Posted on: Mar 16, 2008 06:37 AM
Posts 451 - 480 (1,284 total)
Jun 26, 2012 11:06 PM Mazy1959 wrote:
I hope everyone is doing well. Just thought I woulod give this a bump LOL.
Jun 27, 2012 06:51 AM susan_02143 wrote:
Tomorrow is Faslodex No 27 for me. Seeing the aging parents thread to see what the week leading up to this treatment has been like. A hospital day will be a day at the spa compared to this!
Jun 27, 2012 01:58 PM Tina2 wrote:
Susan, I checked out your posts on the aging parents thread and understand how your treatment day tomorrow might be a day at the spa in comparison. Good grief, what a saga. I agree: you deserve a medal--and more.
I too am having my treatment tomorrow, and will think of you enjoying a bit of peace and quiet.
Jun 30, 2012 05:48 AM susan_02143 wrote:
Treatment day is over. To prepare, I had salt and pepper squid from a wonderful Northern Chinese restaurant, and I drank 2 litres of water. Not enough. The blood draw this week was bad. I actually screamed when the needle went in, and to add insult to injury, the red blood cells were damaged so all my blood work has an asterick this time.
Dr. Christina was very happy with my tumor markers. The jump three months ago doesn't concern her since the subsequent three months have been steady. She considers this stable; stable with NED. We have agreed to hold off on scans until September. We had a long talk about why she orders PET/CT scans and not CT and bone. I like her reasoning and feel very comfortable with her choice.
Onto the infusion room. For some reason, this month the injections were not as painful [esp left side] as usual. Today I am starting to feel the Faslodex moving around, but nothing that is wildly bad.
Blood test results show that in fact I do have thyroid issues. Guess I have to go back to the endro and eat some dirt. Damn, more drugs.
And so Month 27 is over.
Jul 5, 2012 01:45 PM reesie wrote:
Ok, I experienced vomiting the first 24 hour after my injections this time but I can handle that with anti nausea drugs. However yesterday and today my bones are killing me. I can't take opiods because they make me sick (migraines the next day) and no anti inflammatories (advil, naproxen) because my platelets are low. I can't take glucosamine-chondroitin because I'm highly allergic to seafood.
So does anyone have any tricks for the pain? Does Claritin work like it does for Neulasta?
And most specifically do any of you on Faslodex for a longer time find that the SEs get better as your body adjusts to the med? My shots Tuesday were just my second loading dose. Get to do this again in two weeks. Really looking forward to it (not).
One good thing no pain at the injection sites so far, thanks to all of your tips.
Jul 5, 2012 07:16 PM Tina2 wrote:
Reesie, the initial side effects of nausea and hot flashes from Faslodex slowly dimished over the past year for me, to the point of their becoming almost non-existent with the last three injections. Injection site soreness and lower back pain continue, but I am sure the latter is estrogen deprivation exacerbating arthritis. (I was taking NSAIDs, and they have helped a lot, but was warned by two doctors that they will do my innards no good. So stopped taking them. And the back and hip pain have returned. Ai yi yi.)
Hang in. If my experience is any guide, your body (and head,no doubt) will become at least somewhat accustomed to this stuff, and you will tolerate it a bit better each time.
Jul 6, 2012 12:32 AM Mazy1959 wrote:
ressie, I had severe pain with my first injections, not near as bad with the second and the third was much much better. I do get nauseous with it but take Phenegran and tums and it helps some. I take opiate pain meds. OTC stuff is ineffective for me. However Benadryl does reduce inflammation. Might be worth a try. It will get better. I just finsihed my loading doses and am so glad they are over. Hugs and luvs, Mazy
Jul 7, 2012 07:39 PM Aerial wrote:
Tina, my side effects experiences have been alot like yours and I've have doctors warn me about NSAIDS, too. I get an infusion of Zometa with my injections so, it's hard to know what is causing what sometimes. The drugs are working for me, so I hate to complain. Still, this off and on pain, that worsens "here and there" can really get me down. Oh, and now I have lymphedema to add to my list of irritants! I go to physical therapy for a special massage 2-3 times a week and will need to wear a compression sleeve (maybe not all the time though). Good greif!
Jul 9, 2012 07:10 AM RobinNY wrote:
Had my ct and bone scan results faxed, looks like Femara and I will be parting ways and I will become a member of this group. I got almost 2 1/2 years on Femara, and am very thankful for that.
I do not have bone mets, I am a lymph node girl.
I do have 2 questions and I am sure you can help me out. I see the Onc on the 12th. If he schedules the first shot for the following week, that puts me around the 20th. Hows the first week after the injection? I have a cruise scheduled for 9/20 and don't want to screw up that week. Should I ask to start a week later? 2nd question....do you drive yourself to the injection?
Thanks for helping me get ready for this weeks Onc appointment.
Jul 9, 2012 07:17 AM, edited Jul 9, 2012 07:18 AM by susan_02143
As you will read, we all have different reactions to this drug, but overall, this is easy stuff. I certainly drive myself to the appointment and then back home. The injection itself can range from very painful to almost painful. My nurse and I can not for the life of us figure out why some months are worse than others. For me, the left side has been the issue. Again, why one side and not the other? Can't imagine.
After 2 years, I now get a bit of nausea the day of the injection and of course, my butts hurt! The level of fatigue that I experience in the first few days post-injection has increased a bit as well.
I can't imagine that a cruise would be a problem at all! I allow myself one day of self-pity which includes going out to eat the night of treatment so someone takes care of me just a bit.
Do make sure you read the earlier tips on positioning your body for the injection, and make SURE, absolutely SURE, that the Faslodex has been brought to room temperature before allowing them to start the injection. The difference between a cold Faslodex and a warmed Faslodex is HUGE.
Welcome to our club. I hope that the Faslodex works for you as well as it has worked for me.
p.s. Overall, my side effects on Faslodex have been much less severe than the aromasin that it replaced.
Jul 9, 2012 07:02 PM RobinNY wrote:
Thanks so much Susan! It certainly sounds doable (like that is an option!?)...and you have made me feel better about it. Thursday is my appt and I will find out then for sure. Would be a real treat to get some of this Femara weight off!
Jul 9, 2012 07:31 PM Mazy1959 wrote:
Robin I have been slowly losing weight since I went off Aromasin and on Faslodex. I hope all goes well at your appt. Hugs and luvs, Mazy
Jul 10, 2012 05:15 AM RobinNY wrote:
Thanks Mazy. You mentioned you just finished your loading doses. Can you please explain to me what that means and what timeframe they were done in? Still trying to make sure I feel decent for our cruise in September! Thanks
Jul 10, 2012 05:56 AM susan_02143 wrote:
I didn't get the loading doses that others who started after me have gotten. When I started on Faslodex the protocol was one shot every 28 days, no loading. But the studies that have been published since then indicate that 2 shots per month has better outcomes. Unlike some other injections, Faslodex doesn't have a "first time worst" side effects.
I am sure others will be by to discuss how they felt after the loading injections.
Jul 10, 2012 06:42 AM RobinNY wrote:
Now I am confused! Lol. Loading is different than double doses? Are you saying I will be getting 2 shots a month? Can someone tell me, are they on the same day?
Jul 10, 2012 06:52 AM susan_02143 wrote:
One dose includes two syringes. Every month you get two injections-- one left butt, one right. They are on the same day, every 28 days. Hope this helps.
Jul 10, 2012 10:14 AM RobinNY wrote:
Jul 11, 2012 10:45 PM Mazy1959 wrote:
Robyn..My loading doses were given every 2 weeks for 6 weeks..so a toal of 3 loading doses. A dose is actually 2 injections, one on each side of ur hip. The first dose was a doozy. HUgs, Mazy
Jul 13, 2012 01:51 PM Rana wrote:
Hi Everyone, I am new to Faslodex, I start next month. I didnt realize its an injection in the muscle, that's the first problem; second problem, from what I'm reading here, there is pain associated with the Faslodex. Are any of you pain free from it? If so, I would love to hear about it!
Jul 13, 2012 03:12 PM Tina2 wrote:
Rana, there is a LOT of information about personal experiences with Faslodex on this forum, and it ranges the spectrum. Some people have pain. Some don't. Follow this Faslodex Girls thread back to its beginning and you'll see. Check out the Hormonal Treatment thread too.
Jul 13, 2012 05:24 PM Nanaskids wrote:
Hi Tina, I've been on Faslodex for 7 months now. What I have found helps is to warm the shots at room temp. They keep them in the fridge and given cold they will hurt. The nurses where I go know this. There is some ouchyness at the injection site but not enough to be a big woop! I'm also taking Xgena, it too is a injection once a month. For now I get very tired the day of and several days after. I work and take care of my 3 grandchildren. Don't get alot of chance to lay around but for now it is tolerable. I have gained about 6 pounds and I feel the being tired is attributing to it. Wish you well my friend.
Jul 14, 2012 01:04 PM, edited Jul 14, 2012 01:07 PM by Judy1992
Hello Faslodex Girls. I am in need of your knowledge, experience and suggestions. Have been on Arimidex for 33 months for soft tissue mass in my chest near my sternum and lymph nodes. Had 30 rounds of radiation (IMRT) Nov/Dec 2011 and just had PET scan in June which showed NED in chest, but a new finding of one area of bone mets to my left femur. I am going to be starting Faslodex and radiation therapy has also been recommended. I've been considering doing the loading of Faslodex (injections on days 1, 15, 29 and the first monthly injection and then do the radiation. However, after additional research and reading the boards and with the caution from my medical oncologist that we should not go too far out before doing the radiation (I've been off Arimidex since June 26th), I'm now concerned if I'm making a good choice. Wondering if anyone has done radiation to their leg at the same time that they started Faslodex or if they did radiation first (I'm told 10 rounds) and then started the Faslodex, or if they started Faslodex and then did radiation. *Whew* ... sorry about that last sentence - sounds like a multiple choice quiz!
Jul 14, 2012 01:10 PM susan_02143 wrote:
My radiation was done years before I needed the Faslodex. Sorry I can't be off any help, but maybe someone else will chime in. With my reduced brain cells, I can't remember anyone on this thread discussing this.
Jul 14, 2012 02:26 PM RobinNY wrote:
Hi everyone.....I am officially a Faslodex girl now.....bye bye to Femara. I had my first loading dose on Thursday....thanks to all you wonderful ladies who shared your experiences....mine went well. I had a "float" nurse who knew nothing about warming the drug, but was very happy to wait until I was happy with the temp. She did know how I should stand, and I honestly felt nothing on my right side. My left was achy before the shot and I did feel it go in, but it wasn't horrible. I am a little sore, but manageable. Hope the joint pain diminishes now...Onc said it may! Mazy and Susan....kudos to you both for all the info, PM's and hugs! I'll be around to meet the rest of the group...I'm still working and not a daily poster...but I'll be around.
Much love and hugs...
Jul 15, 2012 10:26 PM Mazy1959 wrote:
Robin, Im glad it went well for you. You have been on my mind and am relieved. HUgs tc, Mazy
Jul 15, 2012 10:27 PM Mazy1959 wrote:
Judy I took Aromasin same time as rads whith my first bone met. I had no problems at all. Did u ask ur oncologist about this? HUgs, Maz
Jul 16, 2012 06:36 PM Judy1992 wrote:
Susan and Mazy, thanks so much for responding. I have appointments with a local medical oncologist this week re the Faslodex and with my radiation oncologist next week. Learning on Friday that I do need to move ahead with radiation in addition to doing the loading of Faslodex brought me to the boards to read more about Faslodex and see if anyone had rads at the same time. Thanks again for sharing your experience! *hugs* back to you....Judy