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Topic: Calling all TNS

Forum: Triple Negative — Share with others who have ER-/PR-/HER2- breast cancer.

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Posted on: May 1, 2010 11:59 PM, edited May 2, 2010 12:02 AM by Titan

Titan wrote:

I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having.

What to do you think?

I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads (including 7 boosts) mammogram every 6 months for 5 years (I think). see the onc every 3 months for 3 years, see the Bs every 6 months for 3 years (I think). see the rad onc 1 year after rads...probably won't see him any more after that... I think this may be a good way to get all together...we can still have separate threads..but sometimes it would be nice to just go to one thread and have a cry or concern without worrying about not being on topic What do you all think? ..


Diagnosis: 3/18/2009, IDC, 1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Posts 13651 - 13680 (21,177 total)

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Apr 13, 2012 09:55 AM Luah wrote:

Christina: So very sorry to hear about your MIL. She sounds like a real gem. How nice that you got to spend some intimate moments together and share your love for her. It's good she went peacefully and painlessly - even though a sudden passing is so hard on family members.

Bak: That sucks about the drain. Hope you can lose it soon, once and for all. One thing I know is that the more active your body is, the more fluid it tends to produce. So maybe try and take it easy? (I know, easier said than done)   

We've been through some things together/With trunks of memories still to come/Long may you run (Neil Young). Lx, ALND, 4 DD AC &12 weekly Taxol, 31 rads, completed Jul 10
Diagnosis: 9/14/2009, IDC, 2cm, Stage IIb, Grade 3, 1/14 nodes, ER-/PR-, HER2-
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Apr 13, 2012 10:37 AM BernieEllen wrote:

christina, so sorry for you and you families loss.  thinking of you


Diagnosis: 2/16/2011, IDC, 6cm+, Stage IIb, 0/3 nodes, ER-/PR-, HER2-
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Apr 13, 2012 10:54 AM mccrimmon324 wrote:

Christina, I'm so sorry to hear about your Mother in Law.  My thoughts are prayers are with you. 

Heather
Diagnosis: 4/7/2011, IDC, 3cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Apr 13, 2012 11:12 AM gillyone wrote:

((((Becca))))

((((Bak))))

((((Christina))))

Gill
Diagnosis: 6/5/2009, IDC, 3cm, Stage IIIc, Grade 3, 9/15 nodes, ER-/PR-, HER2-
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Apr 13, 2012 11:26 AM mccrimmon324 wrote:

I had a follow up with my Primary this morning for my Metformin prescription.  My blood test from a couple of weeks ago shows that my RBC are lower than normal.  It should start at 4 and I'm at 3.77, now these are the same results that my Onc saw, they just forwarded the info to my Primary.  My onc mentioned that they seemed low but were not too concerned.  My Primary pretty much said the same thing.  Just something to keep our eyes on.  He believes it could just simply be my body still healing from Chemo.  What causes this?  Is this something I should be worried about?  Is there anything I can do to increase it naturally?  I do take an asprin every day, could this affect my RBC?

Heather
Diagnosis: 4/7/2011, IDC, 3cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Apr 13, 2012 11:55 AM Hope60 wrote:

Christina  - So sorry to hear about your mother in law. I guess the one saving grace is that you were able to tell her how much she meant to you.  You and your family will be in my thoughts.

Heather - I don't know much about RBCs, but I do know that it can take a long time for your blood counts to return to normal after chemo.  I think rads can effect them, too.  Myy onc doesn't do tumor markers so I only get my blood checked by my primary.  I still had some wonky numbers at my last physical, which was about 10 months post treatment (going for another soon).  My doc wasn't concerned either....I guess it's pretty common.     


Diagnosis: 6/15/2010, IDC, 2cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Apr 13, 2012 11:59 AM mccrimmon324 wrote:

Thank you Hope, I'm at work and all by myself today and I can feel the panic starting to set in.  Why can't we just be like we were pre-BC??? 

Heather
Diagnosis: 4/7/2011, IDC, 3cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Apr 13, 2012 12:08 PM NavyMom wrote:

So sorry for the loss of your MIL, Christina.  How wonderful that you had such a loving relationship with her.  May your sweet memories carry you through this difficult time.

Heather, try to increase red meat and green leafy veggies in your diet.  Also take a vitamin C supplement.  This might help make more RBC's without having to resort to taking oral Iron (blech!)

BMX with recon
Diagnosis: 5/27/2009, IDC, 2cm, Stage IIa, Grade 3, 3/17 nodes, ER-/PR-, HER2-
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Apr 13, 2012 12:31 PM Hope60 wrote:

Heather - I know what you mean.  I wish I could be as carefree as I was before BC, but I doubt that will ever happen. I guess it's all about learning to manage our fears, and I'm not too good at it.  I sometimes think that the less I know, the better off I am.....and my docs must agree because they don't tell me much...lol.  But getting back to your RBC...I really don't think you have anything to worry about. Remember, your body has been through a lot during treatment, and it will take time for everything to settle down. So no need to panic!


Diagnosis: 6/15/2010, IDC, 2cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Apr 13, 2012 01:55 PM kathyrnn wrote:

Hi everyone, I have been off the thread for awhile. Was weary of cancer, and to take a little more joy out of my life, my back injury has relapsed, putting me in mind numbing pain.

Now I've found out that both Suze and MBJ are gone. I hate this f**king disease and am so sad for the loss of their shining lights.


Diagnosis: 5/10/2011, Grade 3, ER-/PR-, HER2-
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Apr 13, 2012 02:10 PM kathyrnn wrote:

OMG and LJ too!!! I am sad beyond what any words can describe


Diagnosis: 5/10/2011, Grade 3, ER-/PR-, HER2-
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Apr 13, 2012 03:40 PM Lovelyface wrote:

All you wonderful, beautiful ladies - thank you all so much for sending me your love.  I actually had tears. I feel so loved on this board, you all are so sweet.  With all my heart and soul, I pray to God to heal each and every one of you, because you all have such lovely hearts.

Christina - Oh dear!  I am so very sorry to hear of your precious MIL's death.  So sad!  She loved you so much and you shared such a wonderful relationship with her.  So sorry for your daughter.  Life is just like that, so very sad, and we all have to go through this. 

On the subject of death, I would like to mention this most horrible accident which happened 100 feet from my house.  A 17 year old driver killed a father and a 9 year old daughter, last Saturday, with his huge Caddilac Escalade, after running the light.  The father and his 2 daughters were coming back from Jamba juice on a beautiful Saturday morning on their bikes, riding safely on the sidewalk.  This guy hits them, one of the older girls - 12 year has survived.  The place where the accident happened now looks like a cemetary with tons of flowers and baloons and the building broken, water hydrant broken and all broken pieces of the car and building all over the place.  It was so tragic, I am finally recovering from it.  Here is a link.

abclocal.go.com/kgo/story?sect...

Linda - You did a good job explaining our MBJ's progression, which truly helps us freak a little less.  Thanks.  And thanks for your "lovely" words to me.

beccad - Honey - I am so sorry you are not feeling very well.  I wil join you and say "I HATE F.....ING Cancer".  I will say it each time for all of you.

mccrimmon - Oh, I love love love that photo you took. Wish I could be sitting on one of those stones and watching the crystal blue water.

Heidi - is that you in that pic?  You look like you are one with nature.  I also have no tolerance for stupid people. I agree.

bak94 - Oh, those drains are so painful, so very painful. They do take them out though, so we will count the days with you. Just hang in there, girl.

If I missed writing to any of you in particular - I am sorry, it doesn't mean I did not read it, or take a big sigh of relief when I read you are doing well, or laughed when you said something funny, or became really sad if you are going through something painful.  Believe me, everything is read and felt.  With this menopause brain, I am not very sharp and not able to retain too much in memory so am not able to write specifically to each and every one of you as much as I would like to.

Everyone - have a great wonderful weekend.  Thanks again for making me feel so loved and so cared for.


Diagnosis: 7/20/2010, IDC, 3cm, Stage II, Grade 2, 0/1 nodes, ER-/PR-, HER2-
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Apr 13, 2012 03:43 PM Lovelyface wrote:

I am sorry the URL regarding the accident near my home, did not work in my prior post.  It was from ABC 7 news.


Diagnosis: 7/20/2010, IDC, 3cm, Stage II, Grade 2, 0/1 nodes, ER-/PR-, HER2-
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Apr 13, 2012 06:20 PM beccad wrote:

Thanks to all of you for your hugs, thoughts, prayers and loving words.  I am feeling ok today but the other shoe starts to drop on the 2nd and 3rd day after chemo so we will see.  I had lots of tears, hugs, and got phone #s from people at work today that I may end up using all of the space in my phone. The CNO actually gave me her personal cell #.  That one just about floored me.  I guess the little hospital family truly is a family unit afterall.

Becky 


Diagnosis: 10/8/2010, IDC, 3cm, Stage IV, 6/11 nodes, mets, ER-/PR-, HER2-
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Apr 13, 2012 08:22 PM, edited Apr 13, 2012 08:23 PM by Cocker_Spaniel

Lovelyface, always remember you are very much loved and we are here for you every step of the way.  Hope you feel a lot better today.

Christina, I was so sorry to hear of your mum-in-laws passing but was so glad you had the chance to tell her how you felt about her.  She would have gone to heaven knowing she was very much loved by you. The lung cancer treatment would  have been so hard on her and she would have suffered greatly so may be it was better that she went when she did and in no pain and was peaceful.  Thinking of you today and your wonderful caring daughter.

Hope60, I am not too good at managing my fears either. I don't ask my oncologist very many questions because I would worry so much so the less I know the better really and she knows this.     

Bazk94, I remember those drains so well.  I would forget they were in and start to walk away from my seat and then feel the pain of them dragging behind me.  Bloody horrible things but hopefully they won't be in long.

Beccad, hope you are not so tired today and have your appetite back.  I too hate this F...cking cancer as we all do.

Have a good weekend ladies, rest when you can and laugh when you can. Hugs. Annie    


Diagnosis: 11/3/2011, IDC, 6cm+, Stage IIIa, Grade 3, 4/11 nodes, ER-/PR-, HER2-
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Apr 13, 2012 11:13 PM HeidiToo wrote:

lovelyface- yes, that's me, but I look *totally* different now. Many people don't recognize me. My hair is so much more natural and flattering now... totally different style. It's amazing....

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Apr 13, 2012 11:20 PM HeidiToo wrote:

This is me/us now...

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Apr 13, 2012 11:33 PM gillyone wrote:

Heidi - you look wonderful!

Gill
Diagnosis: 6/5/2009, IDC, 3cm, Stage IIIc, Grade 3, 9/15 nodes, ER-/PR-, HER2-
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Apr 14, 2012 12:35 AM bak94 wrote:

Heidi, the two of you are just adorable! You look great!

Christina-So sorry for the loss of your mil. Sounds like she was such a nice, funny person.

I guess they put the drain back in because the fluid can stop the healing process. I feel and hear the sloshing. My pt has been trying to move the fluid with lymphatic drainage techniques but it hasn't been enough. Probably will have the drain for about a week, so it should go by fast. Problem is I have to work a little bit, and my job is physical, my doc said not to work but I can't cancel now. I am also not suppose to wear my prothesis and bras, but I am not going to work without boobs! So I have to wear a cami with the puffs, and my drain! I will wear a loose shirt but you know how lumpy a drain is! And it hurts to walk and move with it. Oh well, I'm tough! (not really, but trying to convince myself!) I must say that removing the fluid has reduced the tightness in my chest, which was getting bad again. I have been pretty busy, moving around a lot, my husband doesn't think I do anything, so I try to do more and when I do this fluid stuff happens. I think that since I am done with chemo, surgery and radiation, my hubby thinks I should be back to normal. I try my best, but I am just not there. Oh well. He will just have to deal with it. We just have so much work to do around the house with so many animals, plus my 2 classes and now work. Ugghh, I was going to try not to whine, but it is just so natural for me! I have been really good at work not whining and being really positive and not complaining. I guess it all comes out here and at home!

Oh, and I see pictures of many here and you all look adorable! Look on the hair thread too! And then there is me! I look about 15 years older than I am, I look heavy, pale and just not good at all. Everyone tells me how good I look (not )but  my hair is thin and short and super curly. I colored it and got rid of some of the grey, I think I will color it again. Oh, and none of my clothes work with my prothesis, I wore a lot of scoop neck shirts, now I need shirts that come up higher. I am just not feeling comfortable in my own skin! My gross radiated red peely skin is starting to heal up. Oh, I have these crazy sweating fits at work, kinda like a hotflash, but it lasts longer. Then my styled hair gets curly and frizzy! I am just a mess. Why did I agree to go back to work?

12/02 stage 2b TN rt. lump, chemo, rads. 2nd time 4/05/11 new primary left breast. BRCA1+. Neoadj.chemo BMX 11/30/11 rads. Complete response to 6 ac then 12 abraxane/avastin. er 3% pr<1% her2 neg. Stage3or4?Depends on who you ask!
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Apr 14, 2012 12:53 AM kawee wrote:

Titan,

Just found you on here.  Wanted to pass along to some of our Sept 2009 Rad girls that I developed lymphedema.  After three years.  who would have thought.  Going to PT, wearing garments-----just when you think you're done.

 Hope all is well with you.

DCIS, 1mm microinvasion, Stage 1, ER+/PR+, Grade 3, HER2+
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Apr 14, 2012 05:51 AM, edited Apr 14, 2012 05:58 AM by riley702

I was still able to find the article, Lovelyface. It was very sad, but made me angry at the same time.

abclocal.go.com/kgo/story?sect...

abclocal.go.com/kgo/story?sect...

Carolyn - 6 months neoadjuvant chemo (clinical trial), BMX and rads. After MX, I was informed my tumor was weakly ER+ after all (8%)
Diagnosis: 1/26/2010, IDC, 4cm, Stage IIa, Grade 3, 0/2 nodes, ER+/PR-, HER2-
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Apr 14, 2012 03:57 PM LRM216 wrote:

Heidi:

Gorgeous picture of you.  You look happy, healthy and beautiful!

Life isn't about waiting for the storm to end, it's about learning to dance in the rain ... Age 62 at diagnose
Diagnosis: 2/23/2009, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Apr 14, 2012 04:02 PM ksmatthews wrote:

Hi girls I have been away for a few days, and I really missed you all!  Trying to read and get caught up.  Loved the pics posted!

Hugs to all who need it and Christina sory to hear about your mil.

I hope everyone has a great weekend!  

(((hugs))) 

ksmatthews
Diagnosis: 3/15/2011, IDC, 2cm, Stage IIa, Grade 3, 0/0 nodes, ER-/PR-, HER2-
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Apr 14, 2012 05:02 PM TifJ wrote:

Just stopping in to say hello!

Big hugs to all that need one - Christina, Bak, Inmate, lovelyface and Beccad!

My apologies if I forgot anyone!

Husker- are you in the storm's path? Keep safe and post to let us know you are all right!


Diagnosis: 8/30/2010, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Apr 14, 2012 06:05 PM, edited Apr 14, 2012 06:06 PM by Huskerkkc

Hey Tif, thanks for checking on me! We've been in a tornado watch all day, but nothing in our area currently. I was supposed to take 32 students and mentors to the Nebraska spring game in Lincoln (95 miles one way) today but they cancelled our trip yesterday and today cancelled the game entirely. Glad I didn't have to worry about that! Also cancelled our local prom (and lots of others across the state) but will hold it Sunday instead. Husband is heading out now to go to Jimmy Buffett concert in Omaha. Am watching the weather closely to turn him around if I have to. He's hoping it passes by the time he gets there. A guy from The Weather Channel is reporting live from Lincoln right outside the football stadium. How crazy are we??

Kristy “If we had no winter, the spring would not be so pleasant: if we did not sometimes taste of adversity, prosperity would not be so welcome.” - Anne Bradstreet
Diagnosis: 1/14/2011, IDC, 1cm, Stage Ia, Grade 3, 0/3 nodes, ER-/PR-, HER2-
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Apr 14, 2012 07:06 PM TifJ wrote:

Husker- glad the school is taking the weather seriously!! I hope you have an uneventful rest of the weekend and that your hubby gets to the concert and back!! My husband has family right outside of Omaha so we have been checking on them too!


Diagnosis: 8/30/2010, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Apr 14, 2012 09:15 PM tracie23 wrote:

Heidi You look so beautiful!!! WOW


Diagnosis: 6/3/2010, IDC, 3cm, Stage IIa, Grade 3, 0/4 nodes, ER-/PR-, HER2-
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Apr 14, 2012 09:33 PM borntosurvive wrote:

I am packing up and off to Sunny South Carolina for 2 weeks with my family.  Can't wait to reconnect with the boys and my husband, enjoy some nice weather and some R&R.  I will have internet and may check in here and there.  Have a great rest of the month ladies xoxo


Diagnosis: 11/11/2011, IDC, 3cm, Stage IIa, Grade 3, 0/4 nodes, ER-/PR-, HER2-
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Apr 14, 2012 09:35 PM onvacation wrote:

borntosurvive - have a wonderful vacation!

Kim
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Apr 14, 2012 11:00 PM Titan wrote:

Husker...saw the news on tv!

Heidi   pretty pretty  glad u r my twin!  hope for me yet


Diagnosis: 3/18/2009, IDC, 1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-, HER2-

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