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All TopicsForum: Radiation Therapy - Before, During and After → Topic: December 2011 Rad

Topic: December 2011 Rad

Forum: Radiation Therapy - Before, During and After — What to expect from treatment and ways to cope with side effects.

Posted on: Nov 19, 2011 08:55AM

shelley2011 wrote:

Had my markings and mapping done today, Nov. 18th.  CT scan on Monday. Final check of mapping on November 28th and first treatment on the 29th.  30 in all.  First 25 2 positions to get breast and armpit, then the last 5 are a boost to surgical area.  Figured since most of my treatments will be in December it was time to start a topic. 

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Nov 19, 2011 09:25AM Reality wrote:

Hello Shelley,

Thanks - I write on the the Oct and Nov rad thread - will also be here with everyone on the Dec rad thread. I had treatment 7 out of 32 today. I had to add 2 extra days to my plan since the darn rad machine broke down for three days. I expected to make up the three days, but the extra two days were added as I went for five days in a row without treatment, due to a weekend being in the middle of the breakdown. Oh well....it is what it is.

Sher  

Sherry

Dx 5/23/2011, IDC, 3cm, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2-Surgery 09/28/2011 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)
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Nov 19, 2011 09:27AM kennylynne wrote:

Hi Shelley2011

I am with you...... Just had Ct scan and tatoos done Nov.14 and start 25 rad treatments on Dec 12th. Just had last DD Taxol yesterday YAHOO!!!!!! Glad you started the thread. Best of luck

Dx 5/17/2011, IDC, 4cm, Stage IIIa, Grade 2, 6/16 nodes, ER+/PR+, HER2+
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Nov 19, 2011 02:38PM Doodlebug12 wrote:

Hi girls, I am starting rads on either 5th dec or 12th and want to join your thread if that's ok. I have just finished 4 x AC DD and 4 x T DD and am feeling completely wiped out. Going to hosp on Monday for scans and simulation etc.. Fingers crossed that all goes well for us during this next stage of treatment. My RO seems to think it will be a walk in the park.... We will wait and see ūüėÉ xx michaela

Dx 5/1/2011, ILC, 1cm, Stage IIb, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Nov 19, 2011 11:24PM shelley2011 wrote:

Welcome Shirleta, Kennylyne and Michaela!  I am guessing that we will soon by joined by some of my friends from the Cytoxen/Taxotere x4 September group as most of them have also finished chemo and are lining up for rads to begin.

As I was reading some of the other rad topics I saw many women complaining that the sim took over an hour.  Or was that the CT?  I was only in the 'position' yesterday for maybe 15 minutes as she took measurements and photos and then tattoed me.  Is there something coming up soon that will cause me to have to lie there for an hour?  Or is that maybe just a difference from what medical system is doing the treatment?  

HUGS, Shelley

Dx 6/30/2011, IDC, <1cm, Stage Ib, Grade 1, 1/1 nodes, ER+/PR+, HER2-
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Nov 20, 2011 01:18AM Suz39 wrote:

Hi Ladies,

Shelley, I just read your post on the chemo thread, and found you here!  Great idea to start a group for rads. I'm not sure about times, because I haven't started, but my RO told me it takes 20 minutes each visit.

My first visit is on Monday.  I guess it involves a CT scan?  Not sure about tattooing, but I'm guessing that is happening on Monday too.  I will start the treatments on December 5th.  I've been told that I will have 18 zaps, no boosts that I know of.

I'm not really looking forward to doing this through the holidays, but I really want to get it over and done with.  I'm hoping that all of us will find it a walk in the park, but I don't want to take it for granted because of what I have read on other threads.  It looks like it can get pretty bad.

Hugs! 

Dx 7/6/2011, IDC, 3cm, Stage IIb, Grade 3, 1/3 nodes, ER+/PR+, HER2-
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Nov 20, 2011 10:05AM michelleo13 wrote:

Hello ladies! I just finished chemo (4 DD AC & 4 DD Taxol) on Tuesday and will be starting rads sometime in December - 30 tx. Looking forward to chatting with all of  you!

Lumpectomy, SNB, AND 7/06/11 - Chemo (4* AC DD 4*Taxol DD) - 30 Rads - Active treatment complete 1/26/2012

Dx 6/28/2011, IDC, 1cm, Stage IIa, Grade 3, 2/8 nodes, ER-/PR-, HER2-
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Nov 21, 2011 03:54AM kennylynne wrote:

michelleo13 I just finished the same chemo on Thursday!!!! How are you feeling? Where are you doing your rads? I am doing mine in London I am also from around your area. Welcome everyone!

Dx 5/17/2011, IDC, 4cm, Stage IIIa, Grade 2, 6/16 nodes, ER+/PR+, HER2+
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Nov 21, 2011 04:32AM michelleo13 wrote:

Kennylynne, I'm feeling okay today. Yesterday, I had cement legs and body aches but today is better so hopefully the worst is over. I'm doing all my treatments at Grand River Hospital in Kitchener.

Lumpectomy, SNB, AND 7/06/11 - Chemo (4* AC DD 4*Taxol DD) - 30 Rads - Active treatment complete 1/26/2012

Dx 6/28/2011, IDC, 1cm, Stage IIa, Grade 3, 2/8 nodes, ER-/PR-, HER2-
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Nov 22, 2011 08:57AM shelley2011 wrote:

Welcome Michelle and Suz!   I expect to see a few more here soon as I posted a reminder about this topic in the September chemo topic....

Had my CT scan this morning. Took maybe 10 minutes.  So now they do all their computer work, and then I go in Monday for the final check.  Tuesday will be first treatment.  Dreading this and looking forward to getting it over with al at the same time.

And welcome to our Canadian neighbors!

Dx 6/30/2011, IDC, <1cm, Stage Ib, Grade 1, 1/1 nodes, ER+/PR+, HER2-
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Nov 22, 2011 09:38AM michelleo13 wrote:

I'm going to see the RO tomorrow and then having the scans done on Wednesday. I should know more about timing after that.

Lumpectomy, SNB, AND 7/06/11 - Chemo (4* AC DD 4*Taxol DD) - 30 Rads - Active treatment complete 1/26/2012

Dx 6/28/2011, IDC, 1cm, Stage IIa, Grade 3, 2/8 nodes, ER-/PR-, HER2-
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Nov 23, 2011 12:24AM Suz39 wrote:

Hi Ladies,

I had my prep CT and tattoos done yesterday.  I've decided that the tattoos are the size of the inside of the "o", on my computer screen, as I am typing here.  They were like little pin pricks.  The CT was pain-free, just a little cold. I didn't have to wait, so the whole thing took about 20 minutes.  Afterwards I slept all afternoon, and then all evening, and then all night.  Not sure if it was the CT, or just the fact that I was day 12 post my last chemo treatment, or maybe it is the stress of embarking on yet more treatment after finishing chemo...  So looking forward to being all done!!

Hugs to everybody! 

Dx 7/6/2011, IDC, 3cm, Stage IIb, Grade 3, 1/3 nodes, ER+/PR+, HER2-
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Nov 23, 2011 12:50AM LuvRVing wrote:

Hi everyone!  I will be starting on 11/30 - simulation the first day, then 25 rads and 5 boosts.  I had my planning session last week and it was much quicker than I expected.  I think my arm was over my head for less than 10 minutes and it was broken up into two sessions.  I have 6 pinprick tattoos - they are tiny, not nearly as big as Suz39 describes.  Like everything else, every facility has its own methods. 

I had Mammosite radiation in June 2010 (in Overland Park, KS), so my radiation this time will be different.  I've since had a BMX and my new RO was very concerned about inflicting heart and lung damage.  I will be getting electron beam radiation, which uses a much shallower beam that can be directed at angles to avoid organ damage.  My RO is the Chief of Radiation Oncology at Dana Farber, and breast cancer is his sole focus. 

They'll be hitting my chest wall, the internal mammary nodes and the supra-clavicle nodes. The boosts will go to the mastectomy scar area. He warned me that my skin will probably take a beating.    I'm very happy that he will not radiate my axilla as that raises your risk of lymphedema to about 30%. 

And the biggie in all this...we live in Salem, NH, which is 42 miles from Dana Farber. The round trip will be at least 3 hours each and every day. I could have had rads in NH, but the RO here talked about 10-20% chance of damage to my heart and/or lungs and a 1 in 3 chance of killing my thyroid.  I will have about a 50% chance of a spontaneous broken rib, somewhere sometime in my lifetime.  Not much can be done about that because my ribs have already taken the brunt of the Mammosite rads from last year.  So we will suck it up and go to Boston, to the guy who has written the book on breast cancer radiation. 

I've already started treating my skin with Moisturel cream.  It was one of several potions on the list provided by DF and I have been using it on my face for 20 years, so that was an easy one.   

Michelle - read my blog at www.mch-breastcancer.blogspot.com - Be kind to one another!

Dx 6/15/2010, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2-Dx 3/29/2011, IDC, 4cm, Stage IIIb, Grade 3, 4/21 nodes, ER-/PR-, HER2-Dx 5/11/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2-
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Nov 23, 2011 03:38AM Moderators wrote:

Hi ladies;

Popping in here to share some helpful info on the main Breastcancer.org site on Radiation Therapy, including types of radiation therapy, what to expect, and how to manage side effects.

Hope this helps!

--Your Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...

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Nov 26, 2011 12:56AM kks_rd wrote:

Hi everyone,

I am *hoping* I'll get to join this thread.... my rads were delayed due to the need for re-excision to get clean margins.  I get my path report on Monday and have (optimistically) scheduled my simulation for Tuesday.  If everything's good to go, I suspect I will start rads mid-December and going through January.  Not sure of the total number but she said it would be somewhere around 30 and I will have boosts.

~Kat~ Neoadjuvant DD AC x4, T x4; PFC 9/15/11. Partial mx & SNB 10/18/11; reexcised 11/15/11. Rads x30 whole breast, x8 boosts; DONE 2/14/12. Metformin clinical trial 'til 12/2016.

Dx 4/29/2011, IDC, 4cm, Stage II, Grade 2, ER-/PR-, HER2-
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Nov 26, 2011 01:50AM LuvRVing wrote:

Hi Kat!  Hope you can get started, so you can get finished!!!

Michelle - read my blog at www.mch-breastcancer.blogspot.com - Be kind to one another!

Dx 6/15/2010, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2-Dx 3/29/2011, IDC, 4cm, Stage IIIb, Grade 3, 4/21 nodes, ER-/PR-, HER2-Dx 5/11/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2-
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Nov 26, 2011 02:27AM shelley2011 wrote:

On one of the other threads someone said there is a 30% chance of lymphedema from radiation!!!  Is that true???  Man oh man, that makes me think twice.

I am one month today out from last TC tx.  This past week I have lost the vast majority of my left eyebrow and two of the fingernails on my left hand are separating from the nail beds.  The fatigue is brutal - can't stand or walk for very long at all without feeling like I HAVE to sit down.  I am a little (or a lot) down today as I truly thought that a month out I would not be experiencing any new SE's from the chemo.  I SO want to feel better before the rads make me feel bad again.  GRRRRR!

At Thanksgiving dinner I learned that I could taste the green bean casserole and the little bit of garlic in the mashed potatoes.  Otherwise I was eating cardboard shaped like turkey and stuffing.  Couldn't even taste the cranberries!  Praying for a recovery soon.

HUGS

Dx 6/30/2011, IDC, <1cm, Stage Ib, Grade 1, 1/1 nodes, ER+/PR+, HER2-
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Nov 26, 2011 05:18AM Binney4 wrote:

Shelley, there's no evidence for the statement that rads presents a 30% chance of developing lymphedema. In the first place, because there are no accepted standards for diagnosing lymphedema there's no way to quantify it accurately. And secondly, there are lots of factors that might increase or decrease your personal risk of lymphedema, some of them known (overweight, for instance, or post-surgical complications like seroma or infection) and others still murky (like genetic predisposition). It also matters a lot what surgeries you've had and what areas they radiate.

Bottom line: much as we all fear lymphedema, preventing a recurrence of breast cancer is WAAAAY more important that preventing lymphedema. They're not even in the same class. So do keep the goal in mind.

And besides, there are a lot of simple life-style changes you can make that will help lower you risk of developing lymphedema.Smile You can find them at these two websites:

http://www.lymphnet.org (See their Position Papers on exercise, air travel, and risk reduction)

http://www.stepup-speakout.org/riskreduction_for_lymphedema.htm

Getting a referral from any doctor on your team for evaluation by a well-trained lymphedema therapist is a great idea. S/he will do baseline arm measurements for future reference, give you personalized risk reduction tips, measure you for a compression sleeve and glove or gauntlet to wear prophylactically for exercise or travel, and teach you a gentle lymph-moving massage. Here's how to find a qualified therapist near you:

http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

With lymphedema, the more you know, the less you have to fear, but it's up to you to learn about it. 

Hoping you're soon on your way to complete recovery!
Binney

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Nov 26, 2011 09:59AM shelley2011 wrote:

Thank you for those links, Binney, and for the information.  I will definitely speak with my RO about getting a compression sleeve for flying and will follow the exercise guidelines I saw on those sites.  Glad to hear that the 30% is not correct.  Seemed like it had to be wrong given how many women go thru radionation for BC, but then I saw it on a topic thread....

Thanks again!  First rad is Tuesday so I will keep you all posted.

Dx 6/30/2011, IDC, <1cm, Stage Ib, Grade 1, 1/1 nodes, ER+/PR+, HER2-
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Nov 26, 2011 04:38PM deep2deep wrote:

Joining you. My 33 tx start in December. I did TCH chemo 6/30 till 10/19 then BMX with ovaries out 11/9. It seems this may be the easy part...
Still feeling pretty beat after surgery though.

Dx 6/20/2011, IDC, 1cm, Stage IIa, Grade 3, ER-/PR-, HER2+
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Nov 28, 2011 11:02PM shelley2011 wrote:

Final mapping today, first round tomorrow.  I will keep you all posted....

Dx 6/30/2011, IDC, <1cm, Stage Ib, Grade 1, 1/1 nodes, ER+/PR+, HER2-
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Nov 29, 2011 12:03AM Southamptonmom wrote:

Hi there! I had a BMX with right lymph node dissection on 11/7. I had emergency surgery the same night after my mammary artery decided to burst open. Lost 3 liters of blood and nearly my life. I had neo-adjuvant therapy and horrible neuropathy from that as well. I had a cord-like something in my right arm when I stretch, and have noticed some fluid under my skin under my scars. Have any of you experienced this?

Heading out for my first appointment this afternoon. What should I expect or ask? Thank you. Rose

Rose Axillary tumor Her2+and tumors in breast Her2-

Dx 5/27/2011, IDC, Stage IIIb, Grade 3, mets, ER-/PR-, HER2+
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Nov 29, 2011 12:18AM kennylynne wrote:

HI Southampton Sounds like you have cording in your arm from the dissection and the fluid should disperse throughout your body in time get it checked out though you don't want a build up of fluid.Good luck on this journey

Dx 5/17/2011, IDC, 4cm, Stage IIIa, Grade 2, 6/16 nodes, ER+/PR+, HER2+
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Nov 29, 2011 04:11AM kks_rd wrote:

I just got back from the f/u with my surgeon, feeling so discouraged as it's not immediately clear from the path report what's going on.  One margin is close and BS wants to review the slides side-by-side with the pathologist... he will also present my case to the interdisciplinary team this week... hopefully by Friday we'll have a better sense of what's next.  In the meantime, my sim is moved out to 12/9, but of course that may be subject to change if the one margin is indeed too close for comfort.

I don't have much time off left so I am returning to work on Wednesday.  No sense in wasting my time off just waiting....

Hard to believe I want to start rads so badly!  Wishing you all lots of luck as December approaches.

~Kat~ Neoadjuvant DD AC x4, T x4; PFC 9/15/11. Partial mx & SNB 10/18/11; reexcised 11/15/11. Rads x30 whole breast, x8 boosts; DONE 2/14/12. Metformin clinical trial 'til 12/2016.

Dx 4/29/2011, IDC, 4cm, Stage II, Grade 2, ER-/PR-, HER2-
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Nov 29, 2011 04:55AM LuvRVing wrote:

Kat (((hugs)))  Hope you can start soon.

Rose - good luck today! 

Michelle - read my blog at www.mch-breastcancer.blogspot.com - Be kind to one another!

Dx 6/15/2010, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2-Dx 3/29/2011, IDC, 4cm, Stage IIIb, Grade 3, 4/21 nodes, ER-/PR-, HER2-Dx 5/11/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2-
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Nov 29, 2011 07:22AM shelley2011 wrote:

Welcome Rose and Kat!  HUGS to you Kat...we are here for you.

Had my final mapping check today.  RO talked with me afterward explaining that a new study came out about a month ago that shows a benefit in reducing recurrence rate if "super clavicle" area is also radiated.  That's the area between breast and collarbone.  However, risk of LE goes up.  Wanted to do the area on me.  We talked - I don't want to increase my risk of LE, but I need nodes radiated or BS wants to remove more, thereby increasing my risk of LE.  Geez oh man.  He agreed to make a few phone calls and called me back this afternoon.  Apparently the consensus among the RO's is that the benefit does not outweigh the LE risk right now.  However, he is going to increase the field of node radiation near my armpit which will keep my BS happy.  So, 8:15 am tomorrow is first tx.  Final is January 9th.  Will be counting the days!  He also said no extra B vitamins during rads but he's fine with my multi-vitamin and Biotin.

So far, so good, I guess....

Dx 6/30/2011, IDC, <1cm, Stage Ib, Grade 1, 1/1 nodes, ER+/PR+, HER2-
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Nov 29, 2011 09:53AM kennylynne wrote:

Wishing you luck tomorrow for your first rad tx Shelley2011!!!!

Dx 5/17/2011, IDC, 4cm, Stage IIIa, Grade 2, 6/16 nodes, ER+/PR+, HER2+
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Nov 29, 2011 10:30AM Southamptonmom wrote:

Had a long consult today with the RO. I have an appointment next Friday for planning. Going to have supraclavicular, intermammary nodes and chest radiation. Went directly to the surgeon's office, and had a seroma drained. Now I have to see LE specialist for the cording in both arms. What a long day...

Kat, you can have your slides sent to another pathologist for another opinion as well. Hugs to you.

Rose Axillary tumor Her2+and tumors in breast Her2-

Dx 5/27/2011, IDC, Stage IIIb, Grade 3, mets, ER-/PR-, HER2+
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Nov 29, 2011 01:37PM LuvRVing wrote:

Rose - your radiation is pretty much the same as mine.  I'll be a couple weeks ahead of you so I'll be able to let you know what to expect. 

Michelle - read my blog at www.mch-breastcancer.blogspot.com - Be kind to one another!

Dx 6/15/2010, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2-Dx 3/29/2011, IDC, 4cm, Stage IIIb, Grade 3, 4/21 nodes, ER-/PR-, HER2-Dx 5/11/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2-
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Nov 29, 2011 10:16PM Southamptonmom wrote:

Thanks, Michelle. I'm feeling pretty beat up. I know this is the easy part. Woke up with pain in my arm pit were they drained the seroma, my nails are killing me again, and I am having difficulty walking. I fell asleep reading about cording, and woke up crying. I can't stand it...

Rose Axillary tumor Her2+and tumors in breast Her2-

Dx 5/27/2011, IDC, Stage IIIb, Grade 3, mets, ER-/PR-, HER2+
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Nov 30, 2011 01:51AM bgail84 wrote:

I go tomorrow for simulation and begin rads on Thursday. Still waiting to hear from Onco Type DX test but suregon said to go ahead with rads. Has anyone started rads and had to stop to do chemo? Thanks.

surgery -11/03/11. No chemo, oncotype score 12 with 8% recurrence rate. 25rads,5boosts.

Dx 10/27/2011, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-Hormonal Therapy 02/02/2012 Aromasin

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