I need some help-the vaginal dryness is really tough--- I have been using replens, ky jelly and astroglide--someone recommended coconut oil--so I went to whole foods and got a jar of something that said it was coconut oil--- white, in a jar.... has anyone used this? Or anything else that helps??????
also, I am doing 1000ius of vit d daily- but I see that some are doing 2000 iu--does this help with your joint pain and possibly sexual desire???
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Bayyyy Joined: May 2006 Posts: 1,411 |
Oct 19, 2009 09:42 pm
Bayyyy wrote:
I'm so prone to infections since chemo/menopause (both vaginal and bladder/UTI )that I have to be very careful what I use. I usually have coconut oil on hand and use it for cooking and some skin applications but I personally wouldn't use it 'down there'. I have tried replens and the like and the absolute only things that has helped me is estrogen and yes, I'm hormone positive but my GYN feels strongly it is fine and my onc has no problem with my use of non-systemic estrogen. I do take tamoxifen daily. My quality of life is so much better now. I take 4-6000 IUs of Vitamin D and sometimes my dr gives me the weekly 50,000 IUs and I still test too low. I think Vit D helps with many, many things but haven't heard anything about desire. I believe decent vitamin d levels does help with pain in general. Best wishes and feel free to PM me The grand essentials of happiness are: something to do, something to love, and something to hope for~Allan K. Chalmers
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momand2kids
Joined: Oct 2008 Posts: 255 |
Oct 20, 2009 03:48 pm
momand2kids wrote:
Bay thanks so much for responding-- I am going to ask for an increase in vitamin d---- I am on femara and lupron--- I have been reluctant to re-introduce estrogen yet-- I have only been on the drugs since july---- I have been using glucosamine and exercise to help with the joint stiffness and it has been pretty good--- but the dryness is still an issue..... is there a specific type that you are using? I want to be able to ask at my next appointment. thanks again Diagnosis: 10/29/2008, ILC, 2cm, Stage II, Grade 2, ER+/PR+, HER2- |
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Yazmin Joined: Apr 2006 Posts: 653 |
Oct 20, 2009 03:57 pm
Yazmin wrote:
Byyyy: Thanks for the information on vaginal estrogen: I have been hesitant, but will use it in the future, because doctors seem to concur (for once!) that non-systemic estrogen is no problem at all. Beside, I have always wondered about those treatments aiming to block estrogen. There is a discussion somewhere here about that: if, indeed, estrogen is the problem, how come the overwhelming majority of women come down with GYN cancers around or after menopause, when it is depleted? That question has not been answered yet, of course......l Courage!
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Shanagirl Joined: Jan 2009 Posts: 622 |
Oct 20, 2009 04:00 pm
Shanagirl wrote:
Bayyy, Is that estrogen creme for down below? Before I was diagnosed with BC I have used that as well as testosterone creme, both precribed by my gyno. The testosterone creme was compounded at the pharmacy, and I think it was bio identical plant based hormonal creme. But I've been wanting to ask my gyno if I can safely use them now. Shanagirl
Diagnosis: 1/13/2009, IDC, 5cm, Stage IIIa, Grade 1, 2/18 nodes, ER+/PR+, HER2- |
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cp418 Joined: May 2006 Posts: 2,790 |
Oct 20, 2009 04:18 pm, edited Oct 20, 2009 04:21 PM
by cp418
cp418 wrote:
I've tried the coconut oil (yes, the white jar) - a litte messy as apply with fingers. I had lots of issues with burning and discomfort with the OTC moisturizers - - one brand really burned and very uncomfortable. The coconut turns to liquid really quick from body heat - - so insert quickly. I've had no issues, discomfort etc and it smells nice. I've also applied externally only Vitamin E oil - not internal. "Don't let fear of tomorrow rob you of the joy of today." |
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rgiuff Joined: Apr 2008 Posts: 395 |
Oct 21, 2009 05:24 pm
rgiuff wrote:
Shanagirl, when you used the testosterone cream, did it help with sex drive and/or orgasmic ability? These are the problems I'm dealing with because of menopause and possibly due to tamoxifen influence as well, and from what I've been reading, testosterone may be what I'm missing. I also had a prescription for estrogen cream before the breast cancer diagnosis, which I've been using sparingly down below, as per my Onc's instructions, but I'm running out, so will attempt to get it renewed soon from my Gyn. As for the Vitamin D, I recently was at a conference where they promoted the idea of everybody needing to get their Vit D. levels tested, because it is preventative of breast cancer and also that it helps our bodies to make our sex hormones. RoseG
Diagnosis: 4/2008, IDC, <1cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2- |
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squid Joined: Aug 2009 Posts: 4 |
Oct 21, 2009 05:32 pm
squid wrote:
Vegetable oil. Works, nontoxic, no alcohol, and does not taste bad. Soothes soreness too. Recommended to me by my nurse-practitioner. Diagnosis: 5/5/2009, IDC, <1cm, Stage I, 0/2 nodes, ER+/PR-, HER2- |
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London-Virg
Joined: May 2009 Posts: 839 |
Oct 21, 2009 07:10 pm
London-Virginia wrote:
In the USA, do you have Palmers' coacoa Butter formula with Vit E moisturising body oil? You can use this in shower or bath and it is a very nice and inexpensive moisturiser. Also very nice for Southern regions! keeps things as they shouldbe, and I reckon the body sort of memorises this and is more cheerful. Sounds bats but still........ ThaNKS SO MUCH FOR SHARING INFO ON THIS IMPORTANT SUBJECT XXXXXXXX Virginia.
Diagnosis: 5/9/2009, IDC, 2cm, Stage IIb, Grade 3, 1/2 nodes, ER+/PR+, HER2- |
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momand2kids
Joined: Oct 2008 Posts: 255 |
Oct 21, 2009 07:38 pm, edited Oct 21, 2009 07:39 PM
by momand2kids
momand2kids wrote:
this is all so helpful--I am armed with replens, coconut oil, vegetable oil.... how can I fail????? virginia,I don't know if we have Palmer's--- I got this coconut oil at the supermarket..... I want to try as many things as possible before I resort to re-introducing estrogen---- because I am doing so much work to block estrogen with lupron and femara..... but a girl's gotta live!!! Diagnosis: 10/29/2008, ILC, 2cm, Stage II, Grade 2, ER+/PR+, HER2- |
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Shanagirl Joined: Jan 2009 Posts: 622 |
Oct 21, 2009 11:04 pm
Shanagirl wrote:
rgiuff, Yes the testosterone creme does help with libido. It makes you more supple down there. I've noticed that without estrogen in my system, sex is painful because even with ky, astroglide, and replens the lubrication doesn't seem to be enough because the skin actually thins down below which is what adds to the discomfort. This is such a hard adjustment because my husband and I have always had great sex and lots of orgasms. Since memopause and mastectomy that's not as easy anymore. Unless of course he uses the little motion toy on me. Shanagirl
Diagnosis: 1/13/2009, IDC, 5cm, Stage IIIa, Grade 1, 2/18 nodes, ER+/PR+, HER2- |
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talbrig13 Joined: Jan 2007 Posts: 413 |
Oct 22, 2009 08:42 pm
talbrig13 wrote:
My gyn recommended the coconut oil. Yes, it is messy. But when I just was there for a checkup and complained about the mess, she gave me a "plunger" like you use for monostat. It helps get it in before it melts! I really don't want to try the estrogen cremes until I am a few more years out. Terry :)
Diagnosis: 12/8/2006, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2+ |
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talbrig13 Joined: Jan 2007 Posts: 413 |
Oct 23, 2009 07:45 am
talbrig13 wrote:
Oh and I forgot to tell you....my gyn said my tissues feel much healthier using the coconut oil I think it is worth putting up with to feel better. I so hate all the drugs and meds we take. Terry :)
Diagnosis: 12/8/2006, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2+ |
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Welga Joined: Jun 2006 Posts: 313 |
Oct 23, 2009 05:00 pm
Welga wrote:
hello talbrig My coconut oil is very hard in the jar, how do you get the plunger to suck it up, maybe you live in a warmer weather and you oil il more liquid, mine goes liquid in the summer when the home temperature is higher but at this time of year oil is very solid. Dx 4/4/2006, IDC, 1cm, Stage II, Grade 1, 1/5 nodes, ER+/PR+, HER2-
Diagnosis: 4/4/2006, IDC, 2cm, Stage II, Grade 1, 1/5 nodes, ER+/PR+, HER2- |
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momand2kids
Joined: Oct 2008 Posts: 255 |
Oct 24, 2009 08:32 am
momand2kids wrote:
welga, that is a great question--- I also need to know how you apply it and, more importantly, when? Mine is very solid at the moment as well..... Help!!! Diagnosis: 10/29/2008, ILC, 2cm, Stage II, Grade 2, 0/1 nodes, ER+/PR+, HER2- |
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cp418 Joined: May 2006 Posts: 2,790 |
Oct 24, 2009 09:44 am
cp418 wrote:
Ahh.... I never considered a plunger when I purchase the jar. After a shower, while on the toilet - I basically took a scoop with my fingers and shaped as it melts quickly - - - then insert like you would a tampon. Granted you are using your fingers and then smear external to soften skin area. I do immediately before bed to lie down. I guess I'm not very creative --- my goal was to stuff the turkey. (It does liquify very quickly when you handle with fingers.) ![]() "Don't let fear of tomorrow rob you of the joy of today."
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rgiuff Joined: Apr 2008 Posts: 395 |
Oct 24, 2009 06:22 pm
rgiuff wrote:
OK, does this stuff leak out when you are up and walking around? I'm so tired of products that do that, as if the tamoxifen induced vaginal discharge weren't bad enough! Also, what exactly does this coconut oil do- with regular use- will it restore the shriveled up tissues down there? Or is it just a temporary lubricant, good for the moment? RoseG
Diagnosis: 4/2008, IDC, <1cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2- |
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Welga Joined: Jun 2006 Posts: 313 |
Oct 25, 2009 01:24 pm
Welga wrote:
cp418, Thanks for the tip, you are just toooo funny, ''stuffing a truky''lollll So I guess if we shape it sort of like a suppository it would look like your method. I know I have used coconut oil on wounds and it seemed the were healing faster. Dx 4/4/2006, IDC, 1cm, Stage II, Grade 1, 1/5 nodes, ER+/PR+, HER2-
Diagnosis: 4/4/2006, IDC, 2cm, Stage II, Grade 1, 1/5 nodes, ER+/PR+, HER2- |
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Nordy Joined: May 2009 Posts: 604 |
Nov 15, 2009 09:08 pm
Nordy wrote:
Thank you so much for this tip... I am set for hyst/bso on Dec 2. This is one thing I worry about so much because I remember just how painful things were when I was menopausal during chemo. I am banking on the coconut oil... I actually have some in the house! I bought it to use for cooking shortly after I had my last baby... I remember well because they had an aisle display set up and since I had the baby in the car seat in the shopping cart, I did not see the display. Needless to say, I ran into it and probably broke 20 jars of (not very cheap) coconut oil right in the middle of Whole Foods! OOPS Not that that has anything to do with anything here... LOL... don't know where I was going with that!Diagnosis: 4/21/2005, IDC, 3cm, Stage IIb, Grade 3, 0/12 nodes, ER-/PR-, HER2- |
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Che54 Joined: Jun 2009 Posts: 17 |
Nov 17, 2009 02:30 pm
Che54 wrote:
This discussion sure grabbed my attention. I've been using Replens...with so-so results. Like many of you, I'm wanting to try anything/everything before I consider using a vaginal estrogen. Back to the coconut oil.....cp418, how often do you use this? Every night? Is it like Replens in that it actually moisterizes the vaginal tissues? Or is it used as a lubricant during sexual intercourse? Heading out in search of coconut oil..................... Diagnosis: 4/22/2009, IDC, <1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2- |
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momand2kids
Joined: Oct 2008 Posts: 255 |
Nov 18, 2009 01:33 pm
momand2kids wrote:
just checked my coconut oil--haven't used it yet--it melted and is now coconut water!!!! but if feels good!!! Diagnosis: 10/29/2008, ILC, 2cm, Stage II, Grade 2, 0/1 nodes, ER+/PR+, HER2- |
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yellowfarmh
Joined: Feb 2005 Posts: 882 |
Nov 18, 2009 10:57 pm
yellowfarmhouse wrote:
hi. Coconut oil has worked good for me. I buy a jar and then separate into smaller containers and pop into the freezer. And then use one at a time. It seems to help if I use it daily. I use the organic kind. It's cheap. Starts as a solid and melts as another post said. Also good for general massage. I didn't have any success with commercial products. Best wishes, Wendy blessings and love to all my sisters here!
Diagnosis: IDC, 3cm, Stage IIIa, Grade 3, 4/9 nodes, ER+/PR+, HER2+ |
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mimi1964 Joined: Oct 2009 Posts: 416 |
Nov 22, 2009 07:23 pm
mimi1964 wrote:
Hi and thanks for the information. I guess I am going to check on the coconut oil since my gyno won't at this time prescribe me any vaginal estrogen cream, even though the breast surgeon said it was o.k. I will have to talk to my onc about it. Hodgkins Dz 1980; Parial Mastectomy 10/29/09; DCIS and IDC
Diagnosis: 10/22/2009, IDC, 2cm, Stage Ia, Grade 1, 0/4 nodes, ER+/PR+, HER2- |
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chinablue Joined: Jul 2009 Posts: 305 |
Nov 23, 2009 06:53 pm
chinablue wrote:
Umm ... what is the difference between the use of coconut oil, vaginal estrogen cream, or ky lubricant? Diagnosis: 7/7/2009, IDC, 3cm, Stage IIIa, Grade 3, 4/24 nodes, ER-/PR-, HER2- |
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talbrig13 Joined: Jan 2007 Posts: 413 |
Nov 30, 2009 07:19 pm
talbrig13 wrote:
Cocnut oil....someone asked....how to put it in? My gyn gave me an applicator - I just scoop a little into it while it is solid. It melts in the body. If you put in too much, yes, it does leak out. But just a little does it. I then rub any extra onto my elbows....nice softener too! Terry :)
Diagnosis: 12/8/2006, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2+ |
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Welga Joined: Jun 2006 Posts: 313 |
Dec 1, 2009 12:32 pm
Welga wrote:
Thanks talbrig, did not think about scooping while hard. Will again try this method Dx 4/4/2006, IDC, 1cm, Stage II, Grade 1, 1/5 nodes, ER+/PR+, HER2-
Diagnosis: 4/4/2006, IDC, 2cm, Stage II, Grade 1, 1/5 nodes, ER+/PR+, HER2- |
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chinablue Joined: Jul 2009 Posts: 305 |
Dec 8, 2009 01:16 pm
chinablue wrote:
Does coconut oil, vaginal estrogen cream, or ky lubricant do the same thing? Diagnosis: 7/7/2009, IDC, 3cm, Stage IIIa, Grade 3, 4/24 nodes, ER-/PR-, HER2- |
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Linda37 Joined: Apr 2009 Posts: 35 |
Dec 14, 2009 07:59 pm
Linda37 wrote:
I was having terrible issues with vaginal dryness and my gyno prescribed Vagifem. It's a small pill that you insert vaginally 2x per week (it comes on the end of a little applicator thingy.) Vagifem delivers a small dose of estrogen to the vaginal walls; it's a tiny amount and it's localized so I can use it even though my bc was hormone receptor positive. Let me tell ya'.....this tiny little pill has made a WORLD of difference!! It's great! It unfortunately hasn't made a big difference in my sex drive....I still don't feel the desire to have sex very often. But at least when we do, it doesn't hurt from the dryness. Diagnosis: 3/19/2009, IDC, 1cm, Stage II, Grade 2, 1/17 nodes, ER+/PR+, HER2- |
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flash Joined: Oct 2007 Posts: 949 |
Dec 19, 2009 08:05 am
flash wrote:
Just saw the gyn oncologist who did my ooph and hyst. He said the more you have sex, the better the body will start making some (only some) lubrication. He said coconut oil was his first choice. dcis, idc, pagets er+,pr+ her2+++, mast, ooph, hyst
Diagnosis: 10/10/2007, Paget's, Grade 3, ER+/PR+, HER2+ |
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Harley44 Joined: Jul 2007 Posts: 4,960 |
Dec 22, 2009 04:49 pm
Harley44 wrote:
..ok... I don't have a Whole Foods in my neighborhood. So, what do I do? How do I get coconut oil?? Please help... |
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hrf Joined: Nov 2004 Posts: 1,142 |
Dec 22, 2009 04:55 pm
hrf wrote:
You can find coconut oil at any health food store and in many grocery supermarkets. BRCA2+ first dx in Oct. 2004 2nd dx Feb. 2009 a new primary
Diagnosis: 2/6/2009, ILC, 2cm, Stage II, Grade 1, 4/6 nodes, ER+/PR+, HER2- |
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