Posted on: Oct 18, 2011 03:09 PM
Joined: Oct 2011
Posts: 2,483
yorkiemom wrote:
My pathology report says it is a well-differentiated grade 1 lesion. The malignant cells have fairly small uniform nuclei. No mitotic activity is noted. No significant in situ carcinoma component is present No definite lymphovascular invasion by tumor is noted. My surgeon says my prognosis is very good, if there is no lymph node involvement, which she does not think there is. Am cautiously optimistic but confused about the technical jargon!
I had a MRI on both breasts today to see if there are any other lesions.
I would appreciate any information about this disease and your experiences with it. Thanks for being here!!
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Racy
Brisbane, Q Australia
Joined: Jan 2011
Posts: 1,859
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Jan 7, 2012 04:31 AM Racy wrote:
Momine, I may be wrong but I didn't think cysts could become cancerous.
My scans revealed lots of cysts for years before my BC diagnosis and noone ever suggested this was a problem except that they obscured the view of my breasts.
Diagnosis: 2010, ILC, 2cm, Stage IIa, Grade 3, 0/22 nodes, ER+/PR+, HER2-
Momine
Joined: Dec 2011
Posts: 4,099
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Jan 7, 2012 04:34 AM, edited Jan 7, 2012 04:37 AM
by Momine
Racy, as far as I know cysts can indeed develop into cancer. Friend of mine had to have fluid drawn from her cysts annually and eventually they found cancerous cells in some of that fluid. However, she had a family history and I am sure plenty of cysts never become cancerous. But the docs certainly wanted to check mine.
Diagnosis: 6/1/2011, LCIS, 5cm, Stage IIIb, Grade 2, 7/23 nodes, ER+/PR+, HER2-
Galsal
Tampa, FL
Joined: Dec 2011
Posts: 1,274
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Jan 7, 2012 09:48 AM, edited Jan 31, 2012 02:52 AM
by Galsal
This Post was deleted by Galsal.
beth1965
woodstock, on
Joined: Jan 2012
Posts: 254
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Jan 30, 2012 04:26 PM beth1965 wrote:
Family Doctor says he has never seen my type of cancer in over 40 years. I did not think ILC to be that rare.
Diagnosis: 1/18/2012, ILC, 6cm+
Racy
Brisbane, Q Australia
Joined: Jan 2011
Posts: 1,859
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Jan 30, 2012 07:01 PM Racy wrote:
Beth, I think it's about 15% and rising. My BS said 25% of his patients have it.
It is supposedly more common in older patients. I was 48 and I am guessing you are 46.
Hopefully you will get a specialist with knowledge of this cancer. Let us know how you get on.
Diagnosis: 2010, ILC, 2cm, Stage IIa, Grade 3, 0/22 nodes, ER+/PR+, HER2-
suzieq60
Brisbane Australia
Joined: Nov 2009
Posts: 5,317
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Jan 30, 2012 11:51 PM, edited Jan 30, 2012 11:52 PM
by suzieq60
Beth - I was 57 at diagnosis and was even rarer being HER2+ve and hormone receptive - very rare indeed. What is your status regarding HER2 etc?
2nd diagnosis October 2010 - IDC 5.8mm node negative - missed on mammogram in October 2009
Diagnosis: 10/13/2009, ILC, 1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2+
beth1965
woodstock, on
Joined: Jan 2012
Posts: 254
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Jan 31, 2012 01:52 PM beth1965 wrote:
Maybe the lower % of ILC is why my doc never saw this before. Yes i am 46
I am not sure yet about my status. All i know is that BS/Oncologist said from tests i have ILC with 9cm tumor and just did MRI and they said take out all nodes. I am have BMX + NODES ON 1 SIDE FEB.2ND. I AM thinkimg they will be able to tell me more soon.
I am not sure what to ask to get those results- HER2 ETC... as i am still figuring out what all those things are. I am DX 2 weeks now and still learning.
Diagnosis: 1/18/2012, ILC, 6cm+
mary625
VA
Joined: Aug 2011
Posts: 419
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Jan 31, 2012 05:28 PM mary625 wrote:
Beth--it takes a little longer to get the results on hormone receptors back from pathology, but if you were diagnosed two weeks ago, they should have them by now unless they do things differently where you are. I would suggest calling and asking them if you are ER/PR (ER=estrogen and PR=progesterone) positive or negative and if you are HER2neu (pronounced hair two new, I think) negative or positive. Being positive on ER and PR is a good thing because that means that you may be eligible for hormonal therapy after surgery and other treatments. That will help with preventing recurrence. I think I read somewhere that most ILC is hormone positive, but don't quote me on that. HER2neu negative is the best result. HER2neu positive is a more aggressive type and requires an additional drug called Herceptin. Getting the call that I was ER+, PR+ and HER2neu negative was the best news possible after the diagnosis. There are also some other results from the biopsy that you should get as well. I usually get all of my test results in writing and am trying to save them in a file, although I lost quite a few by mistakenly giving them to the MRI technician while under the influence of valium and nerves!
Diagnosis: 8/29/2011, ILC, 6cm+, Stage II, Grade 2, ER+/PR+, HER2-
suedustin
manchester, nh
Joined: Dec 2011
Posts: 2
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Feb 1, 2012 07:01 PM suedustin wrote:
Am new-had a lumpectomy a week ago. Stage I-- waiting for the final path report. Supposed to take a pill and not radiation. Swollen breast but no pain.
suzanne dustin
Racy
Brisbane, Q Australia
Joined: Jan 2011
Posts: 1,859
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Feb 1, 2012 09:00 PM Racy wrote:
Hi suedustin and welcome to this good place. Radiation is standard with lumpectomy for invasive breast cancer. Did you refuse radiation or was your diagnosis Lobular Carcinoma In Situ (pre-invasive cells)?
You can come to this site for information, to get or give support and for companionship.
Diagnosis: 2010, ILC, 2cm, Stage IIa, Grade 3, 0/22 nodes, ER+/PR+, HER2-