn't seem to be concerned.
Our bodies are going through so much. It is no wonder that our counts are wacky!
Apr 27, 2012 12:38 AM Summer51 wrote:
Stay Shiny-Thanks for your thoughts and suggestions.
Yesterday my RBC, HGB, HCT & PLT were all in the low range. I have blood work done every Tuesday and Thursday and they have been slowly dropping. My platelet count is down to 103-normal range is 150-390.
I'll do some research today and see what I come up with as far as alternatives go.
I see you are a triple negative. Doctors are treating me as a triple negative. I'm ER-, my PR is only slightly+ (4%) and HER2-.
Are you doing rads and Arimidex after chemo?
Have a good day..
Remember "Yesterday is history...Tomorrow is a mystery..and Today is a GIFT"..Make the most of it!
Apr 27, 2012 12:57 AM khintul wrote:
My MO and I just had a talk about Procrit when I saw him 2days ago. My RBC is also in the too low range. He talked about the shot, then added, "there's a big but attached" - in those who are going for a cure, it can decrease the survival rate. In those who are going for survival, it may be used as a quality of life issue.
For me the decision was to start taking iron supplements and see how that goes, Procrit is off the table.
We all have so many different situations, there's not a one size fits all, but before going that route, I'd want to have a bit longer discussion with the MO.
Apr 27, 2012 01:23 AM slak wrote:
For those ladies looking for L-glutamine, I found it a GNC at the local mall. It is in a big tub (powder). I bought the 2 lb size and am a little less than half-way through it so I should have a little more than I need for 4 chemo sessions. It was $70 but I got it on sale (just lucky timing). If you don't have a GNC near you, try a vitamin/supplement store. It is a somewhat uncommon supplement, apparently bought by body builders/weight lifters.
Apr 27, 2012 02:13 AM Melrosemelrose wrote:
Hoping everyone is doing okay and minimal SE's!!!
Drinking water like crazy and burping like an old sailor. The funky taste in my mouth is weird but seems to be better if I brush my teeth. So I am brushing after every time I eat. Last night's dinner was a "white" dinner--- everything was white colored--- a little baked fish, mashed potatoes, mac n cheese and a tampioca pudding. Thank goodness for cafeterias since no way am I cooking right now!!!!! My Vitamix blender arrived yesterday so as soon as I feel better, I'm going to start making smoothies and juices. Something to keep me busy while I burp my way through chemo....
Have a good one everyone....... I really want to!!!!!
Apr 27, 2012 02:15 AM Melrosemelrose wrote:
I got some L-glutamine capsules at Whole Foods last weekend. You might check there too!!
Apr 27, 2012 02:23 AM StayShiny wrote:
Summer51, Boy they sure do like to take your blood! Sounds like platelets are your biggest concern. It is my understanding that blood transfusions is a common way to bring those up. My mother had chemo for an extended period and when her platelets dropped that is what they did. Don't ever remember any kind of shot being recommended.
No further treatment in the plans for me after chemo. Yep, going to feel like I should be doing more. I had a BMX and clean margins so although I did consult with a RO, rads aren't necessary. Are you going to take Arimidex due to the slight PR positive?
Make it a great day!
Apr 27, 2012 02:29 AM StayShiny wrote:
Melrose, bland food is the only thing that i want for the first few days too. I brushed my tongue with a water and baking soda paste this go around and it seemed help with the taste and how long it lasted. My MO had also mentioned rinsing with salt water. Sounds like you are doing great!
Apr 27, 2012 02:34 AM Melrosemelrose wrote:
I got this Colgate toothbrush at Walgreens that is for extra sensitve teeth and has some little rubber nubbies to clean the tougue. I'm using Colgate total toothpaste which leaves a really nice minty taste in my mouth. I tried the salt/baking soda rinse yesterday and blah!!! I almost would rather go brush my teeth a litle than suck on candy..... ok I'm a weirdo.... lol