Posted on: May 1, 2010 11:59 PM, edited May 2, 2010 12:02 AM by Titan
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having.
What to do you think?
I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads (including 7 boosts) mammogram every 6 months for 5 years (I think). see the onc every 3 months for 3 years, see the Bs every 6 months for 3 years (I think). see the rad onc 1 year after rads...probably won't see him any more after that... I think this may be a good way to get all together...we can still have separate threads..but sometimes it would be nice to just go to one thread and have a cry or concern without worrying about not being on topic What do you all think? ..
Posts 16621 - 16650 (21,206 total)
Jul 31, 2012 01:14 AM BernieEllen wrote:A fireman is at the station house working outside on the fire truck when he notices a little boy next door. The little boy is in a little red wagon with little ladders hung off the side. He is wearing a fireman's hat and has the wagon tied to a dog.
Jul 31, 2012 03:38 AM, edited Jul 31, 2012 11:46 AM by inmate4232010
Losing my hair semed okay, but losing my eyebrows and lashes was a bit more traumatic. A warning to you all, frisk your friends and family for any contraband markers or you may end up looking like this.......
It's all fun and games until someone ends up looking like Spock.
Love to you all!
Jul 31, 2012 03:39 AM, edited Jul 31, 2012 03:41 AM by inmate4232010
Bernie, you look so cute without your hair....you too Luv. What beautiful ladies!
Karen I just love your idea for the horn on Hope's walker. Make some noise!
Jul 31, 2012 07:44 AM LuvRVing wrote:
OMG Inmate! It's a good thing I had finished my coffee or I would have spewed all over my keyboard. ROFL!!! Those eyebrows are something out of this world!!
Same thing to you Bernie! That story is just too funny!
Jul 31, 2012 08:02 AM FernMF wrote:
Walked my three miles this a.m. . . . first chemo starts at 9:30 this morning . . . THANKS LORETTA for the posts . . and thanks to you STRONG girls . . . PEACE to you all.
Jul 31, 2012 08:41 AM DorisMarie wrote:
Fern..thinking of ya this am..the dread of first..anything..is worse than the actual....drink lots and lots of water....
LOL..love the spock eyebrows..still got mine..and half leg hair..clean is splotches...
and my head hair is growing...enuf even my Hubby noticed it..at least it is out of the scratchy buzz cut stage..if I had known..would have cut it maybe to the half inch stage...waited and waited for it to all fall out..didn't..just dribbled every where..
all you lovely ladies going topless..took a pic but haven't uploaded here yet..might just do that..
day 6 from tx..feeling much better this morn..coffee is almost good..LOL..day of and day after..feel purty good..then fatigue and metal mouth for a few days..eating is a challenge..who woulda thunk rice and gravy(southern staple) would taste sooo gacky?
best wishes for all today..
Jul 31, 2012 08:53 AM Babs37 wrote:
Hi all!!! Just came back from a 2 weeks vacation in sunny and very hot Daytona Beach Florida. Met a woman there who is Her2+ with 9 positive nodes and 4 years out!!!! She is doing great. She saw me with my LE sleeve so she knew I have had BC so she came to talk to me one night. She also has LE but much worst then mine but it doesn't stop her in any way.
Just catching up with everyone. Welcome to all newbies. You found a great place for infos and comfort.
Hope60 and Inmate- My thoughts are with you. Hang in there. (((hugs)))
Minxie- Last year, I finished rads 3 weeks before my Florida vacation. I was pretty burnt. The worse week was the week after rads. I couldn't get dressed. But I was suprised to see how fast I healed after that and was OK for my vacation. Like Inmate said, don't know about the salt water if you still have blisters or raw skin then so be vey careful. You don't want any infections there. Have a great vacation!
I read every posts but can't answer everyone personally like some of you can. But I am always happy to read news/posts from all of you guys and sending everyone of you big hugs.
Jul 31, 2012 09:50 AM fishinurse wrote:
Hello all, think of you ladies everyday. So glad for this site to come too and feel this kinship.Bernie, i so look forward to your posts,starts my day off with a laugh! Inmate, i watch for your posts think of you and pray for those damn mets to disappear.Hope,i think of you and pray for you and send hugs! It has been 16 days since my 1st chemo,always surprised when i wake up and still have a full head oh hair. I know it will come out,had a dream last night that my oncologist said i didn't have enough chemo since i still had my hair so they had to give me more chemo.Woke up this morning tugging on my hair and yep,still there! Yesterday i went shopping and got new earrings,scarves,head covering,preparing myself!
Jul 31, 2012 10:00 AM borntosurvive wrote:
Fern: It's now 9:57am so hoping all is going well for you today in Chemo. Get that first one under your belt and you're 1 closer to the end. Thinking of you xo
Inmate: I am peeing my pants laughing. It's all fun and games until someone loses an eyebrow!!! You have great friends. I to had a harder time losing my eyebrows then my hair. Weird how we are all attached to things and don't even know it. Thanks for the laugh.
Bernie: You never fail to come through with a morning laugh. Thank you!!! Your jokes are good for my soul. I often share them with my DH and he and I laugh together.
Happy Tuesday ladies. Wishing you all a great day of energy, peace and minimal SE's.
Jul 31, 2012 10:36 AM Lory48 wrote:
Inmate- girl you crack me up!! I always love coming in here and reading yall's posts, it really makes me feel "normal". Still no word from the docs office, which really pisses me off. DH has an appt this afternoon (he has a suspicious spot on his shoulder) I am going with him to raise some hell. Imean really, 2 voice mails-4 phone calls and no call back.. Speaking of hair- if I could figure out how to insert pics I would show yall my pics?
Jul 31, 2012 10:51 AM TifJ wrote:
Bernie and Luv- I admire anyone that can show pictures of their bald head. I couldn't even stand to look at myself let alone take pictures!! You both look looked lovely!
Inmate- someone would have surely died had that been done to me!!! LOL!! Thinking of you and your first Ixempra-hope it is easy on you!
Fern- Sending good thoughts to you today!!
Babs- Glad you had a good vacation!
Doris- happy that the SEs are lighnting up a bit!!
Fish- just remember your dream was just a dream- my MO made it very clear that a lack of SEs (like hair loss) doesn't mean the chemo isn't working!
I have 2 very bored kids! Trying to think of something fun to do everyday is wearing me down. We have spent too much time at home because of the darn hot weather. I can say that I am (almost) anxious for school to start! Although, that means that I go back to work!! Have a great Tuesday all!
Jul 31, 2012 10:53 AM Lady_Miz wrote:
Good morning ladies...
I posted this in another forum specifically about bone mets but wanted to see what, if anything, y'all might know about the funky stuff going on in my crazy body!
So, after requesting a PET or CT scan to determine what the pain in my ribs, femur and hips was about, I wound up getting a bone scan and though several areas (right shoulder, both hips, right knee) showed "uptake", they think it is "PROBABLY" degenerative joint process. So i am to be okay with the assumption that in a year's time, I have developed degenerative disease at 38 years old when there was no evidence of it last September? Has anyone else encountered this?
My onc doesn't check tumor markers unless someone is diagnosed Stage IV so I didn't have any reassurance from that either. I am not quite sure how I feel about the whole thing. The pain isn't really local to my joints - it is in the middle of my right femur and no amount of rubbing or massaging will relieve it. This has been going on for several months now and is starting to get frustrating because by the end of the day, my feet and legs make it almost unbearable to even walk to my bedroom. The spot under my right breast on the ribs is so tender that I won't even touch it and am extremely careful putting a bra on. Due to the aggressiveness of my cancer (TNBC; grade III; Ki-67 of 75%) I get checked out every 3 months so I guess I will wait until the October 26th visit and see if anything is better by then.
I apologize for whining as I am the type who doesn't acknowledge pain unless it is really bad but this is just getting exhausting and I don't want to find out down the road that there is something going on that needed to be addressed.
xoxoxo to y'all...
Jul 31, 2012 11:19 AM inmate4232010 wrote:
mmizerak.....My doc uses a two week rule. If something is an issue for 2 weeks he will look at it and so far has scanned when I had a problem. I get scanned every three months as it is. Perhaps he will do a CT scan in the interim. None of my scan have shown bone mets, however I have had bone pain in my ribs from the radiation and frankly all the surgeries. I am still numb in spots from my mastectomy last year. When the numbness wears off I get pain ( some sharp some more throbbing) for awhile.
In regards to the degeneration. I have a friend, your age that now has to get both hips worked on because of the destructive nature of her chemo drugs. She tried to excercise through it and made it worse. Mind you she is +++ and took Tamoxifin and that appeared to be the culprit. If it continues to cause you pain for two more weeks, rattle his cage. It is your health. If you can get the okay from your insurance your doc should follow suit.
Jul 31, 2012 11:34 AM, edited Jul 31, 2012 11:35 AM by kathyrnn
Inmate - I'm surprised, knowing your family tree, that they didn't throw Spock ears on you to complete the picture. Too funny!!!
Bernie - you're pictures look very regal. Maybe we can use your "siren" for Hope's walker?
Fern - we're all sending our positive power at you today.
Babs - glad to hear you had such a wonderful vacation.
Good to see you McCrimmon - wander in when you feel like it and let us know how you are.
Tifj - *waves magic wand - sends jolt of energy*. I hate my bald photo, but if I was near my computer I'd post it. The one good thing about CA is I don't much give a shit what I look like, as long as I feel good.
Lory - go get em, girl! I really wish docs had to experience being patients, but I bet when they call for results the get them right away.
Mmizerak - I understand both your frustration and your fear. I would say that it is good news that the femur and rib showed no uptake. I know that my hips have not been the same since chemo and they were one of the few places that didn't hurt prior to chemo. Maybe you should see an orthopedic to see what he feels it is. (specifically the femur and the rib). Maybe you've developed sciatica and he can tell with some testing?
Jul 31, 2012 11:57 AM, edited Jul 31, 2012 12:01 PM by inmate4232010
This is fun....a couple more pics and then i'm off. As kathy said, looking at our new selves has not been easy, but sadly I'm a bit of a picker and my house is filled with vintage mirrors. This was the reaction when i looked after my first shave......
Jul 31, 2012 12:00 PM inmate4232010 wrote:
My hair started to grow back in earnest right around halloween so I decided to channel dracula to highlight my fresh crop.......I promise no more pics for awhile, but thanks ladies for indulging me..........
Jul 31, 2012 12:23 PM minxie wrote:
Love the pictures, ladies! I strictly forbade any to be taken of me in my bald state - me head turned out to be a lot smaller and lumpier than I had imagined :)
Thanks all for the rads advice. I've been appling petrolatum and guaze taped down (my own version of the burn bandages) and it's really helped - skin is not so tight, doesn't hurt as much. Thanks for the help, you guys are awesome!
Jul 31, 2012 01:23 PM LuvRVing wrote:
Inmate - those pictures are fabulous...don't think you need to stop!
TifJ - have you taken the kiddies to Powell Gardens? It's almost time for the Butterfly Festival, I'm been before and it's fabulous. They always have great craft projects (free) for children. And of course, there is Crown Center and Union Station.
Here's are two pictures that I took a couple years ago:
Jul 31, 2012 01:35 PM borntosurvive wrote:
I had professional pictures done of my bald head. I wanted to capture the moment of my life. Kinda like my pregnancy pics. I just don't know how to post pictures here. Inmate maybe you can help me?!
Jul 31, 2012 01:50 PM LuvRVing wrote:
Born - are those pictures online somewhere? They need to be on one of the many photo storage sites (like Flickr, Picasaweb, etc) or Facebook. If so, just open the picture, click inside it, then right click with your mouse and select "copy" from the dropdown menu. Come back here, click in the text box, right click with your mouse and select "paste" from the dropdown menu. It will ask you (maybe a couple times) if you want to allow the content and you just accept it. This process works if you're using Internet Explorer as your browser. For Firefox or Chrome, you have to click on the little tree icon next to the smiley face in the grey bar above. Then provide the link to the picture. And if you're using an iPad with Safari, I have yet to see anyone post a picture using that device.
Jul 31, 2012 02:30 PM Lady_Miz wrote:
Thank you all for your reassurance. I think I will talk to my PCP and see what direction he thinks I should take. It is so strange to go from someone who hardly ever acknowledged illness and trucked through everything to someone who shudders at every new, long-lasting pain. It is so nice to have a group who understands as opposed to trying to explain things to people who think its all in your head. Most just think, "Okay, chemo & radiation are over. Cancer is gone. Get back to normal & stop complaining."
Blessings to all of you!
Jul 31, 2012 02:32 PM BernieEllen wrote:One dark night outside a small town, a fire started inside the local chemical plant. Before long it exploded into flames and an alarm went out to fire departments from miles around.
Jul 31, 2012 04:50 PM LuvRVing wrote:
Lory - glad that worked. Once you see the picture has posted, you can click on it, then click on the tree icon and change the size. But I wouldn't worry too much about it being big, and your doggie is beautiful!
Jul 31, 2012 05:01 PM TifJ wrote:
Michelle- I feel like we have been everywhere! They are bored with Science City at Union Station. We have done Crown Center ( for the new Legoland) and went to Powell Gardens for their Bloom and Boom show for the 4th of July. It's just so darn hot, even the kids complain about being outside for too long! We are going to a hot air balloon festival in Olathe next month. I give up!!
Jul 31, 2012 05:14 PM JAN69 wrote:
Cocker - Where are you? You didn't forget your computer again, now did you? Hoping the Dragon Lady let you in after your late night encounter. Miss hearing from you.
Minxie - Glad you tried the homemade version of the gauze burn pads. Even happier that they seem to be helping.
Bernie - Keep the laughs coming, PLEASE. All my Irish relatives seem to totally lack your sense of humor. You are a breath of fresh air everyday.
It's Tuesday and I know several of you are in treatment today. Sending you strength. My visit to Lymph PT today went better than I had feared. She understands that irritation and discomfort from bra and exercises are not the intended outcome of PT. I need to lighten up and do what feels right to me. Bless her heart. Now I'll just worry about Thursday's US. The wind is blowing through the pine trees, whispering a calming message. Sigh....