Hi everyone,
As some of you may know, I was trying to make a list of our stage IV sisters with their contact information including their emergency contacts. Been working on it and finally I can tell you that it's done! The only difference between what I originally suggested and what now I think is that I would want this to be available for everyone (not only stage IV sisters but everyone on these boards) who wants to join. I have already contacted Melissa and made sure neither making the list nor posting about it is against the rules. So now it's official. I will explain how this works.
The link to the website is http://tamako.milkcafe.to/luv/AddrBook/addybook.cgi
On this page, you post your information by yourself. Of course you can see all the information posted on the page as well so that you can send stuff to those in need or do a card shower. It is easy as pie so do not worry. I have prepared several fields where you can fill in the information about yourself. Some of them can be left blank if you want. If there's anyone in particular who you communicate with here on BCO and would want them to contact you or your emergency contact if you went MIA, you can specify the name of that person and notify them of that. If you are registered by someone else as their contact person, you will check in with that person and give us an update if asked.
To protect information from identity theft, this website is password-protected. You need to PM me for the details on how you can gain access. (Do not PM me with your information. You need to post it by yourself.) However you will not be given the details unless you are either:
1. a member of these discussion boards on BCO of 6 months+ and have made 30+ posts
2. a member of these discussion boards on BCO of 2 months+ and have made 40+ posts
I apologize that this may sound a little too unfriedly to those are new here or haven't posted much but as a person that manages everyone's personal information on this website, I am responsible for protecting their personal information from being disclosed to an unauthorized third party. Your understanding will be appreciated.
I hope this help us unite as a worldwide family and make our bond even stronger. PM me for the details or any questions.
Hugs,
Fumi
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BinVA Joined: May 2007 Posts: 1,690 |
Jul 16, 2008 01:58 pm
BinVA wrote:
Wow Fumi!! Thanks for all your hard work!!! |
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BethNY Joined: Nov 2004 Posts: 5,020 |
Jul 16, 2008 02:17 pm
BethNY wrote:
You are such a blessing to us Fumi.... I appreciate everything you do so very much... I told you I only play to win....
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OneBadBoob Joined: Oct 2007 Posts: 882 |
Jul 16, 2008 02:36 pm
OneBadBoob wrote:
YOU ARE THE WOMAN, DEAR FUMI! Thanks so much for all you do for us! Jane - I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa
Dx 7/7/2007, IDC, <1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR+, HER2- |
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Sige Joined: Apr 2006 Posts: 2,356 |
Jul 16, 2008 02:54 pm
Sige wrote:
Way to go Fumi...!!! "A year from now you may have wished you started today."
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djd Joined: Apr 2005 Posts: 788 |
Jul 17, 2008 12:15 am
djd wrote:
Fumi, As usual, your tireless efforts to help others along this journey amaze and inspire me. I have added my information and look forward to this growing into a useful tool to help us all support one another through good times and bad. you rock! D Donna
Dx 12/13/2004, IDC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- |
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iodine Joined: Oct 2002 Posts: 7,682 |
Jul 20, 2008 11:39 pm
iodine wrote:
There you go again! You just never cease to amaze us all, Sweet Lady. Thanks so much for all your efforts. You are so appreciated. Dotti---BE NOT AFRAID, Pope John Paul
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laynel57 Joined: Jul 2007 Posts: 492 |
Jul 21, 2008 02:17 pm
laynel57 wrote:
Fumi, you are amazing! You do so much to provide the glue that bonds us together in this community. Thank you for your loving efforts, dear sister! Layne "Hit it with a sledgehammer until it submits or dies ...."
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livesstrong
Joined: Sep 2006 Posts: 2,400 |
Jul 21, 2008 05:08 pm, edited Jul 21, 2008 05:13 PM
by livesstrong
livesstrong wrote:
Thanks Fumi!!! You ROCK!!! But when I click on the link it asks for a username & password. HELP!!!! Valerie Someday I'll wish upon a star and wake up where the clouds are far behind me.
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FitChik Joined: Sep 2005 Posts: 4,817 |
Jul 22, 2008 12:41 pm
FitChik wrote:
Valerie...You have to PM Fumi with your request. And I agree....our Fumi does rock! ~Marin I can't change the wind, but I can adjust my sails!
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Pepper_B Joined: Jan 2003 Posts: 2,546 |
Jul 22, 2008 12:57 pm
Pepper_B wrote:
Fumi, You have added so much to our lives and we are certainly blessed to have you!!! Whoever said," winning isn't everything", never had to fight BREAST CANCER!
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Odalys Joined: Oct 2005 Posts: 2,828 |
Jul 24, 2008 11:25 pm
Odalys wrote:
Fumi - this is an excellent idea! Thanks for all that you do. Love and hugs, Odalys / I will survive - Yo vivire!
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newvickie Joined: Apr 2006 Posts: 6,497 |
Jul 29, 2008 02:53 pm
newvickie wrote:
bumping |
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Raye99 Joined: Sep 2006 Posts: 1,331 |
Aug 1, 2008 08:24 pm
Raye99 wrote:
Fumi-. Thank you for all you do and that is quite a lot- we are truly blessed to have you, Fumi. xoxo Raye Dx 7/14/2006, IDC, 5cm, Stage IIb, Grade 3, 3/9 nodes, ER-/PR-, HER2- |
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Roberta77 Joined: Feb 2009 Posts: 47 |
Mar 31, 2009 03:25 pm
Roberta77 wrote:
Hey, this site sounds super interesting, but I was unable to access it. Friends are the gems of life
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Reneepals Joined: May 2006 Posts: 1,155 |
Apr 23, 2009 09:34 pm
Reneepals wrote:
Fumi can I get the pasasword Renee
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lvtwoqlt Joined: May 2007 Posts: 4,533 |
Jun 25, 2009 04:03 pm
lvtwoqlt wrote:
bumping topic to top of active list. Sheila We are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt
Dx 4/27/2007, DCIS, Stage 0, Grade 1, 0/7 nodes |
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