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Nov 27, 2012 10:31 PM ElaineForCindyRose wrote:
I'm ba--aack :-)
I'm still trying to process how fast things seem to be happening, all of a sudden it seems to me. Yesterday Cindy asks me to take over the blogs, and we planned for me to call daily -we were gonna line up what time would be best- and I'd post here and on Word Press to keep the family updated. I called a little while ago, talked to Rick for a few minutes then asked for Cindy. He said I was taking my life into my own hands, I told him I'd risk it ;-)
As he's entering the door to the other room, Cindy asks him for her overnight bag. He asks, you're going somewhere? She says, yes, for a couple days. Rick's a bit surprised & hands her the phone telling her it's me. I asked her where she was going, she says the hospice hospital. I told her Rick hadn't said anything & she said that the hospice nurse was with her & they just decided she needed to be admitted. The hospital is about an hour away from home -that's really unusual for her. They've got hospitals within minutes from the house & she prefers to go there because they know her & have her history, etc ... I ask why so far away and she says that this is a hospice hsptl where there are hospice nurses on duty 24hrs a day & the doctors are there, too. The hsptls locally would be like nursing facilities with nurses there but the doctors are on call -so if something happens during the night she can receive the appropriate care promptly. So, that makes sense. She said they're planning on just a few days to get her pain under control, then they'll let her come home with IV meds. Then I let her go, to finish up paperwork with the hospice nurse & head out.
On the plus side, Cindy usually likes getting away from home ... calls her hospital stays mini-vacations. They keep the temperature just right, they clean, cook & feed her what she wants, she gets control of the remote for the tv, and the beds are the best! She likes the old hospital beds -not the new ones filled with air that you adjust. She told me last night that she's not been able to get comfortable anywhere -bed with pillows or whithout, couch, recliner ... nowhere. She was truly looking forward to the hospital bed being delivered to her home today. She gets the hsptl bed tonight :-)
I'm not completely sure what you guys don't know, so I'm gonna tell you what she told me last night; my apologies if you knew already. This may help understand why I feel like things went in fast forward. Here's the re-cap.
So, we started with the holidays ... she said she really didn't want to decorate for Christmas this year (last year she was in the hsptl for Christmas) because it reminds her what she cannot do. She had a little help getting someone special a secret present -you could hear the happiness in her voice! It's gonna be wonderful!
She had a talk with Mom about the current state of her health. It couldn't have been easy. Mom's been trying to do what mom's do, everything to stay alive longer ... etc etc etc .... Cindy's been really clear about not having radiation/chemo/more surgeries with questionable outcomes: she doesn't want them. Period. Mom *I love her dearly* is now on board ... Cin repeated that there's no point in further surgeries, that even the surgeon's say it's too dangerous & there's nothing to do that will stop the cancer's growth & there's nothing Cindy can do to control it. It's not in her hands. Then they went on talking about other family ... blah blah blah.
Cindy told me there was only so much "butchery" a person can handle. I was a bit baffled, so she ellaborated they'd taken/removed/amputated her appendix, gall bladder, leg, lymph nodes, and breast. I was briefly surprised not having remembered all that!
Cindy was excited about Rick being able to look for work -finally, how the workman's comp case was going to close soon (although no matter what money they get in a settlement, it's not worth the crap over the past years. He's been hurt while she's going thru cancer ... he jokes that she's trying to one-up him with the doctors, she quips back she's sorry she's stealing his thunder :-) When they go to the doctor appts -either hers or Rick's- the nurses and doctors always flock to her, grab & hug her and ask how are you honey? The doctors sometimes kiss her forehead and are really touchy feely ((that is not Cindy's way -so not a "Feeler")) They ask How are you feeling and she wants to answer, "I'm not dead yet." She says people often think people with cancer get pale, have dark circles under their eyes and look terribly sick ... I admit I thought that, too. She informed me that's only in the movies. I didn't know.
Well, I'm heading for bed. I am looking forward to meeting you all as I read the thread in the morning.