My husband and I have decided to spend the next 5 months living near our daughter in Bucks County, PA. It is just north of Philly, and my oncologist has suggested I go get an opinion on treatment at Fox Chase Cancer Center. Does anybody here get their treatment at Fox Chase, or had a consult? If so, would you mind sharing the name of your oncologist if you are happy with him/her? I know the odds are small that somebody on this board has been treated there, but wanted to give it a try!
Also my Pulmonologist wants me to investigate some work on lung mets at the University of PA.
What I am really hoping for is some special time with my daughter :)
Carol
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jerseymaria
Joined: Nov 2007 Posts: 485 |
Sep 5, 2008 02:06 am, edited Sep 5, 2008 02:06 AM
by jerseymaria
jerseymaria wrote:
carol, yes i had a consult at fox chase in april (as well as sloan kettering in basking ridge, nj). my onc rec. a doc to see but said it was very hard to get into see her. well i did with no problem in a very reasonable time. dr. lori goldstein...she supposedly is very well known. she was very nice and very upbeat. i also was given the name of a onc at univ of penn who supposedly is excellent. i decided that 2 consults were all i could handle since i wanted to get back into treatment in a reasonable time and it was such a terribly stressful period. i think i still have his name in my records. if you like tomorrow i'll pm you with the info for fox chase. i have to look up the folder in my two tons on records and paperwork. i have all the numbers to set up the appt. maria Dx 2/27/2006, 3cm, Stage IV, Grade 3, 9/25 nodes, mets, ER-/PR-, HER2+ |
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az8n Joined: Feb 2008 Posts: 56 |
Sep 5, 2008 12:39 pm, edited Sep 5, 2008 12:42 PM
by az8n
az8n wrote:
My personal experience. I found their approach ‘bookish'.....and I was told it is because FCCC is a learning institution on top of being a medical facility solely dedicated just to cancer. When you book for an appt, they will give you a list of path slide/documents/records/test results, etc that you need to furnish them with, I think, 3 days to a week before your consult date. If those reqs are not in, they will not see you (in short, appt cancelled). By ‘they', I mean the team that will be assigned to you - which will be a med onc, a rad onc and I think the equivalent of a surgeon...plus a slew of interns, residents and even nurses. I thought for a while it was a one to one consult. I was not told over the phone or when I came to the facility that morning, that there will be other medical professionals who will be with the doctors that they assigned me to. Oh I remember, i was told that the med onc will have AN associate, not some - but AN (so 1 other doctor with her, no more than one). But all the doctors who were assigned to me had a crew with her/him. All the doctors, not just the ones who saw me had a conference that same morning of my appt (which seems to be the norm for them each day), I think to go over patient information, etc - while we (3 new patients)waited. Kind of told me it was going to be a long morning. While we were waiting, FCCC's resident social worker gave us a talk regarding other services/amenities available. I felt that should have come later but I think that was to buy time for the "conference" to be done. I knew that the SW talk was just an interim as when the conference was over, someone rushed the SW as the doctors were done and supposedly ready to see the patients - not true. There was more wait in the rooms when we were finally allowed to go in. Now, while I am for giving everyone a chance to learn; I was not too happy to be made to wait because ..."Oh, we are still waiting for the nurse!". My insurance/I did not pay to see a nurse for consultation on a serious matter as my diagnosis. No offense to nurses, my brother and my sister are nurses but I think you know what I mean. I was given specific times that I will see each doctor but those times boiled over. I took time off from work, sent my documents in advance and I was still made to wait for someone who I was not told I was going to see. Dr Goldstein was part of my team, too. It might be different if I chose to have my treatments with them or if my diagnosis was different (was IDC, Stage 1) but again, my first experience with them was not too pleasant, in my opinion. I am in Montgomery County; I have a very good, very pleasant medical oncologist. I can give you the info if you want to speak/consult with him. You can btw, look up FCCC doctors from their website and read about them even before you get to see them in person. |
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jerseymaria
Joined: Nov 2007 Posts: 485 |
Sep 5, 2008 01:06 pm
jerseymaria wrote:
interesting...my experience was very different. perhaps because i was going for a consult on my dx of mets. yes i did have to send all reports and stuff. i hand carried my path slides from 1st bx, surg and 2nd bx. i only saw dr. goldstein and her personal nurse. please let me know if you do want my info as it will take a bit to pull it all out. i don't mind doing this at all if you do want the info. maria Dx 2/27/2006, 3cm, Stage IV, Grade 3, 9/25 nodes, mets, ER-/PR-, HER2+ |
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kimf Joined: Feb 2005 Posts: 979 |
Sep 5, 2008 01:16 pm
kimf wrote:
Hi Carol, I had my mast at Fox Chase, and pretty much went through the same meeting day that az8n wrote about. I was assigned Onc Dr Swaybe and a fellow named Dr Devlin. I did not like either one. Besides the whole first day run around, after my surgical report came back, I knew I was stage IIIC, but they neglected to tell me I was her2+. Just to make sure of the treatment plan they were offering, I had already had a second opinion at Memorial Sloan Kettering in NYC. There, my Onc, Dr. Gabrielle D'Andrea (love her) told me that I was her2+++. Anyway, I asked Dr Devlin why I was never told about this and his reply was that I didn't ask. Dr Swaybe backed him up, which was horrible. Then she told me that my cancer scared her and she had great concerns. In NY, they told me that could treat me and I was going to do great. So, open and shut case. This was before Herceptin was released to the general public. Fox Chase would only agree to a three-armed trial, 66% chance of getting Herceptin. Memorial guaranteed 100% of their her2+ patients would get Herceptin for a year. In my opinion, you would be close enough to either one to go...I'd suggest MSK based on my experience. Good luck either way. Kim Kimf
Dx 12/16/2004, IDC, 3cm, Stage IIIc, Grade 3, 15/23 nodes, ER-/PR-, HER2+ |
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NYCarol Joined: May 2002 Posts: 776 |
Sep 5, 2008 05:31 pm
NYCarol wrote:
Thank you all so much for answering my request. What different experiences you each had with Fox Chase. I am stable, stage 4, and currently not on chemo. I need somebody with an open mind and I think Fox Chase seems to rigid for me. I would probably not fit in there as a patient based on most of the information I read here. Your sharing of experiences has been so valuable to me. Marie, I would appreciate the name of the doctor you have a the University of PA, but if it is not reasonably available to you, please don't stress over it. I may have to consider NYC and MSK, but I remember it is a very difficult place to get around when you are on oxygen as I am now. I was there for a 2nd opinion 6 years ago. Thank you all again, Carol |
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jerseymaria
Joined: Nov 2007 Posts: 485 |
Sep 5, 2008 06:15 pm
jerseymaria wrote:
carol, i will find the name of the univ of pa onc. i'm pretty sure i still have it. i'll take a look. maria Dx 2/27/2006, 3cm, Stage IV, Grade 3, 9/25 nodes, mets, ER-/PR-, HER2+ |
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LinTol Joined: Oct 2006 Posts: 286 |
Sep 6, 2008 02:06 pm
LinTol wrote:
Hi Carol. I had gone to Fox Chase for a second opinion back in 2000, when diagnosed with stage 1 bc. My day was just like az8n and Kimf. It was a terrible day. You are not treated like an individual, but just a number who has xyz symptoms and therefore, should receive treatment "abc". My father-in-law had a terrible experience there recently and I just do not know how they can be ranked so highly as a hospital. I also live in Bucks County and go to the Univ of Penn for treatment. My onc is wonderful and I would highly recommend her, Dr. Angela DeMichele. Please feel free to send me a pm if you have any questions. Good luck! Linda
Dx 5/2006, Stage IV, ER+/PR-, HER2- |
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jerseymaria
Joined: Nov 2007 Posts: 485 |
Sep 6, 2008 02:25 pm
jerseymaria wrote:
carol, the onc that was recommended to me is dr.kevin fox. he is the administrator of the rena rowen breast center. the appt.lline # is 1-800-789-7366. good luck, maria Dx 2/27/2006, 3cm, Stage IV, Grade 3, 9/25 nodes, mets, ER-/PR-, HER2+ |
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NYCarol Joined: May 2002 Posts: 776 |
Sep 7, 2008 01:21 am
NYCarol wrote:
Marie, thank you so much for searching and coming up with the name and number for me. I am so appreciative, and will contact him. Lin, thank you also for your information. It adds to my confidence that I don't want to go there. I am hearing good things about the Univ of Penn. I will keep dr. DeMichele name in my book also, and will contact you via PM with a few questions I have about the facility. Thank everybody who provided information. It is hard to find new physicians. Carol |
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sushanna1 Joined: Feb 2003 Posts: 525 |
Sep 7, 2008 08:25 am
sushanna1 wrote:
I can recommend Penn. I went there for various surgeries and a had a consult with an onc who now longer practices there. With rare exceptions, all of my experiences were good ones. If you can afford it, why not make an appointment at Penn and at Fox Chase. I like Penn because it is easily accessibly by public transportation. Good luck with your decision. |
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