As you can see from my profile, I was dx'd. in '02. "Sunshine" was one of the first posters to ease my fears. Sadly, she is gone now, as is Tinkerbell, Sprite, and FighterLu, whom I have chatted with many times over the years.
Is anyone out there that was dx'd. when I was? I remember Tracie, Marci Beth, Yvonne Jones, Shirlann, Patti (Beach Cottages), and so many others, especially those I was lucky to meet at our NYC get together back in '04 or '05, can't remember now.
If anyone is out there, please check in. Would love to hear how you all are doing.
Laura
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AnneW Joined: Oct 2002 Posts: 3,292 |
Mar 23, 2008 05:40 pm
AnneW wrote:
HI, Laura, I'm still here! I had a second primary recently (Stage 1 again!) and am going through reconstruction, but I feel great. There are only a few of us oldies here any more. Some just pop in from time to time. I was just thinking about Sprite the other day, as the almond trees are probably in bloom in central CA. I miss her. Good to see you here. I hope you are well. Anne Anne
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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Ltb3105 Joined: Jul 2002 Posts: 1,980 |
Mar 23, 2008 05:44 pm
Ltb3105 wrote:
OMG, Anne! You replied to another thread I had started with my failed vision test and my friend with the abnormal Pap Test!!! I didn't even notice that in your signature, you had another recurrence. Damn that sucks. I don't know what's going on with my computer or this site, but my thread appears twice...LOL. Guess one time wasn't good enough. I am doing well, going for my next round of tests next Wed., with an oncol. appt. Friday. My only complaint is this damned Actonel I'm on. I feel achey, as though I've got the flu. Was taking Fosamax, but kept forgetting to take it every week. Maybe I'll go back to it. I can't take this, feel no energy or motivation at all. Wonder how everyone else is doing? Laura
Dx 7/1/2002, IDC, 1cm, Stage I, 0/0 nodes, HER2- |
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livesstrong
Joined: Sep 2006 Posts: 2,405 |
Mar 23, 2008 10:22 pm
livesstrong wrote:
Laura, Shirlann is still here. She posts regularly all over the boards. Pm her at Shirlann - I'm sure she would love to hear from you. Good Luck!! Valerie Someday I'll wish upon a star and wake up where the clouds are far behind me.
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SandyInNJ63
Joined: Sep 2006 Posts: 206 |
Mar 24, 2008 08:08 am, edited Mar 24, 2008 08:13 AM
by SandyInNJ63
SandyInNJ63 wrote:
Hi Laura, I was diagnosed in '02 and found this board a few months later. I still come here almost daily, even if I don't post all that often. Sandy Diagnosed 9/2002 age 39; IDC, DCIS & Paget's; Stage 1, grade 3; neg SNB, ER+/PR+, HER2neu-; no chemo or rads; mast followed by Tamox & Lupron
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DebbieB Joined: May 2002 Posts: 1,834 |
Mar 24, 2008 12:28 pm
DebbieB wrote:
Hi Laura, I remember your posts. That was back in the days when there were are lot less sections to post under. It was also easier to remember everyone! It seems like once Marci Beth went on the Today Show with Sunshine and Shirlann, the boards went crazy. Which really was a good thing because this board has been a lifesaver for many! We have lost a lot of sisters but I think losing Stacey has been the toughest. For me, she was breastcancer.org. She was the first one to reach to any newbie. And Sprite...I still think about Kathy as well. I'm 6.5 years NED now. But in May 2007 at the age of 51 I was dx'd with congestive heart failure and cardiomyopathy. It appears the Adriamycin I had in 2001 damaged my heart! That was quite a shock. I'm on a bunch of heart meds now but otherwise doing good! Hope your tests and visit with the onc turn out great! Debbie Dx 10/31/2001, IDC, 2cm, Stage II, Grade 3, 0/9 nodes, ER-/PR-, HER2+ |
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pconn03 Joined: Jul 2003 Posts: 1,792 |
Mar 24, 2008 04:50 pm
pconn03 wrote:
Hi Laura and all: I'm still here as well. I was dx in May, 2003 - so in a couple of months, I will have my 5th year anniversary. I, too, remember the "early days" and the sense of camaraderie we all felt. Many of our sweet sisters have passed away and many don't make it to the boards much (if at all) anymore, but there are still a group of us that lurk or post or both!! :) :) :) Many blessings and hugs to all. Pat Pat
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iodine Joined: Oct 2002 Posts: 7,820 |
Mar 25, 2008 01:35 am
iodine wrote:
Hey Laura! Saw your post on the other board and wanted to let you know that oldbies are still here. I'm 5.5 years out and grooving, sort of, I even still hang around here.(maybe too much, but then, I'm retired) So glad to see you -- the boards Were more simple in the day. I'll never forger everyone being so supportive, and wow, could we cuss! Remember the beach bag parties? Dotti---BE NOT AFRAID, Pope John Paul
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sam52 Joined: Oct 2003 Posts: 1,302 |
Mar 25, 2008 06:03 am
sam52 wrote:
Another oldbie here!! I joined in October 2003, though I was dx in Oct 2001. I remember all the names you mention so well, and miss those who have sadly got their wings. The boards looked so different in those days......and do you remember the chat rooms with colored fonts - it made chatting a whole lot easier! I still come in here fairly regularly......can't keep away from my family..... Sam (in UK) |
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mrsb Joined: Sep 2007 Posts: 132 |
Mar 25, 2008 07:24 am, edited Mar 25, 2008 07:25 AM
by mrsb
mrsb wrote:
I was diagnosed in jan 2003 and although don't post very often I am still here and NED.Mrs B |
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Ltb3105 Joined: Jul 2002 Posts: 1,980 |
Mar 25, 2008 04:12 pm
Ltb3105 wrote:
I remember Marci Beth (who works for CBS and who did the show with a few BC girls from here) came on a few yrs. back but said she didn't come on here as much because it was too painful, especially when some of the gals that got us through our bad times, had themselves passed away. I see Pepper in here, and every now and then, HarleyHoney sends me a MySpace message, which I also belong to. Laura
Dx 7/1/2002, IDC, 1cm, Stage I, 0/0 nodes, HER2- |
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Ltb3105 Joined: Jul 2002 Posts: 1,980 |
Mar 25, 2008 04:16 pm
Ltb3105 wrote:
DebbieB, I took Adriamyacin too, but my oncol. had me take it home in a fanny pack, attached to me, where it would go into me very slowly, during a weekend, starting on Friday, and I'd go back and they'd take it out Monday morning. Did they do this to you, or did they give it to you "full force" with your treatments? My oncol. felt it would be less damage done if it was infused slowly. I am curious to know how you had yours done. I hope that the damage is minimal and that med's will be able to keep it in check. Cure one thing, damage another! Laura
Dx 7/1/2002, IDC, 1cm, Stage I, 0/0 nodes, HER2- |
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DebbieB Joined: May 2002 Posts: 1,834 |
Mar 25, 2008 07:39 pm
DebbieB wrote:
Hi Laura, I always got the Adriamycin first and it took about 15 minutes so I got it full force. Then to top it off my onc never did any muga scans before, during or after. Said I didn't need them. The meds are keeping it in check but I do have damage to my left ventricle. What can I say, life throws us curve balls!!! How are you doing? Take care! Debbie Dx 10/31/2001, IDC, 2cm, Stage II, Grade 3, 0/9 nodes, ER-/PR-, HER2+ |
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Ltb3105 Joined: Jul 2002 Posts: 1,980 |
Mar 25, 2008 07:48 pm
Ltb3105 wrote:
I'm sorry your oncol. didn't know to do the procedure like mine did....wow, ventricle damage? You poor thing! Thank God the med's keep it at bay. I go for my battery of tests tomorrow, results on Fri. w/the oncol. Not nervous, for some strange reason,guess my mind is on my youngest son, who's been fighting a resistant pneumonia since Xmas...he feels great, his chest x rays show congestion still. We've got another appt. for him April17th, and if it still shows infiltration, they're gonna have to do a bronchoscopy. I hate to think what's in his lungs. He's Down's, and my sweetest boy. That's about it. Laura
Dx 7/1/2002, IDC, 1cm, Stage I, 0/0 nodes, HER2- |
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Sierra Joined: Feb 2004 Posts: 4,922 |
Mar 26, 2008 08:37 am, edited Mar 26, 2008 08:41 AM
by Sierra
Sierra wrote:
Howdy:
The time is NOW!
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NaughtybyNa
Joined: Oct 2003 Posts: 937 |
Mar 26, 2008 09:12 am
NaughtybyNature wrote:
Lilia here, present and accounted for... now known as NaughtybyNature. Came aboard Oct. 2003 and met you on 2004 at the NYC Get Together. Almost 5 years here and overall still NED ( How is your family, kids? Good to have you back. Hope you stick around and don't go into any dry spell... Class of 9/5/2003 - " If knowledge is power, I prefer ignorance’s bliss!"
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DebbieB Joined: May 2002 Posts: 1,834 |
Mar 26, 2008 12:05 pm
DebbieB wrote:
Laura, I've got my fingers crossed that your tests will turn out great! It sounds like you have a great onc. I thought I did but I'm not so sure anymore. I did google about the slow infusion of Adriamycin and there are studies that show it does reduce the risk of heart damage!!! I had never heard that before and it's definitely good info to know for ladies who may be facing chemo. You may think that your heart will be fine but I had been healthy my entire life. Never had high blood pressure, high cholesterol, don't smoke, rarely drank (and now can't drink), ate lots of veggies and fruit and haven't been overweight. I was supposed to be really low risk for bc and not only developed bc but went on to have heart problems! You just never know. I'll say a prayer for your sweet baby boy! It doesn't matter what is going on with us, we always seem to put the kids first!!! And you just absolutely hate when they are sick! I hope he responds to meds so he doesn't have to have a bronchoscopy! Take care. Keep us posted on your tests and your baby. Debbie Dx 10/31/2001, IDC, 2cm, Stage II, Grade 3, 0/9 nodes, ER-/PR-, HER2+ |
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SandyL Joined: Oct 2002 Posts: 1,472 |
Mar 26, 2008 03:12 pm
SandyL wrote:
Hi Laura and Everyone,
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Ltb3105 Joined: Jul 2002 Posts: 1,980 |
Mar 26, 2008 06:03 pm
Ltb3105 wrote:
Hey to all who have recently posted! Thanks for checking in! Lilia, didn't you used to be "Denisa" or some screen name like that? I sure do remember you! You had dark hair, tall and thin, and we chatted up quite a bit at that luncheon...sadly, "Sunshine" was there too, and we cursed up a storm *tear*. I will check back in on Friday, when I see the oncol. for the results of my latest round of testing. Later all. Laura
Dx 7/1/2002, IDC, 1cm, Stage I, 0/0 nodes, HER2- |
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Shirlann Joined: Feb 2002 Posts: 7,050 |
Mar 26, 2008 07:28 pm, edited Mar 26, 2008 07:31 PM
by Shirlann
Shirlann wrote:
Hi my dear, precious sisters! I am still here, 72 and 9 & 1/2 years post treatment, and Marci Beth is just fine, she is 5 years plus out, and Lori too. We lost Sunshine from that group that did the show on CBS, but the rest of us are fine.
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Jellydonut Joined: Jul 2007 Posts: 729 |
Mar 26, 2008 07:47 pm
Jellydonut wrote:
I was also diagnosed in 2002 and came here in early 2003 when I thought I had bone mets (it tuned out I did not). Ruth Evans was the first to welcome me and ease my fears. She was such a dear. I thought I saw her name on the Angel's List a while back, but it's not there now. Does anyone know about Ruth? I also remember FighterLu as I always read her posts. The boards were so very different back then, as some have stated. Didn't post frequently but read often, then stayed away until last year. I second "God Bless Us All!" Six Years.
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Binney4 Joined: Aug 2004 Posts: 4,892 |
Mar 26, 2008 10:50 pm
Binney4 wrote:
I guess I'm an oldie too. I've been Binney4 for a long time now, but I live always with the awful knowledge that at any moment I may be forced to become Binney5. Other than that, I'm well. I'm of course a lymphomaniac, which will be no news to any of you. I still hang out here every day hoping to catch any Sisters who fall through the lymphedema-shaped hole in our current medical care system. Hoping for only good news from those of you waiting on (ugh!) test results, and especially for your precious son, Laura. SO GLAD he's feeling well! Be well! And don't anybody swell! Binney |
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rrs Joined: Mar 2005 Posts: 902 |
Mar 27, 2008 12:01 am
rrs wrote:
Good to hear from you all. I was dx in 2001. Doing great except for that darn lymphedema. I usually just check the lymphedema, alternative treatments and research areas anymore. Just decided to look around more tonight. Has anyone seen Rose? Don't remember her user name but I used to see her posts in the tamoxifen section. |
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SandyL Joined: Oct 2002 Posts: 1,472 |
Mar 27, 2008 02:50 am
SandyL wrote:
jellydonut,
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SandyL Joined: Oct 2002 Posts: 1,472 |
Mar 27, 2008 02:57 am
SandyL wrote:
Binney,
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NaughtybyNa
Joined: Oct 2003 Posts: 937 |
Mar 27, 2008 11:12 am, edited Mar 27, 2008 11:13 AM
by NaughtybyNature
NaughtybyNature wrote:
Laura: Denisa is still Denisa. She is fine, just very busy. And yes, I used to be tall and skinny... LOL Shirlann: my sweet beautiful young lady... how are you? Sierra:... how's Canada? I was just there for Easter. So happy to see many of the "faces" from my time still around, even those that I personally did not talk too but "know" them from seeing them around... and yes... the Boards have been quite different for some time now... even causing me to leave for a good time... Nevertheless, good to see you all. Class of 9/5/2003 - " If knowledge is power, I prefer ignorance’s bliss!"
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AnneW Joined: Oct 2002 Posts: 3,292 |
Mar 27, 2008 03:45 pm
AnneW wrote:
Shirlann, I'm glad to hear that Marci Beth is fine. She had the most wicked sense of humor! Tell her I miss her! Anne Anne
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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Ltb3105 Joined: Jul 2002 Posts: 1,980 |
Mar 27, 2008 04:15 pm
Ltb3105 wrote:
Guess what just happened to me?! I lost my big toenail....again! Goddamnit, I've had this happen several times since chemo, and damned if it doesn't always happen around the warm weather, when I get pedicures and wear sandals!!! My manicurist says they can't put on a fake toe nail, so I am down to painting my Goddamned skin until the nail regrows...again! So glad to hear from everyone! This thread is growing yarn! I will let everyone know how the results from my tests went yesterday, as I see my oncol. tomorrow. Wish me luck! Laura
Dx 7/1/2002, IDC, 1cm, Stage I, 0/0 nodes, HER2- |
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Jellydonut Joined: Jul 2007 Posts: 729 |
Mar 27, 2008 07:10 pm, edited Mar 27, 2008 07:12 PM
by Jellydonut
Jellydonut wrote:
Sandy, Thank you so much for posting about dear Ruth. There's no doubt that Ruth is an Angel in heaven, for she was an Angel on earth. I've thought of her often and am so sad to hear that she passed. Sorry to hear of your lymphdema. Hope you're taking good care. Laura: Good luck, CUBED!! Six Years.
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Sierra Joined: Feb 2004 Posts: 4,922 |
Mar 28, 2008 05:50 am, edited Mar 28, 2008 05:57 AM
by Sierra
Sierra wrote:
The time is NOW!
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sam52 Joined: Oct 2003 Posts: 1,302 |
Mar 28, 2008 07:02 am
sam52 wrote:
The Yvonne from South Africa turned out to be very weird and got into a lot of aggro with various members.......and was banned...... It seemed in 'those days' we got rather a lot of trolls and funny people coming on the boards.Thank goodness it doesn't really happen now. Thank you BC.Org! |
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