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Topic: Bone Mets and NED

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  • Posted on: Jul 2, 2009 10:20 am
ct
Joined: Apr 2009
Posts: 209
Heidi_Ho wrote:

Went to Memorial Sloan Kettering on Tuesday and saw Cancer God.  He said it was unlikely I would achieve NED with bone mets.  So far I only have bone mets.  They are extensive, skull to knee caps and they hurt.  I asked him how long if I was to be a "special" statistic and he said at least a year.  Anyone out there who has been NED with bone mets?  How long did it take?  Anyone stable with bone mets?  How long did it take? What test is better for determining state of bone mets, bone scan or PET/CT?  Thanks, Heidi


Dx 3/5/2009, IDC, <1cm, Stage IV, Grade 3, mets, ER-/PR-

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Posts 61 (61 total)
AnneN
St. Cloud, MN
Joined: Apr 2009
Posts: 140
Jul 14, 2009 08:42 pm AnneN wrote:

(((((Mary))))). I would find that scary, too. I hope it's temporary or your onc finds some therapy to manage it.

Tumor is shrinking - now 3.2 cm as of June MRI. Tamoxifen/Zoladex/Zometa/complementary supplements.
Dx 3/20/2009, IDC, 6cm+, Stage IV, Grade 2, mets, ER+/PR+, HER2-

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