When it is my "time", please don't do a death watch? No posts and candles for prayers...if you do anything just funny stories..
no, I am not on my last leg, this has just be weighing on my mind.
Janis
thinking of debman.
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Rico Joined: Aug 2009 Posts: 16 |
Oct 27, 2009 07:56 pm
Rico wrote:
Fitz, are you okay? Diagnosis: 1/2009, IDC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2- |
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Fitztwins Joined: Dec 2004 Posts: 7,731 |
Oct 28, 2009 08:27 am
Fitztwins wrote:
I am fine! Just watching as other women get to this point. I just don't want it. =0) no worries. I am a planner! trying to control EVERYthing in my life. Wash away my troubles, wash away my pain, with the rain of shambala
Diagnosis: 12/12/2004, IDC, Stage IV, Grade 2, mets, ER+/PR+, HER2+ |
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elliem1207 Joined: Mar 2008 Posts: 1,524 |
Oct 28, 2009 10:23 am
elliem1207 wrote:
janis, that's an unfair request. you know that is what we do. you are well liked and respected on these boards and we will do it anyways. it's just the way it is. ellie xx ~~ Always keep people in your life that charge your battery, not those who drain it. ~~
Diagnosis: 11/2007, Stage IV, ER+/PR-, HER2- |
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Alpal Joined: Dec 2008 Posts: 180 |
Oct 28, 2009 11:50 am
Alpal wrote:
Elliem, was your reply to Janis in jest? I hope so. If not, it just says "We'll do what makes us feel good and to hell with what you want". Janis, if I thought I was going to be around when your time comes, I'd promise to stick up for your wishes. Too bad, that I'm 62 and since you'll be living a looong time, I'm afraid I won't be here. BUT - I'll help you haunt anyone who didn't do as you requested! Allison
Diagnosis: 7/2008, IDC, Stage IV, mets, ER+/PR+, HER2- |
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konakat Joined: Jun 2007 Posts: 1,613 |
Oct 28, 2009 12:06 pm
konakat wrote:
I understand what Ellie is saying -- that we need to express our sadness when someone we know is dying. I also can understand not wanting the vigil bit -- simply a lighting candles, prayers. A thread of memories, of "did Janis really say that...", or "Janis helped me with....", "I loved that thread she started....". That would be more of a celebration of all things Janis. Lots of swearing and beoching too. Does this sound good Janis? Elizabeth xox Elizabeth's Mantra: When in doubt, eat cake. When you haven't a clue, add ice cream.
Diagnosis: 5/2007, ILC, 3cm, Stage IV, Grade 3, 13/19 nodes, mets, ER+/PR+, HER2+ |
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Member_of_t
Joined: Sep 2004 Posts: 5,555 |
Oct 28, 2009 12:48 pm
Member_of_the_Club wrote:
I promise to only post if I've been drinking. Does that make it OK? Diagnosis: 9/30/2004, IDC, 3cm, Stage IIb, Grade 2, 1/17 nodes, ER+/PR+, HER2- |
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elliem1207 Joined: Mar 2008 Posts: 1,524 |
Oct 28, 2009 02:10 pm
elliem1207 wrote:
alpal, i didn't mean any disrespect to janis. i would respect anyone's wishes janis, if i offended you i'm sorry. there are alot of women on this website who need to say prayers, and light candles because this is how they deal with their fears,sadness, grief, and i think some of these women would do the "death vigil" as you call it, not out of disrespect for you, but because it's what they need to do to cope. that's all i meant. ellie xx ~~ Always keep people in your life that charge your battery, not those who drain it. ~~
Diagnosis: 11/2007, Stage IV, ER+/PR-, HER2- |
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Annie62 Joined: Jan 2005 Posts: 320 |
Oct 28, 2009 02:44 pm
Annie62 wrote:
Janis- I agree that I wouldn't want a death vigil. I find the vigils and daily checking in during final days to be a little creepy. I understand that the posters want the families to know that their loved ones are not forgotten by us, but one post with a memory or to reach out to them is all I would want. I think prayers are great for those who have expressed a spiritual or religious life, but not every one feels the same. I don't post much anymore, but I do read, especially posts by people I remember from when i was first dx. I don't post on these threads unless the person had a personal impact on me or they might remember me. I really hate the posts that say "I didn't know so and so, but I hope ....". If there were few posts, that would be a nice gesture, but if there are already dozens of posts from people our sister knew from these boards or chat, what does that add for the family or our sister? It seems only for the benefits of the person writing it. I don't mean to start a rumpus with this post, but this has been on my mind but didn't feel I should post it as I'm stage iiic, not iv. Annie Dx 11/2004 Stage IIIc IDC Grade 2 11/19 nodes, ER+/PR+ Her2-
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ElaineD Joined: Feb 2008 Posts: 979 |
Oct 28, 2009 02:50 pm
ElaineD wrote:
I rarely post now Janis, but this thread echoes my sentiments. I would hope that your wishes are respected (and that the need to respect them is a long way distant yet!) I too find the long vigil type threads bewildering, and they likely comfort the posters more than the recipient, who after all is too ill by that point to view the threads. Surely if members need to light a candle, a real one is more apt? This can be done quietly and with respect either in the poster's place of worship, or in their own homes. Alternatively, perhaps the prayer/vigil type of threads should be placed in the relevant section, rather than on the stage 1V board, where non participants may feel guilty for their lack of input.It's just a matter of etiquette really, but an important one. Diagnosis: 11/4/2007, 5cm, Stage IV, Grade 3, ER+/PR-, HER2+ |
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GracieM2007
Joined: Apr 2007 Posts: 290 |
Oct 28, 2009 09:21 pm
GracieM2007 wrote:
Fitz...absolutely, if that is what you want. Although like everyone else, I think that time is WAY, way away. dx 4/11/2007, rt. mast 4/27/2007, 1.7cm IDC, stage 2, Grade 3, ER/PR+, Her2-, 4 DD AC, 4 DD T, Arimidex.
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Fitztwins Joined: Dec 2004 Posts: 7,731 |
Oct 29, 2009 08:44 am
Fitztwins wrote:
Drunken posts always accepted. MOTC. Ellie, I was not offended. Maybe it is comforting to others, but to me, it seems ...I don't have words to describe it. Wash away my troubles, wash away my pain, with the rain of shambala
Diagnosis: 12/12/2004, IDC, Stage IV, Grade 2, mets, ER+/PR+, HER2+ |
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SandyAust Joined: May 2005 Posts: 528 |
Oct 29, 2009 07:11 pm
SandyAust wrote:
Ok then Janis. I will just eat a really good sandwich in your honour. ....if I still have my teeth by then. |
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ymb Joined: Mar 2009 Posts: 335 |
Oct 29, 2009 07:33 pm
ymb wrote:
I promise (((Janis))) xoxoxAngel Angel ------------- My beautiful Mom & precious baby Sister, I hold you in my heart, until I can hold you in my arms, when we meet, again. Both passed away after brief battles with BC in 08 & 09
Diagnosis: 5/2008, 6cm+, Stage IV, Grade 3, 1/8 nodes, ER+/PR+, HER2- |
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Fitztwins Joined: Dec 2004 Posts: 7,731 |
Oct 29, 2009 10:38 pm
Fitztwins wrote:
Sandy, thank you. May we both have dentures before I go.................... Enjoy every sandwich!! xo Wash away my troubles, wash away my pain, with the rain of shambala
Diagnosis: 12/12/2004, IDC, Stage IV, Grade 2, mets, ER+/PR+, HER2+ |
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3katz Joined: Oct 2009 Posts: 24 |
Oct 30, 2009 09:37 am
3katz wrote:
Fitz - gotta agree with you about the vigil. And you don't need to describe it - we get it. But playing devil's advocate here (& I mean NO disrespect): you have touched the lives of so many people on BCO and people really care about you. So it is natural they will want to "keep watch" 'cuz they have no control either. I do sincerely hope your wishes are respected - & I think they will be. But people express their sorrow in many different ways. I'm one that doesn't keep watch, I don't send prayers due to lack of religion, but do wish the best for people. And I always raise my glass . . . Besides - echoing the sentiments of others . . . that time is a long way off. Amy D - org dx 2005, stage III / recur-mets dx 2008, multiple bone lesions / er/pr+, her2neu+++
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sjack827 Joined: Mar 2007 Posts: 436 |
Oct 30, 2009 03:50 pm
sjack827 wrote:
Some of the posters here are more well known and post more than others so if they disappear for a while people start to wonder what's going on. This is why Timtam started her contact page. If someone is in hospice or dying or whatever and they've been around a while it's only natural for people to show their concern. And they only way they can do it here is through their posts (and possibly card showers). When I called Stephanie these past few weeks, it was clear that she wasn't going to be logging on and it was also clear that her neither her family nor friends would be logging on to read the posts either. But I knew there were people here who cared about Stephanie and were wondering how she was doing. And Stephanie was kind enough to leave her contact information on Timtams site. People need to express themselves and these boards are a lifeline to many women (and men) affected by this disease. Maybe some people consider certain threads to be "vigils" but I think of them as a way for people to get some kind of closure. How many times has there been a thread on someone who hasn't posted in a while? Ok, I'm running on and it's probably because I'm feeling defensive about starting a thread on Stephanie when she was in hospice. I never meant it to be a vigil; I was worried and I wanted to share the information I got with others. I respect your opinions and your wishes. |
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hollyann Joined: Nov 2007 Posts: 2,391 |
Oct 30, 2009 07:54 pm
hollyann wrote:
Janis, I will light a candle now and pray for a long time til your time and all my other stage 4 sisters....I don't know about any body else but I have had it with losing all these beautiful sisters....I am praying for a cure for all!......I am realistic enough to know that stage 4 is the last stage but I have met a couple of stage 4 women who have been that way for at least 10 years and are till kicking.....I didn't ask how ...I was just happy to hear they were ok for the time being and getting on with life.....I will respect your wishes Janis on the no vigil wanted, BUT I am also praying that time is many many years in the future.........You mean too much to too many women and men on these boards.....
Hugs and love, Lucy also dx with DCIS grade 2 er/pr + her2 neg
Diagnosis: 1/15/2007, IDC, 1cm, Stage Ib, Grade 1, 0/6 nodes, ER+/PR+, HER2- |
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spar2 Joined: Jan 2004 Posts: 6,036 |
Oct 30, 2009 10:30 pm
spar2 wrote:
I promise Janis also, maybe a maxine post a week. Just do us a favor and hang around. Well put hollyann and so glad you are back safe from your trip! www.spar2.multiply.com Lets help make each other's life better
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dmacw Joined: Jul 2007 Posts: 164 |
Nov 2, 2009 01:42 pm
dmacw wrote:
Janis I will be long gone before you but if I am I'll bitch up a storm and swig some wine or tequila down. Donna |
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Analemma Joined: May 2005 Posts: 1,712 |
Nov 4, 2009 06:36 pm
Analemma wrote:
Way to go, Janis. Thanks for bringing this out into the open. Greg and I were talking about this a couple of weeks ago, how it seems such a primitive thing to do, keeping a vigil, and the irony of doing it by internet just cracks me up. The thought of the death vigil, like we've had several of recently, just weirds me out. I've told my sons, don't hang around the house with droopy faces, tell jokes, horseplay, just like you do. I've made it a point to talk about it in casual conversation. I do make jokes about it. After all, dying is a pretty ordinary thing, when you look at the whole plant and animal kingdom, they don't make much of it. Children are the living messages we send to a time we will not see. --John W. Whitehead
Diagnosis: 12/10/2007, IDC, 2cm, Stage IV, Grade 3, 5/12 nodes, mets, ER-/PR-, HER2- |
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riverinerab
Joined: Aug 2007 Posts: 773 |
Nov 7, 2009 03:34 am, edited Nov 7, 2009 03:35 AM
by riverinerabbit
riverinerabbit wrote:
I am not sure what a vigil is ? But all I know is an acknowledgement from my husband to you all to say I've gone will be all that I could wish for. X p.s. I am on palliative care. River
Diagnosis: 8/14/1999, DCIS, 1cm, Stage IV, Grade 1, 0/9 nodes, mets, ER+/PR+, HER2- |
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ElaineD Joined: Feb 2008 Posts: 979 |
Nov 7, 2009 03:37 am
ElaineD wrote:
It seems like quite a few of us feel this way, river. "Vigil" seems to be a thread posted when someone is at the end, and people daily post "thinking/praying for you comments". It certainly makes me uneasy too. Diagnosis: 11/4/2007, 5cm, Stage IV, Grade 3, ER+/PR-, HER2+ |
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Fitztwins Joined: Dec 2004 Posts: 7,731 |
Nov 8, 2009 05:29 pm
Fitztwins wrote:
I equate it to a death watch. When one of us takes a turn for the worst, and people come out of the woodwork to post for us. My DH will not post when I am gone. I have to leave that to my friend. Wash away my troubles, wash away my pain, with the rain of shambala
Diagnosis: 12/12/2004, IDC, Stage IV, Grade 2, mets, ER+/PR+, HER2+ |
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riverinerab
Joined: Aug 2007 Posts: 773 |
Nov 20, 2009 03:19 am
riverinerabbit wrote:
Janis, I've been reading your posts in the palliative/hospice care forum, and what concerns me, is you are spending too much time worrying. To my knowledge, you've not been given those final words yet," sorry, there's nothing we can do for you any more." It's a different stage of this journey, and you are trying to anticipate and you cannot. I am there, its not somewhere I wish on any one. So stay away from worrying about this and live in the now. I am very straightforward as you know, and this forum is not for you right now. With love and respect. River
River
Diagnosis: 8/14/1999, DCIS, 1cm, Stage IV, Grade 1, 0/9 nodes, mets, ER+/PR+, HER2- |
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riverinerab
Joined: Aug 2007 Posts: 773 |
Nov 20, 2009 03:20 am
riverinerabbit wrote:
Janis, I've been reading your posts in the palliative/hospice care forum, and what concerns me, is you are spending too much time worrying. To my knowledge, you've not been given those final words yet," sorry, there's nothing we can do for you any more." It's a different stage of this journey, and you are trying to anticipate and you cannot. I am there, its not somewhere I wish on any one. So stay away from worrying about this and live in the now. I am very straightforward as you know, and this forum is not for you right now. With love and respect. River
River
Diagnosis: 8/14/1999, DCIS, 1cm, Stage IV, Grade 1, 0/9 nodes, mets, ER+/PR+, HER2- |
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Fitztwins Joined: Dec 2004 Posts: 7,731 |
Nov 20, 2009 08:58 am
Fitztwins wrote:
Thanks River. I worry, but I am more of a control freak that has to plan everything out! I know it wont matter once I am gone to me, but I just can't help myself! Enjoy Every Sandwich.
Diagnosis: 12/12/2004, IDC, Stage IV, Grade 2, mets, ER+/PR+, HER2+ |
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vivo Joined: Mar 2009 Posts: 326 |
Nov 20, 2009 12:57 pm
vivo wrote:
Eleane I couldn't understand what the vigil is...and I was trying so hard to understand what Janis was tallking about. So Janis it is true that whoever becomes a member of this forum remembers FOR EVER the "ONES" that are: always mentaly close to us without even trying laconic but really usefull in advices trustworthy for suggestions intra power that makes one feel sure about the quality of the forum You are a gifted person that really can touch the hearts of others from so many miles away :) (don't get embarrashed). So as a gifted person one can distinguish you from the crowd.You cannot do anything to change it. I don't hide you that I was stronly thinking of you when last week got back in the posts here. Is it bad?Every time you post is like a sunbeam and I was wishing you could answer my questions. Sorry if it is annoying but it is true. I want you to be good and all the others is nothing for me. The meaning of life is not what you learn but what you teach
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vivo Joined: Mar 2009 Posts: 326 |
Nov 20, 2009 01:29 pm
vivo wrote:
I just wanted to add our lihes are not soapoperas... JanisThe meaning of life is not what you learn but what you teach
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vivo Joined: Mar 2009 Posts: 326 |
Nov 20, 2009 01:30 pm
vivo wrote:
lives not lihes The meaning of life is not what you learn but what you teach
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