I have just started taking this new mets chemo, ixempra. Has anyone taken it? Have you lost your hair?
cathy
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LuAnnH Joined: Aug 2006 Posts: 6812 |
Sep 7, 2008 09:32 am
LuAnnH wrote:
do I thread search for imprexa. a few ladies started a thread on it as they started it. Has alot of good info on side effect in it. LuAnn -- www.luannsblog.typepad.com
Dx 7/2/2006, IDC, 2cm, Stage IV, 0/ nodes, mets, ER+/PR+, HER2+ |
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kgrimm Joined: Aug 2008 Posts: 82 |
Sep 7, 2008 07:29 pm, edited Sep 7, 2008 07:30 PM
by kgrimm
kgrimm wrote:
Yes, I did lose my hair although I didn't have much due to previous chemo. I am also having a good bit of numbness in my feet and fingertips. I had some residual of that from a previous chemo but not nearly what I have now. Not too many other side effects. I have had 7 total treatments of Ixempra-3 weeks apart. Nauseated a couple times but may have even been from something else. Good luck with the Ixempra. I hope it really helps you. Dx IDC-1984, 1cm, 0/21 nodes,Stage IV-1998, ER+/PR-,mets to liver,lungs,bone,ovary, abd. |
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kgrimm Joined: Aug 2008 Posts: 82 |
Sep 7, 2008 08:13 pm, edited Sep 7, 2008 08:14 PM
by kgrimm
kgrimm wrote:
I forgot to mention that I have had some bone/muscle achiness with the Ixempra. Usually about day 2 after treatment to about a week after. Mainly upper legs and forearms. Not too bad and seems not so bad after the last several treatments. Dx IDC-1984, 1cm,0/21 nodes, Stage IV-1998, 0/21 nodes, ER+/PR-,mets to liver,lungs, bone, avary and abd. |
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CathyKops Joined: Sep 2008 Posts: 4 |
Sep 7, 2008 11:10 pm
CathyKops wrote:
this stuff is new to me. what is a thread? and how do i search for it? i'm confused---HELP!!! thanks, cathy Dx 11/10/1997, IDC, 2cm, Stage IV, 3/11 nodes, mets, ER+, HER2+ |
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tooyoungtoh… Joined: Jul 2005 Posts: 340 |
Sep 8, 2008 03:21 am
tooyoungtohavebc wrote:
Hi there I started the ixempra thread cuz i had a hard time finding info. Just put ixempra in the search engine at top of web page or click on my name and u can see the threads too. I have been doing ixempra for 5 months now/7 infusions. I had a horrible time with the first several infusions and then I asked doc to lower dosage and things got much better. I also askd to stop steroid too which helped with other problems. Would say this is the hardest chemo I have done but tumor markers have decreased a lot so it seems to be working. hopefully only one more for me. Biggest problems for me were pain, sleeplessness and nausea. Good luck! Dx 2005, IDC, 6cm+, Stage IV, Grade 3, 1/7 nodes, ER+/PR+, HER2+ |
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CathyKops Joined: Sep 2008 Posts: 4 |
Sep 9, 2008 11:45 pm, edited Sep 11, 2008 02:24 AM
by CathyKops
CathyKops wrote:
Hi tooyoung, thank you so much for your thread. now i know what one is and i also learned a lot about ixempra and its se's. i had my 1st 2 weeks ago. it wiped me out. i had mouth sores so bad (on the sides of my tongue) that my tongue swelled up. i couldn't eat so that made me week, i could barely talk. i slept for 3 days!!! you girls talked about lowering your doses--do you know what dose you starter at? she started me at 65mg. this stuff is about as bad as the 1st. original round of AD/CY ten 1/2 years ago. i feel for ya with the nausea & vomiting. so far no bone pain. well it's day 14 and i still have my hair, but i guess not for much longer huh??? sucks cuz i've only had it back for a feww mths. carbo knocked it out last may/june. oh well as long as it does something for my tumors,which are in my lungs & bones (ribs & spine.) thanks to all of you beautiful girls for writing about ixempra--it really helped me & has made me feel better about a drug i knew little about. and i hadn't know anyone who had taken it until now. so God Bless you guys--we are in this together for the long haul. i'll keep you posted as to how i do. Love, Cathy Dx 11/10/1997, IDC, 2cm, Stage IV, 3/11 nodes, mets, ER+, HER2+ |
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Fllorik Joined: Aug 2006 Posts: 1307 |
Sep 13, 2008 03:18 pm
Fllorik wrote:
I'm on Ixempra too! I had to have my dose lowered and now I find this a somewhat doable chemo. I am also feeling numbness in my fingers and was bald. But with the reduced dosage, my peach fuzz is kinnda cute! I'm still in scarves! Best thing is those tumor markers are going down!!!! |
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