Posted on: May 10, 2012 12:47 AM
Posts 1 - 30 (489 total)
May 10, 2012 02:50 AM JoanG wrote:
I am supposed to start Taxotere on May 30, too. It depends on what my oncologist says about my liver enzymes, though. They are a little elevated and have been for the last year. Fatty liver has been the diagnosis. Just finished my third round of FEC last night. Once I figured out that Emend was making me sick rather than preventing nausea, the other SE's haven't been too bad. Mostly fatigue for about a week then feeling almost back to normal. I hope that the Taxotere isn't worse.
May 10, 2012 02:09 PM KangaMama wrote:
Hello to both of you!
I've been doing a bunch of reading about chemotherapy in general and TC in particular. I can't decide if it's calming my fears or making me feel more anxious. From much of what I've read, it sounds like it is manageable for most people with a some pretty severe side effects for some. I can't say that I'm excited about starting, but I do want to get this show on the road.
JoanG: I hope your liver enzymes return to a healthy level, and good catch on the Emend making you sick!
May 10, 2012 08:16 PM KangaMama wrote:
Lynnnurse! You have TC experience! Any words of wisdom? Your diagnosis looks very much like mine. I didn't see a mixed setting on the diagnosis page or mine would say so as well.
May 11, 2012 07:49 PM rn4babies wrote:
I'm starting on May 15th. I am doing T/C x4. I was told I don't need a port. Is this unusual?
May 11, 2012 08:00 PM Lumpynme wrote:
i was told that TC is not as hard on the veins if you have good ones- i am going to try this without PICC line ( I used PICC during my A/C). i am limited to only my right arm as i have had my lumpectomy on left.
also suggested to drink 2 glasses of water the day of tx before i go so plenty hydrated to find the vein.
don't know if this helps.
May 11, 2012 08:08 PM JoanQuilts wrote:
I am doing 6 rounds of T/C without a port. I am surprised that I was able to get through without a port - I had bc 19 years ago and had chemo at that time, which I thought destroyed all my veins. But I guess I have very good nurses - they always manage to find a good one!
May 11, 2012 08:47 PM sueshane wrote:
I had four rounds of TC with no port. SE were very minor. I think you all will be very pleasantly surprised. Biggest side effect-heartburn- Prevacid works like a charm. I took it every round for about a week even though the directions are different than that. Ask your doctor. After about five days, I didn't need to take any meds until the next round. Ativan really helped with nausea and sleeping at night. DRINK LOTS OF WATER BEFORE AND AFTER TREATMENT.
Good luck to you all,
May 11, 2012 10:29 PM KangaMama wrote:
I decided to use a port. The decision was made easier since I had additional lymph node surgery almost two months after my mastectomy, and the port was placed at that time.
May 13, 2012 04:34 PM Hortense wrote:
I just started T/C on Tuesday May 8th, so this is my fifth day after it.
So far it's not been bad except for water retention for the first few days - I ballooned up 3-4 lbs, but that's passed and I am back to my normal weight - and some serious consitpation which I am working on now. I feel stuffed and plugged up and have been unable to eat because of it. Stool softeners daily have not been helpful, so last night I gave myself a Fleet enema - sorry if this is too much detail, but it seriously helped - if anyone else is having the same problem.
Today I checked with my pharmasist and he recommended Sennecot S which was on my nurse's list to try if stool softeners did not work. I took some this morning and am awaiting results.
Today I am more tired, but I was told to expect this by the fifth day. I am trying to get up and out to walk outside a bit every so often. It does make me feel better. I even planted some flowers and repaired the damage in some planters the raccoons had dug apart. Watching tv and reading are not enjoyable, I just seem to tired to pay attention.
I have been rinsing my mouth regularly with baking soda and water, plus using Biotene rinse, however by today my tongue feels thickened and has a creamy coating on it, so I just used that mixture of Benedryl and Malox as a rinse that people here have recommended. I don't want mouth sores.
Tastes are changing, a navel orange at lunch tasted and felt creamy. That was wierd. Crackers taste like cardboard and seem to ball up like cement in me, so I will be avoiding them for a while. Drinking anything is difficult. I simply don't want to drink and have to force myself. I ordinarily love tea, but can't stand it now. Sweet things are off-putting. However, pea soup was wonderful these past two days. I noticed someone else loved her lentil soup, so I may try that later.
I have been able to sleep, which is a blessing, and have not been nauseous for which I am very grateful.
My nurse told me to take 1 Motrin and 1 Tylenol in addition to the Claratin to offset Neulasta aches, and I have to say it works. If an ache begins, it has seemed to end it.
So that's been my experience thus far.
May 13, 2012 04:52 PM Husker123 wrote:
I had my first treatment on May 3.
I haven't had the constipation or diarrhea. (Knock on wood!) I did find that by the 4th day, my tastes had changed. We had pizza for supper & it was like cardboard! I can't stand chicken now. Cold things have more taste to them than hot. I'm slowly finding things that work for me. I have been able to drink. I downed lots of water before & after my first T/C. I'm still drinking lots.
The Sunday after, I woke up in a fog. It felt so weird. I finally drank a soda & that helped. Monday I woke up feeling GREAT!
Had my follow up visit with my MO on Thurs. She was happy with my bloodwork, not so happy I was down 5 lbs. Trust me, they won't be missed. I'm not trying to lose but I have been eating a lot differently and walking more.
I had one mouth sore. I read somewhere on this board to try apple cider vinegar. I dabbed a little bit on it and it was GONE the next morning. I've been using the salt water/baking soda rinse. I have the Biotene rinse but I really don't like the taste of it!
My MO warned me not to expect to have it so easy this next go around. I do hope she's wrong. That's scheduled for May 24th.
In the meantime, I'm dreading the start of my hair falling out. I should be getting close to that happening. I'm thinking about going to my hairdresser on Tuesday & having it cut short short. I have a wig that I need her to trim some to make it something I'll wear.
I'll have to try the Motrin & Tylenol tip. Advil did nothing for the bone pain. It wasn't horrid but I sure was hunting something to get rid of it.
May 14, 2012 02:20 PM KangaMama wrote:
Hortense and Husker123 - thanks so much for talking about your first cycle. I'm anxious about mine and it won't be happening until the end of the month. I'm planning on using Claritin for the bone pain. I hope it works. Pain and nausea are the two common side effects that I dread the most. Kind of worried about the nails, too.
ashley2 - I don't know anything about Taxol. I assume it's related to Taxotere so it probably has similar SE.
May 14, 2012 11:33 PM rn4babies wrote:
I start my first cycle tomorrow. Wish me luck!
May 15, 2012 09:23 AM torijune wrote:
I had Taxotere/Cytoxan FOUR YEARS ago and it left me bald, no eyebrows, lashes or other body hair! My lifelong head of thick coarse hair fell out and all that grew in after chemo was a Ben Franklin muff around the bottom of my head about to the top of my ears and even that is super fine. I should say WAS super fine, becasue I just had a local recurrence and am currently undergoing CMF chemo. I am just praying my hair grows in after I finish with this. Permanent hair loss happens more with Taxotere than any other chemo. Hopefully it won't happen to you, but I can tell you it happened to me and it happened to a lot of other Taxotere patients around the world. Someone should have told us.
May 15, 2012 11:41 AM wonderwoman123 wrote:
m4babies - Good luck today!! You will do great. I am on Day 6 having had round one of TC last Thursday. First couple days were pretty good, then a couple of not so good days, and now out the other side. Still have some lingering things and not sure when all will clear up, or if some things just hang around till the next one. Keep us posted, i will be following you and thinking of you!
torijune - I'm so sorry you have had a recurrence. ugh. I guess in the light of that, the hair not growing back seems insignificant, but it is sooo tough. we all just want to go back to 'before' and not getting hair back stops that from happening. I wish you the best Torijune, how are you doing now?
May 15, 2012 04:03 PM irishdreama wrote:I started Taxotere/Cytoxan on Mar. 1st. This is my second time with taxotere, and am happy to report that my hair DID grow back after the first time, albeit thinner than when it left! I am with sueshane, the worst side effects for me have been heartburn and some nausea. Definitely taste changes, but I can live with that. I do find myself sleeping a lot, but did that the first go round 5 years ago with the AC (4 cycles) and then taxotere (4 cycles). I think mind over matter can make a big difference, if you have the mind-set that you're lucky to have chemo as an alternative to having the cancer be so far advanced that it's not treatable with it, it helps you get through it. At least it has with me-both times. Good luck to all of you! ♥
May 16, 2012 03:22 PM KangaMama wrote:
What are y'all doing about head coverings? I've purchased a couple of scarves and some Buffs. The Buffs are pretty interesting - a tube of soft knit fabric that can be twisted and knotted into several different styles of head coverings. I probably won't be wearing a wig since I'm afraid it will be too hot in the summer even though summer temperatures in Seattle are very nice.
May 16, 2012 05:49 PM Husker123 wrote:
Day 14 for me and my hair is departing right on schedule. Not a lot at this point but shedding. I got it cut super short yesterday. When it gets really bad, I'll buzz it.
I have some skull caps and ball caps. I ordered a couple of the Buff's too. They look like they would be really comfy. My SIL's sent me a cute newsboy type hat and a couple other things from www.headcovers.com
A friend gave me a wig. My hairdresser trimmed it up some yesterday. I wore it to see a friend, she didn't even know it wasn't my hair! I'm not sure about wearing it. I just feel weird in it!
I go see the PS tomorrow for a fill.
May 16, 2012 07:52 PM Lumpynme wrote:
i've got a wig that i got thru Crickett's Answer for Cancer.com ( i think that's the wording---
it was free and i highly am grateful....it gets a bit warm after a long day--at home i go au natural and throw a bandana on to go out and walk the dog.... i have scarves but cannot get them tied nicely and my hats don't really look good on me-and seem hotter.....
ok- so friday i start my taxotere and cytoxan and truly have to question my MO as to WHY? i have had chemo once (4 TX) and i have had my lumpectomy--and i will have RADS and probly tamoxifen for 5 years...but i do not understand why the TC?
May 16, 2012 08:13 PM KangaMama wrote:
Lumpynme - I've known people who had chemo before surgery or after surgery, but I haven't heard of anyone having both. It would be good to know why. Good luck on Friday if you do move forward with TC!
May 16, 2012 08:39 PM Denise1959 wrote:
I just had my port put in this morning and am scheduled to start chemo next Tuesday. Everything has happened so quickly that I feel completely overwhelmed. I'll go for 4 TC x 8 weeks & then 8 weekly w/ Herceptin (I'm HER2+). I've read numerous forums, studies, reports, etc. (and probably why I'm so overwhelmed), but just need basic info (i.e., lots of water intake before/during). I read one study that suggested that fasting for 2 days b/f will put your "good cells" into a hibernation-like state thereby protecting them. Has anyone heard of this or been suggested to them? Is there some sore of list of items I should get before hand? (i.e., I see mouth rinse, motrin). Best wishes to all of you during this journey!!!
May 16, 2012 09:16 PM KangaMama wrote:
In the forum section entitled "Chemotherapy - Before, During, and After," there is a section called "Key Chemotherapy Threads." It's the first one on the list. In that list, you will find a couple of threads with tips and shopping suggestions.
I've also read about fasting somewhere on these boards, but I can't find where. As I recall, it was something like more than two days. I'm afraid I would get way too cranky and head-achy by not eating for so long, so I decided not to pursue it.
May 17, 2012 12:49 PM CatFromFL wrote:
Do not read this if discussion of side effects will scare you! I have had a bad go of it...
Bone pain and tinnitus( from Neulasta), Diarrhea and mucositis from Cytoxan , oh and throw in some tingling fingers and scant vaginal bleeding just to make it interesting
I started chemo (TC every 3 weeks X 4 ) last Tuesday! I went into it with a positive attitude and armed with knowledge. I was lucky to have a girlfriend that was also getting the same protocol/ same days ( how weird is that?)
MON: I got my IV port put in the day before chemo , this was not the best plan but was doable. I got through the surgery well and although I was unable to get a few days of pre-chemo hydration, I was good to go.
TUES:The morning of, I attached my Sancuso (anti-nausea) patch and took my Decadron.
That first chemo day I got Aloxi IV, Dexamethasone IV, Taxotere 174mg IV and Cytoxan 1390mg IV. Pam got similar drugs but she skipped the anti-nausea patch as she doesnt have the nausea and vomiting history that I have had. We did great and went out for lunch.....
WED:Next day we both went in for our 25 hr later Neulasta shot. We were asked to start Claritin an hour before hand to prevent bone pain.
THUR: Bone discomfort started... Needing various degrees of analgesia. The locations were sternum, hips, femurs, heads of humerus, sacrum. Both of us had the complaint, mine definitely seemed to be bothering me more. We both had some constipation. I took 2 peri-colace before bed.
FRI: the DIARRHEA started! I say this this way because little did I think on Friday that this would continue for days. The diarrhea, first treated with Immodium, then Lomotil and finally double Lomotil dosing, lasted until Wednesday evening ( including my need for hydration fluid on Tuesday ,while seeing the MO) after the diarrhea started I developed mucositis ((stage2)
FRI-SAT-SUN-MON- days of endless diarrhea( could not eat without watery diarrhea)
,sore mouth including ulcers, bone pains and tinnitus! Spoke the MO Sun and Mon
TUES: still diarrhea, they added some magic mouthwash and upped my Lomotil, and pain meds... Gave me hydration but I am miserable! The tinnitus is driving me crazy when the pain is not all consuming. I do get pain relief but its never long.
WED: all day it was about the same.MO called me around noon. I am doubling up on Lomotil, am on clear liquids only. Around 4PM I have my last bout of watery stool. But I am exhausted and the tinnitus has me on the hairy edge! ( its a side effect of Neulasta)
Thursday evening the pain is very managable, my mouth is sore but not getting worse, the tinnitus is everpresent. ate some chicken w/ rice soup.
THUR: no diarrhea all night, start of a good day...an ear ringing day but pain is controled most of the time and no diarrhea! I started eating a few tsp of oatmeal this AM, Graduated to some chicken, rice and vegs at lunch.... No diarrhea. Mouth is getting better! Ear ringing is still there..... I survived!
Pam had some moderate bone pains, went to church on Sunday, planted plants in her yard on Monday, has some minor constipation but experienced a completely different experience than me!
What I learned is that you need to be ready for the worse, but that everyone is different.
Keep closely in touch with your MO and their staff.
My saga contunues....