I have tried this before, but wanted to start a thread for us natural girls to build our friendships, share our thoughts and the natural things we are doing. there is a thread called bottle of tamoxifen, that I enjoyed the friendships of, but now that I am off the tamoxi-train and using alternatives, it would be nice to have a support group of women who encourage each other with alternative, complementary and holistic treatment.
Here's to friendship and support.
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Pill Joined: Sep 2009 Posts: 190 |
Nov 3, 2009 08:00 am
Pill wrote:
deni63, I read that article you posted - I can't explain the mixed feelings it gave me. I am SO glad that someone is speaking out about this. I know that other countries had actually accused the policy of recommending mammo at 40 as criminal. (Their word). I'll be glad when they finally admit the mistake and stop it. On the other hand, it's just another gouge out of my trust in modern medical science, which is, frankly, almost nil anyway. the study about the ineffectiveness of taxol has me in a stupor this morning - (I am scheduled for 3 more infusions - and now it looks like this was/is all for nothing?!) I am scheduled for rads in Dec. The revelations about how doctors underestimated cardiac damage of BOTH left and right breast radiation, even with our "state of the art" techniques, didn't really suprise me - I suspected as much. But seeing it confirmed really pulled the rug out from under me. I cried and cried last night not knowing what to do. Why submit to these treatments that you can't trust? Worse, why suffer the economic and physicals burdens when they keep revealing how unscientific their science is???? How can we help but wonder what the next study will show - lung damage far worse than understood? systemic damage that was completely unsuspected? Blahhhh! If you have two loaves of bread, sell one and buy a lily - Chinese Proverb
Diagnosis: 3/2009, IDC, 4cm, Stage IIIb, 8/9 nodes, ER+/PR+, HER2- |
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deni63 Joined: Mar 2009 Posts: 373 |
Nov 3, 2009 08:16 am
deni63 wrote:
Pill - I am so sorry that you are struggling right now. It is all so painful emotionally, isn't it? Amazing how the ACS itself is unable to make a clear statement. Too much pressure from $$ sources I am sure. The great thing about the internet is that we can go out and research and learn so much more than we ever could in the past when we had to solely depend on our doctors to give us the right advise. I have learned that doctors just don't know everything, even though many, unfortunately too many, display an attitude as if they did and don't enjoy being questioned. I think it is so important to read through and research as much as you can so that you can in the end come to a decision that FEELS right to you. It is such a personal decision. Isn't it great to have this site available to us? To share experiences and gain knowledge with our sisters is just so incredibly invalueable. |
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vivre Joined: Nov 2008 Posts: 1,452 |
Nov 3, 2009 08:35 am
vivre wrote:
Victoria-You are right, I do need a trip. The problem with heading down under is that it is 24 hours in a plane! I have a hard time getting DH on a plane to AZ and that is only 3 hours! He is not a happy traveler, though he is happy once he gets there. My son went backpacking in your beautiful country last year. He had a wonderful time, and he said the people were wonderful. The only thing that worries me is snakes. I hear you have the most poisonous ones in the world. I can't even look at a snake photo. I almost stepped on a little garter snake last week while walking through the forest preserve and I freaked! Our snakes are only dangerous to mice, but they still get to me. As for city life: Well I live near one of the most beautiful cities in the world, Chicago. Yes, people are always surprised that it is beautiful. But I am a country girl at heart. My biggest beef where I live is that it is run by the most crooked politicians in the US. Al Capone may be long gone but his legacy is alive and well in chicago. They do not shoot you anymore if you do not pay the boss, but you do not get any jobs. The only good thing is that most of the crooks followed Obama to DC. Hopefully, they will all retire to Hawaii in 3 years, and we can get this country working again. As for San Fran-It is a beautiful city, but way to liberal for this midwest gal. I guess you get my drift. It is the politics that is making me crazy. I guess I could always go to Texas. Speaking of Texas-Where are you Rosemary? We could use a little bit of that Texas charm. As for different points of view: One thing I will never understand is the animosity on this board. If there is a topic that I do not agree with, I do not even bother to read it, much less comment. Yet there are tons of people against alternatives who love to start controversies with those of us who believe in them. As you said Pill, traditional treatments are not always the best answer and for some of us, they are scarier than any alternative. So why do people get so nasty when we try to discuss them? You are right, rads DO affect the heart and lungs, and cause lympedema. Wouldn't it be better to build up the immune system to knock out any "stray cells". The truth is, we all have cancer cells in our bodies everyday. That is why they will never say we are cured, because they have no idea how to find these cells. What I do not understand is the idea of killing good cells in the hopes of killing a few strays. We know that things like iodine, curcumin, vit c, an vit d, and castor oil can draw out and kill cancer cells, so why don't they just give us megadoses of this stuff? They are natural chemotherapies. We could be put in far infared saunas and have our body temps raised high enough to kill cancer cells? Why don't they do any of this? Because the medical field has to operate on scientific studies and the only major studies are funded by drug companies. Even when those studies have a small group of guinea pigs, such as the study of arimidix, as opposed to hundreds of women like the iodine study at breastcancerchoices, the cheaper alternative takes years and years to adopt, but the drug is out on the market in a year. It is just maddening! And you gals are so right about mammo's. Thermography can "see" a tumor just as well as a mammo, is painless and safe, yet women are still told to go get those mammos which exposes them to cancer causing radiation, and will burst cancers out of their nodes with all the squishing, causing it to spread. Okay off my soap box for the day. Have a great day all, wherever you are. Fairy-so glad you finally "nipping cancer in the bud". Full steam ahead from here on out! Anom, I hope you are enjoying a day at the beach or something, get some time to mull over how many of us you have helped, and then get your butt back here. Not everyone will agree with us, but I say, it is their loss and just ignore the nasties. |
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Let-It-Be Joined: Aug 2009 Posts: 66 |
Nov 3, 2009 09:27 am
Let-It-Be wrote:
Calyso: thanks for the tip re: kelp! Diagnosis: 1/7/2009, IDC, 6cm+, Stage IIIa, Grade 2, 7/10 nodes, ER+/PR+, HER2- |
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fairy49 Joined: Dec 2008 Posts: 1,001 |
Nov 3, 2009 10:01 am
fairy49 wrote:
Morning ladies! The nips are posted on the picture forum under "5 day old modified C Flap Nipples". L ox DX 9-22-08 IDC 1.1cm Stage 1 Grade 2 SNB 0/5 ER+ PR+ HER- Bi-Lat Mas re-con,tissue expanders on 10/29 - Exchange to silicone implants on 3/6/09 Oncotype DX Score 9 - BRCA 1 & 2 Negative.....If God brings you to it, he WILL get you through it
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Luna5 Joined: Jul 2009 Posts: 98 |
Nov 3, 2009 10:16 am
Luna5 wrote:
I can't find the picture forum...where do I look? DBL Mast, hysterectomy, oophorectomy, OncoType DX 0,
Diagnosis: 4/1/2009, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
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PurpleMe Joined: Dec 2008 Posts: 153 |
Nov 3, 2009 10:19 am
PurpleMe wrote:
Vivre, I totally agree with your statement... "One thing I will never understand is the animosity on this board. If there is a topic that I do not agree with, I do not even bother to read it, much less comment" Everyone has to decide what treatment is right for them. It seems that some people feel that because they have the anonymity of the internet they can just be plain rude. I notice this in emails and postings on this and other sites. How sad because life is way to short for rudeness. After all "you get more flies with honey than vinegar". So march on, stand tall and live your life as best as you can!
My life is an unfinished canvas waiting for the next brush stroke.
Diagnosis: 10/2008, IDC, 1cm, Stage IIa, Grade 2, 2/10 nodes, ER+/PR+, HER2- |
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fairy49 Joined: Dec 2008 Posts: 1,001 |
Nov 3, 2009 10:29 am
fairy49 wrote:
Luna! You have to PM TimTam from the members list and she will authorize you to access the picture forum. L ox DX 9-22-08 IDC 1.1cm Stage 1 Grade 2 SNB 0/5 ER+ PR+ HER- Bi-Lat Mas re-con,tissue expanders on 10/29 - Exchange to silicone implants on 3/6/09 Oncotype DX Score 9 - BRCA 1 & 2 Negative.....If God brings you to it, he WILL get you through it
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Springtime Joined: Aug 2008 Posts: 2,581 |
Nov 3, 2009 10:30 am, edited Nov 3, 2009 12:54 PM
by Springtime
Springtime wrote:
Picture forum is not part of Bc.org. Please contact TimTam and she will take it from there. Fairy!! You look great girl!!! Just wait until next week! Woot! Psalm 91: 14-16 "Because she loves me," says the LORD, "I will rescue her; I will protect her, for she acknowledges my name. She will call upon me, and I will answer her; I will be with her in trouble, I will deliver her and honor her. W long life...
Diagnosis: 7/10/2008, IDC, Stage II, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Yazmin Joined: Apr 2006 Posts: 347 |
Nov 3, 2009 10:50 am
Yazmin wrote:
Pill, you wrote: ......On the other hand, it's just another gouge out of my trust in modern medical science, which is, frankly, almost nil anyway. Frankly, I could not have said it any better...... Courage!
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Luna5 Joined: Jul 2009 Posts: 98 |
Nov 3, 2009 11:00 am
Luna5 wrote:
Thank you ....this is the first I have learned of pictures and actually the first time I have given serious thought to the fact that I need to have an opinion of what I want for nipples and areola. I've been so absorbed in trying to figure out what to eat, drink, take, believe, etc, etc, and also having had infections and re-excisions and now starting all over on my prophy side...I hadn't even thought about even more decisions to make. Oh Happy Day! More Decisions and More Research! Maybe on this I should try again to just be a nice docile head-nodder. I do trust my PS, so if ever there was a time to trust and head-nod, this would be it. Oh wait, probably not...head-nodding is not my strong suit. DBL Mast, hysterectomy, oophorectomy, OncoType DX 0,
Diagnosis: 4/1/2009, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
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Yazmin Joined: Apr 2006 Posts: 347 |
Nov 3, 2009 11:31 am
Yazmin wrote:
Spring: How do we sign up for the picture forum, do you know? Courage!
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seaotter Joined: Apr 2009 Posts: 388 |
Nov 3, 2009 11:39 am
seaotter wrote:
asschercut - You painted a truly beautiful picture of Australia for us. I read that and thought "ok, we will retire there" then I read vivre's post about the snakes and NO way am I going there. I'm petrified of snakes. I have nightmares about snakes a lot!!!! flying snakes. snakes all over the house, snakes chasing me etc. When we vacationed in Arizona last year I was constantly looking for snakes Amen to live your life the best you can!!!!! Question: How do you gals get enough protein? I was drinking whey shakes but I read about how you should only drink organic whey (which is very expensive) and it is impossible to find any without soy. I don't eat beef and I know most don't here. So where's the protein????? Patty Diagnosis: 1/22/2009, IDC, <1cm, Stage IIa, Grade 1, 1/30 nodes, ER+/PR+, HER2- |
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Springtime Joined: Aug 2008 Posts: 2,581 |
Nov 3, 2009 12:55 pm, edited Nov 3, 2009 12:56 PM
by Springtime
Springtime wrote:
All, to get access to the picture forum, you need to contact TimTam, and she'll advise on what to do next. Above in the red header is a link called "Member List". Click on that and search for TimTam. Then PM her! Spring. Psalm 91: 14-16 "Because she loves me," says the LORD, "I will rescue her; I will protect her, for she acknowledges my name. She will call upon me, and I will answer her; I will be with her in trouble, I will deliver her and honor her. W long life...
Diagnosis: 7/10/2008, IDC, Stage II, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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ivorymom Joined: Apr 2009 Posts: 764 |
Nov 3, 2009 02:00 pm
ivorymom wrote:
Seaotter, protein is everywhere! I eat fish, shellfish, eggs, legumes, grains (combine the legumes & grains to get complete protein, if necessary). I'm not opposed to red meat, so I eat lean beef & pork. There are non-soy vegan protein powders, too. meg
Diagnosis: 2/8/2009, IDC, <1cm, Stage Ib, Grade 3, 0/2 nodes, ER+/PR+, HER2- |
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Yazmin Joined: Apr 2006 Posts: 347 |
Nov 3, 2009 02:31 pm
Yazmin wrote:
Spring: Thanks for your response. Courage!
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sharonw Joined: Dec 2007 Posts: 70 |
Nov 3, 2009 04:54 pm
sharonw wrote:
I haven't posted my rads experience in this forum - but I saw there were some posts about the damage the rads can do to lungs, heart, etc. I did rads about 18 months ago at NYU Cancer Center - their program for early BC patients is done in the prone (face down into the machine) position and the breast is radiated from beneath the table so that the only part of the body getting rads is the breast - they also give 15 treatments vs. 33 on the back - there is over 15 years of data showing this program as effective as the 33 on the back and without the SEs - no radiated ribs, lungs, shoulders, heart, etc. I searched for this program in the DC area where I live but had to go to NYC - SK and NYU have the program as well as MDA in Houston and UCLA. Doctor at NYU is Silvia Formenti fyi - hope this helps someone! when you're going through hell, keep on going
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Pill Joined: Sep 2009 Posts: 190 |
Nov 3, 2009 05:07 pm
Pill wrote:
Sharonw - This sounds great but it might be for neg nodes only ? If you have two loaves of bread, sell one and buy a lily - Chinese Proverb
Diagnosis: 3/2009, IDC, 4cm, Stage IIIb, 8/9 nodes, ER+/PR+, HER2- |
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seaotter Joined: Apr 2009 Posts: 388 |
Nov 3, 2009 05:10 pm
seaotter wrote:
Meg - Thanks, I keep forgetting about legumes, duh!!!! Patty Diagnosis: 1/22/2009, IDC, <1cm, Stage IIa, Grade 1, 1/30 nodes, ER+/PR+, HER2- |
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sakura73 Joined: Feb 2009 Posts: 265 |
Nov 3, 2009 05:13 pm
sakura73 wrote:
Vivre - the snakes don't roam the city streets, so most of Australia is perfectly safe and snake free. The spiders, on the other hand.... What speech from Kevin did you read? (we all call our prime minister by his first name, because he is such a comfortable nerdy sort of person!) Victoria I am having treatment at the Epworth in Richmond. Where are you? Sorry to hear you are having such a nasty pre-radiation experience. Diagnosis: 1/22/2009, ILC, 2cm, Grade 2, 2/17 nodes, ER+/PR+, HER2- |
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cleomoon Joined: Sep 2008 Posts: 351 |
Nov 3, 2009 05:17 pm
cleomoon wrote:
I'm excited and just had to share. Can't afford an appt now but I found out that Dr.Tenpenny is 15 min from me and they have iodine testing, hormone testing, breast thermography and other alternative stuff....
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seaotter Joined: Apr 2009 Posts: 388 |
Nov 3, 2009 05:24 pm
seaotter wrote:
Cleo, that is GREAT news for you!!!! I can't find anything even close to me. Start saving now!!!! If I had the money I would send it to you!!! Patty Diagnosis: 1/22/2009, IDC, <1cm, Stage IIa, Grade 1, 1/30 nodes, ER+/PR+, HER2- |
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fairy49 Joined: Dec 2008 Posts: 1,001 |
Nov 3, 2009 06:05 pm
fairy49 wrote:
I have been wracking my brains, to figure out a way to raise money so our girls here can see doctors who specialize in hormone testing etc etc, I know for me having an extra $1,000 for the initial tests, appointments etc was not easy, for some here its flippin impossible, wouldn't it be great to see money raised for BC awareness used in this manner? Thinking aloud here! Its my mission to see if I can make this happen, somehow.... Cleo, if I have to sell cupcakes on the side of the street, I will see if I can raise money for your appointment!! L ox DX 9-22-08 IDC 1.1cm Stage 1 Grade 2 SNB 0/5 ER+ PR+ HER- Bi-Lat Mas re-con,tissue expanders on 10/29 - Exchange to silicone implants on 3/6/09 Oncotype DX Score 9 - BRCA 1 & 2 Negative.....If God brings you to it, he WILL get you through it
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my560sel Joined: Feb 2009 Posts: 462 |
Nov 3, 2009 07:21 pm, edited Nov 3, 2009 07:22 PM
by my560sel
my560sel wrote:
Fairy, while you're raising money see if you can raise some for me! I'll help bake those cupcakes! I just stupidly spent $500 on some (blood) hormone tests (he doesn't do saliva) and thyroid tests that my GP convinced me to have so that I could take these tests to another MD ND that I found only to find out that this Naturopath MD isn't taking new patients! So Friday, I'll have results to hormone tests and thyroid tests that my GP doesn't know how to read..how's that for frustrating. The thought of spending another few hundred on proper saliva tests and whatnot on a "retiree" budget is freaking me out! And to top it off, I still can't find anyone to help me sort out what my levels are and what things I should be taking etc... Montreal is not a small backwoods city - you'd think finding someone would be easy ... NOT!!!! Terri DX Jan15/09, ILC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER/PR+, HER2-, Oncotype score 9, Lumpectomy 2/24/09, Bi-Lat MX & TE's 6/30/09, Tamox 8/22/09
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deni63 Joined: Mar 2009 Posts: 373 |
Nov 3, 2009 07:31 pm
deni63 wrote:
It is all way expensive. We are basically living hand to mouth to try and keep up with all of the bills, bills, bills. It was bad enough with one cancer patient in the house, but now we have two. YIKES. We are maxed out. Sign me up for baking cupcakes!! Terri - I found this website "Quebec Association of Naturopathic Medicine and Naturopathic Doctors in Montreal" maybe you can find a doc through them? |
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vivre Joined: Nov 2008 Posts: 1,452 |
Nov 3, 2009 08:46 pm
vivre wrote:
Fairy with the new nips: You stated exactly what I have felt for a long time, that the money needs to be redirected. I hope that my site will eventually attract some sponsors and we can do exactly what you just said. I would love to see if I can get people to offer services in exchange for listing them on my site. So how do I get in touch with this Dr. Tenpenny to see if we can make a deal? Off on a tangent: I just read the strangest thing via the iodine group: http://www.lymephotos.com/index.shtml You know there are theories that cancer is a virus or bacteria. Well these folks swear there are all kinds of "things" inside us that can be forced out by vit C and salt! It is almost funny, but then again, it makes some sense and I am almost willing to try this protocol since it seems innocuous. Heck I am my own gunea pig as it is. What is there to lose? The reason I am intrigued is that my last little health hurdle is post nasal drip. It drives me nuts and nothing seems to get rid of it. I know there is some bacteria connection. What if there are some little "thingys" living in my sinuses? So next week, I just may try this. Hey resident geek: what do you think about the biology of this whole salt and C thing? Did someone ask about sources of protein? Nuts, lots of nuts. |
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PS73 Joined: May 2009 Posts: 236 |
Nov 3, 2009 09:14 pm
PS73 wrote:
Hey gals, interesting stuff. Fairy, glad you are feeling well. Terri, I can feel ya on this. I searched hi and lo and thought I finally found someone great and spent a lot of money just for them to near put me back in the hospital w/ thick clotty blood and a handful of hormonal numbers that don't make sense. Its so frustrating but I am not giving up on finding a great ND. I have a new lead. viv, I think that is awesome. I have a theory that we should have salt in our systems since we came from the sea as ungulates - the iodine supports this - also pools using salt water too. Its far out but something I think about. I don't know very much about vitamin c at all but I can tell you that I took vitamin c and d daily for a while way way before I got 'sick' and never felt better (I ran out of OJ and stopped taking all vitamins). I guess that happens. ...also, you DO have living organisms in your sinus, they are called macrophages (sp?) and the histamine responsiveness gets them moving and fighting bacteria for you and even though the drippiness is annoying, I always tend to stay away from anti-histamines (except of late w/ the chemo) but getting to the root cause is smart. it's like when you cut yourself and watery liquid forms, its to let the bacteria fighters travel to the wound - so your theory totally makes sense to me but Im no medical dr, just an old biology gal. "Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense”
Diagnosis: 4/24/2009, 2cm, Stage IIa, Grade 3, 0/1 nodes, ER+/PR-, HER2+ |
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my560sel Joined: Feb 2009 Posts: 462 |
Nov 3, 2009 09:15 pm
my560sel wrote:
Deni - Thanks for the link...I'm looking into it. Let's hope I can find someone who knows what they're doing! DX Jan15/09, ILC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER/PR+, HER2-, Oncotype score 9, Lumpectomy 2/24/09, Bi-Lat MX & TE's 6/30/09, Tamox 8/22/09
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vivre Joined: Nov 2008 Posts: 1,452 |
Nov 3, 2009 09:29 pm
vivre wrote:
Thanks Geek! (I hope you know I mean this with the upmost respect). I agree with you that it is not a good idea to just try to treat the symptoms. I want to figure out what the heck is causing this PND. That is why this protocol was so intriguing. I am already sold on the idea that salt heals because the iodine protocol has made me feel so much better. My doctor told me to use Vit c and mag as a natural colon cleanse. So putting 2 and 2 together, may do the trick. Especially since that website said that all these micro organisms love to live in our heads. Anyway, what will it hurt to try? When my kids are gone next week, I am going to try it. Oh, and I think I will check out Dr. Brownstein's book, "Salt your way to Health". I have been meaning to read it, and this just seems to be a good tie in. By the way, the fact that that site is not selling anything makes me believe it more. |
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PS73 Joined: May 2009 Posts: 236 |
Nov 3, 2009 09:48 pm
PS73 wrote:
That is interesting, Ill have to pick up the book - it totally makes sense to me.. Just make sure you have potassium to balance out the salt thing - and lots of water to get the isoelectric balance. Have you tried anything homeopathic for th PND? Curious as to how you do. A friend of mine suffers with allergies to no end and once I find a good ND for me, Im sending her to them. "Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense”
Diagnosis: 4/24/2009, 2cm, Stage IIa, Grade 3, 0/1 nodes, ER+/PR-, HER2+ |
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