Ralston
Seattle, WA
Joined: Jul 2011
Posts: 351
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Jan 13, 2012 12:16 AM Ralston wrote:
I have had the same question since my RO suggested to unfill my TE before radiation. The idea of having TEs before radiation is that because expansion isn't possible (or is difficult) after rads, completing it before rads permits expansion that can lead to exchange to implants several months after completion of rads. RO insisted that the presence of TEs does not interfere with rads, and it is being done more now. Of course my skin is more delicate because it has been stretched but I am really angry for not been told about this before. According to my PS in his experience it doesn't make the difference. I will begin rads next week, so I willl find soon the answer.
DX @ 43 years old S/P UMX with TE on 6/16/2011. ALND on 7/1/2011.LE on 7/20/2011. 4X AC (7/19/2011-.8/30/2011). 12X Taxol (9/14/2011-11/29/2011). Tamoxifen 12/19/2011.
Diagnosis: 4/6/2011, IDC, 1cm, Stage IIa, Grade 3, 1/23 nodes, ER+/PR+, HER2-
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Jan 13, 2012 01:29 AM rayofsun wrote:
I had TE's placed and filled to a the desired level and then had radiation without trouble.
Ray
brca neg.SNB 10/09, bi;lateral mastectomy 4/10. DIEP , ooph and tubes removed 1/5.11.. started breast cancer vaccine study for her2 positive at hopkins on feb 2011.
Diagnosis: 9/30/2009, IDC, 6cm+, Stage IIIc, Grade 2, 1/25 nodes, ER+/PR-, HER2+
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Jan 13, 2012 07:59 AM Patrithia wrote:
Hello Ray,
Today is my 20th radiation treatment with 10 more to go. I also have TE and this week my skin began to show signs from the radiation (red and slight rash). Did this happend to you as well? If so, how long after completion of radiation did it heal? Have you had surgery to replace TE's with implants? If so, how long after finishing radiation. Thank you for your reply. Patricia
Ralston
Seattle, WA
Joined: Jul 2011
Posts: 351
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Jan 14, 2012 09:02 PM Ralston wrote:
Thank you Ray! You make me feel much better.
DX @ 43 years old S/P UMX with TE on 6/16/2011. ALND on 7/1/2011.LE on 7/20/2011. 4X AC (7/19/2011-.8/30/2011). 12X Taxol (9/14/2011-11/29/2011). Tamoxifen 12/19/2011.
Diagnosis: 4/6/2011, IDC, 1cm, Stage IIa, Grade 3, 1/23 nodes, ER+/PR+, HER2-
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Jan 14, 2012 09:08 PM mauimom wrote:
I had a TE placed and filled prior to radiation - going to my last radiation session Monday and haven't had any major problems due to the TE. The TE feels firmer, but we overexpanded prior to starting radiation. We'll see! My skin held up well until about a week and a half ago. Our original plan was to do the exchange surgery in March (about 6 weeks after the end of radiation).
Diagnosis: 3/17/2011, IDC, Stage IIIc, ER-/PR-, HER2+
Beaglesgirl
Singing Beagle Ranch, Mo
Joined: Mar 2011
Posts: 284
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Jan 14, 2012 10:10 PM Beaglesgirl wrote:
I had 33 tx with TE's. My RO told me that it was actually very effective medically. I don't know if it was true or not but I was very grateful because it made me feel so much better. I would say that I had a pretty crappy time of it but I don't think radiation is a cake walk for anyone. It took about 2 1/2 weeks for my skin to recover to a non-painful state. I called my PS and I have an appt him next month for additional fill and re-evaluation. Its been a month since my last rads tx and my skin right now looks darker than my other side ( I had a BMX ) but other than the color there is no evidence that I had so much trauma to the area just 30 days ago.
Keep the faith Sisters- I am on the other side of the radiation tunnel and I made it-YOU CAN TOO! Love and Hope. ~Laura
More of my journey at....daisiesarebetterthanroses.blogspot.com ~Laura
Diagnosis: 3/21/2011, IDC, 2cm, Stage IIb, Grade 2, 2/12 nodes, ER-/PR-, HER2-
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Jan 14, 2012 10:34 PM sundermom wrote:
My PS believes is having the exchange surgery before rads, but it doesn't sound like that is an option here. It didn't really work it for me despite getting the exchange out of the way beforehand. My incision just popped open about 8 weeks after my last rads, so I'm back to having a TE. I've read about lots of sisters having rads with TEs and then exchanges afterwards, so I think it must be pretty common.
Diagnosis: 11/8/2010, IDC, 2cm, Stage IIb, Grade 3, 2/32 nodes, ER+/PR+, HER2-
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Jan 14, 2012 10:52 PM FLislander wrote:
So glad to see this i have been asking around for a few days now. I'm in pre chemo b4 surgery and having BMX in 2 months. Said I would need radiation also and wondered about TEs heard some bad experiences but some good also. Guess I just need to keep positive and hope for best. It is nice to hear successful TE outcomes though
Diagnosis: 2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
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Jan 15, 2012 10:27 AM FLislander wrote:
Bump
Diagnosis: 2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
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Jan 15, 2012 10:53 AM FLislander wrote:
Bump
Diagnosis: 2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
Pegs
NJ
Joined: Jul 2010
Posts: 192
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Jan 16, 2012 07:55 AM Pegs wrote:
I had expanders in and had to have the fills completed before i started radiation, radiation made my skin tighter, and I got really burnt from the rads, it didn't happen right away but i was so bad i had a hard time putting my arm down by my side, make sure you use whatever lotion they give you, i used emu oil, but that was not from a doc. i found about it on my own. during radiation treatment i had no problems with my expanders, but 4 months after i finished rads, ps put in inplants, i wish i had waited longer , i don't think my skin had enough time to recover from the rads, just my opinion, anyway the inplant had to come out, went with tram flap.my only option. so really discuss when the exchange will be after you finish rads, it could make a different, i wouldnt rush it. just my opinion. good luck
Diagnosis: 5/4/2010, ILC, 5cm, Stage IIb, 0/7 nodes, ER+/PR-, HER2-
LisaMomOfFo
Western Suburbs of Chicago, IL
Joined: Oct 2010
Posts: 444
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Jan 16, 2012 08:10 AM LisaMomOfFour wrote:
My PS told me that I did have an increased chance of TE failure with radiation..... but I did have rads with a TE and had no issues. I developed a pimple on my radiated breast at some point during rads, and pointed it out to my doctors...well you have never seen so much attention on a pimple, and they promptly ordered around of antibiotics, as well as antibiotic cream, and it took care of it.
I waited about four months before doing the exchange.
Good luck, I found rads to be fairly tolerable.
Diagnosis: 10/9/2010, IDC, 2cm, Grade 2, ER+/PR+, HER2-
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Jan 16, 2012 08:43 AM sweetbean wrote:
Hi, i had 28 rads with TE's in. I used emu oil and aloe vera from the plant (not a tube) every day, at least three times a day. I barely burned - both my OT and my RO were astonished and have become believers in emu oil. After rads, I continued with emu oil 2-3 a day. My skin has headed extremely well - I will be having my exchange surgery on Feb 2, which will be 7 months after finishing rads. I have heard mixed results from people doing the exchange before six months, so I decided to wait. If my PS had wanted me to, I would have waited longer. But she says I should be fine.
Diagnosis: 11/18/2010, ILC, 5cm, Stage IIIa, Grade 2, 2/15 nodes, ER+/PR+, HER2+
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Jan 16, 2012 09:18 AM FLislander wrote:
Thank you, Thank you, Thank you it is so relieving to hear success with treatments before I go in, and I will buy that emu oil for sure. Have a great week sisters! Thanks for posting
Diagnosis: 2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
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Jan 16, 2012 07:03 PM FLislander wrote:
Bump
Diagnosis: 2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
Ralston
Seattle, WA
Joined: Jul 2011
Posts: 351
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Jan 16, 2012 10:47 PM, edited Jan 17, 2012 02:06 AM
by Ralston
Thank you! I will begin this week (25 rads). I bought the organic 99% Aloe Vera.
DX @ 43 years old S/P UMX with TE on 6/16/2011. ALND on 7/1/2011.LE on 7/20/2011. 4X AC (7/19/2011-.8/30/2011). 12X Taxol (9/14/2011-11/29/2011). Tamoxifen 12/19/2011.
Diagnosis: 4/6/2011, IDC, 1cm, Stage IIa, Grade 3, 1/23 nodes, ER+/PR+, HER2-
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Jan 16, 2012 10:57 PM mammalou wrote:
I had partial fills before 33 rads, then waited 2 months and slowly finished filling the TEs. I now have to wait 6 months for the exchange because of RADs. So far, so good.
Diagnosis: 1/11/2011, IDC, 3cm, Stage IIIb, Grade 1, 1/9 nodes, ER+/PR-, HER2-
sherry67
West Warwick, RI
Joined: Nov 2011
Posts: 317
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Jan 17, 2012 06:16 AM sherry67 wrote:
Hi my name is sherry new here but just wanted to say I used the pure aloe and acquphor they give you and had no issues with my skin. I started the aloe a week before rad a few times a day .
Diagnosis: 2010, IDC, 2cm, Stage IIb, Grade 3, 11/23 nodes, ER+/PR+, HER2+
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Jan 17, 2012 06:46 PM karen1956 wrote:
I had bilat with TE....had fills during chemo and was done with fills a couple months before starting rads....my skin got itchy but it wasn't awful.....the risk was will recon....rads increases the "failure" rate of recon...but I've had these implants for just about 3 1/2 years.....all the best to your mom
Karen in Denver, ILC, stage IIIa, ER/PR+, HER2-,
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Jan 18, 2012 11:59 AM FLislander wrote:
Bumping everyday
I love hearing success, I have 2 months til rads but I was really scared before this forum started. I like to know a bit b4 I talk to drs. Thanks to all posting!
Diagnosis: 2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
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Jan 23, 2012 06:02 PM FLislander wrote:
Bump
Diagnosis: 2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
Ralston
Seattle, WA
Joined: Jul 2011
Posts: 351
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Jan 24, 2012 04:38 PM, edited Jan 24, 2012 04:38 PM
by Ralston
Done with 2 out of 25. So far so good ;-)
DX @ 43 years old S/P UMX with TE on 6/16/2011. ALND on 7/1/2011.LE on 7/20/2011. 4X AC (7/19/2011-.8/30/2011). 12X Taxol (9/14/2011-11/29/2011). Tamoxifen 12/19/2011.
Diagnosis: 4/6/2011, IDC, 1cm, Stage IIa, Grade 3, 1/23 nodes, ER+/PR+, HER2-
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Jan 24, 2012 05:26 PM FLislander wrote:
Keep us posted, I'm 2 months behind you, have to finish taxol, then BMX
Diagnosis: 2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
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Jan 25, 2012 05:51 PM FLislander wrote:
Bump
Diagnosis: 2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
Ralston
Seattle, WA
Joined: Jul 2011
Posts: 351
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Jan 26, 2012 10:46 PM Ralston wrote:
I developed some redness after treatment everyday, but normally it is gone the next day. My skin is kind of "olive" ( I am not "white-pale"), so it looks like when I walk on the beach for an hour. Done 4 out of 25.
DX @ 43 years old S/P UMX with TE on 6/16/2011. ALND on 7/1/2011.LE on 7/20/2011. 4X AC (7/19/2011-.8/30/2011). 12X Taxol (9/14/2011-11/29/2011). Tamoxifen 12/19/2011. Rads began 1/23/2012.
Diagnosis: 4/6/2011, IDC, 1cm, Stage IIa, Grade 3, 1/23 nodes, ER+/PR+, HER2-
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Jan 30, 2012 01:50 PM FLislander wrote:
Bump
Diagnosis: 11/10/2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
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Jan 31, 2012 07:41 PM FLislander wrote:
bump
Diagnosis: 11/10/2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-
Ralston
Seattle, WA
Joined: Jul 2011
Posts: 351
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Feb 1, 2012 05:35 PM Ralston wrote:
Done with 8 out of 25. So far so good ;-)
DX @ 43 years old S/P UMX with TE on 6/16/2011. ALND on 7/1/2011.LE on 7/20/2011. 4X AC (7/19/2011-.8/30/2011). 12X Taxol (9/14/2011-11/29/2011). Tamoxifen 12/19/2011. Rads began 1/23/2012.
Diagnosis: 4/6/2011, IDC, 1cm, Stage IIa, Grade 3, 1/23 nodes, ER+/PR+, HER2-
Ralston
Seattle, WA
Joined: Jul 2011
Posts: 351
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Feb 20, 2012 11:51 PM Ralston wrote:
Well... 20 of 25 done. My "foob" is really tan/redish, I have two tiny blisters but it is not sore and it doen't hurt. My underarm is really dark "peeling", wounded and it's sore and hurts. I keep applying aloe vera and emu oil on my "foob", but I am afraid to apply anything under my arm, since I have mild lyphedema on my upper arm and I was told that any wound or infection could agravate it. Wait to see what the nurse says tomorrow, hopefully she will know what to do.
DX @ 43 years old S/P UMX with TE on 6/16/2011. ALND on 7/1/2011.LE on 7/20/2011. 4X AC (7/19/2011-.8/30/2011). 12X Taxol (9/14/2011-11/29/2011). Tamoxifen 12/19/2011. Rads began 1/23/2012.
Diagnosis: 4/6/2011, IDC, 1cm, Stage IIa, Grade 3, 1/23 nodes, ER+/PR+, HER2-
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Feb 21, 2012 08:54 AM FLislander wrote:
thanks for the posts, will be doing rads with TE end of March, thanks for the confidence
Diagnosis: 11/10/2011, IDC, 5cm, Stage IIb, Grade 3, ER+/PR+, HER2-