Jan 23, 2011 11:54 PM calamtykel wrote:
Hello all -
I realize this is sorta an old topic, but one that is pretty hot regardless! I started tamox December 26. Four days ago I woke up with incredible vertigo. I couldn't walk straight - and felt like my left leg was weak. I went to the ER and they checked me out - had to have a ct to the head :( (nothing like more rads to the mix...) but they said I was okay. Over the course of the day it went away.
Since then I have been experiencing extreme anxiety and depression. I have had dizziness on and off, but what's worse is the sleeplessness, anxiety and reduced cognitive function. I feel as if I'm in a tunnel some of the time and disconnected and spacey. I cannot sleep at all and when I do I wake up in a panic every few hours.
I decided after much prayer and reading to discontinue the tamox - take a vacation from it and see if things even out. I cannot and will not live like this-yes, I could add another "drug" to the mix in the form of an anti-anxiety, but what's this doing to my body inside? I'm an avid exerciser and have been doing an hour a day. Yesterday I tried to go running and I coudln't do it - felt like I couldn't breathe and was dizzy.
I see a naturopath and am otherwise very healthy. Right now he has me on many different things - a mushroom blend, green sprouts powder blend and other anti-cancer things. I promised myself I would just plunge straight into tamoxifen and not read about it but after my symptoms this week I'm reading all I can! I'm frightened at the liver toxicity of this drug - they found in rats that it permanently bound to their DNA. He is unhappy with tamoxifen and I know he would be willing to run some bloodwork if necessary to check my hormone levels, etc., if I go off of it.
My question is twofold. I cannot find anyone who will give me real statistics about this drug. I"ve read everything from 3 percent to 69 percent!! Well, when I went to Lifemath and calculated my survival, it increases it by 4% over ten years. I told myself I was willing to do anything to increase my survival, but in all honesty I have a quality of life thing too and if this will mean beating up my body in other ways I'm not willing to do it. I've done eight rounds of chemo and FRANKLY that seemed a breeze compared to the tamoxifen.... I'm 41 years old, and I do know that tamox works much better for women over 50 from the statistics I read.
My other question is for those on natural estrogen reducers. If you could give me a list of things you are taking or recommend for me to bring to my naturopath to tweak my program, I'd be really appreciative!!
I just feel like what's the point of trying to build up my body now that chemo is done, if tamoxifen seems to be tearing it down....... :( I was totally willing to give tamox a whirl and had a good attitude about it but after this week I'm changing my mind.
Diagnosis: 6/12/2010, IDC, 1cm, Stage IIa, Grade 2, 2/12 nodes, ER+/PR+, HER2-