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Topic: one year to live with brain & liver mets!?? says onc

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  • Posted on: Jul 2, 2009 04:35 am
United Kingdom
Joined: Apr 2009
Posts: 76
Dee2810 wrote:

Hi

Haven't posted in a while... Not my computer... belongs to teen girlie daughter. Feeling panicked... Went to see onc on tues and to cut a long story short he told me that the average survival rate for women with mets in liver and brain is one year!! It can 't be can it.... God what a shock! I desperately need to hear from someone to give me some hope!Told him I would have to be an exception but feel so scared and tearful... bum bum bum ......

Dee XX


Dx 2/14/2009, , Stage IV, Grade 3, 2/40 nodes, mets, ER+/PR+, HER2-

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Dee2810
United Kingdom
Joined: Apr 2009
Posts: 76
Jul 8, 2009 01:33 pm Dee2810 wrote:

  So yes will keep on thinking of long tails Anna! Think you're another inspirational woman! x (0: 


Dx 2/14/2009, , Stage IV, Grade 3, 2/40 nodes, mets, ER+/PR+, HER2-
dreamwriter…
Toronto , ON
Joined: Feb 2008
Posts: 1,587
Jul 8, 2009 01:47 pm dreamwriter wrote:

Dee - regardless of where we are in the tail.... it is not about how much time we have but how much we have to fill with love, laughter, rainbows (someone else said that).  Theres nothing but fun ahead... why think about the darkness when the light is shining on the flowers and loving friends?

Laugh until it really IS funny.
Dx 12/20/2005, 6cm+, Stage IV, Grade 3, 18/18 nodes, mets, ER+/PR+, HER2-
Denny123
Joined: Jan 2004
Posts: 2,486
Jul 8, 2009 04:04 pm Denny123 wrote:

Joanne B.

I had Gemzar with Herceptin starting in Jan 2004, and after 9 months, they put my agressive liver mets into remission.

And I have been in remission now for over 5 years!

Denise
Dee2810
United Kingdom
Joined: Apr 2009
Posts: 76
Jul 9, 2009 03:21 pm Dee2810 wrote:

 Absolutely right dreamwriter ! I totally subscribe to your philosophy.!And.... brilliant news Denise... Thanks for the encouragement!

Dee(0: x 


Dx 2/14/2009, , Stage IV, Grade 3, 2/40 nodes, mets, ER+/PR+, HER2-
Lydia
Prairieville, La
Joined: Jan 2009
Posts: 72
Jul 9, 2009 03:59 pm Lydia wrote:

That doctor is not God! Don't  give up! My mother in law had a tumor coming out of her lung and up her shoulder. She is in complete remission now 6 months later. She had faith like I have never posessed. You can be healed! I know it because I have seen it.


Dx 12/26/2008, DCIS, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
McScared1
Joined: May 2009
Posts: 9
Jul 10, 2009 08:28 pm McScared1 wrote:

Hi Everyone!

Thank you so much for your positive responses to the OP. Today, I found out that my PetScan showed 2 suspicious masses on the Liver. I go for an MRI in a week. I have Re-Occurence Breast Cancer and this time it is Stage IV. The first time it was Stage 2 but both Cancers are considered very aggressive. I'm scared about the next step in this process and trying to keep focused on what everyone has said about expiration dates, etc. It's good to know that many women on this board have lived with advanced cancer for a long time and everything is staying in place. It's scary when the Cancer keeps moving around. Just very afraid.
X3sMom
Huntingburg, In
Joined: Jan 2009
Posts: 96
Jul 11, 2009 03:18 am, edited Jul 11, 2009 03:20 AM by X3sMom X3sMom wrote:

Dee, I agree with Roya.

Kendra had innumberable clustered tumors covering her entire liver.  She went through six treatments of Abraxane/avastin and  only had two tumors left on the liver. Her tumor count went from over 1000 to 81. Last month she had the Radiofrequency Ablation done on the last two tumors.   Today we got the results of last Thurs. PET and she is now NED. Praise the Lord! Believe in the power of doctors, meds and PRAYER. Like Roya said, only God knows when your "mansion" is ready.

Glenda
dorrnancy
Joined: Jul 2006
Posts: 7
Jul 12, 2009 12:56 am dorrnancy wrote:

What did you do to get in remission? This is miraculous. I was given six months to live 15 years ago. I currently have mets to the lungs for the past 3 1/2 years with possible mets to the liver on a recent CT scan.

 You have given me hope.

Nancy
dorrnancy
Joined: Jul 2006
Posts: 7
Jul 12, 2009 12:58 am dorrnancy wrote:

I may have mets to the liver. My next visit in about two weeks with the doctor will tell me more. He said thru the advice nurse,  "No to small changes on the CT scan and will continue current treatment," but when I read the actual written report it has suspicions of liver mets.

 Nancy
dorrnancy
Joined: Jul 2006
Posts: 7
Jul 12, 2009 01:04 am dorrnancy wrote:

Denise:

 I have been so depressed all week since getting my CT scan. Here I was thinking I was going to die in six months (no one has told me as such) and then I see there is stuff I can do to kick out the liver mets if it turns out they are indeed malignant. The CT scan is not definitive. I am going to ask for a PET scan.

Thank you for giving me hope. I belong to an alternative therapy group and had decided against chemo. Everyone bad-mouths it, but I have always believed in integrative medicine. I googled on the internet and found this site, not realizing I had joined three years ago.

 Nancy
dorrnancy
Joined: Jul 2006
Posts: 7
Jul 12, 2009 01:07 am dorrnancy wrote:

McScared1:

I am afraid as well. I have two suspicious nodules in my liver with lymph nodes evident nearby (this means it is more apt to be malignant). I am prone to cysts.

 Nancy
dorrnancy
Joined: Jul 2006
Posts: 7
Jul 12, 2009 01:16 am dorrnancy wrote:

RobinWendy:

 You are a hope builder. I was planning my funeral today in my head (well sort of) and thinking maybe I only six months left. Then I google and find this website, which I didn't know I was already a member of (guess I joined three years ago).

 Have some small -to-no changes in recent CT scan, according to my onc, but when I got the WRITTEN report in the mail, it was a bleaker picture. Possible liver mets, one tumor has grown 2mm and two new nodules possibly (though small).

 Wow! You gals are fighters as well. I had almost decided not to do chemo or traditional medicine as I belong to an alternative website that really puts down mainstream medicine. I had a stem cell transplant in 1994/95 after given six months to live. Had recurrence in the lungs 2006 and last fall new tumors; now recent CT scan says suspicious liver nodules.

Will know more when I see my onc on July 21st.

Nancy
Denny123
Joined: Jan 2004
Posts: 2,486
Jul 14, 2009 01:05 pm Denny123 wrote:

Nancy,

I am a Reach to Recovery counseling/coordinator/trainer for Western PA and have talked to many, many women with BC.

I sure wish that you would consider chemo.

 Denise

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