I apologize if I'm not on the right thread...I'm new to bc, and therefore fairly new to the workings of this board - diagnosed stage 4 right from the get go...
Just got my detailed bill from Sloan, and my herceptin drip is $7380! A quick calculation 17 weeks a year x 7380 = 125K .. a year! Holy cow.
I just can't wrap my head around it. I know, welcome the world of medicine.
But, wow.
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Sassa Joined: Jan 2008 Posts: 708 |
Mar 14, 2009 12:24 pm
Sassa wrote:
I know what you mean. I calculated my year of herceptin at $142,000. We have to pay for those countries where the socialized medicine will paid the manufacturer a much lower amount than we pay and for the uninsured that get the drug for free. Dx 12/6/2006, IDC, 1cm, Stage I, Grade 3, 0/9 nodes, ER-/PR-, HER2+ |
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Fitztwins Joined: Dec 2004 Posts: 8,012 |
Mar 14, 2009 12:27 pm
Fitztwins wrote:
Yup. Thank goodness for insurance. We sure got our money's worth these past 4 years. No to mention the $$$$ out of pocket expenses. Janis Enjoy every sandwich, piece of chocolate and glass of wine!
Dx 12/12/2004, IDC, 3cm, Stage IV, Grade 2, mets, ER+/PR+, HER2+ |
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LJ13 Joined: Nov 2007 Posts: 610 |
Mar 14, 2009 12:41 pm
LJ13 wrote:
Mine has been about $3k a pop in the Baltimore area. Worry is a misuse of the imagination.
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respin Joined: Jan 2009 Posts: 145 |
Mar 14, 2009 12:59 pm
respin wrote:
So far I have a good ins. plan Cobra'd through my divorce...this runs out in next fall. I'll have to make some decisions re: new insurance, new job, etc. I haven't received anything from my ins. co yet, but I believe the drug will be covered by the pharm plan..which means I'll be footing 20% of the bill. ack. Keep on keepin' on
Dx 2009, IBC, 4cm, Stage IV, 2/2 nodes, mets, ER+/PR+, HER2+ |
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LuAnnH Joined: Aug 2006 Posts: 8,842 |
Mar 14, 2009 03:35 pm
LuAnnH wrote:
I think my herceptin bill runs about 8K a shot! LuAnn -- www.luannsblog.typepad.com
Dx 7/2/2006, IDC, 2cm, Stage IV, 0/ nodes, mets, ER+/PR+, HER2+ |
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AusAla Joined: Jul 2002 Posts: 1,108 |
Mar 14, 2009 03:44 pm
AusAla wrote:
Respin, Since herceptin is through infusion, it is not usually considered part of your pharmacy plan but is covered under medical. That's the way it works with me. Y'all are my island of reality in a sea of diarrhea.
Dx 5/13/2002, IDC, 2cm, Stage IV, Grade 3, 3/17 nodes, mets, ER+/PR+, HER2+ |
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mason204 Joined: Jan 2006 Posts: 563 |
Mar 14, 2009 04:06 pm
mason204 wrote:
As my socialized plan has decided to stop paying for my herceptin, I'm now looking at paying "out of pocket". My insurance won't cover herceptin. Let's see, $142K a year. I don't think my house is worth that much. I was curious about this thread because I suspected herceptin cost about that much but wasn't sure. I'm trying not to freak out about this too much. My children need a home and that appears to be my next option. I think it's time for me to start sitting on the corner with a tin cup. Cheryl - Mets dx Aug/06 (lungs, liver, bones)
Dx 12/23/2003, IDC, 5cm, Stage IV, Grade 2, 4/10 nodes, ER-/PR-, HER2+ |
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LuAnnH Joined: Aug 2006 Posts: 8,842 |
Mar 14, 2009 04:10 pm
LuAnnH wrote:
I thought you could get herceptin in Canada Cheryl, when did they stop paying for it? LuAnn -- www.luannsblog.typepad.com
Dx 7/2/2006, IDC, 2cm, Stage IV, 0/ nodes, mets, ER+/PR+, HER2+ |
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mason204 Joined: Jan 2006 Posts: 563 |
Mar 14, 2009 04:29 pm
mason204 wrote:
When I stop and take a chemo break, my onc wants me to continue with Herceptin because she strongly believes it still continues to work with me. Each time I've taken a chemo break, herceptin has kept me stable for as little as 6 months and as long as a year. The government told her that because I'm metastatic and I went back on chemo again after mild progression, Herceptin obviously stopped working for me so why spend more money if it's not going to work after chemo. Point taken, but everyone's different and I think this should be addressed on a case by case basis. I don't think they're taking my prior history into account. My onc suspects I have a new primary and not a metastatic spread. If this is the case, they may relent. I suppose that puts me into the category of having a "newly diagnosed cancer". Weird - I don't understand it. My guess is that the government is cracking down because of the recession and trying to cut costs. It sounds drastic but it's cheaper for them if I'm dead. That's a lot of money to spend on one person a year. My hubby calls me a pragmatist. I don't feel as though it's the government's responsibility to pay for my medicine. I just wish that they made their decisions less heavy handedly. Why pick and choose? Because insurance assumes that the government pays 100% of the time, there's no safety net in place. My insurance covers non-IV meds (cause the government covers this), hospital stays, etc. I'm not going to panic yet, it doesn't do my healing any good. Sorry for the long post, I'll get off my soapbox now. Cheryl - Mets dx Aug/06 (lungs, liver, bones)
Dx 12/23/2003, IDC, 5cm, Stage IV, Grade 2, 4/10 nodes, ER-/PR-, HER2+ |
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LuAnnH Joined: Aug 2006 Posts: 8,842 |
Mar 14, 2009 06:03 pm
LuAnnH wrote:
Cheryl, that doesn't seem right considering herceptin is not assumed to have failed just because you have a progression. My onc said he feels it would be a couple of progressions on chemo with herceptin before he would give up on it. LuAnn -- www.luannsblog.typepad.com
Dx 7/2/2006, IDC, 2cm, Stage IV, 0/ nodes, mets, ER+/PR+, HER2+ |
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jeanne46 Joined: Nov 2006 Posts: 1,111 |
Mar 14, 2009 06:21 pm
jeanne46 wrote:
Cheryl, is there any way you can appeal to the drug company that manufactures Herceptin (Genentech)? Although they are recently is a buy out to Roche - they also manufacture Avastin and are doing (or so I thought) quite well financially. My oncologist's office in the States suggested I do that in case my insurance company did not cover (they ended up covering) Herceptin or Avastin. I know there has been a lot of debate as to when and in what instance to use these very expensive drugs on Stage IV patients - and it's doesn't look like it will be resolved soon. I wish you the best of luck. Perhaps your onc's office can help you with the appeal for financial assistance? Dx 12/2005 Stage IV, Grade 3, mets ER+ PR- Her/2 (2+)
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abbyglp Joined: Aug 2006 Posts: 460 |
Mar 14, 2009 08:34 pm
abbyglp wrote:
Cheryl, What about your onc. switching you to tykerb. It does the same thing as herceptin and more (protects the brain) my onc tells me, that is why she switched me from herceptin to tykerb. But any way it is not an IV, it would be considered as a prescription? just a thought. hugs abby Dx 5/5/2006, IDC, 5cm, Stage IV, Grade 2, 6/15 nodes, mets, ER+/PR+, HER2+ |
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mke Joined: Sep 2007 Posts: 573 |
Mar 14, 2009 10:32 pm
mke wrote:
I think the cost of a year's treatment with herceptin is about $40,000 in Canada. What about the Trillium fund - would they pay for herceptin or tykerb? |
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respin Joined: Jan 2009 Posts: 145 |
Mar 28, 2009 10:17 am, edited Mar 28, 2009 10:46 AM
by respin
respin wrote:
AusAla wrote: Respin, Since herceptin is through infusion, it is not usually considered part of your pharmacy plan but is covered under medical. That's the way it works with me. Well, I just got my insurance explanation of benefits, and they are treating it as a pharm...which means I have to pay $553. I can't afford this drug. I'll try appealing to the ins. co (which means calling between working hours, and I can't afford any more time off to deal with this.) I'm not happy. Edited to add: After calming down a bit and looking at it closer, my insurance halved the cost to $3690. I just read my insurance booklet, it's technically not considered pharm, but outpatient services, which I am responsible for 15%. (outpatient chemo/radiation/iv infusions.) This was for my first herceptin, 90 mins. I can only *hope* that the rest of my treatments, 30 mins, will be much less than the original 7K. I need to research Medicare...is there anyone here who can give me some info? (My biggest concern is that I'll be denied treatment that I now have available to me.) Keep on keepin' on
Dx 2009, IBC, 4cm, Stage IV, 2/2 nodes, mets, ER+/PR+, HER2+ |
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LuAnnH Joined: Aug 2006 Posts: 8,842 |
Mar 28, 2009 01:46 pm
LuAnnH wrote:
I'm not on medicare yet but I can't believe herceptin is a pharm product! It is an IV infused drug, although technically not a chemo but a targeted therapy. I do remember though someone mentioned before that they had to get their tx administered in a hospital in order for them to be paid for. Is that the case for you maybe? Are you on medicare? If so, you need to figure out a new plan to go with as soon as open enrollment opens up, in the meantime start applying to the drug mfg to get a grant to cover your costs. LuAnn -- www.luannsblog.typepad.com
Dx 7/2/2006, IDC, 2cm, Stage IV, 0/ nodes, mets, ER+/PR+, HER2+ |
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NYCarol Joined: May 2002 Posts: 902 |
Mar 29, 2009 01:27 am
NYCarol wrote:
I'm on Medicare and they pay 80% of the Herceptin cost. I have insurance that pays the other 20%. I believe it is treated as a chemo "type" drug. I know that those charges are really pared down and neither insurance companies nor medicare pay the kind of numbers you see on those bills. Most have negotiated with the drug companies on all our chemo drugs. I know it took about 15 years to develop Herceptin and get it approved. No wonder we don't have a cure yet! Dx 2002, IDC, <1cm, Stage IV, Grade 2, 0/2 nodes, mets, ER+/PR+, HER2+ |
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wlily Joined: Jan 2010 Posts: 2 |
Jan 5, 2010 04:33 pm
wlily wrote:
Asking for an information. I'm a Canadian living in Ontario, just had my second surgery yesterday Jan.04. The surgery doctor told me before it that I will most probably get treatment with Herceptin for a year. I don't know who supposes to pay it because I'm not working. Does the social medical insurance cover it in Ontarion? |
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mason204 Joined: Jan 2006 Posts: 563 |
Jan 5, 2010 07:57 pm
mason204 wrote:
Hi wlily: OHIP covers Herceptin for a year. You don't have to pay. This is a sore topic for me as I was off/on Herceptin for about 5 years. One day the Ontario government decided they no longer wanted to cover my Herceptin so I had to stop. Long story. I had major progression afterwards until I resumed with Tykerb. The government will cover you but only to a certain extent. If you want Herceptin covered past the 12 month mark, your oncologist may have to do some "creative bookeeping" to keep you on it if you know what I mean. Cheryl. Cheryl - Mets dx Aug/06 (lungs, liver, bones, abdomen)
Diagnosis: 12/23/2003, IDC, 5cm, Stage IV, Grade 2, 4/10 nodes, ER-/PR-, HER2+ |
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dawn16 Joined: May 2006 Posts: 85 |
Jan 5, 2010 08:11 pm
dawn16 wrote:
Im from Nfld and they covered me for the year following my initial dx after having a recurrence my onc has told me that I would be covered again. If Not well I guess I will start hounding my member of Parliment, when it was initially approved there wasn't a time limit or amount of time put on it. My source tells me that the government has approved Herceptin as part of our medical plan. I don't know if it's just for nfld. or if every province is different. But I would surely start climbing up the provincial government ladder to the top until I had some answers. Dawn Dawn
Diagnosis: 12/7/2009, 5cm, Stage IV, Grade 3, 8/18 nodes, ER+/PR+, HER2+ |
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Brenda_R Joined: Dec 2006 Posts: 604 |
Jan 6, 2010 09:24 am
Brenda_R wrote:
Herceptin is a Tier 4 drug and most insurance companies have that as a 33% co-pay. That's what mine was. A little over $1200 every 3 weeks, with half of that being a provider discount, still leaving me with $608 every 3 weeks as co-pay. Then my insurance company decided that since my Onc wasn't buying the Herceptin from their authorized pharmacy that there would be no provider discount and I was responsible for the whole $1200. I couldn't afford the $608 let alone the $1200. I told my onc and he wrote off my portion of the cost. Bless him. Genentech also has a program that helps pay for the co-pays, if you meet their income requirements. Dx 12/12/2006, IDC, 3.7cm, Stage IIIa, Grade 3, 1/17 nodes, ER-/PR-, HER2+
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1rarebird Joined: Sep 2009 Posts: 37 |
Jan 6, 2010 09:45 am
1rarebird wrote:
The range of charges for Herceptin discussed here is incredible. For what it's worth, I get a Herceptin infusion of 180 mg every week (will get 52 treatments before I am through) and each one costs right at $1,100 USD for the drug. The oncology center gets another $215 to put it in me. These are costs my HMO is paying. Add about 40% more for an approximate self-pay charge. I know they calculate the cost of the Herceptin by the amount that is used, since my dose has been changed a couple of times as my weight increased and then fell as a result of my chemo. bird Diagnosis: 5/15/2009, IDC, 1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2+ |
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wlily Joined: Jan 2010 Posts: 2 |
Jan 6, 2010 11:53 pm
wlily wrote:
Hello Cheryl. Thank you so much for the good news. Only so I can see the light for using Herceptin at least in the first 12 month, and mybe also after it with some idea. Here is a link to another news http://ogov.newswire.ca/ontario/GPOE/2005/07/22/c3767.html?lmatch=&lang=_e.html Wish you good luck in the furture treatment! Good luck to Dawn & everyone who need Herceptin to get it enough paid by the government!! |
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