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All TopicsForum: Hormonal Therapy - Before, During and After → Topic: Arimidex - Coping with the SE's

Topic: Arimidex - Coping with the SE's

Forum: Hormonal Therapy - Before, During and After — Risks and benefits, side effects, and costs of anti-estrogen medications.

Posted on: Jul 28, 2010 11:22AM, edited Oct 12, 2010 08:50AM by Lowrider54

Lowrider54 wrote:

Not just for Arimidex but all the Hormonals - se's are so similar so coping with them should also be similar and the remedies offered should work for any of the Hormonals - don't go away, read on if you are taking any of the hormonal treatments.... 

For those of us who are taking this potentially life saving/life prolonging drug, it does not come without side effects.  There are some very lucky folks who don't have any...GREAT!  But for those that do, lets share how we cope with the hot flashes and night sweats and stuff.

The 'Arimidex' thread covers more than just side effects and coping - there is much debate over it going generic and the effectiveness of its use.  I am putting this up in hopes that new users can find the answers concerning the se's easily.  Of course, please visit the Arimidex thread for more information concerning the statistics, research and controversy surrounding many of the AL's and new treatments we are being offered today.

Treatment is always a personal choice - if Arimidex is your choice, these kind folks can help you manage some of the issues that some with taking it.

I elected to take a low dose of Effexsor to aide with the hot flashes and night sweats.  It worked very nicely for me.  Water intake and walking assists with the possible joint pain.  I eliminated as much gluten from my diet as I could (that stuff is in everything....lol) and did not experience weight gain - I did experience 'weight re-distribution' however - it seems to go to the tummy.  I haven't found a good solution for that yet.  Cool

Good Luck All!

Hugs

LowRider

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Posts 6661 - 6690 (7,877 total)

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Dec 2, 2012 05:25PM flannelette wrote:

hello all - a while back some people mentioned metformin, even if you aren't diabetic. I just had my bloodwork done and came in at a 6 for blood sugar. Had i come in with 6.1 he would have considered me prediabetic. i know diabetics take metformin, but what does it have to do with bc? is there a thread? I'm suddenly interested!

Dx 7/2008, IDC, 6cm+, Stage IIb, 0/6 nodes, ER+/PR+, HER2-Dx 7/20/2012, 0/6 nodesSurgery 07/30/2008 Mastectomy (Left)Chemotherapy 10/01/2008 Cytoxan, Ellence, fluorouracilRadiation Therapy 01/10/2009 ExternalHormonal Therapy 02/15/2009 ArimidexSurgery 07/20/2012 Lymph Node Removal: Axillary Lymph Node Dissection (Right)
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Dec 2, 2012 05:35PM nwest125 wrote:

I am glad I am not the only one the thinks that a stiff neck is a SE, mine started out with just the left side going up into my head and sometimes it hurts on both sides, I really don't know what to do about it. First I thought I needed a new pillow got a new one and that didn't help, I told my DH maybe we need a new mattress, I don't know

Nancy

IDC 11-1-10 Lumpectomy 11-15-10 reincision/ found ILC 12-16-10 BMX with no reconstrution

Dx 9/21/2010, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Dec 2, 2012 05:47PM Musical wrote:

Yep heres another one who had a stiff neck about a month ago (or so). I don't remember doing anything out of the ordinary, it just "arrived". It was extrememly painful and I could barely turn my head to the right. A heated wheatbag helped considerably. Completely gone now. Seeing what some of you are saying,  I wouldn't hesitate to blame A now.

Psa 119:105 NUN. Thy word is a lamp unto my feet, and a light unto my path. (KJV)

Dx IDC, 4cm, Stage IIa, Grade 3, 0/13 nodes, ER+/PR-, HER2-
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Dec 2, 2012 06:32PM spunkyboobster wrote:

I have a stiff neck on and off and never did before AI-so I'm thinking SE.

Dx 10/3/2011, ILC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2-Surgery 12/13/2011 Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Both); Reconstruction: Breast implants (permanent) (Both)Surgery 03/22/2012 Prophylactic Ovary Removal (Both)Hormonal Therapy 04/01/2012 Arimidex
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Dec 2, 2012 06:33PM ptdreamers wrote:

Neck got so bad that I couldn't sleep for three days. Went to PCP. Sent to PT. The exerccises do help along with heat or ice as necessary. They have me turning head side to side, also turn head to side and look down holding for about thirty seconds. You could probably Google exercises for neck and shoulder and try some. Just remember what the PT told me that if an exercise hurts don't do it. You are trying to slowly get your neck and shoulders to a fuller range of motion. Good luck.

ptdreamers, “Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do. . Sail away. Catch the trade winds in your sails. Explore. Dream. Discover.”

Dx 8/26/2011, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Dec 2, 2012 07:01PM Musical wrote:

yea well the strange thing is what exactly sets it off? Usually you can source it to something you might of done, even slightly done... but to just happen out of the blue for no reason at all...crazy.

Psa 119:105 NUN. Thy word is a lamp unto my feet, and a light unto my path. (KJV)

Dx IDC, 4cm, Stage IIa, Grade 3, 0/13 nodes, ER+/PR-, HER2-
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Dec 2, 2012 08:02PM purple32 wrote:

 me to try a different AI - like Tamoxifen...I balked, as I still have my uterus.  Then she says, "so why didn't you get your uterus out?"  Meh - she was there, before and after, my ooph, and never mentioned it. 

Kam

Tamoxifen is not an Al.  No offense meant to YOU, but I do wonder about your DR!  You might wnat to consider seeking other options on the alternative thread.

Good Luck to you!

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night.

Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-Surgery 05/01/2012 Lumpectomy (Left)
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Dec 2, 2012 08:05PM, edited Dec 2, 2012 08:09PM by Kam170

Hmmm..I know Tam isn't an AI...I'm sure my MO doesn't think so.  I'll have to check my wording.  Should have said "different hormonal."  (I hope "hormonal" is correct...I know what I meant.) Just being somewhat sloppy.  Maybe it's my new trigger finger.Wink

My main problem with my MO (atleast the one I mentioned..it's not the only problem) is the question she asked me...."why didn't you get your uterus out?"  I'm brca2+, so had an ooph.  She knew I was going in for that surgery (15 days before I started exemestane, on 8/30) and she's just now asking me this question (because I'm having such difficulty with AIs and would like to try Tam). 

BRCA2+ Oncotype Score 39 ooph/TE exchange/port removal planned 8/30/2012

Dx 11/11/2011, IDC, 1cm, Stage Ia, Grade 3, 0/1 nodes, ER+/PR+, HER2-Surgery 12/20/2011 Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 01/20/2012 Mastectomy (Left); Prophylactic Mastectomy (Right); Reconstruction: Tissue expander placement (Both)Chemotherapy 03/01/2012 Adriamycin, CytoxanChemotherapy 04/25/2012 TaxolChemotherapy 06/27/2012 carboplatinHormonal Therapy 08/12/2012 Aromasin
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Dec 3, 2012 05:38AM WaveWhisperer wrote:

Here's hope for those of you who have developed plantar fasciitis. I had it BEFORE DX and all my treatments and am now on Arimidex. I was in physical therapy for it when my BC DX came in, so I abandoned the foot to concentrate on the boob. It took a year and a half, but the plantar fasciitis eventually went away, while I was on Arimidex. 

(Of course, I now have all the other pains from Arimidex -- stiff fingers, aching hips, shoulders and knees!)

I've mentioned this before... I've been taking heavy doses of Prednisone for a lung infection, and, while on Prednisone, every one of my aches and pains went away. I feel 25 years younger. Now that I'm off it, I wonder how long it will be before the pains return. I know we can't take steroids long-term, but there has to be something the docs can give us to alleviate these stiff and painful joints...

Lumpectomy 10/29/2011. TCx4 12/20;1/11;1/31;2/21/12. Started rads 3/19/12. Was in clinical trial testing 3-week course vs. standard 6-week course of rads. Now in 5-year test of Metformin for patients without diabetes. Taking Arimidex.

Dx 10/14/2011, IDC, 1cm, Stage Ib, Grade 3, 1/3 nodes, ER+/PR+, HER2-Hormonal Therapy 07/08/2013 Aromasin
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Dec 3, 2012 07:48AM ruthbru wrote:

A friend of mine was on steroids for an arthritic condition and she absolutely sailed through chemo. Of course, steriods are serious drugs too, but I thought that was interesting.

"Invisible threads are the strongest ties." Friedrich Nietzsche

Dx 2/2007, Stage IIa, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Dec 3, 2012 08:18AM schatzi14 wrote:

I noticed that too...my nightly pain (due to herniated discs in my neck) completely disappeared while taking chemo due to the steroids. That for me was a great plus!

Dx 7/25/2011, IDC, 2cm, Stage II, Grade 3, 1/4 nodes, ER-/PR-, HER2-Surgery 08/18/2011 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Chemotherapy 10/20/2011 Adriamycin, Cytoxan, TaxolHormonal Therapy 03/01/2012 ArimidexRadiation Therapy 03/05/2012 External
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Dec 3, 2012 09:29AM Kam170 wrote:

I wonder if those of us with extra aches and pains from AI's are suffering from general body inflammation, to start with? I know this has been an ongoing problem for me, based on my CRP bloodwork and bouts with shoulder tendonitis.  Ofcourse, inflammation is also a setup for cancer.  I am seriously going to approach an anti-inflammatory diet, which means more fruits and vegetables than I already eat and staying totally away from the bad actors, which I mostly do, but I want to change that to ALWAYS DO.  It also means exercise exercise and losing weight.  My Vitamix should arrive this week and I plan to use it to get more kale, etc. into my diet via creamy soups and smoothies.  Everything like this has to help, right?

The trigger finger came back, but with it, a sore tendon in my hand, and this is only night 2 with this new SE.  Luckily, I have my first PT appointment (directly realted to AI SE's) this Friday, so can ask him about the affects of letting these symptoms happen (I can live with it, but I don't want to cause damage).

BRCA2+ Oncotype Score 39 ooph/TE exchange/port removal planned 8/30/2012

Dx 11/11/2011, IDC, 1cm, Stage Ia, Grade 3, 0/1 nodes, ER+/PR+, HER2-Surgery 12/20/2011 Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 01/20/2012 Mastectomy (Left); Prophylactic Mastectomy (Right); Reconstruction: Tissue expander placement (Both)Chemotherapy 03/01/2012 Adriamycin, CytoxanChemotherapy 04/25/2012 TaxolChemotherapy 06/27/2012 carboplatinHormonal Therapy 08/12/2012 Aromasin
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Dec 3, 2012 10:52AM LindaKR wrote:

My inflammation markers are normal, and taking anti-inflammatories has not helped my pain, but I know if I've been eating "inflammatory" foods my pain goes up. 

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema.

Dx 3/19/2010, IDC, 4cm, Stage IIIa, Grade 2, 5/18 nodes, ER+/PR+, HER2+Surgery 04/02/2010 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left)Chemotherapy 05/15/2010 carboplatin, TaxotereTargeted Therapy 05/15/2010 HerceptinHormonal Therapy 09/15/2010 AromasinRadiation Therapy 09/25/2010 External
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Dec 3, 2012 01:50PM spunkyboobster wrote:

What foods are inflammatory foods?

Dx 10/3/2011, ILC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2-Surgery 12/13/2011 Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Both); Reconstruction: Breast implants (permanent) (Both)Surgery 03/22/2012 Prophylactic Ovary Removal (Both)Hormonal Therapy 04/01/2012 Arimidex
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Dec 3, 2012 04:34PM Musical wrote:

What foods are inflammatory foods?

+1

Psa 119:105 NUN. Thy word is a lamp unto my feet, and a light unto my path. (KJV)

Dx IDC, 4cm, Stage IIa, Grade 3, 0/13 nodes, ER+/PR-, HER2-
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Dec 3, 2012 04:40PM Junif wrote:

There are a couple good food/diet books for breast cancer...I'll have to post the titles later, but this article sums up the inflammatory foods:

http://www.chicagonow.com/clean-convenient-cuisine/2010/09/best-and-worst-top-10-most-inflammatory-and-anti-inflammatory-foods/

“If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” MLK Jr.

Dx 7/18/2012, IDC, 2cm, Stage II, Grade 1, 0/9 nodes, ER+/PR+, HER2-
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Dec 3, 2012 04:49PM Kam170 wrote:

Thanks junif - that is a good list.  I might add something I've just discovered about green tea.  There is a green tea product, Macha, that is ground up green tea leaves - a powder.  It is much more potent than just having a serving of green tea.  It's the thing Starbucks uses to make it's green tea smoothies--you get a much higher dose in one serving and for some reason, it doesn't have the usual amount of a cafeinne as a cup of green tea would have.  I ordered it at Amazon (and the cheaper version, not the ceremonial version, has better medicinal properties).

I don't get the sense that inflammation is cured overnight with diet, but exercise and ideal body weight also can help and maybe it is a process.  Definitely, as Linda says, if I eat inflammatory foods, I feel worse right away, so it just makes sense to stay away from those.

Another thing I'm experiencing with this Exemestane is my hands are swelling up on long walks.   Could be some heart damage from chemo?  My guess it is the exemestane, as I didn't have this during chemo...this swelling is certainlly NOT helping the joint issues, if not the cause.

BRCA2+ Oncotype Score 39 ooph/TE exchange/port removal planned 8/30/2012

Dx 11/11/2011, IDC, 1cm, Stage Ia, Grade 3, 0/1 nodes, ER+/PR+, HER2-Surgery 12/20/2011 Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 01/20/2012 Mastectomy (Left); Prophylactic Mastectomy (Right); Reconstruction: Tissue expander placement (Both)Chemotherapy 03/01/2012 Adriamycin, CytoxanChemotherapy 04/25/2012 TaxolChemotherapy 06/27/2012 carboplatinHormonal Therapy 08/12/2012 Aromasin
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Dec 3, 2012 04:59PM Junif wrote:

Kam--thanks for the heads up on the green tea--going over to Amazon to order it.  I also found out that broccoli sprouts are super potent but they can be harder to find in stores.

“If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” MLK Jr.

Dx 7/18/2012, IDC, 2cm, Stage II, Grade 1, 0/9 nodes, ER+/PR+, HER2-
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Dec 3, 2012 05:11PM, edited Dec 3, 2012 05:12PM by Kam170

DoMatcha DoMatcha Organic 2nd Harvest Matcha, 2.82-Ounce

^^ This is the one I ordered.  Most people seem to prefer the flavor of this brand.

Would it be easy enough to sprout your own (brocolli)?

BRCA2+ Oncotype Score 39 ooph/TE exchange/port removal planned 8/30/2012

Dx 11/11/2011, IDC, 1cm, Stage Ia, Grade 3, 0/1 nodes, ER+/PR+, HER2-Surgery 12/20/2011 Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 01/20/2012 Mastectomy (Left); Prophylactic Mastectomy (Right); Reconstruction: Tissue expander placement (Both)Chemotherapy 03/01/2012 Adriamycin, CytoxanChemotherapy 04/25/2012 TaxolChemotherapy 06/27/2012 carboplatinHormonal Therapy 08/12/2012 Aromasin
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Dec 3, 2012 05:25PM Junif wrote:

Kam--just ordered the green tea.  I don't know about the sprouts.  We will be moving to FL in the late spring and I intend to have a garden so I guess I'll be experimenting...have to google it.  I'm stuck in Michigan right now.

“If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” MLK Jr.

Dx 7/18/2012, IDC, 2cm, Stage II, Grade 1, 0/9 nodes, ER+/PR+, HER2-
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Dec 3, 2012 05:40PM Scottiee1 wrote:

Junif....if you have a health food store near you, you will get the sprouts there.

Dx 2/12/2012, IDC, 2cm, Stage I, Grade 2, ER+/PR+, HER2-Surgery 03/02/2012 Lumpectomy (Right)Surgery 03/02/2012 Lumpectomy (Right)Hormonal Therapy 03/24/2012 FemaraRadiation Therapy 05/02/2012 ExternalRadiation Therapy 05/02/2012 ExternalRadiation Therapy 05/02/2012 External
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Dec 3, 2012 06:17PM spunkyboobster wrote:

Junif and Kam-thanks for the info.  I had seen the macha once, but couldn't figure out what the difference was between the different types-now that I do I'll be ordering.  Thanks again.

Dx 10/3/2011, ILC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2-Surgery 12/13/2011 Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection (Both); Reconstruction: Breast implants (permanent) (Both)Surgery 03/22/2012 Prophylactic Ovary Removal (Both)Hormonal Therapy 04/01/2012 Arimidex
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Dec 3, 2012 07:38PM LindaKR wrote:

Kam - could the swelling of your hands during long walks be lymphedema - if you have that the swinging of your hands can cause swelling.

  • spunky - I have a great book that lists foods by inflammation factors, they use serveral criteria to come up with whether or not a food is inflammatory or anti-inflammatory - the book is The Inflammation Free Diet Plan

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema.

Dx 3/19/2010, IDC, 4cm, Stage IIIa, Grade 2, 5/18 nodes, ER+/PR+, HER2+Surgery 04/02/2010 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left)Chemotherapy 05/15/2010 carboplatin, TaxotereTargeted Therapy 05/15/2010 HerceptinHormonal Therapy 09/15/2010 AromasinRadiation Therapy 09/25/2010 External
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Dec 3, 2012 07:43PM Kam170 wrote:

Linda - I had a SNB and they only took one node. I did have cording, but that was resolved by PT.  The swelling is in both hands...wouldn't LE just be on one side?

BRCA2+ Oncotype Score 39 ooph/TE exchange/port removal planned 8/30/2012

Dx 11/11/2011, IDC, 1cm, Stage Ia, Grade 3, 0/1 nodes, ER+/PR+, HER2-Surgery 12/20/2011 Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 01/20/2012 Mastectomy (Left); Prophylactic Mastectomy (Right); Reconstruction: Tissue expander placement (Both)Chemotherapy 03/01/2012 Adriamycin, CytoxanChemotherapy 04/25/2012 TaxolChemotherapy 06/27/2012 carboplatinHormonal Therapy 08/12/2012 Aromasin
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Dec 3, 2012 07:54PM Musical wrote:

Kam, just because the swelling is in both hands doesn't necessarily mean its not LE. Im fairly sure Binney over in the LE thread had only one node out and she has LE on both sides. She is one of the ladies on the LE Forum that knows HEAPS. A little while ago in dialog with her she gave me some links to recent studies which confirm that the "good" arm is still at risk. If youre interested, let me know and I'll post up the links. At the very least, you should be checked out for LE.

Psa 119:105 NUN. Thy word is a lamp unto my feet, and a light unto my path. (KJV)

Dx IDC, 4cm, Stage IIa, Grade 3, 0/13 nodes, ER+/PR-, HER2-
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Dec 3, 2012 07:58PM LindaKR wrote:

I agree with Musical - and binney has tons of info

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema.

Dx 3/19/2010, IDC, 4cm, Stage IIIa, Grade 2, 5/18 nodes, ER+/PR+, HER2+Surgery 04/02/2010 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left)Chemotherapy 05/15/2010 carboplatin, TaxotereTargeted Therapy 05/15/2010 HerceptinHormonal Therapy 09/15/2010 AromasinRadiation Therapy 09/25/2010 External
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Dec 3, 2012 08:06PM Musical wrote:

Yes Binney is AMAZING and she has a passion about this because she wasn't told beforehand. We are extremely fortunate that she has stuck around to help others.

Psa 119:105 NUN. Thy word is a lamp unto my feet, and a light unto my path. (KJV)

Dx IDC, 4cm, Stage IIa, Grade 3, 0/13 nodes, ER+/PR-, HER2-
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Dec 3, 2012 08:19PM Kam170 wrote:

Wow - something that I hadn't thought of.  I'll need to research it as I don't even know what the symptoms are for LE.  I had my BMX in January 2012.  Could it happen this far down the line?  I do know that all of these other symptoms (numb and stiff hands, aches, hot flashes, etc.) have started since Exemestane.  Thank you

BRCA2+ Oncotype Score 39 ooph/TE exchange/port removal planned 8/30/2012

Dx 11/11/2011, IDC, 1cm, Stage Ia, Grade 3, 0/1 nodes, ER+/PR+, HER2-Surgery 12/20/2011 Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 01/20/2012 Mastectomy (Left); Prophylactic Mastectomy (Right); Reconstruction: Tissue expander placement (Both)Chemotherapy 03/01/2012 Adriamycin, CytoxanChemotherapy 04/25/2012 TaxolChemotherapy 06/27/2012 carboplatinHormonal Therapy 08/12/2012 Aromasin
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Dec 3, 2012 08:28PM LindaKR wrote:

I met two women during my Reach to Recovery training that both had their first symptoms of LE 20 years post MX.  It can happen anytime, it's often hard to pin point what triggers it too.  My LE hand can swell alot if I don't wear something or keep it from swinging/hanging when I walk, even a little bit.  I only have it in one hand, but you had a BMX and any messing with that area and/or the lymph in theory can cause it.  Sorry Kam.  It's just another one of those things they don't tell you about.  I believe the goal is to get rid of the cancer, then come what may, we'll deal with the rest when and if it happens.  One of the reasons I wish I had a comprehensive cancer center that included cancer rehab Embarassed oops - started ranting.

Linda

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema.

Dx 3/19/2010, IDC, 4cm, Stage IIIa, Grade 2, 5/18 nodes, ER+/PR+, HER2+Surgery 04/02/2010 Mastectomy (Left); Lymph Node Removal: Axillary Lymph Node Dissection (Left)Chemotherapy 05/15/2010 carboplatin, TaxotereTargeted Therapy 05/15/2010 HerceptinHormonal Therapy 09/15/2010 AromasinRadiation Therapy 09/25/2010 External
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Dec 3, 2012 08:38PM Musical wrote:

Kam, once we've had lymph nodes out we are always at risk for the rest of our lives. Now, having said that, there is a chance you may never get it. Either way, it is a very wise person who gets knowledgeable about LE for it can absolutely devastate your life, but if you get it early things can go a lot better for you. There are many things you can do to be preventative. I would encourage you to head over to the LE Forum and do some perusing. Were you not advised at all about it pre op? I find that amazing. You dont have a sig so I don't know if your BMX was prophy or what, but even prophys can inadvertantly include a few lymph nodes.

Heres just a few tips, off of my Arimidex addled brain. Generally if you notice ANY swelling aching and burning pain, act sooner rather than later. You should never have needles or BP taken on the side where nodes have been taken, unless in a life and death situation. You should always act immediately there is any bite graze cut or similar, with antibiotic cream and watch like a hawk for any signs of cellulitiss. Keep well hydrated, and keep your skin moisturized. LE is a serious issue. It can turn VERY nasty.

HTHs

Psa 119:105 NUN. Thy word is a lamp unto my feet, and a light unto my path. (KJV)

Dx IDC, 4cm, Stage IIa, Grade 3, 0/13 nodes, ER+/PR-, HER2-

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