Topic: Lets start a Roll Call
- Posted on: Jun 16, 2008 11:53 pm, edited Jun 16, 2008 11:54 PM by LuAnnH
Joined: Aug 2006
Posts: 8,740
we tried this once before and thought it was worth a shot to try again. bcmets normally does roll calls periodically and they do alot to help motivate and keep the fight up in some that get down and out. I thought this could help keep the spirits up here in the face of adversity! I'll be more than happy to start. If you somehow date your roll call it might help others keep in mind how long you are still surviving with cancer!
June 2008
LuAnn, dx 7/2/06 with bone mets to sternum and ribs
7/06 to 2/07 Arimidex/Zometa (stopped tx due to adverse s/e)
2/07 to 5/07 Aromasin/Zometa (had progression of bone mets)
5/07 to current (6/08) Faslodex/Zometa/Herceptin
Bone mets are very well under control and QOL is very well with the exception of back disorder that is non cancer related!
Dx 7/2/2006, IDC, 2cm, Stage IV, 0/ nodes, mets, ER+/PR+, HER2+
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waterlily Joined: Nov 2007 Posts: 528 |
Jun 17, 2008 06:59 am, edited Jan 17, 2009 09:03 AM
by waterlily
waterlily wrote:
June 2008 Waterlily, dx 6/05 at age 45 with pleomorphic ILC left breast and 13/18 nodes. Had dose dense AC and Taxotere and 30 rads. 3/06 - 9/07 took Tamoxifen, Arimidex, Aromisin, Femara, Faslodex 9/07 dx w/mets to pelvis, pubic bone, sacrum, and L1,L2, and L5. 9/07 started Zometa 12/07 Hysterectomy with mets to ovary, fallopian tubes, and peritoneum (abdominal lining) 1/08 Mets to ureters and hydronephrosis to kidneys - uretral stents put in and changed 3 times until they got the right kind (whew!) 10/08 Xeloda failed. Mets to intestines and some new bone mets. 12/08 Started Abraxane and Avastin. Continuing Zometa. waterlily |
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Fitztwins Joined: Dec 2004 Posts: 7,727 |
Jun 17, 2008 07:21 am, edited Feb 13, 2009 07:49 PM
by Fitztwins
Fitztwins wrote:
Yeah! I was just thinking this. Updated 1/17/2009 Fitztwins (Janis) Age 44 Original official dx DX 12/2004 IDC 17/24 nodes er/pr+ Her2+ AC/Taxol 4 tx each 34 rads Herceptin 1 year 12/2005 Hysterectomy (thought it would be fun to be menapausal) Tamoxifen 6 months, Femara 2.5 years DX 6/2008 mets to pelvis/pubic, Pet scan - few tiny spots on the spine, some other non-descrip spots, lung nodules and liver..keep an eye on those. Rads to the Pelvis, Herceptin + Taxotere 6x Hip pain - found out femoral head fractured. TLHR in 12/08 (I like Dec/Jan surgeries) Last Scan CT/PET 12/14, Show Marked improvement! Currently on Zometa/Herceptin/Aromasin Chemo break, hopefully will remain stable on this regime 2/2009 small lung nodules, Dr. suspects lung mets (because they shrank) Note: rejected from 1 clinical trial still trying to get a BC vaccine for Her2 Well ain't that a kick in the head!
Dx 12/12/2004, IDC, 3cm, Grade 2, 17/24 nodes, ER+/PR+, HER2+ |
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heatherpalm… Joined: Feb 2008 Posts: 1,779 |
Jun 17, 2008 07:42 am, edited May 24, 2009 08:59 PM
by heatherpalmerton
heatherpalmerton wrote:
June 2008 Heather Palmerton age almost 43 lupas/finally Scleroderma 1997/98 original dx jan 2002 er+/pr+ her2- 7/14 nodes positive (I'll edit later chemo brain) right mastectomy 2002 original treatment A/C 10 months total it was delayed do to low blood counts. procrit didn't work had several blood transfusion. Tamoxifin 5 yrs Jan 2008 Reacurrance with mets, to bones, marrow, liver, nodes, they had some confusion because of scleroderma. Jan 2008 to Nov 12,2008 treatment with taxotere, premeds with steroids and benydril because i fell into the 2% allergic reaction, also zometa. Nov 12, 2008 started Tamoxifon 2 months no chemo Jan 2009 rescan PET/CT Tamoxifon didnt work Jan 28, surgery Ovaries and tubes taken out. Started Femara. Hope and a prayer this is going to be the ticket for awhile.
HEATHER PALMERTON
Dx 1/18/2008, Stage IV, ER+/PR+, HER2- |
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Skyrat Joined: Jun 2007 Posts: 312 |
Jun 17, 2008 07:51 am
Skyrat wrote:
What a great idea. Definitely helps to see so many ladies doing well. 5-1-08: Mets to the bone, mainly 4 or 5 spots on the spine. Treatment with Zeloda and Aromasin. Chemo will follow when the heart recuperates enough from damage done by Taxol - chemo mentioned was Xeloda. 5-1-08, Stage IV mets to the spine, 19/21 nodes metastatic adenode carcinoma, abundant vascular involvement; http://360.yahoo.com/mistyroz; http://skyratgina.vox.com/
Dx 4/12/2007, IDC, 4cm, Stage IIIc, Grade 3, 19/21 nodes, mets, ER+/PR+, HER2- |
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ozzie2 Joined: Jan 2007 Posts: 1,303 |
Jun 17, 2008 08:16 am
ozzie2 wrote:
June 08 OZ.. on xeloda just done 4th cycle..not sure how response is now..on 2nd cycle TM were down..yippie...see Onc on the 30 the june...TM done next monday.. all my information is below in blue.. hugs oz DCIS and IDC 96. ER/PR + HER2- bone skin mets06 ,Lung mets May08
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mthomp2020 Joined: Jul 2007 Posts: 878 |
Jun 17, 2008 09:46 am, edited Jun 17, 2008 09:48 AM
by mthomp2020
mthomp2020 wrote:
Diagosed 5/14/07. Scans done after first chemo showed multiple mets to liver, 6 to spine and 2 to hips. 4 dd A/C tx, followed by right modified radical mastectomy, followed by 2 more A/C. Scans showed liver mets shrinking, bones stable. 6 tx Taxol/Herceptin. Scans Dec. 23 after 4th tx showed some bone healing, liver stable. Finished 2 more Taxol, continued Herceptin. Next set of scans in April showed liver mets and bone mets healed! Now on Herceptin and zometa. Scans this Friday - keeping my fingers crossed! Dx 5/21/2007, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2+ |
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SunshineSmi… Joined: Jun 2005 Posts: 1,108 |
Jun 17, 2008 10:29 am, edited Mar 10, 2009 10:40 PM
by SunshineSmiles
SunshineSmiles wrote:
Okay, sounds fun- Original dx 5/18/2005 ILC left breast, two areas, suspicious area left breast and right breast too many biopsies to count Double mast with delayed GAP reconstruction in NOLA 1 year later Chemo dose dense A/C and Taxol, followed with radiation and Aromasin Dx with bone mets 11/07 Tx with Aromasin, Zometa and Oophorectomy Dx with liver mets 3/08 Tx chemo Taxol/Carboplatin, clinical trial Tykerb discontinue Aromasin until tx finished. Scan on 6/9 shows significant reduction in liver lesions, stable bone mets Planning to start hanging out with NED in a few more months! Leaving for Paris on Friday!!!! Hugs to all, Susan Edited to update: Was declared "Stable" November 2008, discontinued Taxol, had already discontinued Carbo due to allergic reaction. Continued clinical trial of Tykerb. Scan in January shows increase in liver mets, slight progression in bone mets. Started on Ixempra for a change, one treatment every 3 weeks, which will be good. Scan in February shows decrease in liver mets, continuing with it hoping for NED or Stable boy to show up! "If we couldn't laugh, we would all go insane" -Jimmy Buffett - - - - Age 43, orig dx May 2005
Dx 11/22/2007, Stage IV, mets, ER+/PR+, HER2- |
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SherriP Joined: Mar 2007 Posts: 64 |
Jun 17, 2008 10:30 am, edited Jun 17, 2008 10:31 AM
by SherriP
SherriP wrote:
June 2008 Diagnosed 12/22/06 - age at diagnosis 36 Had mastectomy and found out 02/08/07 Stage IV mets to bones Had radiation to two spots on my spine Skipped chemo and went right to tamoxifen. Have been on it for 16 months and also get monthly pamridronate. (bone strengthener) Just had scans and bones appear stable, still concerned about neck pain that keeps coming and going - will probably be having an MRI soon to confirm. Lungs and Liver still clear!!!! I have returned to work full time as my QOL is pretty good. I am married and have a son who is 5 1/2. Hoping to stay on tamoxifen for a long time, the side affects are very easy except the 35 + pounds I have put on. Sherri |
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sue3645 Joined: Dec 2007 Posts: 20 |
Jun 17, 2008 10:40 am
sue3645 wrote:
Sue dx 10/30/07 with Inflammatory Breast Cancer in one breast; found out a week later about two small liver mets (8mm and 6mm). Started Taxol (3 weeks on, one week off) and Avastin (every other week). 1/08 - liver mets reduced in half, now 4mm and 3mm, improvement in breast, continue Taxol+Avastin 4/08 - one liver met GONE, one 4mm one still there, improvement in breast, continue Taxol+Avastin Go back for my scans in mid-July and may be heading for a mastectomy! I was 37 when diagnosed, married and have two kids - a 10 yr old daughter and a 3 yr old son. dx IBC 10/30/07, liver mets 11/13/07. Taxol+Avastin and lots of prayers!!!
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katie11 Joined: Jan 2007 Posts: 2,082 |
Jun 17, 2008 11:25 am, edited Jun 17, 2008 11:26 AM
by katie11
katie11 wrote:
Good idea, LuAnn! I remember doing this a while back and, you're right, it's very encouraging (just what I need right now!). So, here goes: Diagnosed July 2006 with bc and mets to bone from the get-go 3 months of the 'red devil' (still don't know what it's called and can't be bothered to find out!) - led to progression 4 months of taxotere and xeloda - mets stable and have been ever since May 2007 mastectomy July 2007 started tamoxifen and lupron shots Still stable (I hope) though latest TMs have been slightly elevated and I have scans next week (yikes!) Katie x |
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mimi1030 Joined: Oct 2007 Posts: 584 |
Jun 17, 2008 12:24 pm, edited Jun 17, 2008 04:21 PM
by mimi1030
mimi1030 wrote:
My mom dx (my 32nd birthday) Aug 4, 2004 Surgery #1 - Sept 04 - Lumpectomy - Stage 0, 2cm DCIS Grade 3. Margins not clear. Surgery #2 - November 04 (mom's 50th birthday) - Mastectomy with expanders - Stage 1 - 1cm DCIS with 4mm IDC, Grade 1, Her2+++, ER/PR -, no nodes involved, 4 rounds A/C, no herceptin available in 2004. Surgery #3 - April 05 - Remove expanders and implant surgery with RB reduction. Surgery #4 - Aug 05 - Failed implant - implant slipped from pocket, replaced with another one. Surgery #5 - Nov 05 - Implant failed again - Another implant was replaced and breast was stitched up to chest wall to hold the pocket. Surgery #6 - March 06 - Had enough with Implant so Implant removed and TRAM Flap reconstruction. April 06 - MSRA Staph infection in new TRAM Flap breast - In hospital for 5 days getting infection under control. Surgery #7 - July 06 - Abdominal mesh placed in abdomen due to severe abdominal wall bulge. That didn't help either. Dx (by accident) Sept 2007 with widespread and extensive mets to the liver (3 lobes involved) and bones (femurs, spine, pelvis). Still Grade 1, Her2+++( they double checked the grade 1 and it was infact still Grade 1, still not sure if that is good or bad). Weekly Taxol/Herceptin and monthly Zometa. Jan 08 - PET/CT scan reveal complete metabolic response to interval therapy. Dramatic response to therapy. Largest tumor in liver reduced from 3.5cm to less than 1cm. Other tiny tumor in liver down to 6mm. Bones healing, (funnily enough there are no signs of the cancer in femurs or spine, just healing area in pelvis) no new mets. April 08 - mom dx with trunkal lymphadema. Undergoing oscillation therapy and daily and nightly garment wrapping. May 08 - CT Scan revealed, one area of lucency in right dome of the liver representing as treated mets, other than that liver was clear. Spot on pelvis healing, still no signs of cancer in femurs or spine. No new mets. She feels great, blood work and TM's completely normal. No pain, no symptoms, no SE's from chemo. She is feeling better now than she has in her years without the cancer. Michelle Mom has Stage IV mets to liver and bones, details of dx below
Dx 9/29/2007, IDC, <1cm, Stage IV, Grade 1, 0/1 nodes, ER-/PR-, HER2+ |
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badboob67 Joined: Jan 2007 Posts: 3,330 |
Jun 17, 2008 12:34 pm
badboob67 wrote:
Great idea, Luann! June 2008 Diane-- Feb 8 2006--1st MAMMO at age 38; discovered a large lump in my breast a few months previous Feb 10 2006--US & CORE BIOPSY Feb 15 2006-dx'ed from biopsy Feb 27 2006--right MASTECTOMY March 27 2006--PORTACATH inserted in preparation for chemo March 29 2006--in ER with compression fractures in my spine (results from scans were now back; BONE METS extensively from skull down to my femurs) Started on ZOMETA, ZOLADEX, TAMOXIFEN, and RADS while still in hospital April 2006--Switched to ARIMIDEX (after 1 week on TAMOXIFEN) and completed 17 sessions of RADS to spine Sept 2006--MRI shows STABLE! Jan 2007--DX with LYMPHEDEMA in right arm--began therapy and wraps Feb 2007--Small progression (3 spots in pelvis) of bone mets identified on PET MARCH 2007--Portacath ruptured during flushing for ZOMETA tx. Fibrin sheath had fully enclosed the catheter and caused backflow/rupture. New PORTACATH placed on opposite (non-mast) side. APRIL-MAY 2007--14 tx of RADS to new spots SEPT 2007--switched oncs; scan films had been lost and previous onc was pushing clinical trial for progression that was not conclusive from scans or rads onc's opinion. Continued with ARIMIDEX/ZOMETA/ZOLADEX APRIL 2008--ER again with new fracture to T-12 vertebra. 10 RADS tx. MAY 2008--Stopped ARIMIDEX. Still taking ZOMETA/ZOLADEX. Added AVASTIN every 3 weeks and XELODA 5000mg daily (2 weeks on, 1 week off). Did not tolerate high dose of XELODA (vomiting) discontinued after 1 week JUNE 2008--Re-started XELODA at 3000mg daily (2 weeks on, 1 week off). MUCH more tolerable As of today, I've had 2 AVASTIN infusions and 14 days on XELODA. Will be scanning in a month or two to assess response. Still bone-only mets....and I'd like to keep it that way! Diane When you're down to nothing, GOD is up to something! http://bb67.wikispaces.com/
Dx 2/15/2006, IDC, 5cm, Stage IV, Grade 2, 24/27 nodes, mets, ER+/PR-, HER2- |
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suecco Joined: Feb 2008 Posts: 309 |
Jun 17, 2008 01:42 pm, edited Dec 4, 2008 05:17 AM
by suecco
suecco wrote:
Hi ladies, great idea so heres my story as far as I can remember it!! 2002 just before 31st birthday found a lump in breast (no family history) dx stage 1 breast cancer, lymph nodes sampled and they were clear had left mastectomy, given TAMOXIFEN told this was only treatment needed 2003/4 check up appointment dr felt lump in left armpit, total node clearence 17/20 nodes affected no mets at this stage, had EPIRUBICIN (the good old red devil!) CMF and 20 rad sessions to armpit and chest, stopped tamoxifen and started ZOLADEX and FEMARA (think thats what it was) 2005/6 after fab wedding in vegas blood tests showed liver not quite right, lots of scans and one lesion found in liver no other lesions anywhere else, so had TAXOTERE which shrank lesion, because of the area the tumor is in (next to main arteries in liver) no rads or operation to remove is possible. 2007 Routine MRI showed growth, had VENORALBINE this time which also shrank lesion 2007/8 same again this time had FASLODEX and I had a slight progression 2008 XELODA after 3 cycles scans showed progression into 2 other sectors in my liver as well as my existing lesion, put back on ZOLADEX TODAY Im on my 6th cycle of weekly TAXOL which after 4 cycles scans showed lesion is shrinking, so continuing on with remaining 6 cycles living in hope of the words NED! Sadly Avastin still not available here in the UK yet, although the whisper is that it might be by july, we'll just have to wait and see! things get a bit hazy with dates so this is correct as far as my chemo brain remembers! Ill probably be back to edit when I remember other things!! QOL would be great if it wasnt for my recent back problem which thankfully isnt cancer related! Sue xxx Just to update, TAXOL finished and showed lesions had shrunk, so at next scan around 10 weeks later lesions once again growing, infact the worst they have been, after alot of humming and harring onc decided to return to EPIRUBICIN and another which I cant remember the name of but begins with a C!! Dangerous as the Epi can damage heart muscles and there is a lifetime maximum dose - which Ive now passed so heart scans monthly. had 4 of 6 and bloods are improving, scan in 2 weeks so fingers crossed. I need a credit card thats got no limit - Rockstar - Nickelback
Dx 2002, , Stage IV, 17/20 nodes, mets, ER+/PR+, HER2- |
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dfleaman Joined: Apr 2008 Posts: 82 |
Jun 17, 2008 02:08 pm
dfleaman wrote:
Hi everyone, this is a great idea because I have been wondering how long. 10/98 Stage 0 calcification biopsy and 34 radiation treatments right breast 10/00 Stage 1 no lymp nodes Mascetomy left breast tamoxifin/ arimadex 2/05 Stage 3 right breast 3 lymp nodes postitive. mascetomy and reconstuction of both breast. cemo for 8 months. 2/07 Stage 4 lymp nodes under arm pit and neck pet scan shows sign of right hip but, dr thinks it is arthritis. Zometa and Faslodex cancer has not spread yet. It started when I was 43 now I am 52 still fighting but not understanding. donna Donna Fleaman
Dx 2/2/2008, 3cm, Stage IV, 3/5 nodes, ER+/PR+, HER2- |
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dfleaman Joined: Apr 2008 Posts: 82 |
Jun 17, 2008 02:11 pm
dfleaman wrote:
Hi everyone, this is a great idea because I have been wondering how long. 10/98 Stage 0 calcification biopsy and 34 radiation treatments right breast 10/00 Stage 1 no lymp nodes Mascetomy left breast tamoxifin/ arimadex 2/05 Stage 3 right breast 3 lymp nodes postitive. mascetomy and reconstuction of both breast. cemo for 8 months. 2/07 Stage 4 lymp nodes under arm pit and neck pet scan shows sign of right hip but, dr thinks it is arthritis. Zometa and Faslodex cancer has not spread yet. It started when I was 43 now I am 52 still fighting but not understanding. donna Also the 1st, 2nd and 3rd cancer were all different cancer the 4 was a reacurance of the 3rd. Donna Fleaman
Dx 2/2/2008, 3cm, Stage IV, 3/5 nodes, ER+/PR+, HER2- |
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debman Joined: Jul 2004 Posts: 176 |
Jun 17, 2008 02:29 pm, edited Jun 17, 2008 02:30 PM
by debman
debman wrote:
Great idea....can't promise I can remember everything - I find cancer is like labor - if I remembered everything, I wouldn't do it again. LOL :) 9/15/03 - stage 2A 1/28 lymph nodes positive 9/27 mascetomy (right only) bone scan negative (I told them something was wrong iwth my rt leg) 10/03-1/04 - 4 rounds of Taxoteere/Adromocyn (Way off on spelling) 3/04 tamoxifen 4/04 - still complaining of rt leg pain 5/04 - threaten to sue if they don't retest me. 10 cm tumor found in my right hip - said it had been there all along - it was just missed in sept. No kidding - I kept TRYING to tell them that. 6/04 - bone scan still NEGATIVE, CA 27.29 up to 199, PET shows multiple sites - back, bilateral ribs, bilateral hips, sacrum, sternum, etc. (I stopped asking) switched doctors - changed diet - NO sugar, NO white flour, fruits, veggies and as organic as we can afford second opinon at Sloane Kettering with a doctor who had the largest EGO - he was horrible. Gave me 18 months to live (said I should go back to 9/03 to calculate - told them they were wrong - I was walking my twins into kindergarten) swithed to Armidex 7/04 ovaries out 8/04 tumor markers rising switch to Fasoldex 10/04 radiation to right hip 1/05 scan shows more growth Switched to Xeloda - my MIRACLE drug 6/05 normal tumor markers - back to hormones (can't remember which one 11/05 back on Xeloda 6/06 back on hormones (can't remember which one) 9/06 right hip replacement (best thing I've ever done) 11/06tumor markers sky rocket - back on Xeloda 3/07 Xeloda stopped working - added Tykerb 7/07 official Tykerb not working - tried Gemsar 8/07 WALKED MY TWINS INTO KINDERGARTEN 1/08 Gemsar stopped working - tried Navolbine It worked.....Avastin approved on 2/28 for breast cancer 3/30 added Avastin Still on Avastin, Navolbine and Zometa I've been on Zometa since 6/04 as well as a multivitamin and calcuim supplements. When I'm on hormones, I also add Co-Q10 to the mix - just can't use those with chemo. My tumor markers are currently 131 - I've been as high as 363 at times. The CA 27.29 really works for me - it goes up a month or two before they can find it on the scans but I know it doesn't work for everyone. I still have bone only disease and I know I am very blessed. Meeting with MDA on 7/9 to be considered for stem cell. Great thread. Thanks for setting it up. Deb Dx 5/27/2004, IDC, 2cm, Stage IV, Grade 2, 1/28 nodes, mets, ER+/PR-, HER2- |
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debman Joined: Jul 2004 Posts: 176 |
Jun 17, 2008 02:31 pm, edited Jun 17, 2008 03:13 PM
by debman
debman wrote:
P.S. I just turned 42 on Saturday. I'm always HAPPY to celebrate another year now that I have cancer. LOL :) Real name is Debbie Mancini Wharff Dx 5/27/2004, IDC, 2cm, Stage IV, Grade 2, 1/28 nodes, mets, ER+/PR-, HER2- |
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FayeFighter… Joined: Nov 2007 Posts: 55 |
Jun 17, 2008 02:40 pm
FayeFighter wrote:
This is such a great idea!! My mother 1985 - age 35 with breast cancer. Left mastectomy. Radiation followed. 17 years cancer free!! 2002 - My aunt passed away from breast cancer. One month later my mother was diagnosed again. Right mastectomy. Chemotherapy and then radiation. Took Arimedex for about 5years. June 2007- Another aunt diagnosed with metastatic breast cancer. My mother trying to help her get the best treatment. September 2007 - My mother's face went numb, tingle, twitches on right side. 2 spinal taps later decided to radiate the brain in November. After MRI noticed bone mets to ribs, chest wall, spine T3, T4, T5. 2008 - started on Xeloda but was not effective. Had radiation to spine. June 2008 - last week started on Navelbine Currently having a really bad problem walking. Had an X-ray yesterday to see if it is a fracture or bone mets to pelvis. This is what I can remember |
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CalGal Joined: Jan 2006 Posts: 824 |
Jun 17, 2008 03:12 pm
CalGal wrote:
June 2008 Sept 2004 - Dx'd with 2 cm invasive bc on the left; DCIS on the right ... a rude interruption to 4-1/2 mos of newlywedded bliss .... Oct 2004 - Bi-lat lump's, CLEAR SNB. Triple Neg. All grade 3. Nov - Dec 2004 - 38x rad'tn. Nov 2005 - 1st pregnancy ends in miscarriage ... (so, considering what's next (mets), regrettably, no kids) Dec 2005 - Recurr bc, mets to liver and likely, unrelated kidney cancer. Feb 2006 - Confirmed BRCA1 positive (I expected it and after being dx'd with mets, it was no big deal. In hindsight, I should have had the test much earlier, even before dx, due to family history of early onset bc) Feb - Apr 2006 - 6 dose dense AC June 2006 - Radio-frequency ablation (RFA) for 2 remaining liver mets. Aug - Nov 2006 - Despite being NED, 5 Taxotere & Carboplatin. Mar 2007 - RFA of kidney tumor July 2007 - 13 MOS OF bc NED ended with dx of a lung met Aug 2007 - Feb 2008 - PARP Inhibitor Clinical Trial, lung met decreasing ... Feb 2008 - Lung met stable and liver met is back. Apr 2008 - Carboplatin - didnt effect lung or liver met, now add'tl liver mets and one bone met May 2008 - present - Avastin & Abraxane June 2008 - FINALLY got a portacath! Love it! 1st Zometa next wk. Pending - July 2008 - PET/CT to HOPEFULLY show that the Avastin & Abraxane is working! CalGal Trip Neg, BRCA1, Dx'd 9/04; Mets Dx'd 12/05
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abbyglp Joined: Aug 2006 Posts: 457 |
Jun 17, 2008 04:07 pm, edited Feb 25, 2009 05:38 PM
by abbyglp
abbyglp wrote:
June 2008 Dx april 25, 2006 Masectomy right may 5,2006 port put in June 2006, started chemo end of June 2006, 4tx A/C, 12weeks taxol Feb 2007 rads and started arimidex, finished year of herceptin in Oct. 2007 Done! so I thought. removed port Dec. 2007(I hated that thing) I read all this great stuff about flaxseed and that it was safe for ER+, so I took it a couple times a week before my first 3 month check up. Well my TM's jumped from 38 to 50. so my onc sent me for scans and found spots on my spine, not sure if it was cancer so sent me for MRI, still not sure it was cancer, so sent me for biopsy positive it was cancer. stopped taking flax and changed the arimidex to aromisin and TM's dropped 25 points. Did 15 tx of rads to spine may 2008, had my TM's drawn this week, will see what they are next wed. still working, keeps my mind busy. I have a hundred craft and art projects going on all at the same time incase I need a change. I have some bad days but as time goes on I have had more better days than bad. hugs abby UPDATE 2/09 progression to pelvis and right femur, retested and now ER-, so stopped aromasin started xeloda, tykerb and zometa, TM's still rising but scans were stable Dec 29, 2008. So just waiting to see what happens next month.
Dx 5/5/2006, IDC, 5cm, Stage IV, Grade 2, 6/15 nodes, mets, ER+/PR+, HER2+ |
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Betsey Joined: Nov 2004 Posts: 1,021 |
Jun 17, 2008 04:30 pm
Betsey wrote:
June, 2008 Dx with IDC, left breast January 2004, had mastectomy and port placement. Dx with extensive bone mets March 2004, radiation to right hip for pain relief. Also started on Taxotere and continued until August 2004. Bone mets progressed, switched to Femara and Zoladex. Stayed on Femara and Zoladex for almost 2 years. Progression of bone mets noted in September 2006, tried Aromasin for 3 months but progression continued. Started Xeloda in January 2006. I have had 2 dose adjustments and currently take 3000 mg a day on a week on/week off schedule. Took the month of May off meds so I could enjoy vacation. Tumor marker (taken a week ago) has risen slightly from 19 to 29. Seeing onc tomorrow for 3 month visit and will see then if he recommends bone scan or any other changes at this time. I'm not employed, but do volunteer work at my tx center, and also teach several classes there. I tire easily, but overall I have great support and good quality of life. Take care, Joanie |
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AlaskaDeb Joined: Mar 2006 Posts: 3,712 |
Jun 17, 2008 05:05 pm
AlaskaDeb wrote:
Dec 2005 - Dx IDC Jan 2006 lumpectomy, sentinel node surgery positive for cancer, immediate auxiliary node dissection. Dx Stage 3, Grade 2 Multi Focal IDC. 27 of 32 nodes positive with extranodal extension. My margins were not clean so further surgery was needed. Feb 2006 started 6 months of DD chemo, 6 biweekly A/C followed by 12 weekly Taxol. July 2006 bilat mast with no recon. No cancer found, chemo seems to have worked. Sept/Oct 2006 6 weeks of rads to 4 fields. Nov/Dec 2007 Lots of bone pain in hips, ribs and back. clear nuke med bone scan and CT scan. Feb 2008 - more pain, more scans. Suspicious nodes found. Needle biopsy confirms mets to nodes. CT scan, PET scan, Brain MRI, Lumbar Puncture. Mets found widespread throughout my bones and in lymph nodes. One possible spot in liver. End of Feb 2008 - Have port surgery. started Taxol, Avastin and Zometa. Tumor markers fall with each monthly blood test. June 2008 - CT scan shows all the cancer in my nodes is shrinking, stable or gone. Switch Taxol too Abraxane. PET scan scheduled in end of September to check on bones. Keeping hope alive.... Deb C http://glassylady41.spaces.live.com/
Dx 2/29/2008, IDC, 3cm, Stage IV, Grade 2, 27/32 nodes, mets, ER-/PR-, HER2- |
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djz2003 Joined: Sep 2006 Posts: 17 |
Jun 17, 2008 06:46 pm
djz2003 wrote:
Dx March, 1985 - age 35 Left breast Lumpectomy & Radiation - Stage 1, no lymph nodes involved March-May, 1985 Reconstructive surgery & breast enlargement - 1985 Left breast Recurrence - 1987 Left breast Mastectomy & Chemo - 1987 Reconstructive surgery - 1987 Recurrence mets to lung - 1997 Hormone therapy trial drug LY353381 at MDAnderson - 1997-2006 Changed to Tamoxifen-2006-2008 TRAM flap surgery to correct hardened implant -2006 Dx with Horner's Syndrome - 2008 - Tamoxifen failed PET/CT scan showed new tumors under skin and on sternum Changed to Arimidex/Zometa March, 2008 to present Tumors under skin are starting to shrink ER+/PR+/HER- Debbie Debbie
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djz2003 Joined: Sep 2006 Posts: 17 |
Jun 17, 2008 06:48 pm, edited Jun 17, 2008 06:52 PM
by djz2003
djz2003 wrote:
This Post was deleted by djz2003.
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bleiker Joined: Sep 2007 Posts: 9 |
Jun 17, 2008 07:01 pm
bleiker wrote:
Beth-Original dx Oct 2002 Stage 1, tumor grade III, ER/PR + , HER2- treatment-Lumpectomy, Brachytherapy,CMF chemo for 6 cycles, Tamoxifen next 4 years. All subsequent mammograms no evidence of disease. Stage IV, Feb 2007 found my own mets to supraclavical and cervical neck 3 neck tumors. CT scan then found small tumors in both lungs, rest in lymph nodes...larger tumors internal mammary, mediastinum, liver. On Arimedex until further lymph node mets near heart in Nov 2007. Then went on UCLA clinical trial for Taxol and AMG706. All tumors shrank within 4 weeks, within 16 weeks in complete remission! Beth
Dx 3/20/2007, IDC, 1cm, Stage IV, Grade 3, ER+/PR-, HER2- |
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willowweed Joined: Apr 2008 Posts: 36 |
Jun 17, 2008 07:26 pm
willowweed wrote:
11/1996 Original dx left breast 7cm ILC; stage IIB; no nodes involved; er+/pr+; her2-; mast; 6xCAF; 36 rads; Tamoxifen 5yrs 11/1997 Oopherectomy/hysterectomy 04/1999 Prophylactic right mast; bi-lat free tram flaps recon 06/2004 Rising tumor markers - begin aromasin 10/2004 Blastic lesion on right hip - radiation x? (chemo brain); change to femara 03/2006 Small mets to lungs; omentum involvement; pleural fluid accumulation; begin 10 months of taxol, zeloda, zometa 01/2007 - 06/2007 chemo break 05/2007 talc pleurodesis procedure on right lung 06/2007 Doxil x6; abdominal fluid build-up 01/2008 - 06/2008 chemo break; trying tamoxifen again, however extreme shortness of breath may mean more chemo is immenent. Tracie Tracie - dx 1996; 7cm; er/pr+; neg. nodes; IIB; 6xCAF; 36 rads; tamox; bi-lat free trams; mets 2004
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mason204 Joined: Jan 2006 Posts: 483 |
Jun 17, 2008 09:19 pm, edited Jun 17, 2008 09:26 PM
by mason204
mason204 wrote:
June 2008 Lets' see what I remember: Dec/03 - dx, stage IIIB Feb/04 - June/04 - ACT 6 cycles July/04 - left mastectomy Sep/04 - left breast radiation 25x Feb/05 - 1st PICC line insertion Feb/05 - June/05 - Vinorelbine/Herceptin - 6 cycles Aug/06 - Recurrence in liver/lung/bones Aug/06 - 2nd PICC line insertion Aug/06 - Dec/06 - Vinorelbine/Herceptin - 6 cycles Jan/06 - Continue with Herceptin only Jan/07 - Radiation to L5 Mar/07 - Start double blind clinical trial -Zometa/Denosumab June/07 - PICC line replaced with PORT Jan/08 - new tumour in right breast 5cm Feb/08 - Vinorelbine/Herceptin (3rd time) June/08 - Mastectomy/axillary node dissection, right breast As of 2 months ago, soft tissue mets stable (tumours actually decreasing in size), bone mets show slight progression, however. My life in a nutshell. Dx 12/23/2003, , Stage IV, Grade 3, ER-/PR-, HER2+ |
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debman Joined: Jul 2004 Posts: 176 |
Jun 17, 2008 11:36 pm
debman wrote:
This is just awesome to read and Beth, CONGRATS on 16 weeks.
Keep up the fight and the hope everyone. I'm just amazed at what eveyone has been through. Debbie Dx 5/27/2004, IDC, 2cm, Stage IV, Grade 2, 1/28 nodes, mets, ER+/PR-, HER2- |
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lv2cmp Joined: Sep 2004 Posts: 1,966 |
Jun 18, 2008 10:21 am
lv2cmp wrote:
Ok going on memory here but will do my best. July 04 lump found in left breast by me-36 years old. Mamogram, Ultrasound and biopsy confirmed cancer. August 04-lumpectomy but didnt get clean margins and sentinel node biopsy was positive. Oct 04-8 rounds of chemo Epirubicin, cytoxin and taxotere. Jan 05 decided on bilateral mastectomy. 1 node was positive. Clinical trial for montly shots to shut down ovaries and take ?-for the life of me I cant remember the name of it right now. Went to New Orleans for consult for DIEP and scheduled surgery. Katrina hit on my surgery dates so it was cancelled. Aug 05 experiencing pain in pelvic area-Assured it wasnt cancer. Pain continued and I informed onc at each visit. July 06-pain in right pelvic area-Onc assured me it wasnt cancer but I knew it was. I insisited on MRI and it confirmed cancer in pelvic bone and not only cancer it was broken. Fired that oncologist and never looked back. August 06-Herceptin, xeloda and zometa October 07-mets grew to lungs and liver. stopped herceptin and xeloda and started Tykerb and Abraxane. Jan 08-jaw necrosis from zometa and zometa stopped. Currently on Abraxane and Tykerb and mets to lungs have mostly all shrunk and liver is down to one spot that could be scar tissue. Bones are good. I work F/T and also live on a small farm of 10 acres and raise Nigerian Dwarf Dairy goats. Dx 2006, IDC, 2cm, Stage IV, Grade 2, 1/11 nodes, mets, ER+/PR+, HER2+ |
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mom2acat Joined: Apr 2003 Posts: 318 |
Jun 18, 2008 11:51 am
mom2acat wrote:
Shari 6/18/08 Diagnosed with Stage 2 breast cancer in April 2003 at the age of 39. Bilateral mastecomy in May 2003, followed by chemo (A/C then Taxotere) Radiation to chest wall in Feb/March 2004 Lupron injections, every 3 months since Feb 2004 Tamoxifen, Feb 2004 to April 2006 Arimedex, May 2006 to April 2007 April 2007, diagnosed with bone mets spring of 2007, radiation to left hip and pelvic area Zometa and Faslodex once per month since April 2007 "One small cat changes coming home to an empty house to coming home."- Pam Brown
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