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Topic: Herbal alternative to Tamoxifen??? Long ILC survivor

Forum: Complementary and Holistic Medicine and Treatment — Complementary medicine refers to treatments that are used WITH standard treatment. Holistic medicine is a term used to describe therapies that attempt to treat the patient as a whole person.

Posted on: Apr 23, 2013 10:34AM, edited Apr 23, 2013 10:36AM by jojo68

jojo68 wrote:

Hi everyone!

I am researching like crazy to try and keep ILC mets away after my surgery this past January.  My team is really pushing Tamoxifen, but it scares the crapola outta me...LOl  In my research, I have run across some testimonials about Dr. george Wong in NYC who has a 99% rate of keeping mets away from his breast cancer patients...One of them is Ann Fonfa of the Annie Appleseed Project.  She has been cancer free (ILC) for about 20 years or so...She used Wong's herbs as well as many other modalities.

I have read recently, that Dr. Wong now has an herbal alternative to Tamoxifen called TAMWO....I am not sure if Fonfa has used that particular herbal or not.  has anyone heard of this TAMWO?

I am looking to get in to see Wong within the next month or so.  He states he has better success, obviously, before mets take place so I want to run in as fast as I can.

I also found Fonfa's protocol on her site and am listing it below...I find it interesting that she has had success with NAC and Melatonin, both of which have conflicting studies....so hard to figure evrything out...sigh

Here is her protocol..

"I began using nutritional intervention and supplements in 1995. I take the basic antioxidants: Vitamin C, E, A, Selenium. I also take garlic tablets, green tea capsules, melatonin(in the evening), N-Acetyl Cysteine,Vitamin D, niacin, flavinoids, and Co Q10. I also take various other antioxidants like alpha lipoic acid and grape seed extract.

These choice are based on my readings. I do not believe in taking just one vitamin. Most studies in Western medicine try and reduce to a single element and look at how that element works with cancer. I do not believe that it is a useful method. I am convinced that it is much more appropriate to take a panel of vitamins and supplements.

I also juice daily. This is a part of most holistic protocols. I use the Gerson method, i.e. carrot and green apple juice mostly. I add potassium to the juice. Lately I have begun putting some greens into it also. I added ginger some time ago. It tastes great and it is very healthy and full of vitamins and nutrients.

I have been using a Champion juicer since 1996. I own 4 different types. Anyone who has used a juicer knows that cleaning it is the hardest part. I find the Champion easiest to clean. I just place a plastic bag over the spout and tie it with a rubber band. There are other manufacuters who have made a similar style juicer.

I also use detoxification methods. There are several that seem useful. One of the most important is coffee enemas. I learned about this from the Gerson program as well. Since Max Gerson, MD figured out his protocol by working with cancer patients in the early 1900's, he has one of the few well researche alternative methods. He found ways to keep the most patients alive for the longest time.

The coffee is prepared by placing 3 tablespoons into a quart of distilled or bottled water. Then bring the mix to a boil for 3-5 minutes or until all bubbles have dissipated. Then cover and simmer for 20 minutes. Filter and let cool to room temperature. I use organic coffee and a gold filter, the coffee is ground for drip.

It is administered using an enema bucket or bag, and retained for about 12-15 minutes. You can learn to do this as I did. Lay on your right side and when the coffee is in, roll onto your forearms and knees. You can massage your abdomen clockwise gently to help retain. It takes some practice. At the end of the time, release at the toilet.

I do not drink coffee and was initially concerned about a caffeine rush. This has not happened to me. I generally feel relaxed and calm afterwards. Some people have felt the caffeine but this seems to be rare. Do it in the morning if this is a problem for you.

The Gerson program actually calls for 4-5 per day at 4 hour intervals. I did follow this protocol for 18 months but was able to move to 2x a day within the first year. Now I do one in the morning, sometimes two. It is said to open the bile duct in the liver and speed detoxification. (for more on this check out gerson-research.org/ or http://www.gerson.org"

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Apr 23, 2013 10:42AM jojo68 wrote:

Here is her link...

http://www.annieappleseedproject.org/oldsite/www.annieappleseedproject.org/annsprotocol.html

Completed DIEP recon... ILC Stage 2B/3A Grade 2/ER+/PR+/HER- 7/29 nodes/3cm tumor...Anti-chemo and rads girl!..."You have brains in your head. You have feet in your shoes. You can steer yourself, any direction you choose."~The good Dr. Seuss

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May 31, 2013 12:13PM MrsH wrote:

Hi Joellelee, I'm using detox too and I wanted to respond to your post to say, "You go girl!" Hard to find support here for detoxification, which I think, is the way to true healing. Do you know about Dr. Robert Morse? He has many videos on You Tube and he wrote a brilliant book called "The Detox Miracle Sourcebook". He's a bio-chemist, healer and master herbalist and his theories just make sense and resonate with me. I don't think chemo "cures" and that true healing, and ridding the body of acidosis is the way . Blessings to you <3

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Jun 1, 2013 10:27AM HLB wrote:

NAC was recommeded by the holistic dr I saw. I finally got some and have been researching it for the past 2 days. This supplement has so benefits its like a miracle, from detox to psychiatic, the list is too long to mention everything good that it does! Its like the king of antioxidants. Really glad I decided to listen to that doc!

Dx 10/2004, IDC, 1cm, Stage IIa, Grade 2, 2/11 nodes, ER+/PR+, HER2-Dx 7/23/2012, IDC, Stage IVSurgery 10/30/2004 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Surgery 11/30/2004 Mastectomy (Both); Lymph Node Removal: Axillary Lymph Node Dissection (Left); Prophylactic Mastectomy (Right); Reconstruction: Tissue expander placement (Both)Chemotherapy 01/02/2005 Adriamycin, Cytoxan, TaxolSurgery 09/15/2005 Reconstruction: Breast implants (permanent) (Both)Hormonal Therapy 07/23/2012 Femara
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Jun 2, 2013 03:47PM jojo68 wrote:

Hi ladies!  I just posted my visit with Dr. Wong!  I am a little concerned with NAC...I was taking it until I saw in research that it can cause tumor growth...I do see Ann Fonfa takes it and I am going to ask Dr. Wong!  He told me not to waste my money on Artemesinin and IP6 Gold.

Completed DIEP recon... ILC Stage 2B/3A Grade 2/ER+/PR+/HER- 7/29 nodes/3cm tumor...Anti-chemo and rads girl!..."You have brains in your head. You have feet in your shoes. You can steer yourself, any direction you choose."~The good Dr. Seuss

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Jun 2, 2013 03:50PM Lily55 wrote:

Not to waste money on ARteminisin and IP6 Gold?  What is IP6 Gold? 

Assume NAC is N Acetyl Cysteine - it is used to protect kidneys from toxins......but probably best to use in short bursts not as a regular supplement

Dx 4/2012, ILC, 5cm, Stage IIIa, Grade 2, 7/14 nodes, ER+/PR+, HER2-Surgery 05/03/2012 Mastectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right)Radiation Therapy 08/15/2012 ExternalHormonal Therapy 07/20/2013 Aromasin