Topic: Ladies on Tamox....I have a Question...

lexis: I've been on tamoxifen for 14 months and have never had aches, pains or sore joints. Did have hot flashes in the beginning, but they went. It could be what you said. Who knows with side effects.

I have some hip pain and also a bit of pain in the ankles (joint stiffness, mainly). I've been on Tamoxifen since January and really hope that is the cause of the hip pain! I did find a thread on hip pain and tamoxifen so it made me feel like I wasn't crazy...

 I definitely get achy sometimes and have a good friend on Tamoxifen who has experienced joint and muscle aches since she's been on it as well...

Jackie

I thought everyone on tamoxifen had hip pain.  I'm sure I was in that earlier thread.  I am finding a lot more aches and pains that I think are from the aging process.  I am on tamoxifen so maybe that has something to do with it, but for me it started even before bc.  I;m sure its nothing serious, but if it continue you might want to go back to your doctor.

I have been on tamox since August also and have just started noticing my lower back and hips aching.  It's not debilitating like on femara, but I've noticed it.  I have not decreased my workouts, and am powering through them, but I find myself more sore in the hip and low back afterward.  My neck/shoulders ache a little too - mostly in the shoulder joints.  Guess that means it's working?

Hi Ladies....

This is my first post and I have a Tamox question.  I have been on Tamox for 1 year, and my feet have been very sore the past couple of weeks.  I asked my gyn.,but he was not sure if it was the Tamox or not.  I have had arthritis in my r ankle even pre-diagnosis; but both my feet hurting has been discouraging as I need my feet!  Just wondered if anyone out there has had sore feet, and this site has been a saving grace for me since I was diagnosed in 2008.

Dx.Feb.2008, IDC 1.7 cm,lumpectomy,7/13 nodes, ACT chemo,radiation, now on Tamoxifen

Hi Athena,

Interesting about the Lupron....I have been on Tamox with Lupron for 16 months. I started taking my D3 again, Oct-April, I do not take it in the warmer months since Im outside everyday with my 4 year old.

Since my complaints I have been working out and stretching. My back and hip pain? almost gone! I think the culprit was the 12 hour flight I had a few days before. So thats good news.

But I think the combo of Lupron and Tamox has added extra weight wich causes stress on me. Im only 5'3 , small framed but I have about 50 lbs to loose. I do have ankle aches but I think its all weight related. I've started to fix that problem......onward!!!

I have had issues in the last month or so (11 months on Tamoxifen, 46, premenopausal) with my knees being a bit uncomfortable. Also my fingers. I haven't seen anything specific about Tamoxifen causing joint pain on the lists of side effects, but there's been anecdotal evidence on these threads. My question: WHAT is the source of this sort of pain? Is it just some sort of sensitivity/achiness thing, or is some sort of damage happening to my joints with less estrogen circulating in my system, or??? If it's just a sensory thing, it's annoying but I can deal with it, but if I'm damaging them in some way, that would be a bummer...

Hi, I have been on Tamoxefin for 2 yrs and have found I have aching in my knees especially if I have been sitting awhile. And yes I felt as if 5yrs was going to be a long one but actually time has flown by very quickly. I think everyone is different with side affects so I don't believe when someone never has had a certain symptom doesn't mean that isn't a side affect for YOU. For me I have gained alot of weight while on Tamoxefin, along with being menopausal for about 6yrs.

When I was on chemo, a friend gave me Orbit gum.  Whenever I feel a little queasy, I chew the gum and I was never a gum chewer!  This has really worked for me and I take it everywhere I go.  Sometimes our precious nerves can bring on a sour stomach but chewing gum takes my mind off my troubles.

All,

I too have had painful feet (mostly in the morning, but also after sitting for a long period of time) and the hip pain/stiffness.  I swear that it is related to the tamoxifen.  I was running regularly throughout my chemo (Jan - April 2009) and have been pretty active since.  I had the foot pain during chemo and for a while thereafter, but attributed it to neuropathy.  I started tamoxifen 7/1/09 and have since had the hip stiffness/pain, so much so that I have mentioned it to doctors and been to a physical therapist.  I am getting Zometa 1x every 6 months, but have only had one (in July 2009).  Something has caused the foot pain & hip stiffness/pain -- either tamoxifen, chemo, or the menopause caused by the tamoxifen.  Like others, it is not debilitating so I power through, but it certainly is annoying.

Linda

P.S. I guess I'm lucky ... at least tamoxifen doesn't make me nauseous like some.

I have been on Tamoxifen for a month now and am having bad foot pain at night. (just one foot) I have not done chemo, so it must be the Tamox. The night sweats and hot flashes are tough, but this pain in the foot is a pain in the butt. I've been taking Tylenol PM and using the heating pad, but it hasn't helped that much. I'm hoping this will subside.

I had horrible muscle/bone (or joint) pain during Tamoxifen.  Have any of you had any muscle cramps?  I had those, too.  One thing that helped was 400 mg of magnesium oxide.  Most magnesium vitamins you find are 250 - the 400 is much better.  I used Mag-Ox and this now comes in generic form.

If I don't take my potassium/magnesium supplement, I will die from night leg cramps.

 My achilles heel/tendon KILLS me and my foot bones kill me...I get some pain in may hands as well.

My worst is between my shoulder blades and this just started...I think it may be nerve endings regenerating from my bilateral mx and it is intermittent, but that is what I am telling my brain...who knows

 Because tamoxifen is still making me ovulate, I occasionally have lower back pain and groin pain, as if I were having a period...but no period.

Best to you.