we tried this once before and thought it was worth a shot to try again. bcmets normally does roll calls periodically and they do alot to help motivate and keep the fight up in some that get down and out. I thought this could help keep the spirits up here in the face of adversity! I'll be more than happy to start. If you somehow date your roll call it might help others keep in mind how long you are still surviving with cancer!
June 2008
LuAnn, dx 7/2/06 with bone mets to sternum and ribs
7/06 to 2/07 Arimidex/Zometa (stopped tx due to adverse s/e)
2/07 to 5/07 Aromasin/Zometa (had progression of bone mets)
5/07 to current (6/08) Faslodex/Zometa/Herceptin
Bone mets are very well under control and QOL is very well with the exception of back disorder that is non cancer related!
| Posts 211 - 222 (222 total) | |
|---|---|
|
vivo Joined: Mar 2009 Posts: 326 |
Sep 17, 2009 06:20 pm
vivo wrote:
57 yo misdiagnosed with parotid gland cancer at 1/7/08 parotid gland (falsly!) and supraclavicular lymph nodes removed at 1/11/08 diagnosed with bc and bone mets after surgery at 10/1/09 had 6 rounds of Gemzar, Taxotere. Also Herceptin and Zometa 10/7/09 finished chemo and continue Herceptin, Zometa and Femara pet scan says NED!!!!!!!!!! The meaning of life is not what you learn but what you teach
|
|
lLinda Joined: Dec 2007 Posts: 334 |
Sep 19, 2009 12:00 am, edited Sep 19, 2009 12:05 AM
by lLinda
lLinda wrote:
Linda---Diagnosed Nov. 17,1998: I had a lumpectomy followed with-- Adramycin and Cytoxan 4 treatments, 4 treatments of Taxol followed by 36 treatments of Radiation. It came back in the left breast. When I went to the Dr. to talk about What kind of Chemo was to be given, he was checking my right breast, found a lump, had a biopsy--malignant, that is how the other breast was removed 3 weeks later from the first breast. May 31 2002--Mastectomy of left breast---June 18, Mastectomy of right breast. Diagnosed with Her2--Herceptin and Navelbine. Stopped Navelbine in Nov. 2002(Dr. thought I had been on it long enough)---Jan.2003 it came back in chest walls. Navelbine added back. I stayed on these 2 meds til 2005 as the CA had not gone away--Xeloda was given,(necessary to stop it) the side effects were so bad--to hands and feet. 2006 Radiation 36 Treatments which ended in Oct. By Dec 23 2006 it was showing on my chest walls again. Feb. 2007 Taxotere 5 treatments( it made me so tired I felt Psychotic) med was stopped. Sept. 2007 Tykerb was started. It was necessary to add Navelbine--these treatments were stopped in Nov. 2008. The Dr and I decided to just "do nothing" give my body a break-- that was OK. So I had no Chemo for 9 months(after 6 yrs.); last month, I had some swollen glands, under my jaws and we done CT Scans--Normal---however there are the swollen glands, a biopsy was done, there are Breast Cancer cells in those glands---Needless to say, I will go back on Herceptin and Navelbine on Sept. 28. I seen after I wrote, this is for Stage IV--I have not been diagnosed for that---I moreso just wanted to share my journey. For all going through---don't give up!!! It has been a long journey, I am coming up on 11 years Survivor in Nov. and I am there!!! Moving on "Under Gods Graces. Linda C. LINDA C
Diagnosis: 11/17/1998, DCIS, 1cm, Stage IIIa, ER-/PR-, HER2+ |
|
nancyh Joined: Sep 2002 Posts: 492 |
Sep 26, 2009 11:44 pm
nancyh wrote:
I've been on this board for years, but am new to the Stage IV club. Aug 2002 - original dx at age 32. 2 cm IDC, 3 positive nodes. Lumpectomy, 6 mo's chemo/7weeks rads. May 2007 - local recurrence, less than 1cm. Bilateral mastectomy, 6 months chemo. Aug 2009 - mets to spine, liver, and lungs. |
|
kristom3 Joined: Apr 2009 Posts: 24 |
Oct 3, 2009 06:08 pm
kristom3 wrote:
Kristom3 (Kristen) DX April 2004 Stage III BC ER+... radiation, double masectomy, AC, tamoxifen, arimadex, hysterectomy Reoccurance May 2009 Stage IV Mets Bone (pelvis, spine, ribs) Abraxane with the biophosphenate Zometa Oct 1, 2009 Liver Mets appeared... zometa with capecitabine Just keep living
Diagnosis: 4/15/2009, 2cm, Stage IV, 4/10 nodes, ER+/PR-, HER2- |
|
Marybe Joined: Apr 2009 Posts: 403 |
Oct 3, 2009 08:33 pm
Marybe wrote:
March 1990 abnormal mammo April 90 biopsy 0.9 cm infiltrating ductcal carcinoma ER+ PR= May 90 modified radical mastectomy with immediate reconstruction 19 nodes negative Nov 90....implant exchange 1996 pain in sternum area...both Plastic surgeon and onco said not cancer related and pain would go away, but came back about every 6 months. Each time I saw doctors, but pain was attributed to some activity I had done and I was assured it could not be cancer since it had been over 5 yrs. In 98 pain was severe enough I told onco we had to do something and she sent me for a bone scan. July 98, Bone scan showed mets to manubrium and body of sternum. CAT scan showed 2 cm lesion in left lobe of liver and pleural nodules in left lung with lytic lesions. July 15,98 changed oncologists and started on taxoxifen and pamidronate. CA 27/29 was 262 CA/27/29 went down to 134 by Jan 99, but then rose gradually to 549 by Aug 2000 when treatment was changed to arimidex Oct 2000 Started Aromasin which took CA 27/29 all the way down to 18 in 2003. Scans were considered Stable Aug 2002 Pamidromant was changed to zometa due to shorter infusion time. June 2001 Carpal tunnel surgery Rt hand. 2002 Rt atrial myxoma detected in scan. April 2003 Total left Knee replacement. Dec.2004 pin place in 5th metatarsal and bone graft due to fracture failing to heal. Aug 2004 suspected PE which I was hospitalized for turned out to be myxoma which broke off and traveled to and became lodged in my pulmonary artery. DVT right calf. Now take coumadin daily because of blockage in artery. Nov 2004 changed from aromasin to faslodex. Feb 2008 bone and CAT scans stable, but pain in lower back caused me to see orthopedic dr who ordered an MRI in April which showed a 2.5 cm lesion at S1. Followup biopsy showed it to be breast cancer mets. May 08 2 weeks of radiation to sacrum May 08 Started avastin (every other week) and oral cytoxin, methotrexate. Aug. 08 TIA. Hospitalized for two days. Feb. 09 New bone mets and new areas in liver. Started Abraxane weekly with Avastin every other week. Remained on monthly schedule of zometa and faslodex. July scans showed decrease in size in liver tumors and CA 27/29 went from 209 - 87 after 22 treatments when I decided I wanted to quit due to neuropathy, infected nails, heavy nose bleeds and constant tearing of eyes. Oncologist agreed to take a break, but wanted to resume later with drug in taxol family since abraxane "was working" as he put it. Sept 09 had consultation with rad/onco to discuss radiofrequency ablation and IMRT. She felt I would benefit from either treatment, but my onco said no since I have so many mets. Sept 28 and Sept 30, 1990 Consulted with onco at MD Anderson and after discussing things with my onco and making his recommendations to him, I am to try Aromasin again starting on Monday. Sorry this was so long, but a lot of things have happened in almost 20 years. I am not having any pain and continue to work as a dental hygienist. . Marybe
Diagnosis: 4/1998, IDC, Stage IV, 0/19 nodes, mets, ER+/PR+, HER2- |
|
evenyn Joined: Apr 2008 Posts: 1 |
Oct 3, 2009 11:09 pm
evenyn wrote:
dx 7/2001 stage 3 6.5cm tumor 4 pos nodes grade3 er- pro 30% her-2 pos 3plus strong IDC AND IBC...2001 CHEMO FOR 9 MOS..MAST,,6 WEEKS RADS Then herceptin iv since nov 2001. reacurance after mast nov 2001 onto skin once herceptin started it disapeared from skin within 3 weeks....stable clear pet scans until april 2009 mets to under clavile,in tissue left side where post mast, inbet esophagus and trachea, hylar membrane of left lung...i remain on herceptin now tykerb added since april areas are either stable or receding..Next step to dana faber in boston,,,,oh yes life goes on,,i am moving thru breast cancer 8 year survivor ! |
|
chk8 Joined: Oct 2007 Posts: 19 |
Oct 13, 2009 09:45 pm, edited Oct 13, 2009 09:54 PM
by chk8
chk8 wrote:
Connie Dx 1989 IDC L breast, ER+PR+, nodes negative, mastectomy due to size of nodes; all other tests ok (I was 37 year old) 1989-1990 CMF x 6 months 1990 - 1993 Tamoxifen 1993 - local recurrence on L, removed and then radiation therapy x28; all other tests ok 1993 - switched from tamoxifen to megace 1994 - new cancer on R breast, elective mastectomy, nodes negative, all other tests ok 1998 - switched from megace to arimidex 2002 - arimidex d/c'd - I had been on anti-hormone meds for 12 years 2004 - starting with back pain that would not go away, diagnosed with mets to spine, began femara and arimidex 2007 (January) - femera "lost control" of bony mets as revealed by worsening tumor markers and bone scan, tried faslodex which did not work for me as noted by worsening tumor markers and bone scan 2007 (July) - switched form arrimidex to zometa 2007 - PET showed 3 small lesions in my liver as well as worsening bony involvment 2007 (October) - began Xeloda which got rid of the liver lesions and controlled the bony mets for about a year 2008 (October) - changed to Doxel for worsening bone involvement but liver spots were still gone Zometa decreased from monthly to twice a year due to threat of ONC 2009 (June) - changed to Taxotere for worsening bone involvement and more and larger liver spots, liver biopsy determined I was Her2Nu-. That test was not used when I was first diagnosed. This was the first chemo that had a major effect on my hair. So far, it seems to be working as bone pain has gone away and tumor markers are going down (but not yet normal). Next scans will be in December. |
|
janabelles Joined: Oct 2009 Posts: 2 |
Oct 21, 2009 11:39 pm
janabelles wrote:
Dx August 15, 2008 - IDC right breast, 2 tumors (one @2.0cm the other 1.5), ER+/PR+/HER2-, bone & liver mets, right mastectomy, 49 years old 9/08 - Tamoxifen & Zometa 10/08 - Xeloda & Zometa 6/09 - Zoladex, Arimidex & Zometa Hoping meds will work well for a long time. Thank you all for your inspiration! Diagnosis: 8/15/2008, IDC, 3cm, Stage IV, Grade 3, 13/14 nodes, mets, ER+/PR+, HER2- |
|
claygirl Joined: Dec 2008 Posts: 14 |
Nov 1, 2009 11:33 pm
claygirl wrote:
Jackie 1993-stage 1,ER-, 0/22 nodes, lumpectomy, radiation, CMF 2008-extensive mets to bones, ER/PR+, hip replacement, radiation to spine and hip, Femera and Zometa Oct. 2009, progression in bones, Aromasin and Zometa Next scans in Jan. 2010 Increased pain in lower spine hindering my working on potter's wheel---hoping aromasin will work. I would like to continue working as long as I can. I am so glad this board exists. My prayers to all. Diagnosis: 7/13/2008, ILC, Stage IV, ER+/PR+, HER2- |
|
dontknowwhy… Joined: Nov 2009 Posts: 10 |
Nov 10, 2009 11:55 am
dontknowwhy wrote:
November 2005 - stage 2b, Er/Pr +, Her2 -, had mastectomy of right breast, chemo (TAC) and radiation June 2009 - stage 4, 1 met to left lung. chemo (Taxotere, carbo and avastin) (6 months: 3 weeks on 1 off) Ready to take on whatever happens next! |
|
Chelee Joined: Dec 2005 Posts: 1,012 |
Nov 15, 2009 04:31 am, edited Nov 15, 2009 04:33 AM
by Chelee
Chelee wrote:
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++, Richardson scale 9 of 9 -- Er & Pr weakly positive, 5 of 16 pos nodes. Poorly differentiated IDC, with coexistent high-grade DCIS Rt. MRM on 1-3-06 -- No Rads due to lung issues. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? (low attenuation of chest wall but says "stable".) It's a seroma. Officially stage IV. 9-28-09 Loading dose of Herceptin & started Zometa Tumor markers dropped after loading does of Herceptin/Zometa alone. Chemo canceled 10-27-09 & 11-03-09 till I see Ortho for mass on femur. 11-05-09 appt. with Ortho surgeon. Femur surgery Nov. 18th. Wondering why my onc hasn't mentioned giving me Faslodex, AI, or anything till I recover from surgery! Now that I'm stage IV she doesn't care?!! Chelee Dx 12-05, Stage IIIA, Her2/Neu, 3+++, Er & Pr pos, 5 of 16 pos nodes.
Diagnosis: 12/20/2005, IDC, 3cm, Stage IV, Grade 3, 5/16 nodes, mets, ER+/PR+, HER2+ |
|
jmar19 Joined: May 2006 Posts: 62 |
Nov 20, 2009 01:41 am
jmar19 wrote:
April 2005 diagnosed with stage III breast cancer at the age of 28 May 2005 left mastectomy and removal of lymph nodes June 2005-Oct. 2005 ACT October 2005-December 2005 Radiation October 2006 right elective mastectomy and bilateral reconstruction, PE following surgery March 2009 diagnosed with stage IV breast cancer with lung, liver, and bone mets I can't return to work, but I started feeling much better about 4 months ago and ended up returning to school for a change of career. Still feeling pretting go. Currently still in treatment. |
© 2009 Breastcancer.org. All rights reserved.