Posted on: May 1, 2010 11:59 PM, edited May 2, 2010 12:02 AM by Titan
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having.
What to do you think?
I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads (including 7 boosts) mammogram every 6 months for 5 years (I think). see the onc every 3 months for 3 years, see the Bs every 6 months for 3 years (I think). see the rad onc 1 year after rads...probably won't see him any more after that... I think this may be a good way to get all together...we can still have separate threads..but sometimes it would be nice to just go to one thread and have a cry or concern without worrying about not being on topic What do you all think? ..
Posts 17191 - 17220 (21,100 total)
Aug 19, 2012 08:53 PM CatWhispurrer wrote:
Kim - thank you for the thoughts you shared with us about Suz. I had only been on here for a few months before she was gone but she was one of the first to welcome me. I'll always remember her, especially now through your words. We are a small, loving family and each loss is great.
Aug 19, 2012 09:14 PM borntosurvive wrote:
Kim: Thank you for allowing us into your feelings, thoughts and memories of Suz. I was not fortunate to have "met" her as I think I came on here after she had passed away. But the way you speak of her, I can feel what an amazing person and friend she was to you and so many others here.
I have been SO thankful to have such a supportive and amazing group of sisters in our TN group. When I have been having a bad day and feeling like giving up it's you ladies I know I can turn to. Being young it was hard for me to find anyone who understood and truly got what I was feeling. It's you ladies who "get" me. Thank you to everyone, I know it has been a rough few months with the passing of our sisters and the return of cancer for some of our other sisters. But we have each other and we can get through anything. HUGS to you all ladies xoxo
Aug 19, 2012 11:37 PM Paintingmywaythru wrote:
Kim..your post on Susan is so touching. She was a remarkable woman who I only had the opportunity to lunch with once. She was so practical and resilient-it was hard to imagine her not beating this beast. She supported us so much and was a wealth of information and kindness to us all. We all loved and cared for Susan, LauraJane and Mary and I am still so sad at their loss. I think of these wonderful women often and pray that their families are able to cope with such trememdous loss. Thank you for sharing your story.
Aug 19, 2012 11:38 PM Paintingmywaythru wrote:
Inmate....I hate f.....ing cancer and I so hope you are able to get into a trial that will work for you. Ativan is a good pal right about now. Big hugs to you and your husband.
Aug 20, 2012 12:01 AM Lory48 wrote:
Kim- Thank you for the beautiful words. As with others that have posted here- Just being diagnosed and searching for some advise from these great ladies not more than 10 months ago,meant so much to me. I read your words and wiped tears..Thamk you again for sharing your story with us!
Aug 20, 2012 12:22 AM kathyrnn wrote:
Kiim - thank you so much for sharing about Suze, and LJ and Mary. It made me cry, but in a good way, to know that they are still in our hearts. You were so lucky to have such a wonderful friend, as was she to have you.
Aug 20, 2012 02:26 AM Nuan wrote:
Kim -- Truely appreciated! Your letters makes my eyes wet. Even I haven't met "sisters" in person but I can feel here is home for us, tnbc fighters too.
Aug 20, 2012 08:33 AM Paintingmywaythru wrote:
I am wondering if anyone has pain in their chest, feels like my ribs going up toward my clavicle. I notice it when I swim and it gets worse the more I swim. I am thinking maybe it is weakness in the bones from radiation but I wonder if anyone else experiences this. I don't know if I should email the oncologist. It has worsened from swimming I think.
Thanks all and have a fabulous day.
Aug 20, 2012 09:35 AM Luah wrote:
born: Beautiful avatar photo.
Aug 20, 2012 10:22 AM borntosurvive wrote:
Painting: I am just wondering does it only happen when you're swimming? If so I would tend to think it was a muscle thing. I just returned to the gym this week, did a basic yoga class and couldn't walk for a few days. I never had radiation but did chemo and cannot believe how weak I am. You can always just air on the side of caution and contact your MO and let her know for your peace of mind.
Luah: Thanks! I had professional pics of my bald head, I wanted to capture the moment in time. I figure (and hope) I am never bald again!!!
Aug 20, 2012 10:43 AM Fighter_34 wrote:
Can some one pass the tissue?? We miss them so dearly and I HATE what CANCER has taken from all of us. I may not post everyday, but my heart is always here and to answer your question YES we are FAMILY!! Maybe not by blood but definitely in spirit.
RIP LJ, Suze35 and MBJ.....
Aug 20, 2012 06:33 PM Mags20487 wrote:
painting--- do you have trouble with sleeping on your side too? it could be inflammation from rads. i actually had it bad on my side and ribs, felt like it was bruised for months. As someone else said it could also be a muscle thing. i am trying to stretch out the stiffness leftover in my chest from the BMX. It is going on a yr since it was done and still have trouble. Hope it clears up for you soon or go see that Doc.
Aug 20, 2012 10:00 PM Tazzy wrote:
Cocker... that would take some patience eh? How are the rads going?
Aug 20, 2012 10:31 PM JAN69 wrote:
Cocker - I've got some strange hair growing back on my bowling ball, but I think I'll join you at the hair salon for one of those do's. I'm aiming for that young body, too. We could sit on a bar stool at your hubby's cafe and flirt with all the young dudes. Let me know when. Also, I miss hearing from you these days.
Aug 20, 2012 10:54 PM christina1961 wrote:
Annie, I don't think I ever had that much hair! Amazing...
Painting, I have had rib pain on and off since the first chemo (TAC). I had a bone scan then and it cleared up after about a month post chemo then in PT one day the therapist was moving me and pulled up on my lower rib. I felt a pop and for three weeks I was in quite a bit of pain. I think that is when I had the second bone scan - last October - all clear. Then a few weeks ago, I bent over in my desk chair to pick something up and the arm of the chair went into the lower ribs and I felt something shift and I had pain for three weeks - it is not noticeable now unless I push on it or pull my stomach in tightly. I had recently been to the allergist for asthma so he called for a chest xray due to the rib pain and the asthma just to be on the safe side. Thankfully it was clear, too.
The PT said that there are "joints" between the ribs and I believe he said overall there are 135 different junctures in the overall thoracic area that are all interdependent. I think my problems may be from the tightness of the scar tissue and radiated tissue pulling on my ribs - and also the chemo and Neulasta causing general inflammation. When I recently went bicycling and rode 11 miles Sat and again on Sunday, I could really feel a burn on my masectomy side the first day as the muscle got used to supporting my head and shoulders again. My masectomy was in July 2011 and I am six months from my last chemo (I had neo and adjuvant chemos). Of course, I always mention things like this at my check up, but I am much less concerned since it has gone away each time.
Aug 21, 2012 10:58 AM Fighter_34 wrote:
Thanks Navymom! Morning lovely ladies.
Just chimming in on the stretching and massaging, I use vick's vapor rub to massage my breast area it gives it that nice warm fuzzy feeling. Its great for relieving head colds so I figured it would work great on relieving and decreasing inflammation in that area as well. After I walk on the weekends I rub down with it after I get out of the shower. It really makes you feel so relaxed. Just a thought.
Felt a nice cool breeze in the air this morning could FALL be on the way...?? Considering it was so HOT this summer. Yes. Yes.
Aug 21, 2012 12:26 PM Tazzy wrote:
Bernie.... Love Mrs. Brown (I'm an ex-pat)... she can make you pee your pants... so funny.
Aug 21, 2012 02:50 PM the5owens wrote:
Ok friends....I got some of my results from the test they did last week. Need encouragment...info...advice. Pet Scan was normal...Chest Xray was normal...Blood work normal. Genetic testing not back yet. Breast MRI showed a suspicious area in my left breast. My cancer is in the right. I am having a biopsy on Monday 8/27. How likely is it that I have cancer in both breasts? Mammos and US showed nothing in my left breast. I am starting to freak out again. I think she said something about a lymph node in my left breast but I must admit I spaced out after biopsy. This waiting is terrible I thought I was close to surgery but now another week of waiting for results. I was thinking lumpectomy but now with something suspicious should I be thinking Mastectomy. I just don't know....
Aug 21, 2012 03:55 PM Luah wrote:
Hi: 5owens - first congrats on the clear PET, xray and bloodwork. As for the MRI, try not to get ahead of yourself. MRIs are quite notorious for lighting up all kinds of things and resulting in false positives - the biopsy will tell you one way or the other. Fingers crossed it's nothing to worry about. And if not, you can go through the pros and cons of surgical options with your docs. I know it will seem like a long week - try and stay busy!