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Topic: Our "Central Address Book"

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  • Posted on: Jul 16, 2008 01:31 pm, edited Jul 16, 2008 01:33 PM by Timtam
Japan
Joined: Jul 2005
Posts: 783
Timtam wrote:

Hi everyone,

As I posted the other day, I was trying to make a list of our stage IV sisters with their contact information including their emergency contacts. Been working on it and finally I can tell you that it's done! The only difference between what I originally suggested and what now I think is that I would want this to be available for everyone (not only stage IV sisters but everyone on these boards) who wants to join. I have already contacted Melissa and made sure neither making the list nor posting about it is against the rules. So now it's official. I will explain how this works.

      

The link to the website is http://tamako.milkcafe.to/luv/AddrBook/addybook.cgi

             

On this page, you post your information by yourself. Of course you can see all the information posted on the page as well so that you can send stuff to those in need or do a card shower. It is easy as pie so do not worry. I have prepared several fields where you can fill in the information about yourself. Some of them can be left blank if you want. If there's anyone in particular who you communicate with here on BCO and would want them to contact you or your emergency contact if you went MIA, you can specify the name of that person and notify them of that. If you are registered by someone else as their contact person, you will check in with that person and give us an update if asked.

                
To protect information from identity theft, this website is password-protected. You need to PM me for the details on how you can gain access. (Do not PM me with your information. You need to post it by yourself.) However you will not be given the details unless you are either:
1. a member of these discussion boards on BCO of 6 months+ and have made 30+ posts
2. a member of these discussion boards on BCO of 2 months+ and have made 40+ posts

           

I apologize that this may sound a little too unfriedly to those are new here or haven't posted much but as a person that manages everyone's personal information on this website, I am responsible for protecting their personal information from being disclosed to an unauthorized third party. Your understanding will be appreciated.

         

I hope this help us unite as a worldwide family and make our bond even stronger. PM me for the details or any questions.

         

Hugs,

Fumi

Posts 1 - 18 (18 total)
ozzie2
Australia
Joined: Jan 2007
Posts: 1,303
Jul 18, 2008 07:50 am ozzie2 wrote:

Good idea Fumi  have PM u...

hugs

oz

DCIS and IDC 96. ER/PR + HER2- bone skin mets06 ,Lung mets May08
Bugs
MN
Joined: Jan 2006
Posts: 1,363
Jul 18, 2008 10:08 am Bugs wrote:

Fumi,

You are an awesome woman for doing this. :)

Bugs

The life I touch for good or ill will touch another life, and that in turn another, until who knows where the trembling stops or in what far place my touch will be felt. Frederick Buechnerr
Dx 2/1/2006, IDC, 6cm+, Stage IIIa, Grade 3, 3/16 nodes, ER+/PR-, HER2-
Fitztwins
MI
Joined: Dec 2004
Posts: 7,727
Jul 18, 2008 11:30 am Fitztwins wrote:

I would love if we could add pictures. Just one of us. not pets, not kids, just us.

I am NOT stepping on that scale again! www.carepages.com ,fitzhappens
Dx 12/12/2004, IDC, 3cm, Grade 2, 17/24 nodes, mets, ER+/PR+, HER2+
katie11
Joined: Jan 2007
Posts: 2,082
Jul 18, 2008 02:57 pm katie11 wrote:

Fumi,

This sounds fantastic!  Thank you so much for setting this up - I will be sending a PM!

Katie xx

JoyRebecca
St.Pete Beach, Fl
Joined: Aug 2007
Posts: 756
Jul 20, 2008 10:14 am JoyRebecca wrote:

Fumi,

What a great thing it is for you to do this!! Thanks so much!

XX

Joy

waterlily
Joined: Nov 2007
Posts: 528
Jul 21, 2008 11:17 am waterlily wrote:

Thanks, Fumi!

waterlily
Dx 6/2005, ILC, 2cm, Stage IV, Grade 3, 13/18 nodes, mets, ER+/PR-, HER2-
mom2acat
Big Rapids, MI
Joined: Apr 2003
Posts: 318
Jul 22, 2008 05:58 pm mom2acat wrote:

Thank you! I just pm'ed you

"One small cat changes coming home to an empty house to coming home."- Pam Brown
Dx 4/8/2007, 5cm, Stage IV, Grade 2, 5/19 nodes, mets, ER+
Irina
Rockford, IL
Joined: Feb 2008
Posts: 699
Jul 23, 2008 11:26 am, edited Jul 23, 2008 11:27 AM by Irina Irina wrote: SmileThank you (((HUGS)))

Dx 2/2004, 4cm, Stage IV, 5/0 nodes, mets
AimeeFaye
Joined: Jun 2008
Posts: 72
Sep 4, 2008 02:40 am AimeeFaye wrote:

Hi Timtam: I can PM you cause I have enough posts now....wow I didn't think my chemo brain would allow me those many thoughts!  And...I still may not have got this process right... how can an intelligent woman turn to mush in so short a time...oh well, that's why God made post it notes..... see, too many thoughts tonight!!!  Thanks for setting up the Address Book,

Deb

Aimeefaye
Dx 4/25/2008, IDC, 2cm, Stage IV, Grade 3, 12/16 nodes, mets, ER+/PR+, HER2-
Ter
Bakersfield, CA
Joined: Oct 2006
Posts: 422
Sep 27, 2008 02:01 am Ter wrote:

hi timtam,

your awsome, i remmeber LONG ago like years, we started this and can remember "things" that blew it up, but your so good at doing things like this it will work.

I started and did mine with a few here on the site along with my sister who has their phone numbers and emails etc, and she knows how to contact them immediately, and yes there were times she called them, and yes I love being even closer to so many sisters here.

Plus what i did as i have made a "just in case something happens to me" directory, names addresses and phone numbers of who to contact and this sites address and how to join etc.

A couple years ago i was going out of state to see my sis and 2 gals from here live about 3-4 hr drive, and there were 2 gals who didnt know each other except seeing the others posts, well, they got together they were like one hr away from each other and one drove to meet the other and then took the long drive to meet me..oh it was a glorious day up in Wash State, as my own sister went out and got goodies for food and made up a platter of food and breads etc, was a beautiful day outside, and it was one of the best days of my life meeting these 2 BC sisters, and yes when the day was done as they had to get back home, there were alot of tears and we couldnt quit hugging each other.   A day I will never forget....oh well until a couple other gals from here after we lost one special BC  sis we lost one morning and i got a call from someone i didnt know well but she was already driving a few hr drive to come to see me, as she knew Janelle and i were very close, and that too was a great day, just by contacting people, you do become close, this has happened a few other times, just days i will never forget,

so gals, get your infio in this, you never know when you might need a friend at home, or visa  versa.

timtam, your great!

hugs

Ter

Be the change you wish to see in the world - Ghandi -
Susannah09
Joined: Oct 2008
Posts: 1
Oct 9, 2008 09:35 am Susannah09 wrote:

Can't seem to log into the Central address book.  Just signed up.  Any help?  Thanks so much for doing this.  Susan


Dx 9/9/2008, Stage IV, 0/10 nodes, mets, ER+
rumoret
Joined: Jun 2006
Posts: 711
Oct 15, 2008 02:25 pm rumoret wrote:

I can't get the username and password to work. Need advise.

Terry 


Dx 4/13/2006, IDC, 2cm, Stage II, Grade 3, 0/15 nodes, ER+/PR+, HER2-
LuAnnH
Cincinnati, OH
Joined: Aug 2006
Posts: 8,740
Oct 15, 2008 02:50 pm LuAnnH wrote:

email timtam she is the one controlling this address book

LuAnn -- www.luannsblog.typepad.com
Dx 7/2/2006, IDC, 2cm, Stage IV, 0/ nodes, mets, ER+/PR+, HER2+
Analemma
Cleveland area, OH
Joined: May 2005
Posts: 1,712
May 22, 2009 05:48 pm Analemma wrote:

I think it's time to remind everyone, especially Stage IV ladies, to join the Central Address book.  I was looking on it today for Stephanie - TripleNeg, but she's not there.  This is how I made contact with Suecco's husband and found out that she had died earler this month.  It would be so great if we had an emergency contact that we could email when someone goes missing.  No one even knows for sure where Stephanie lives.

Email Timtam and she will tell you how to access the list and put in your info.

Brenda

Children are the living messages we send to a time we will not see. --John W. Whitehead
Dx 12/10/2007, IDC, 2cm, Stage IV, Grade 3, 5/12 nodes, mets, ER-/PR-, HER2-
TripleNeg
Joined: Sep 2007
Posts: 787
Jun 10, 2009 09:17 pm TripleNeg wrote:

I want to give my information but I don't know who to give it to. What's Timtam's email address? God is able, stephanie

"The girl who became emotionally distraught, and wavered at each new set of circumstances is now grown up, a woman who has learned to rely on God's sovereignty" Joni Eareckson Tada
sushanna1
Joined: Feb 2003
Posts: 742
Jun 11, 2009 06:44 pm sushanna1 wrote:

Stephanie,

Send Timtam a PM and she will send you the password so that you can add your information.

Sue

heatherpalm…
KLAMATH FALLS , OR
Joined: Feb 2008
Posts: 1,779
Jun 19, 2009 11:46 am heatherpalmerton wrote:

Terry, I haven't been able to log on yo put my info on there either.  I think it is an awesome thing I would love to use it. I need help too. Thanks Heather

HEATHER PALMERTON
Dx 1/18/2008, Stage IV, ER+/PR+, HER2-
Ter
Bakersfield, CA
Joined: Oct 2006
Posts: 422
Jul 28, 2009 04:33 am Ter wrote:

Hi Timtam,

I hope your doing fine, as I hadnt been online for so so long, with HP having my computer for at least 3-4 months, then it pooped out again...even my doctor said to me "Ter, how are you doing all this without your computer? as I know you rely on it with your group of BC sisters.  I told him it was very hard as my family, well parts of them think that if you have your breast removed that cancer is gone and you should be able to go back and do everything like you use to ...LOL

Anyway as of people to contact, its the same, my sister Suzie who lives up in Washington State, and old old members keep in touch with her, and Suzies email is:

Ronsuzron@aol.com    justs in case.  Also a person that knows how to get in touch with me is Celia.  I believe she has an 888 or something like that at the end of her name.  She also lives up in Wash..and we yak on the phone when time permits.

Well I had just wrote a very long new letter under recourrance and mets section and its time for me to hit the sack.

Lots of hugs to you and I do hope your doing well.

Myself and this new computer, ugh!  I got a notebook by Dell, its called a Dell XPS...I thought it would be an XP, but nada nada so i have alot to learn.

Shlalom

It's better to be effective than it is to be right.-

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