Posted on: Jul 2, 2009 03:52 AM
Guilford, CT
Joined: May 2009
Posts: 449
rreynolds1 wrote:
Hi Everyone,
I started ratiation for my right breast 2 weeks ago. Almost immediately, I developed heart burn and nausea. It is mild but I never had heart burn before so I believe it is related to the treatment. The nurse said that it isn't a complication. Of course, she has never had breast cancer or radiation so I'm curious if any of you have had that reaction to radiation.
Roseann
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jpann39
South Eastern, WA
Joined: Dec 2006
Posts: 3,398
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Jul 2, 2009 04:07 AM jpann39 wrote:
Roseann
They ALWAYS say its not related but I believe it is as I too had heart burn issues with rads...Ask them now what is ok for you to use for heart burn so if yours follows through like mine did you will be prepared.....as time went on my heart burn got worse...I actually lived on those little cartons of chocolate milk because I over the counter meds didnt work for me. I didnt have the nausea that others talk of.....
Best wishes
Jule
'Gain strength by the positive and don't be sapped by the negative"
Dx 11/4/2006, IDC, 2cm, Stage II, Grade 1, 0/9 nodes, ER+/PR+, HER2-
idaho
Joined: Feb 2009
Posts: 1,190
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Jul 2, 2009 07:00 AM idaho wrote:
Of COURSE it isn't related to rads- according to them NOTHING is! I had slight nausea during rads, but no heart burn. I just don't understand why they think there are no side effects from rads- you are getting poisoned- of course there are side effedts. Definitely ask which antacid you can use- maybe even the purple pill until you are done. Peace and health to you, Tami
There's no place like home......There's no place like home
Dx 2/1/2009, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-
rreynolds1
Guilford, CT
Joined: May 2009
Posts: 449
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Jul 2, 2009 08:46 AM rreynolds1 wrote:
Thanks so much for your replies. The nurse was so dismissive. Her words were, "That's a stretch." Do they think we make this stuff up? I'll ask the techs about what I should use. They are much more respectful and have much more contact with the patients.
Roseann
Pat634
WI
Joined: Aug 2008
Posts: 29
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Jul 2, 2009 05:16 PM, edited Oct 19, 2010 03:30 PM
by Pat634
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Laura3
Joined: Apr 2009
Posts: 59
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Jul 2, 2009 09:36 PM Laura3 wrote:
Roseann, I feel very fortunate that my rad/onc and my techs never dismissed anything I said. They would tell me if it was common or very rare, but they always gave me suggestions on what I could do. My doctor came in to the room the next morning after I complained of a funny taste in my mouth and nausea to check where the field was hitting my stomach/esophagus (sp). She said she couldn't change it, it was as high as she could go. She then suggested a ginger tea. It worked very well for me. I also bought some ginger candy that I would eat on my way there in the morning. The good thing for me is that it went away after about 2 weeks. I hope it does for you also.
Hang in there, it will be over before you know it....
Take Care, Laura
Dx 2/2009, DCIS, , Stage , Grade 2, 0/0 nodes
jrgolomb
mi
Joined: Oct 2008
Posts: 1,231
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Jul 6, 2009 01:27 AM jrgolomb wrote:
Pat 634---I too have a sore neck whenever I finish rads. I sit there for about 15 minutes at most. But my neck is sore and tight.
Jess
Dx 10/16/2008, IDC, 1cm, Stage II, Grade 1, 1/17 nodes, ER+/PR+, HER2-
nelia48
FL
Joined: Jun 2008
Posts: 539
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Jul 6, 2009 02:54 AM nelia48 wrote:
I got so mad at the techs and my radiologist because it seemed that nothing was related to the treatments, even the burns! (I'm stretching on that one!) My ribs hurt, I had dark, dry patches on my neck, and even on my back, I felt soooo tired, AND I had pains in my chest and gut that made me feel like I was having a heart attack at times.
When I mentioned it to my primary care physician, she said that radiation has a lot of "scatter" to it, and she believed that it was causing problems with the esophogus and stomach. She gave me a prescription for Prolasac. Since I had some OTC Prolisac at home, I started back on that, and it did the trick.
I don't understand why the radiology departments can't just 'fess up and admit that there are some side affects to this and let us deal with it. I'm ok with some stomach issues --- I dealt with it during chemo and I could have dealt with it during radiation. Just let me know that that is what it is and I'll take something for it. Instead, I laying awake at night thinking I'm having a heart attack!!!!!
So try some stomach stuff and see how you do!
Visit my blog at
www.hiddenrichessecretplaces.b... Diagnosos: IDC - T4, N2, ER+, PR+, Grade 2, 5/15 lymph nodes, diagnosed 7/2008 Stage IIIb
rreynolds1
Guilford, CT
Joined: May 2009
Posts: 449
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Jul 16, 2009 05:16 AM rreynolds1 wrote:
I could not agree with you more! They must not want to deal with us concerning any complications. I wasn't complaining about my heart burn/nausea. I just wanted a recommendation as to how to deal with it so I could feel better. Frustrating to be treated like a hypocondriac.
Roseann
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Jul 16, 2009 11:47 AM Lauren4622 wrote:
I too had nausea and heartburn. I was told it had nothing to do with the radiation. It was about 2 weeks inot my sessions. It had gone away since I am very careful of what I eat. I have 2 treatments left! This is my first time on a discussion board and I want to say THANK YOU! I don't feel as though it is all in my head.
Any suggestions for the rawness under my breast? It looks like blister that has popped and is very painful. My doctor said I shouldn't wear a bra. Unfortunatly my breast is a DD so it doesn't get air cirrculation. I am putting Aquafor and Aloe on it but it isn't helping. I had to stop treatment for a few days.
jpann39
South Eastern, WA
Joined: Dec 2006
Posts: 3,398
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Jul 17, 2009 12:48 AM jpann39 wrote:
Laura
There is a medicated gel pad that my rad oncologist had me use when a blister popped open on the bottom of my breast.....dont let them tell you that they have no idea what you are talking about because I was told that ALL rad departments have/use them for sever rad burns....
I dont remember what it was called but it worked wonderfully...I had a left over one but sent it to a lady from here and didnt think to write down the name of it....I dont see anyone using these so I try to always post when I see questions about rad burns......
Ask about it and press them if they act dumb about it....they are expensive (I was told $40 each) but they last for about three days and soooooo very worth it.
Best wishes
Jule
'Gain strength by the positive and don't be sapped by the negative"
Dx 11/4/2006, IDC, 2cm, Stage II, Grade 1, 0/9 nodes, ER+/PR+, HER2-
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Jul 17, 2009 01:29 AM Lauren4622 wrote:
Thank you Jule! I will ask this morning.
jpann39
South Eastern, WA
Joined: Dec 2006
Posts: 3,398
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Jul 17, 2009 02:40 AM jpann39 wrote:
Im glad you saw this before your treatment today.....let me know what they tell you. If they give you guff about it I will call my rad nurse and ask her what the name of it is.
'Gain strength by the positive and don't be sapped by the negative"
Dx 11/4/2006, IDC, 2cm, Stage II, Grade 1, 0/9 nodes, ER+/PR+, HER2-
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Jul 18, 2009 09:58 AM Lauren4622 wrote:
He told me to try Desitin first. I put that on yesterday after treatment and it was very soothing. I am now done with treatment. He said to call if it isn't better in a week. I am hopeful!
Mouser
Joined: Oct 2008
Posts: 245
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Jul 18, 2009 10:57 AM Mouser wrote:
HiLauren --
I hope your Dr checked the raw area. I was warned i might have skin breakdown, so i didn't complain (expected means there's no need to say anything, right?) and by the time i saw the rad onc a week later, i had a roaring infection. It took topical and oral antibiotics to clear it up (partly because i was allergic to the topical ...). So don't hesitate to call in if it doesn't get better *very* soon. And at once if it keeps getting worse.
Also -- there are non-stick pads you can put between your breast and chest wall (I'm D to DD too), or between the bra and the raw area while the skin is raw -- the brand name is TELFA, and they really are way better than the gauze pads! (The rad onc told the nurse to give me some non-stick pads, but she gave me regular gauze, which stuck horribly. I guessed he's meant something else and found them at the drugstore.)
mouser
CHER07
Braselton, ga
Joined: Apr 2009
Posts: 16
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Jul 18, 2009 04:05 PM CHER07 wrote:
I agree totally.. same here @ my radioligist.. they blame chemo & chemo blames the rads.
Go figure. I had heartburn and took prilosec two times a day/ suggested by my oncologist.
I never really had that much nausea with chemo but as soon as i started radiation it really set in & stayed the whole 35 treatments. Tried everything. No real relief. sorry. Still have some in the morning even after treatments are over for 2 weeks.
cher07
Dx 1/5/2009, IDC, 2cm, Stage IIb, 1/3 nodes, ER+/PR+, HER2-
kbugmom
Joined: Jan 2007
Posts: 15,118
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Jul 19, 2009 09:57 AM kbugmom wrote:
I had rads to spine and ended up with esophogitous. I couldnt eat or drink hardly anything. The pain was so bad. Course came from rads which they did not tell me before hand. I was so sick lost lts of weight. I still have some problems from it after months. Good luck and God bless.
Susan
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Jul 28, 2009 12:28 PM Bellvadeer wrote:
Yes, Yes, Yes. I am totally frustrated. I have only had five treatments so far but I have been nauseated for the last couple of days. Everything I try to eat leaves a metalic taste in my mouth. My right breast (the one they are zapping) is very sore and downright painful on some days. It is always hot. I can't see a burn yet but I can feel it. I have even had diarreha for the last three days but I am told that is not a symptom, perhaps it's a virus. I am exhausted and they are telling me it is too early to be exhausted. I am struggling with my job because I was litterally too worn out to drive to work today. I wish the doctors would just tell what they see and admit that we may know more about what's going on in our bodies than they do! Thank you so much for letting me know that I am not the only one! Bellvadeer
Dx 6/15/2009, DCIS, 1cm, Stage 0, 0/0 nodes
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Jul 28, 2009 04:28 PM minniemouse592000 wrote:
I have the nausea. This is the starting of my fourth week of radiation and today was the first time I had any trouble with nausea or Heart Burn so I do think that it is due to the treatment, but I am not sure of that but I do know each person is different so what one person my go threw everyone else may not. I know that I am just totally run down have no energy at all could sleep all the time, now which I never was that way. Mary
Dx 5/4/2009, IDC, 5cm, Stage IIb, Grade 2, 5/5 nodes, ER+
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Jul 31, 2009 02:27 AM Jaypee60 wrote:
I, too, had radiation to my spine, but was told by my radiologist it would mess up my stomach. I didn't realize how bad. Could hardly eat anything, I was so nauseous; totally no appetite. I lost 20 lbs in that month alone. It's been 2 months since my last radiation treatment and, like you, my stomach still isn't back to normal. One of the Onc. nurses said it may not ever get back to absolutely normal again. I'll get diarrhea at the drop of a hat and must be very careful about eating refrigerated left over food. We put a refrigerator/freezer thermometer in to make sure the refer stays below 40 degrees and the freezer below 0 degrees.
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Jul 31, 2009 11:56 AM Bellvadeer wrote:
Lauren:
You might want to try aloe vera gel and keep it in the refigerator. That is helping my burn that is very irritating. I am only in week 2 and already have a burnt breast. NO BRA? I'm 51 years old and my breasts are too heavy these days to go without a bra. Although with the lack of appetite and nausea perhaps I will lose enough weight to go braless again someday. I tried drinking instant breakfast but that made the nausea worse. Has anyone found something they can eat and want to eat without repercussion? Anita
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Aug 1, 2009 11:19 AM Jaypee60 wrote:
Anita, has your radiologist given you any meds for nausea? I took Zofran and did not eat before radiation. Milk products tend to make nausea worse. Try toast without anything on it, baby applesauce or unsweetened applesauce, and my main staple chicken noodle soup. Tangy and tart vs. sweet was better for me. Even with the Zofran the nausea didn't go completely away. Hope this helps.
Pat634
WI
Joined: Aug 2008
Posts: 29
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Aug 3, 2009 07:53 PM, edited Oct 19, 2010 03:30 PM
by Pat634
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Aug 4, 2009 05:53 AM Bellvadeer wrote:
My radiologist didn't really believe me about the nausea. My primary care doctor gave me phenergan. This morning my radiologist told me to take the phenergan before I ate. I had a bagel and some cereal for vitamins. It didn't go well. No vomiting but nasty stomach pain and nausea. I will ask about Zofran tomorrow. I have the applesauce and have been eating dry toast. Thank you for the suggestions. I'll keep you posted. Anita
Dx 6/15/2009, DCIS, 1cm, Stage 0, 0/0 nodes
rreynolds1
Guilford, CT
Joined: May 2009
Posts: 449
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Aug 4, 2009 06:13 AM rreynolds1 wrote:
Hi,
Sorry you are so sore. My tech told me to buy a brand of bra called "Barely There" which you can get at Kohl's. It doesn't do much because I too have larger breasts but it feels great. I will hate to go back to the real thing when I'm healed.
You can find a company called Lots To Live For on the internet. I bought a great creme from them called "My Girls" which is for preventing skin damage from radiation. I use the Aloe but I felt I needed more as certain areas were very tender. This creme is heavy but really helped me. I use it after treatment and before bed. In between, I will use the Aloe if I need it or if I am wearing something that I don't want to get the heavier cream on. They will get it to you very quickly. They also have other radiation healing products but that's the one I chose.
Soon this will be just a bad memory for us.
Roseann
Pat634
WI
Joined: Aug 2008
Posts: 29
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Aug 8, 2009 04:29 PM, edited Oct 19, 2010 03:30 PM
by Pat634
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Aug 9, 2009 01:17 PM Bellvadeer wrote:
Thank you Roseann,
I have Barely There Bras and they are wonderful! Does anyone else have swelling of the breast that is being treated? I feel like my breast is engorged like it did after giving birth and milk engorged it. It is now so tender that any fabric touching me is very uncomfortable. I will check into the cream you mentioned. It is so good to have a place to talk to people who are experiencing side effects to the "no side effects radiation".
Dx 6/15/2009, DCIS, 1cm, Stage 0, 0/0 nodes
shaw77
Oakland, CA
Joined: Dec 2008
Posts: 10
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Aug 30, 2009 07:51 AM shaw77 wrote:
wow - I am 6 months past rads, but I suddenly developed really horrible reflux in June - I wonder if that could be related? I take OTC Zantac which works fine.
Dx 9/23/2008, IDC, 1cm, Stage I, Grade 1, 0/11 nodes, ER+/PR+, HER2-
gma5279
Houston, Tx
Joined: Jan 2008
Posts: 53
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Nov 20, 2009 11:11 PM gma5279 wrote:
I had two weeks of rads to my pelvic area which I finished a week ago. Since the day I finished I've had severe diarrhea and excruciating stomach pains and cramps, I can't eat! I've never been this miserable! Is there any end in sight?
Gina
Diagnosis: 12/1998, IDC, 1cm, Stage IV, Grade 2, 1/14 nodes, mets, ER+/PR+, HER2-
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Nov 23, 2009 12:28 PM, edited Nov 23, 2009 12:29 PM
by Jules824
I start rads soon (had simulation, get tats tomorrow yada yada theyre playing around for months).
But anyway, I just printed the side effects from the net here and Im showing my rads doctor tomorrow. All she does is lie. She said the first day I met her, quote "If you get sick, see your family doctor, rads didnt do it" So Im telling her about it with paper in hand. (I didnt tell my husband, lol, he would have a fit, but Im tired of them downplaying rads, its radiation not a walk in the park.
cherneski
Belvidere, NJ
Joined: Mar 2009
Posts: 721
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Nov 23, 2009 12:43 PM cherneski wrote:
I started puking my second day. Also my neuropathy flares up with it, not everyday but most. The techs tell me it is stress. UMMM I dont think so. So far so good on reflux, but I have heard it might be a problem.
Good luck, hugs to all. Debi
Deborah age 38 DCIS, IDC, ILC, BRCA- Rads now, puking with them. I CAN do this!
Diagnosis: 4/9/2009, IDC, 2cm, Stage IIIa, Grade 3, 7/13 nodes, ER+/PR+, HER2-