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All TopicsForum: Radiation Therapy - Before, During and After → Topic: Summer 2012 RADS HANG OUT

Topic: Summer 2012 RADS HANG OUT

Forum: Radiation Therapy - Before, During and After — What to expect from treatment and ways to cope with side effects.

Posted on: Jun 19, 2012 06:14 AM

Stacie wrote:

We have a large chemo group about to come through and land here. Due to differing chemo end dates, this summer thread will welcome us all and keep us together! Others welcome. We are a very cool crowd with lots of support.

Dx 2/24/2012, IDC, 1cm, Stage IIa, Grade 3, 2/13 nodes, ER+/PR+, HER2-
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Jun 19, 2012 07:05 AM mt4ever wrote:

Hey Stacie! 

I will probably (hopefully) not start radiation until the beginning of September but wanted to jump in here so I can mark this topic too!  Wow we really are marching on aren't we! 

Welcome everyone!!!

Dx 2/15/2012, IDC, <1cm, Stage I, 0/2 nodes, ER-/PR-, HER2+Surgery 03/02/2012 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Chemotherapy 04/09/2012 carboplatin, TaxotereTargeted Therapy 04/09/2012 Herceptin
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Jun 19, 2012 07:28 AM Stacie wrote:

That's awesome mt. I will be starting in Aug so I will be here.

Dx 2/24/2012, IDC, 1cm, Stage IIa, Grade 3, 2/13 nodes, ER+/PR+, HER2-
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Jun 19, 2012 06:41 PM kjiberty wrote:

HI Stacie:  I will be joining hopefully around August 1!  Yeah!!!!!

Karen
Dx IDC, 1cm, Stage Ia, Grade 3, 0/3 nodes, ER+/PR+, HER2-Radiation Therapy ExternalSurgery 03/12/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 04/19/2012 Cytoxan, Taxotere
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Jun 19, 2012 08:05 PM Fierro6 wrote:

Bookmarked.  Smile
Dx 3/9/2012, IDC, 2cm, Stage IIb, Grade 2, 3/10 nodes, ER+/PR+, HER2-Surgery 04/18/2012 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left); Reconstruction: Tissue expander placement (Left)Chemotherapy 06/12/2012 Adriamycin, CytoxanChemotherapy 08/08/2012 Taxol
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Jun 19, 2012 09:49 PM sandik wrote:

Officially crashing! 

Scared!!
Dx 2/17/2012, IDC, 2cm, Stage IIIc, Grade 3, 2/4 nodes, ER-/PR-, HER2-Surgery 03/13/2012 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 04/02/2012 Lumpectomy (Left)Chemotherapy 04/25/2012 Adriamycin, Cytoxan
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Jun 20, 2012 09:08 AM Stacie wrote:

Yay!

Dx 2/24/2012, IDC, 1cm, Stage IIa, Grade 3, 2/13 nodes, ER+/PR+, HER2-
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Jun 20, 2012 07:34 PM onvacation wrote:

Hi there - I will start Rads in July/August after last chemo July 5th.  Thanks for starting this thread!

Kim
Dx 1/30/2012, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2-
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Jun 20, 2012 07:53 PM Stacie wrote:

Great name "onvacation" welcome.

Dx 2/24/2012, IDC, 1cm, Stage IIa, Grade 3, 2/13 nodes, ER+/PR+, HER2-
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Jun 20, 2012 07:58 PM Crestwood1957 wrote:

Started 2 days ago...12 total...found 4 very small tumors on my brain...just got done with Chemo in January due to stage 4 BC spread to other areas... this new hit scared and still scares me...Frown
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Jun 20, 2012 08:00 PM onvacation wrote:

Crestwook - wow - that is scary - big (((((HUUUGGGGSSSS)))) and healing thoughts coming your way!

Kim
Dx 1/30/2012, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2-
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Jun 20, 2012 08:00 PM kjiberty wrote:

Crestwood:  Keeping you in my prayers and sending hugs your way..

Karen
Dx IDC, 1cm, Stage Ia, Grade 3, 0/3 nodes, ER+/PR+, HER2-Radiation Therapy ExternalSurgery 03/12/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 04/19/2012 Cytoxan, Taxotere
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Jun 20, 2012 08:14 PM Melrosemelrose wrote:

Stacie- I'm so here. Not sure about having rads just yet but here just because..... 
Chemo 4/24/2012Taxotere/Cytoxan X 6 & Herceptin B-47 clinical trial:4/24.5/15.6/5/,6/26,7/17.8/7. DX 2/17/2012 Encapsulated DCIS 4cm/IDC 2cm, ER+/PR-/HER2- (+1), Stage IIb, Grade 3,0/5 Nodes
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Jun 20, 2012 08:15 PM Melrosemelrose wrote:

Crestwood- Sending you lots of (((HUGS))), positive healing & calming prayers, thoughts and energy!!!!
Chemo 4/24/2012Taxotere/Cytoxan X 6 & Herceptin B-47 clinical trial:4/24.5/15.6/5/,6/26,7/17.8/7. DX 2/17/2012 Encapsulated DCIS 4cm/IDC 2cm, ER+/PR-/HER2- (+1), Stage IIb, Grade 3,0/5 Nodes
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Jun 20, 2012 08:27 PM kjiberty wrote:

Melrosemelrose:  Glad you are here!

Karen
Dx IDC, 1cm, Stage Ia, Grade 3, 0/3 nodes, ER+/PR+, HER2-Radiation Therapy ExternalSurgery 03/12/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 04/19/2012 Cytoxan, Taxotere
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Jun 20, 2012 08:39 PM onvacation wrote:

Hey so Melrose, you aren't sure you if you have to do rads yet?  So wish I didn't, almost dreading it more than the chemo - weird right?

Kim
Dx 1/30/2012, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2-
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Jun 20, 2012 08:45 PM kjiberty wrote:

Onvacation:  Why are you dreading it more than chemo?  I can't imagine anything worse than chemo.  My sister is a radiation therapist and it almost sounds like the biggest side effect is fatigue.  Possible burns, but take care of your skin from the get-go.  People wait until their skin starts burning before they put anything on it.  You need to start using the creams (whichever works for you) from the beginning.  She recommended the Fruit of the Earth Aloe (found at WM), aquafor.  Some others have other recommendations.  

Karen
Dx IDC, 1cm, Stage Ia, Grade 3, 0/3 nodes, ER+/PR+, HER2-Radiation Therapy ExternalSurgery 03/12/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 04/19/2012 Cytoxan, Taxotere
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Jun 20, 2012 09:12 PM onvacation wrote:

I think it is because it is daily!  I am sure I will do fine, just ready to get it done!

Kim
Dx 1/30/2012, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2-
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Jun 20, 2012 09:32 PM Stacie wrote:

Crestwood I hope you have a good support system at home...you have one here for sure.

Dx 2/24/2012, IDC, 1cm, Stage IIa, Grade 3, 2/13 nodes, ER+/PR+, HER2-
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Jun 20, 2012 10:10 PM sandik wrote:

Oh Crestwood. That IS scary! Hope you are hanging in there. Feel free to vent or scream or whatever you want to do here. We are here for you! 

Scared!!
Dx 2/17/2012, IDC, 2cm, Stage IIIc, Grade 3, 2/4 nodes, ER-/PR-, HER2-Surgery 03/13/2012 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 04/02/2012 Lumpectomy (Left)Chemotherapy 04/25/2012 Adriamycin, Cytoxan
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Jun 20, 2012 10:25 PM Melrosemelrose wrote:

onvacation- Decided to hang out here with my gal pals until I find out for sure if I'm in rads camp or not.  My case has to go before the tumor board since my bc was incapsulated in that cyst.  Not embracing the rads but got to do what I can to make sure none of the nasty is still wandering around or hibernating.  I've known since day one that I might be having the deluxe treatment rads.  Hopefully I will know in July what is what.  I know you don't really want to be in rads camp either but we definitely can do this!!!
Chemo 4/24/2012Taxotere/Cytoxan X 6 & Herceptin B-47 clinical trial:4/24.5/15.6/5/,6/26,7/17.8/7. DX 2/17/2012 Encapsulated DCIS 4cm/IDC 2cm, ER+/PR-/HER2- (+1), Stage IIb, Grade 3,0/5 Nodes
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Jun 21, 2012 04:16 PM Cavelsalb1 wrote:

I'm starting rads on June 26. Been through the mastectomy and just finished chemo almost three weeks ago. This is my first post and I landed here since everyone seems so supportive. Still have some of the side effects from chemo going on and I am sure the rads won't be as bad. Hope I can find support and give some too

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Jun 21, 2012 04:24 PM Cavelsalb1 wrote:

Don't know why my profile stuff is not coming up with my post. I put it all in as public.

Dx 2/1/2012, IDC, 3cm, Stage IIb, Grade 1, 1/19 nodes, ER+, HER2-Hormonal Therapy FemaraSurgery 02/17/2012 Mastectomy (Both); Lymph Node Removal: Axillary Lymph Node Dissection (Right); Reconstruction: Tissue expander placement (Both)Chemotherapy 04/03/2012 Cytoxan, TaxotereRadiation Therapy 06/26/2012 External
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Jun 21, 2012 05:30 PM Fierro6 wrote:

There it is!  Welcome to our VERY supportive group.  Not that I'm biased or anything.Wink
Dx 3/9/2012, IDC, 2cm, Stage IIb, Grade 2, 3/10 nodes, ER+/PR+, HER2-Surgery 04/18/2012 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left); Reconstruction: Tissue expander placement (Left)Chemotherapy 06/12/2012 Adriamycin, CytoxanChemotherapy 08/08/2012 Taxol
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Jun 21, 2012 07:14 PM IndigoMont11 wrote:

Hi all! thanks again, Stacie, for creating this thread. 

I found out today that I should start rads around October 15.  Sounds like 5 days a week for 6 weeks, but I didn't get any more specifics just yet than that.  I am trying not to worry too much about it but honestly, I am more anxious about rads than I was either surgery or chemo.  I have sensitive skin and so will be very interested in tips to help it keep from taking too much of a beating.  I also plan to get some inexpensive black or dark colored T-shirts, in case I get sharpie marks and not tattoos.  All that info is yet to come!

The biggest downer for me though; it means a copay every treatment.  I am lucky that I'm able to work through this, and I have good insurance, and $40 isn't much here and there (i.e., for the chemo), but 5 days a week for 6 weeks will definitely be expensive, not to mention driving there every day.  *sigh*  I have just about exhausted my flex spending plan because I didn't count on the BC diagnosis and didn't make my allotments high enough prior to the first of the year, and am holding off on putting through any more reimbursements because my prosthetics will probably take the rest of the money still available.  I do have a savings account I kept open after paying off my car loan last year and fortunately, it is in a location not that convenient for me to get to, so I've been able to let it build up. ;-)  It will come in handy for those rads treatments.  

Sorry to whine about money - so far, in my case, the rads plan has been the biggest "sticker shock", but of course, I will do it!  I'm glad that if we have to do this, we'll all be in good company.  

A/Cx4 starting 4/20/2012 followed by Taxotere x4 starting 7/12/2012. "Hope is like a gift, both to give and receive" by author Vickie Gerard
Dx 3/2/2012, IDC, 5cm, Stage IIIa, Grade 2, 4/7 nodes, ER+/PR+, HER2-Surgery 03/21/2012 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left); Prophylactic Mastectomy (Right)Chemotherapy 04/20/2012 Adriamycin, Cytoxan, Taxotere
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Jun 21, 2012 09:04 PM kjiberty wrote:

Indigo:  I am sorry you have those co-pays.  Yes, they will be costly.  It's too bad you haven't hit your maximum out of pocket.  I hit mine early on--end of February, which is a good thing because i have been looking at my EOB's online and each chemo is 15K.  Ouch!

I need to make sure I put enough in next years FSA. I forgot to put any in there this year--first time ever... That's not going to happen again. 

Karen
Dx IDC, 1cm, Stage Ia, Grade 3, 0/3 nodes, ER+/PR+, HER2-Radiation Therapy ExternalSurgery 03/12/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 04/19/2012 Cytoxan, Taxotere
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Jun 21, 2012 09:04 PM Stacie wrote:

Welcome Cavelsalb1. Sorry you have to be here but so glad you picked us. And that you are proof chemo really does END. I have chemo 5 of 6 next Thursday then RAD.

Indigo I never even thought of a RADS daily copay. OUCH! I could have that too. I have aleady surpassed my deductible and coinsurance so everything BUT copays are paying at 100%. Thanks for the heads up.

Dx 2/24/2012, IDC, 1cm, Stage IIa, Grade 3, 2/13 nodes, ER+/PR+, HER2-
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Jun 21, 2012 09:05 PM kjiberty wrote:

Stacie--I will be sitting on the chair same day as you--it will be my last--I hope!  Then rads.

Karen
Dx IDC, 1cm, Stage Ia, Grade 3, 0/3 nodes, ER+/PR+, HER2-Radiation Therapy ExternalSurgery 03/12/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 04/19/2012 Cytoxan, Taxotere
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Jun 21, 2012 09:12 PM Stacie wrote:

Cool KJ!

Dx 2/24/2012, IDC, 1cm, Stage IIa, Grade 3, 2/13 nodes, ER+/PR+, HER2-
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Jun 21, 2012 09:13 PM onvacation wrote:

wow about the copays - I don't pay them for chemo, hope I don't for rads. Sucks that you have to.  I figure driving and parking everyday will be enough!  Just not right!

Kim
Dx 1/30/2012, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2-
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Jun 21, 2012 09:16 PM kjiberty wrote:

Stacie:  Check your maximum out of pocket on your insurance or on your EOB's.

Karen
Dx IDC, 1cm, Stage Ia, Grade 3, 0/3 nodes, ER+/PR+, HER2-Radiation Therapy ExternalSurgery 03/12/2012 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 04/19/2012 Cytoxan, Taxotere

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