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All TopicsForum: Radiation Therapy - Before, During and After → Topic: Horrible pain in arm,armpit and breast

Topic: Horrible pain in arm,armpit and breast

Forum: Radiation Therapy - Before, During and After — What to expect from treatment and ways to cope with side effects.

Posted on: Feb 26, 2012 12:41PM

MonaNirvana wrote:

Hi everyone I'm almost 2 weeks out since radiation and I have really really bad pain! I cant sleep even 5 min!I cant move my hand..had Lumpectomy and 12 lymph nodes removed on july 19 and after that 6 sessions of chemo 3 FEC 3 TAXOTERE..and 30 radiation treatments..I dont know what to do to reduce my pain..please help me! Log in to post a reply

Posts 1 - 8 (8 total)

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Feb 26, 2012 01:43PM Momine wrote:

Have you been evaluated for lymphedema? Have you talked to your doc? Did you have the pain before rads as well?

Dx 6/1/2011, ILC, 5cm, Stage IIIb, Grade 2, 7/23 nodes, ER+/PR+, HER2-Chemotherapy 06/20/2011 Cytoxan, Ellence, fluorouracil, TaxotereSurgery 09/13/2011 Mastectomy (Both)Radiation Therapy 01/09/2012 ExternalSurgery 03/08/2012 Prophylactic Ovary Removal (Both)Hormonal Therapy 04/01/2012 Femara
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Feb 26, 2012 01:58PM dlb823 wrote:

Mona, that sounds like it could be lymphedema (trapped lymph fluid), but you should contact your breast surgeon for a followup exam, just to be sure it's nothing more concerning.  Do you have noticeable swelling anywhere -- like if you press where it hurts, does it leave a white mark for couple of seconds?  Go to the Forum Index above, and scroll down until you see the Lymphedema Forum.  Click on it and you'll find lots of information and specific discussion threads about it.  If it turns out that's what you have, you will need to be referred to a certified LE therapist for treatment, which will include self massage training to get the lymph moving and relieve the pressure.  But absolutely report your pain to your breast surgeon for a thorough evaluation, and please let us know what you find out!  So sorry you're dealing with that.  It sounds really painful if it's keeping you from sleeping...  Deanna

"The soul would have no rainbow if the eyes had no tears" Native American proverb

Dx 2/1/2008, 1cm, Stage IIa, Grade 3, 1/16 nodes, ER+/PR+, HER2-Dx 1/3/2014, Stage IV
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Feb 26, 2012 11:51PM MonaNirvana wrote:

HI Momine

I hadnt any pain before radiation..my doctors both oncologist & surgeon say this pain is noraml! but it seems its getting worse every day:(

Dx 7/19/2011, IDC, 2cm, Stage II, Grade 3, 2/12 nodes, PR-, HER2-
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Feb 27, 2012 12:05AM kathleen1966 wrote:

No, I don't think this kind of pain is normal. Could you have cellulitis in your arm?  Is the arm/hand red?  Do you have a fever?  Go to the ER if the answer is yes, you could have an infection!  Not normal, perhaps a lymph channel has been blocked because of the rads.  Don't listen to those fools, if you can't even sleep this is not normal.  Frown
Dx 7/26/2010, DCIS, 6cm+, Stage IIIa, Grade 2, 4/15 nodes, ER-/PR-, HER2+Dx 7/26/2010, Paget's, 1cm, Stage IIIa, Grade 2, 4/15 nodes, ER-/PR-, HER2+Dx 7/26/2010, IDC, 1cm, Stage IIIa, Grade 2, 4/15 nodes, ER-/PR-, HER2+Surgery 08/23/2010 Mastectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection, Axillary Lymph Node Dissection (Left)Chemotherapy 09/07/2010 carboplatin, TaxotereTargeted Therapy 09/07/2010 HerceptinRadiation Therapy 03/01/2011 External
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Feb 27, 2012 12:08AM MonaNirvana wrote:

Thank you Deanna . I am scheduled to be seen this week. I am not sure what is going on. I have noticed the pain increasing in the last few nights although i was forwarned that I would be experiencing pain after radition. I will keep you all posted and very much appreciate the ongoing support provided to me here. God Bless, Mona
Dx 7/19/2011, IDC, 2cm, Stage II, Grade 3, 2/12 nodes, PR-, HER2-
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Feb 27, 2012 12:15AM dlb823 wrote:

Mona, the pain you're describing is not typical post-RT pain.  Please try to see a doctor tomorrow, or consider the ER, as Kathleen wisely suggested, especially if you have either of the infection warning signs she noted.  On the chance it is an infection, that's not something you should try to ride out until your scheduled appt.    Deanna  

"The soul would have no rainbow if the eyes had no tears" Native American proverb

Dx 2/1/2008, 1cm, Stage IIa, Grade 3, 1/16 nodes, ER+/PR+, HER2-Dx 1/3/2014, Stage IV
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Feb 27, 2012 04:38AM Momine wrote:

Mona, it does not sound normal to me. Some pain from the burn is to be expected, but there is no good reason why your whole arm should hurt. I just finished rads as well, and I did have a flare-up of the vasculitis that was initially caused by the chemo. So, I have to conclude that the rads cause inflammation. However, if inflammation is that bad, you should get some help for it and they should definitely check you.

Dx 6/1/2011, ILC, 5cm, Stage IIIb, Grade 2, 7/23 nodes, ER+/PR+, HER2-Chemotherapy 06/20/2011 Cytoxan, Ellence, fluorouracil, TaxotereSurgery 09/13/2011 Mastectomy (Both)Radiation Therapy 01/09/2012 ExternalSurgery 03/08/2012 Prophylactic Ovary Removal (Both)Hormonal Therapy 04/01/2012 Femara
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Feb 27, 2012 04:58AM ma111 wrote:

Time to see a doctor. I have a few pain meds that help with things like that. My lymphedema doesn't hurt until it turns into cellulitis. Glad that you have doctors appointment this week.

Dx 8/4/2009, IBC, <1cm, Stage IV, 19/19 nodes, ER-/PR-, HER2+