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All TopicsForum: ILC (Invasive Lobular Carcinoma) → Topic: Who has opted for BMX?

Topic: Who has opted for BMX?

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Apr 28, 2011 09:56 AM

debbsie wrote:

With the difficulty of detecting ILC how many choose BMX for treament as compared to those with IDC?  After having alot of new discoveries after changing treatment centers and going through another round of biopsies, I wonder if there is more to be discovered and am thinking BMX may be the sanest path of treatment.  I had an additional are discovered in my right breast that I think will take me out of contention for a lumpectomy, and if I'm having one mastectomy I think I may as well do both and have them reconstructed at the same time.  I know alot of you have had to go through this decision process and would be interested in any advice you could offer.

 Deb


Diagnosis: 3/14/2011, ILC, 3cm, Grade 1, ER+/PR+, HER2-
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Aug 5, 2011 02:49 PM, edited Aug 5, 2011 02:50 PM by toomuch

Tina T - Thanks for the good wishes.

Ellie1959 - Posts like yours give me hope and scare me at the same time. It's amazing that your mom has been cancer free for 17 years. But so sad that you followed her with the same diagnosis. I look at my 19 yo daughter's breasts sometimes and just wonder what's going on in there. It's awful. Anyway, fabulous that you're NED at 5 1/2 years too.


Diagnosis: 7/13/2010, ILC, <1cm, Stage IIa, Grade 2, 2/12 nodes, ER+/PR+, HER2-
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Sep 22, 2011 06:05 PM, edited Sep 22, 2011 06:09 PM by sas-schatzi

This is a very good thread for those considering a prophy BMX. I will post it and come back with a link re:DR, Christine Teal if I can locate it.

abcnews.go.com/Health/breast-c...

Tested link and it works. will test again after posting

SAS
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Jan 17, 2012 11:25 PM sas-schatzi wrote:

BUMP

SAS
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Jan 18, 2012 07:47 AM bettypage wrote:

In Dec '08 I had IDC diagnosed in left breast, then after an MRI in Jan '09 I learned I had ILC in right breast. On 2-17-09 I had BMX w/immediate skin & nipple sparing reconstruction with gel implants. Next month is my 3 year BMX anniversary & I am very pleased with the results. I have no evidence of cancer & my breasts look & feel great.

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Jan 18, 2012 12:26 PM sweetbean wrote:

I had a NS BMX with great results.  Having my exchange in two weeks - wahoo!


Diagnosis: 11/18/2010, ILC, 5cm, Stage IIIa, Grade 2, 2/15 nodes, ER+/PR+, HER2+
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Jan 20, 2012 07:02 PM Galsal wrote:

I've opted for BMX.  Although it was a decision for great consideration and thought, I chose to go this way.  Does it scare me?  Oh hell YES.  But, between the feeling I can't shake there's something in the "good" breast that no scan has found yet, that this is PILC, that I'm a worrier and my quality of life would suck at always being on alert without the BMX, that there is a good chance they can't get a clean margin, and that there are four recent generations of multiple persons and types of cancer in each generation...I know it's the right choice for me.  It did surprise me slightly that the Nurse felt I'd made a good choice. 

Sally


Diagnosis: 12/14/2011, ILC, 1cm, Grade 2, ER+/PR+, HER2-
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Jan 21, 2012 07:48 AM, edited Jan 21, 2012 08:14 AM by sas-schatzi

sally. hope I make sense-------been up all night. I am a nurse and I choose to have a elective bmx  based on family hx, during the approval process BC was found. Please , please, seek Whippettmom /Deborahs advice- going through this process. I did not find her untill it was all done except nipples. Deborah can give you advice that most docs have't got a clue about. type , product size/

Not getting her advice ,I ended up with Foobs that are to big for my body size and pain for 2 1/2 years that I believe I didn't have to happen--------b/c the foobs were to damn big. plus I have to be seriously careful about LE, because the damn things are to big. I will go and bring her site back to you----------I was licesed in 1974----worked in teaching hospitals from 1974-till1988------------Operating room with 5 plastic surgeons---------sounds old school, Yes some techniques have changed, But Dboerah knows more about what to suggest than current  doc's Please listen to her advice

community.breastcancer.org/for...

tested it it works. Serious, we are the same age , have no clue how she keeps up with everyone.

 She is committed that if you get Foobs, you get the right size and type for you body

I told my doc exactly what I wanted and he gave almost 180 degrees opposite of what I asked for,

Debroha-----------is a guide that you will never find-------------ANYWHERE,

community.breastcancer.org/for...

tested link it works. Talk to wippetmom/ deborah ------------only for advice-------others are seeking advice, or can't let go of the site/thread b/c they just can't let go of Deborha. So , there are many others on the site/ thread, but is she that you need to talk too----------Sheila

SAS
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Jan 22, 2012 07:52 AM Galsal wrote:

both the links worked.  thanks for the input.  i'm not doing implants but it brings to mind a question - how do they judge what size to make when doing a Tram.  i'd love to be an average to full C, considering am now a DD/DDD and have been D since 16.  will continue reading!

sally


Diagnosis: 12/14/2011, ILC, 1cm, Grade 2, ER+/PR+, HER2-
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Jan 22, 2012 01:01 PM TinaT wrote:

I had multiple biopsies which had to be done by both US and MRI so the process took almost a month.  For several weeks I knew I had ILC and I really struggled to reach my decision for lumpectomy over mastectomy.  When my second cancer was found (DCIS in same breast) lumpectomy was no longer an option, but I easily came to the decision to do bilateral over unilateral MX.  My BS was very good about giving me the pros and cons of each, but seemed a bit relieved when I chose bilateral surgery.  At pathology I had multiple other areas of ADH that hadn't shown on mammogram, US, or MRI (oddly, still all in the same breast).  Even though all the pathology was in the same breast I felt really good about choosing bilateral surgery over unilateral. 

Surgery: NSBMX Feb 2011 for ILC and DCIS - More lobular neoplasia and multiple foci ADH in same breast found at surgery - Oncotype DX = 18 (No Chemo!) - Anastrazole April 2011 - Exchanged TEs to silicone implants Aug 2011
Diagnosis: 12/8/2010, ILC, <1cm, Stage Ib, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Mar 3, 2012 12:25 AM ccjj wrote:

My ILC did not show up mammo, so I knew BMX for me.  I did not want to spend hopefully many years stressing about another mammo not picking up more ILC.  Plus with a BMX I avoided radiation. My cancer was on the left and I know they are good at pointing that beam these days, but 6 weeks of that was very unappealing to me.


Diagnosis: 7/7/2011, ILC, 2cm, Stage IIa, Grade 2, 1/9 nodes, ER+/PR+, HER2+
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May 30, 2012 07:25 PM msippiqueen wrote:

Hello Ladies,

Pardon my reading your thread as I am an LCIS girl. May I use the ABC News link SAS recommended a few post back for the LCIS forum? It may be useful when LCIS women consider their options of watchful waiting or PBLM.

I would also like to invite you, though no invation is needed, to come visit us on the LCIS forum and post anywhere you would like.

We have a robust discussion going on about LCIS and it's relation to ILC. Whether ILC can show up without first originating from LCIS. I am a rare visitor here but as we're discussing ILC on the LCIS forum, I popped back in.

If I have overstepped in anyway here, I apologize in advance and will apologize specifically as needed, just let me know.





Support a woman's right to chose...mastectomy.
Dx 4/28/2010, LCIS, <1cm, Stage 0
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May 30, 2012 07:56 PM mary625 wrote:

I will take up your invitation to join on the LCIS forum because I had both LCIS and ILC in my tumor. 

Dx 8/29/2011, ILC, 1cm, Stage IIIc, Grade 2, 10/16 nodes, ER+/PR+, HER2-Chemotherapy 09/26/2011 Adriamycin, Cytoxan, TaxolSurgery 02/06/2012 Mastectomy (Both); Lymph Node Removal: Axillary Lymph Node Dissection (Left)Hormonal Therapy 03/12/2012 FemaraRadiation Therapy 03/13/2012 External
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May 30, 2012 09:30 PM msippiqueen wrote:

The LCIS forum will be enriched by your joining us, mary625. I welcome you in advance!

Support a woman's right to chose...mastectomy.
Dx 4/28/2010, LCIS, <1cm, Stage 0

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