Topic: Poll How many TN's have had Endometriosis:

Nope, no endometriosis. However, I do have an auto-immune disorder. You might rephrase your question to ask if triple negatives have any type of auto-immune complaint. Do you think there could be a connection?

Annie

Hi all,

 Triple negative. Endometriosis--had hysterectomy in 1999. Have been on Thyroid meds for hypo for many years.

No family history of breast cancer.

 I hope this helps your poll.

Nancy

Hi Kay,

I had fibroids and a very heavy flow before I was diagnosised with breast cancer.  I now have some autoimmune concerns.  Hope you get lots of feedback.

Warmly,

Sadie

Had endometriosis, yes.  Had hysterectomy at age 38.  Diagnosed with bilat breast cancer at 44.  No other issues with auto-immune or thyroid.

Keep laughing,

Jenny

No problems with any of the above for me. Had my thyroid tested post treatment and it was normal.

Sue

Endometriosis & Crohn's disease (also an auto-immune disorder).  Hysterectomy was recommended to me 4 years before BC dx.  finally had the hysterectomy after dx because I could not be tested for endometriomal cancer due to a severely tipped uterus.  Had a grapefruit sized endometrioma removed in 1992.  No really family history of BC, just a first cousin.  You might be onto something here.

Endometriosis 10years before BC diagnosis.

Triple-neg tumors in 2005 and 2007.

Evidence of endometriosis found during 2003 hysterectomy for adenomyosis (a condition also involving the lining of the uterus).

Hypothyroid for at least 15 years. (Can't remember when I started thyroid meds...)

--CindyMN 

I had endometriosis, also fibroid dysplasia and subsequent hysterectomy when 32 years old. Diagnosed with hypothyroidism in 2000, but since treatments for triple-neg stage IIB in 2007, thyroid now tests normal. Does that help?

I have a sideways question concerning this since it seems to relate to autoimmune type things - I'm celebrating one year since last chemo today, and finished rads on Nov. 19th 2007. Does/did anyone else have joint pain that far out? From what I've read in other venues, it's not unlike symptoms of fibromyalgia or even some forms of lupus. Thanks.

~ Mo in Oklahoma

Bet you like exercise now, because you can see the benefits.

I am 54 and TN now, and on chemo. DX on 7/23/08... will have bilateral mast later.   Yes... when I was 35 I had an ovary, and tube removed as well as a huge endometrioma that had engulfed them. Wish now that I had had a complete hysterectomy, although I just found out yesterday that my bc is not genetic.   (All the women on my father's side of family have had it and/or died from bc. Go figure?   Just don't have the right tests yet... I think.)>

Anyway... think you may be on to something.  I was noticing a casual link between sinus infections/antibiotics and bc from posts on another site.   I've had plenty of them too!

sue

Yes, I had to have a hysterectomy in my early forties for endometrosis, but I also have an non specific autoimmune disorder alin to lupus that I have been in treatment for many years as well.

I had extremely heavy periods for years, was put on the pill in my 40s and that worked. Once I went off them at 51 by doctor's instruction, the heavy weeks long periods came back. Never diagnosed with endo, but I am interested in this thing with auto-immume/fibromyalgia/osteoarthritis because I have days where I just ache everywhere, then it goes away and I feel good for a while. Does anyone experience this? When I say ache, my feet hurt, my back hurts, neck, hands, everywhere.  Then it goes away, and is less achy, more tolerable. I thought it was just stress, but am wondering now if chemo and rads did this. And, will it go away? I walk and feel better usually after walking. Trying to keep very grateful for every day and positive outlook, but it's not always that easy.

cas145,

Here in the US we have CT Scans or Pet Scans the first year along with blood work. Your scan schedule is usually done by how high risk you are.  Higher your risk for recurrence's ( a lot of nodes positive, bad tumor margin from surgery, etc...) the more often they will do scans. If you had a recurrence before they usually scan every year or six months.

Flalady

Another triple neg here.  I had endometriosis resulting in left oophorectomy in 1988 (age 27).  Was diagnosed with BC in 1996.