I have tried this before, but wanted to start a thread for us natural girls to build our friendships, share our thoughts and the natural things we are doing. there is a thread called bottle of tamoxifen, that I enjoyed the friendships of, but now that I am off the tamoxi-train and using alternatives, it would be nice to have a support group of women who encourage each other with alternative, complementary and holistic treatment.
Here's to friendship and support.
| Posts 3421 - 3450 (3,756 total) | |
|---|---|
|
deni63 Joined: Mar 2009 Posts: 373 |
Nov 7, 2009 09:12 pm, edited Nov 7, 2009 09:13 PM
by deni63
deni63 wrote:
Luna - Here is an article from the NY Daily News that actually says popcorn fights cancer. I don't think I would have the movie-theater kind with all of that fake butter crap, but air popped with a little sea salt is probably not bad on occassion. http://www.nydailynews.com/lifestyle/health/2009/08/20/2009-08-20_popcorn_is_full_of_cancerfighting_antioxidants_study.html Baked potatoes are OK occassionally but they contain a lot of starch and are not great to have all the time. I think that if you stick to as much organic, fresh, colorful veggies and fruits as the primary source of your diet, you will be OK. |
|
Luna5 Joined: Jul 2009 Posts: 98 |
Nov 7, 2009 09:39 pm
Luna5 wrote:
Thanks everyone. This is great stuff to know. I didn't know if I was "supposed" to eat more unprocessed starches or if I am still supposed to avoid them except for oats to try to bring down my cholesterol. I have already eliminated dairy and most meat and processed foods and eat as much organic as I can. I fill up on supplement pills...hahahaha...no real need for food with all those:) I drink organic chammomile tea and Brassica tea sometimes with some orange juice or lemon juice in it. I eat organic walnuts every day. I try to eat an apple a day but they aren't always organic...need to work on that. For snacks I eat a spoonful or two of organic almond butter. Sometimes I eat meat...try to make it organic or at least hormone free. I drink organic tomato juice and use the thickness of it to wash down the supplements. I have organic coffee beans...should I eliminate my thick cup of coffee on some mornings? I can cut out coffee if I should. I use almond milk for my organic cereal. When I eat out, which my husband wants to do practically every night, I just do the best I can. What about eggs. I have organic no hormone ones, but I don't know if I am supposed to eat them or not. I read that even those have hormones. Thanks again everyone. I'm trying to make a concise list of what I can and cannot have. I'm not going to be perfect about this, but I try to stick to the rules as much as I can. DBL Mast, hysterectomy, oophorectomy, OncoType DX 0,
Diagnosis: 4/1/2009, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
|
Luna5 Joined: Jul 2009 Posts: 98 |
Nov 7, 2009 09:52 pm
Luna5 wrote:
Oh, I forgot one question. These green smoothies so many of you mention.....I want to get smoothie powder. A friend came in for a visit and let me try her brand...I think it was Super Greens..not sure...from some company in Tampa....but it has soy.. and also has a lot of the supplements included that I already take. I have spent a lot of time researching and trying to settle on the brands of each of my supplements and how I feel as I have added them in. I am almost there so I don't want to change them or just trust a brand of greens to include all the other stuff too. Any suggestions of an organic brand with no soy. I'm sure I'm not eating enough greens. DBL Mast, hysterectomy, oophorectomy, OncoType DX 0,
Diagnosis: 4/1/2009, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
|
CrunchyPood
Joined: Sep 2009 Posts: 139 |
Nov 7, 2009 10:03 pm, edited Nov 7, 2009 10:10 PM
by CrunchyPoodleMama
CrunchyPoodleMama wrote:
Hey, girls... sorry I haven't been posting much today... busy day (3 portrait sessions this morning/afternoon plus a mountain hike, then have been busy with husband/puppies)... but I have a question that I haven't been able to find on the Internet. Does anyone know of any statistics on what % of women who have breast cancer treated with chemo/radiation end up having a recurrence within the next 10/15 years? I'm starting to get freaked about what my biopsy results will be next week and being in a situation where my doctor is trying to strong-arm me into doing chemo and telling me I will DIEEEEEEEEEEEEEE if I don't have chemo. *sigh* Oh, if anyone has any other good anti-chemo stats, I'd love to hear them too! Luna5 - re: green smoothies, I don't use a powder for mine. I use organic baby spinach or other greens (kale, though that can be a little strong, or baby lettuces). First I put a cup of spring water into the blender. (You could use almond milk or coconut water or whatever else you like.) Then I fill the blender with the greens (baby spinach or whatever). I blend until it's smooth and not chunky. Then, I add a piece of fruit to make it taste good (usually an organic apple, and sometimes frozen blueberries -- yum yum!). Sometimes I add either a chunk of fresh ginger and/or a mostly-peeled lemon. I usually add some pure spirulina powder too (I get mine from www.bulkfoods.com). I blend it all until it's smooth and drink up... it tastes SO delicious, way better than any mix I've ever used... plus I like that it's fresh! Hope that helps! Julie ~ I don't judge you for having chemo... please don't flame me or tell me I'm going to die a horrible death because I choose not to.
Diagnosis: 10/24/2009, 5cm |
|
PatMom Joined: Jul 2008 Posts: 664 |
Nov 7, 2009 10:16 pm
PatMom wrote:
Chemo is actually very effective against certain cancers, notably childhood leukemia, testicular cancer and Hodgkin's Disease, not so much against breast cancer. This chart is 5 years old at this point, and is on a site that might be seen as biased in favor of natural treatments, but I haven't had anyone present any evidence that the numbers are anything but absolutely accurate. http://www.oasisadvancedwellness.com/learning/chemotherapy-effectiveness.html Until the time when someone comes up with a definitive "cure", we each have to cobble together what we believe will be the most effective treatment that we can live with, not merely survive.
|
|
CrunchyPood
Joined: Sep 2009 Posts: 139 |
Nov 7, 2009 10:24 pm
CrunchyPoodleMama wrote:
Wow, Pat, that is VERY eye-opening... and it was taken from Clinical Oncology, which I assume is a peer-reviewed, cancer-industry-approved publication! Wow! Julie ~ I don't judge you for having chemo... please don't flame me or tell me I'm going to die a horrible death because I choose not to.
Diagnosis: 10/24/2009, 5cm |
|
Yazmin Joined: Apr 2006 Posts: 347 |
Nov 7, 2009 10:42 pm, edited Nov 7, 2009 11:04 PM
by Yazmin
Yazmin wrote:
Julie: I don't think this is about being anti-chemotherapy? I feel it is about making the best possible choice for your tumor type. Which is hard enough, I know............ As I have been saying it on this board, it is now firmly established that my tumor type (ER+, PR+, HER-) does not benefit one way or the other from any kind of chemo (though one oncologist "mistakenly" put me through chemo in April 2006 because that was the still-accepted protocol; I dropped off her treatment when another oncologist informed me of the newest findings). In the case of that particular tumor, conventional treatment has since abandoned adjuvant chemotherapy, and now emphasizes hormonal treatments (SERMs, AIs). Now, I personally decided to COMPLETELY turn down Tamoxifen, and to concentrate on lifestyle changes and natural hormonal treatments. I consider Diindolylmethane (DIM) a natural hormonal treatment, and I consider Turmeric and black pepper (since Turmeric is activated by black pepper) an anti-cancer. So I consume that every day in different dishes, and I never fail to have my green tea with lemon juice, because it has been established that green tea is activated by lemon juice. But turning down Tamoxifen, that's my choice. Nevertheless, I am 4 years out and doing better than I did when I was a 20-something totally oblivious of diet, supplementation, and the importance of lifestyle choices. (By the way, I haven't had a flu in 6 months in spite of all those epidemics, and without any flu shots). In the presence of a Triple Negative or HER+ tumor, however, it might be worth doing your own research and asking a whole lot of questions about the ABSOLUTE benefit statistics (versus the RELATIVE benefit statistics) for the different treatments available and generally recommended for those tumors. Then you can try and decide whether you are going to avoid chemo altogether, or use it in conjunction with other treatments, or chose yet another route. Yah, I know it's hard........ Courage!
|
|
Yazmin Joined: Apr 2006 Posts: 347 |
Nov 7, 2009 10:55 pm
Yazmin wrote:
....And as far as I know, chemotherapy is very effective for childhood leukemia and for Hodgkin's Disease. I have read many research papers where it is believed that prostate cancer is pretty much like breast cancer: either aggressive, or not (in which case chemotherapy doesn't have much to do, anyway). Courage!
|
|
CrunchyPood
Joined: Sep 2009 Posts: 139 |
Nov 7, 2009 11:59 pm
CrunchyPoodleMama wrote:
I don't think this is about being anti-chemotherapy? Oh goodness, I know. I guess I used that term as shorthand to explain what kind of stats I'm interested in finding in case my doctor is a "you must do chemo in all circumstances" type (and I know there are still some of those out there!). I should have said "statistics that demonstrate situations in which chemotherapy is or is not statistically effective." Chemo is a personal choice that should be mainly influenced by type of cancer and tumor. I most certainly don't judge ANYONE who does chemo; in fact I'm happy for this if/when it extends their life. Unless my tumor ends up being a type that means I will absolutely die very quickly unless I do chemo, and chemo is likely to extend my life by 10 or 20 years, my personal choice is not to do it... strictly because I MUST have a baby. I can't live my life not ever becoming a mother. That's all. (Well, that and I think nutrition/lifestyle are more important than what drugs are injected into you... but that's where the personal decision thing comes in.) Anyway, sorry to misspeak. Julie ~ I don't judge you for having chemo... please don't flame me or tell me I'm going to die a horrible death because I choose not to.
Diagnosis: 10/24/2009, 5cm |
|
dlb823 Joined: Aug 2008 Posts: 2,055 |
Nov 8, 2009 12:12 am, edited Nov 8, 2009 12:13 AM
by dlb823
dlb823 wrote:
PatMom ~ Re. that chart... When you read the whole study, it looks like those stats are based on patients who did chemo alone, which would somewhat account for those dismal percentages. But in most cases, women with bc have surgery and are then given chemo -- not as their primary tx, but to take care of any stray cells -- in which case the 5 year survival stats should be significantly better. What would be a more telling study re. the net benefit of chemo would be a comparison of outcomes for patients who have only surgery to those who have surgery+chemo. On the other hand, I was shocked to be told by one of my oncs when I advised her that I was not staying on the Femara I briefly tried, that an A/I was far more important than the chemo I'd just done!! No one ever mentioned that up front! D. "The soul would have no rainbow if the eyes had no tears" Native American proverb
Diagnosis: 2/1/2008, 1cm, Stage IIa, Grade 3, 1/16 nodes, ER+/PR+, HER2- |
|
treetoo Joined: Aug 2009 Posts: 28 |
Nov 8, 2009 03:20 am
treetoo wrote:
Here is the exact product they are using in their trials, I was going to be a part of the trial, then I changed my mind, but I found out which product they were using. the company that produces the grapes sent me a big free bottle when I inquired. Grape Seed Extract http://www.vitacost.com/NSI-ActiVin-Grape-Seed-Extract/pd_section-pr#ProductReviews tree |
|
Merilee Joined: Jan 2009 Posts: 622 |
Nov 8, 2009 05:22 am
Merilee wrote:
. Using 1/2 organic butter and 1/2 grape seed oil to make a spread will turn those baked potatoes into a more nutritious choice Diagnosis: 1/9/2009, ILC, 1cm, Stage I, 0/2 nodes, ER+/PR+, HER2- |
|
deni63 Joined: Mar 2009 Posts: 373 |
Nov 8, 2009 07:29 am, edited Nov 8, 2009 07:54 AM
by deni63
deni63 wrote:
Luna - the green powder i use for my smoothies is called Green Vibrance. There is some non-GMO soy in it though. My doctors say soy is OK in moderation as I am ER-. I use it in addition to fresh organic greens. I also add berries, banana, coconut water and mango or pineapple. It is ultra yummy! |
|
deni63 Joined: Mar 2009 Posts: 373 |
Nov 8, 2009 07:48 am
deni63 wrote:
Yazmin - is it true that green tea needs lemon to "activate"? I hadn't heard that before. Can you tell me more about this? |
|
vivre Joined: Nov 2008 Posts: 1,451 |
Nov 8, 2009 09:33 am
vivre wrote:
Wow, lots of great info today. Love that smoothie recipe crunchy. As far as the chemo, vs no chemo stats, I know anom had posted some. I will look and see if I have it saved. Treetoo-interesting that they are doing a study on grape seed. I mixed grape seed oil and coconut oil for my body lotion. It feels great and I am getting my antioxidants directly through the skin, our largest organ. Have any of you CA girls heard of Dr. Husbands? I think this is a very interesting article and he seems to have a great blog: http://www.drhusbands.com/blog/other-health-issues/cancer-and-nutrition/ He gives some great tips and cites the research. |
|
Yazmin Joined: Apr 2006 Posts: 347 |
Nov 8, 2009 09:49 am
Yazmin wrote:
Deni: Research established that green tea is activated by lemon juice, and turmeric is activated by black pepper. I have to rumage everywhere to find the relevant articles. I will post just as soon as I find them. Courage!
|
|
deni63 Joined: Mar 2009 Posts: 373 |
Nov 8, 2009 09:58 am
deni63 wrote:
Thanks Yazmin. I had read about the turmeric and pepper (should also be taken with oil), but not the green tea. If you can find the references, I would love to read them. |
|
deni63 Joined: Mar 2009 Posts: 373 |
Nov 8, 2009 10:02 am
deni63 wrote:
I actually just found this article. I won't add sugar though. I am off of that for good! http://www.sciencedaily.com/releases/2009/09/090909151919.htm |
|
Yazmin Joined: Apr 2006 Posts: 347 |
Nov 8, 2009 10:19 am
Yazmin wrote:
deni: I am looking for an email message I received from one of my work support group members. Will still post when I manage to dig it up. You are very smart to be staying away from sugar (I do, too). I attended a lecture (at a conference) by Dr. Moshe Frenkel (MD Anderson), that's where I found out about turmeric and black pepper. He is one of the lead MD Anderson researchers on that subject, and he concluded his presentation with this sentence: "Cultivate the land (your body). If you take care of the land, it will thrive." I thought this was a very positive outlook, and I think most reasonable people would agree..... Courage!
|
|
Rabbit_fan Joined: Jun 2009 Posts: 109 |
Nov 8, 2009 10:33 am
Rabbit_fan wrote:
Crunchy Poodle - you can also ask for the Oncotype DX test if you are ER positive and have minimal node involvement. It gives you a score that tells how likely you are to benefit from chemo or not. My onc recommended chemo but then they reversed that after I got my Oncotype score. Dx at age 45 via screening mammo. Oncoplastic lumpectomy, radiation, tamoxifen. Oncotype 11-refused chemo.
Diagnosis: 4/2009, ILC, <1cm, Stage Ib, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
|
vivre Joined: Nov 2008 Posts: 1,451 |
Nov 8, 2009 07:43 pm
vivre wrote:
Another view point about chemo: |
|
CrunchyPood
Joined: Sep 2009 Posts: 139 |
Nov 8, 2009 08:22 pm, edited Nov 8, 2009 08:23 PM
by CrunchyPoodleMama
CrunchyPoodleMama wrote:
Rabbit, thank you -- I will definitely ask about the oncotype DX test! All of you, thank you for all those links... I'm a sponge trying to absorb all this and really appreciate everyone sharing what they're finding! "Cultivate the land (your body). If you take care of the land, it will thrive." I love that, Yazmin! I started attempting to garden this summer, definitely organic, and so many parallels struck me between the organic approach to gardening (feed the soil, and it will feed the plants... when plants are fed by the soil, rather than chemicals, they are MUCH better able to fend off pests and disease) and the natural approach to health and healing. That quote pretty much sums it up! On another note... I just read a few replies to me on another thread that felt like a punch in the stomach. I asked a question in the "Not Diagnosed, but Scared" forum. Several people were super-helpful... a few of them told me to keep a lid on it until I have a diagnosis. Okay, that's fine, but then one woman said, "Julia, you sound like a cancer wannabe. Just sayin' ...." Anyway, I'm going to give them their wish and stay away. If any of you are on an alternative bc forum where people won't get scolded all the time for asking questions or for choosing a different treatment path, I would love to know about it... I have been doing so well these last few days emotionally, but the last few replies to that thread have me shaking and in tears. (I don't want to end a post on that note... I have to tell you all here, I adore you all!! THANK YOU for being so helpful and non-judgmental... you are all amazing and I'm so blessed to have "met" you all!!) Julia (I also answer to Julie!)
Diagnosis: 10/24/2009, 5cm |
|
Luna5 Joined: Jul 2009 Posts: 98 |
Nov 9, 2009 12:59 am
Luna5 wrote:
Crunchy Poodle...those goofballs who told you to keep a lid on it until you have a diagnosis are nuts...if more people read this natural girls thread, they might be able to avoid BC in the first place. I wish I had known all this information 30 years ago!!!!! It is very difficult to learn as much as you need to learn as quickly as you need to learn it once you have been diagnosed with SFBC. We end up making life changing decisions following BC diagnosis in less time that we take to pick out a car or buy a house. DBL Mast, hysterectomy, oophorectomy, OncoType DX 0,
Diagnosis: 4/1/2009, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
|
Luna5 Joined: Jul 2009 Posts: 98 |
Nov 9, 2009 01:02 am
Luna5 wrote:
Thanks for the smoothie recipes. Will get on that right away:) DBL Mast, hysterectomy, oophorectomy, OncoType DX 0,
Diagnosis: 4/1/2009, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
|
Luna5 Joined: Jul 2009 Posts: 98 |
Nov 9, 2009 01:06 am
Luna5 wrote:
I had cut out all sugar. But, wanted to ask if organic honey is okay or am I better off staying off all sugar. The reason I ask is I was able to quench my chocolate craving tonight by mixing 2 heaping teaspoons of dark cocoa with almond milk and a little organic honey. If this is a bad idea, I won't do it again. I was just hoping, hoping, hoping you guys would say that it is a GREAT idea. Can't blame a girl for hoping! DBL Mast, hysterectomy, oophorectomy, OncoType DX 0,
Diagnosis: 4/1/2009, IDC, 1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
|
deni63 Joined: Mar 2009 Posts: 373 |
Nov 9, 2009 05:37 am
deni63 wrote:
Luna - that sounds YUMMY! Actually honey is a good substitute for sugar because it is low glycymic. My doc told me to use either stevia or honey (raw is best) as a sweetner. |
|
Merilee Joined: Jan 2009 Posts: 622 |
Nov 9, 2009 06:04 am
Merilee wrote:
My vote is for Agave nector for sweetening, I like it better than honey, and I love honey :) Diagnosis: 1/9/2009, ILC, 1cm, Stage I, 0/2 nodes, ER+/PR+, HER2- |
|
deni63 Joined: Mar 2009 Posts: 373 |
Nov 9, 2009 07:00 am
deni63 wrote:
Yes, agave is good too! Here is an interesting article about the resistance in the cancer industry for more personalized treatments: http://www.cancerdecisions.com/content/view/284/2/lang,english/ |
|
vivre Joined: Nov 2008 Posts: 1,451 |
Nov 9, 2009 09:37 am
vivre wrote:
Luna-You are so right that if we had known all this stuff 30 years ago, we would have never gotten cancer. Sadly, I must admit that I probably would not have listened. All my grandmothers lived to a ripe old age. My grandmother is still alive. None of them had cancer, so I thought I was impervious. But I have come to learn the whys for my cancer, and I am committed to spread the word to healthy people so they do not end up here. That is why I am going to do this prevention convention. Now that my students are gone, I am able to work on it. I hope we can have them all over the country and get others to be more proactive in their health. As for the honey-I think it is just fine in moderation. Honey has antioxidant powers, and that mixture of cocoa powder and rice drink sounds healthy. Cocoa is also antioxidant. I have not been able to give up my choc habit, and I think I am going to try your recipe. My problem with most chocolate is the soy lecitin junk in it. Your recipe may make it so I can feel better about chocolate. Everything in moderation of course. Deni-I loved that website. I have emailed Dr Moss to see if I can get him to come and speak to us. Keep your fingers crossed. If anyone has other suggestions for speakers, let me know. I want to get my compounding Pharmacist to come, my hormone doc, my thermographer and have yoga classes. If Lisa ever shows up again, maybe she can come and teach us some Zumba. It will be a fun and educational weekend. I also have someone from a culinary school in Chicago who will cook for us! My next goal is to find good hotel rates. I do not want to charge anyone to come and I hope to make it as affordable as possible. I hope you will all come and bring your healthy friends so we can spread the word. |
|
Jennyi1 Joined: Jul 2009 Posts: 51 |
Nov 9, 2009 09:58 am
Jennyi1 wrote:
Good morning ladies Vivre, All of this sounds sooo exciting and educational. I cannot wait until everything comes together and attend this wonderful convention Jenny. |
© 2009 Breastcancer.org. All rights reserved.