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Topic: I WANT MY MOJO BACK!

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  • Posted on: Oct 17, 2004 12:45 pm
Joined: Aug 2004
Posts: 1,171
Mena wrote:
Hey girls,

You know, this loss of libido thing is just unnacceptable. I was in the chat room earlier today and mentioned it and man, you should've heard how many of us are experiencing this problem. I promised the ladies I'd post my rant, so here it comes (or....doesn't ).

If bc were a man's disease, not only would there be a cure for bc by now, but certainly there'd be a plethora of non-hormonal therapies available for whatever the female version is of "erectile dysfuntion". I don't think I'm exaggerating. I'll make the damn commercials myself (no pride here lol).

Prior to the news of my recurrence/mets (August) my husband and I had a phenomenal sex life. I absofreakinlutely loved making love to my husband. (Btw, I'm 43; and as part of tx for mets, I was chemically oopherized with Zoladex and take Femara daily).

I still enjoy loving my love. Emotionally, spiritually, mentally, I do. Even physically I still like it. It's just not rockin' my world, as they say, like it used to. I miss that. And I refuse to accept this as acceptable. It is not. If the genders were reversed, this would be the first &%$#* problem they'd address! Well, ok, the second.

I know the clinical reasons for the low libido, but there's got to be something out there for us that's not contraindicated with treatment. Here's what I've tried so far: a Zen approach; a "go w/the flow" attitude; a "get started and it'll all just kick in" mindset; a "try not to think about it at all" focus; et al.

I'm interested in hearing what the rest of you have to say about this matter, and I know it is an intimate one. But we're all sisters and I do hope some of you will share your experiences and whatever help you've found for missing mojo.

Thanks for letting me vent. God Bless.

Mena

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eastender
Skagit Valley, WA
Joined: Jun 2009
Posts: 16
Oct 26, 2009 11:38 am eastender wrote:

Morning Ladies,

I hear you, I thought I was the only one with no libido!  Right now I have no want or desire to make love and this was a very active relationship- 4/5 times a week now we are down to maybe once a month and that I have a get myself mentally ready and that just sucks...I HATE THIS!

This is a very special club and not everyone is allowed to join...Lumpectomy June 09; Chemo July-Sept 09; Revision of margins October 09; Rads October 09
Diagnosis: 4/29/2009, IDC, 6cm+, Stage II, Grade 2, 0/5 nodes, ER+/PR+, HER2-
rgiuff
Long Island, NY
Joined: Apr 2008
Posts: 303
Nov 9, 2009 09:19 pm rgiuff wrote:

Has anybody tried Maca root for boosting the sex drive?  I've been reading a lot about it lately and I'm getting tempted to try it.  I've read that it's not for breast cancer patients and also that it is fine for breast cancer patients.  Another one of those conflicting opinion things, I'm willing to give it a try though, I have to do something to feel like myself again.

RoseG
Diagnosis: 4/2008, IDC, <1cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2-
LeggyJ
Calistoga, CA
Joined: Jun 2008
Posts: 368
Nov 9, 2009 10:07 pm LeggyJ wrote:

Love the Nascar joke, really funny!  And the suggestion about reading naughty stories from Hustler is a good one, reminds me of when my ex-boyfriend and I used to drive across country, and I would read to him.  By the time we got to where we were going, we'd be so wet....Awh, the good old days.  The ex is trying to come back, and I'm thinking about trying so thanks for the advice, girls...

Leggy
Diagnosis: 4/3/2008, IDC, 2cm, Stage IIb, Grade 2, 1/2 nodes, ER+/PR+, HER2-
sakura73
Australia
Joined: Feb 2009
Posts: 265
Nov 15, 2009 07:47 am sakura73 wrote:

Hello mojo lovelies,

 Just wanted to check in to wish you all all the best and to say that 2 months post-chemo my body is definitely waking up again. I no longer need to use lubrication - with some foreplay my body has remembered what it is meant to do. I hope the same holds true for others.

I kept having sex throughout chemo and am glad I did because even when it felt like a chore beforehand it made me feel so wonderful to still be sharing that intimacy with my BF and even when I didn't orgasm I enjoyed his. I did have some good ones though, and am having more now! 


Diagnosis: 1/22/2009, ILC, 2cm, Grade 2, 2/17 nodes, ER+/PR+, HER2-
OmahaGirl
Long Island, NY
Joined: Jul 2008
Posts: 348
Nov 15, 2009 07:55 pm OmahaGirl wrote:

Hey Rose, my OB gave me estrogen cream to use on the outside and it really helped, I also used the E-String internally, there was a small study that one of the women was in and her estrogen levels never went up while using it. MY BS and Onc said okay, I hope so because I am using it and it is so much better, hopefully my Arimidex will prevent any uptake.

Linda ( 5-09 Bilateral Pleomorphic LCIS)
Diagnosis: 5/30/2008, IDC, <1cm, Stage Ia, Grade 1, 0/4 nodes, ER+/PR-, HER2-
iodine
TN
Joined: Oct 2002
Posts: 7,682
Nov 16, 2009 12:27 am iodine wrote:

My onc approved my use of estring back when I needed it.  I thought I had an untreatable yeast infection and it was the dryness and I only had to use 2 of them for 6 mos and then I was "normal".

Dotti---BE NOT AFRAID, Pope John Paul
kime
Southern Cal, CA
Joined: Sep 2009
Posts: 92
Nov 16, 2009 08:22 pm kime wrote:

I'm using the estring and think it is great. My gyno said that it had the least amount of estrogen and the least absorption into the blood stream. I ended up being ER negative, so it turns out it wouldn't be a big deal, but I didn't know that when I got the estring, I was going to use in even if I was ER positive


Diagnosis: 8/13/2009, DCIS, <1cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
Texas357
Joined: Oct 2008
Posts: 773
Nov 17, 2009 09:14 am Texas357 wrote:

Hi all, my gyn prescribed Vagifem in July which has been awesome. He took a baseline blood test to measure my estrogen levels, which I had repeated last week. The great news is that my estrogen levels had DECREASED so the estrogen in the Vagifem is not getting into my system.

DX 9/08, ILC, Stage 3A, ER+/PR+, HER2-, 7/13 positive lymph nodes
rgiuff
Long Island, NY
Joined: Apr 2008
Posts: 303
Nov 17, 2009 09:18 pm rgiuff wrote:

That's great Texas!  What specifically did it help with?  I'm having trouble with the outer areas being easily irritated , not so much the inner, thanks to the tamoxifen discharge. 

Omahagirl, thanks for your reply, did it plump things up and bring back any sensation on the outside? 

RoseG
Diagnosis: 4/2008, IDC, <1cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2-
OmahaGirl
Long Island, NY
Joined: Jul 2008
Posts: 348
Nov 17, 2009 09:35 pm OmahaGirl wrote:

Yesm Missy it did and the big O is beginning to feel better all the time. I wish my libido would improve, or maybe it needs to fall in lust with a new man! Oppps, hope my DH doesn't here this LOL

Linda ( 5-09 Bilateral Pleomorphic LCIS)
Diagnosis: 5/30/2008, IDC, <1cm, Stage Ia, Grade 1, 0/4 nodes, ER+/PR-, HER2-
ReneeS
Eugene, OR
Joined: Sep 2008
Posts: 618
22 hours ago ReneeS wrote:

I looked high and low for a topic about spouses/significant others and their Mojo.... or lack thereof.  Is this the appropriate place to discus this?

www.caringbridge.org/visit/reneeswartz
Diagnosis: 9/24/2008, IDC, 1cm, Stage II, Grade 2, 1/2 nodes, ER+/PR+, HER2-
jezza
Australia
Joined: Jun 2006
Posts: 543
21 hours ago jezza wrote:

I'm sure it is Renee....thats what this thread is all about libido....I'm sure that includes partners!

I haven't seen anywhere else...so go ahead!

jezza


Diagnosis: 1/1992, IDC, <1cm, Stage I, Grade 3

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