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Mar 28, 2010 01:31AM Gitane wrote:
This is such a coincidence that you posted here. Just one hour ago I watched a program on television about a violin maker in Slovenia. He was amazing, and I got to see a great deal of the town where he lived and hear the music and language of Slovenia. I thought about you. Then I came here and there was a message from Slovenia. I ask you, what are the chances?!
You know, Matic, I know focusing on cancer is not good for me. However, I wonder if it is reasonable to ask a cancer patient to not think about cancer, and cancer coming back. Is it possible? Has your mother achieved this? Have your patients? It's one thing to know it's the thing to do, but it's very hard to do it, at least for me.
Sometimes I think if I were around people with more experience of life, older women who have "seen it all" in their lives, I would be able to talk to them, spend time with them, and get more perspective. My husband's aunt had breast cancer 30 years ago; she's 85 years old now. I got to meet her and talk on a trip we took 2 years ago. I told her about how my life changed with this diagnosis. She said that it was very early times, that I would adjust, that she remembers the feelings but they are gone now. Of course she survived, so that would help! She and her husband have first-hand experience of war, and have seen death many times. She told me to not work at getting past it, just let the feelings come. I would move on in my own time, when I saw the futility of my worry. I'm amazed at her zest for life. Anyway, she helped me.
When I asked my oncologist what to expect if it metastasizes, he said, "ILC goes to the linings of things", then gave some examples. It seems that my pleomorphic ILC is not like most, low ER level, almost no PR, yet slow growing. Does that make me an almost triple negative? It's very interesting that triple negative and Her2 positive may behave a bit differently. I will keep taking my Femara even after the 5 years are up, even with the low receptor levels. How many infusions of Zometa, at 6 month intervals, is considered the best now? Does one start on an oral bisphosphonate after stopping Zometa?
As always, your posts are full of excellent first-hand knowledge. Thank you for coming here and helping us keep up with ILC. I hope you don't mind such a long post.
With the kindest thoughts for our friend and oncologist in Slovenia, and her mother, too.
Dx 8/18/05, Pleomorphic ILC, multifocal, multicentric, G2, 1/9 nodes positive, OncotypeDX 23, ER+ PR- Her2-