Skip to content
Forum Index → Forum: STAGE IV BREAST CANCER SURVIVORS → Topic: Encouragement for Brain Mets
« Forum: STAGE IV BREAST CANCER SURVIVORS: This is a forum for women who are braving more treatment and managing the ups and downs of a stage IV diagnosis. Their caring supporters are welcome as well. Thank you for respecting their very special space and for your sensitivity.

Topic: Encouragement for Brain Mets

Log in to post a reply
  • Posted on: Sep 20, 2009 09:53 pm
Pineville, La
Joined: May 2009
Posts: 86
denisela wrote:

Hello my wonderful sisters,

I have returned from Houston and I definately have brain mets but not just one no that would be to easy!!! I have more than 20 I couldnt believe it when I read the report it was like a kick in the stomache. I see my Onc. tommorow at 9am to discuss treatment options I hope there are still some left. The only chemo option I have left is Doxil but I have no idea about rads for brain or what. Im really pisssed Ixempra was no cake walk and it didnt do a d*** thing. I will continue to fight but I feel really different now like somehow beacause its in the brain Im somewhat defeated, I dont know I guess Im just freaked out and rambling . Sorry for spelling and puncuation .

denisela
Diagnosis: 2/14/2006, IDC, Stage IV, Grade 3, 2/2 nodes, mets, ER-/PR-, HER2+
Posts 1 - 16 (16 total)
LiniWD
Tampa, FL
Joined: Sep 2005
Posts: 313
Sep 20, 2009 10:07 pm LiniWD wrote:

Denisela -

I'm so sorry about your news - I haven't been in your situation so I don't have any advice, but I'm sure somebody will help you.  Have you tried brainmets.org yet to see some of your options?

Lynn from Tampa

Go confidently in the direction of your dreams....live the life you have imagined.
Diagnosis: 10/26/2004, IDC, 6cm+, Stage IV, 3/6 nodes, mets, ER+/PR-, HER2-
ymb
On
Joined: Mar 2009
Posts: 341
Sep 20, 2009 10:10 pm ymb wrote:

Dear Denisela;  This is so Sh&tty.  From reading other posts, I feel save in saying there are options out there for you. Radiation, Ghamma Knife(spelling) WBR(not sure of the spelling)  I wish I could be more helpful.  I'm sure some of our other sisters, will  be along soon to help you.  I'll be thinking about you tomorrow.   (((Hugs))) 

Angel ------------- DM & Dsister, my love for you both is forever & a day. Both passed away after brief battles with BC in 08 & 09
Diagnosis: 5/2008, 6cm+, Stage IV, Grade 3, 1/8 nodes, ER+/PR+, HER2-
JeninMichig…
Blissfield, MI
Joined: Feb 2009
Posts: 583
Sep 20, 2009 10:37 pm JeninMichigan wrote:

Oh d&mn it Denise!!   I am so sorry!!!!   I don't have any brain mets advise.  I know lots of our sister do and am sure they will come along soon.  Just wanted to say I am sorry for your awful news.     Have you done Tykerb yet?    Keeping you close in prayer!!

((((hugs)))

Jennifer


Diagnosis: 2/22/2008, IDC, 2cm, Stage IV, Grade 3, 4/9 nodes, mets, ER-/PR-, HER2+
ymb
On
Joined: Mar 2009
Posts: 341
Sep 20, 2009 10:57 pm ymb wrote:

bump
jolimo
Joined: Feb 2009
Posts: 17
Sep 21, 2009 12:17 am jolimo wrote:

hello, please don't worry. You must stand on your faith and know that you are healed. I know how scarry it must be. I have to have a bone scan and another cat scan because my tumor marker di not decline last month. I have been through several hormonal meds and I believe that God is with all of us stage IV girls. I will keep you in my prayers. Remember to stay focused on the lord and he will see you through of this.

Take  care,

monica


Diagnosis: 1/5/2009, Stage IV, 0/29 nodes, ER+/PR-, HER2-
Dee2810
United Kingdom
Joined: Apr 2009
Posts: 97
Sep 21, 2009 04:59 am Dee2810 wrote:

Hi Denisela 

I was diagnosed with multiple brain mets in Feb this year..."peppered throughout'  said onc...., one at the back caused a bleed to the  brain. Had WBR x5 and last CAT scan, July, showed everything gone! I've just gone back to work, part time to start, am cycling and swimming etc again now... also know of someone else 31/2 yrs down the line who's still well. 

Good Luck!

Dee (0: 


Diagnosis: 2/14/2009, Stage IV, Grade 3, 2/40 nodes, mets, ER+/PR+, HER2-
Fitztwins
MI
Joined: Dec 2004
Posts: 8,012
Sep 21, 2009 08:53 am Fitztwins wrote:

All it not lost, many options.

Hang in there Brain Mets suck, but are doable.

Wash away my troubles, wash away my pain, with the rain of shambala
Diagnosis: 12/12/2004, IDC, Stage IV, Grade 2, mets, ER+/PR+, HER2+
ymb
On
Joined: Mar 2009
Posts: 341
Sep 21, 2009 04:26 pm ymb wrote:

bump
denisela
Pineville, La
Joined: May 2009
Posts: 86
Sep 21, 2009 05:50 pm denisela wrote:

Thanks Girls,

I saw Radiologist/Onc today the treatment is 10day WBR then start on Doxil. Thanks for the encouragement I am feeling better about the situation today. My extended family has stepped up to help out for the next couple of weeks so my girls will have help with school activities homework ect. as I worry about them the most thru this whole crappy battle. Thanks again

denisela
Diagnosis: 2/14/2006, IDC, Stage IV, Grade 3, 2/2 nodes, mets, ER-/PR-, HER2+
joaniji
chicago, il
Joined: Jan 2007
Posts: 360
Sep 21, 2009 06:00 pm joaniji wrote:

It sounds like you have a treatment plan in place - I hope that knowing what you can do to fight this provides you with some hope.  I just want to wish you the best.  With time, I hope that you can feel like it is possible to continue on living your life to its fullest, don't give up!!  Sending you lots of healing energy and warm thoughts.

joani
Diagnosis: 1/1/2009, 2cm, Stage IV, Grade 2, 0/3 nodes, mets, ER+/PR-, HER2-
Leah_S
Israel
Joined: Apr 2009
Posts: 914
Sep 21, 2009 06:15 pm Leah_S wrote:

A dear friend was diagnosed with brain mets recently (she's been stage 4 for just over 2 years) and had WBR this summer. Her MRI report just came back with VERY GOOD NEWS. Lesions barely visible! Doc had only said they wanted to prevent any spread of the brain mets.

May this give you hope, since there IS hope.

I wish you the best.

Leah


Diagnosis: 11/3/2008, IDC, 1cm, Stage IIb, Grade 3, 6/17 nodes, ER+/PR+, HER2-
saint
beloit, wi
Joined: Mar 2005
Posts: 1,893
Sep 21, 2009 06:53 pm saint wrote:

Hugs Denisela-----take heart---LOTS here have had encouraging news & more will show up. ANY progression is daunting, but we ain't done til the fat lady sings...& I have laryngitis right now..........!

You can do this---you will be in my prayers! HUGS

Be well & stay strong 

Life is not about waiting for the storms to end, but learning to dance in the rain! Orig dx Nov '00 stg1 gr3 0/27 pos nodes er/pr+ her2- mets dx apr '04 eyes & bones new dx jan '07 lung
Diagnosis: ILC, 1cm, Stage IV, Grade 3, 0/27 nodes, mets, ER+/PR+, HER2-
denisela
Pineville, La
Joined: May 2009
Posts: 86
Oct 3, 2009 01:54 am denisela wrote:

Thanks grls,

Im feeling much better . God is always showing me hes there and how much it helps to be there for others as well

                                                       Praying 4 a CURE

denisela
Diagnosis: 2/14/2006, IDC, Stage IV, Grade 3, 2/2 nodes, mets, ER-/PR-, HER2+
LuAnnH
Cincinnati, OH
Joined: Aug 2006
Posts: 8,842
Oct 3, 2009 03:03 am LuAnnH wrote: Hey Denise, sorry I just saw this.  I was going to say WBR would work to zap the numerous mets.  If any are stubburn and don't go with the WBR you should still be able to zap a few with Gamma Knife or something like that.  Check out www.brainmetsbc.org there is lots of great info there when it comes to brain mets.  All is not lost, it just sounds so scary when anything touches our brain.  Its bad enough we get CRS (can't remember sh#@) from all the drugs we take, but when this monster invades that area it becomes freak out time.  I hlpe the rads are going well and you bounce back with the next tx!
LuAnn -- www.luannsblog.typepad.com
Diagnosis: 7/2/2006, IDC, 2cm, Stage IV, mets, ER+/PR+, HER2+
chainsawz
Tucson, AZ
Joined: Sep 2008
Posts: 571
Oct 4, 2009 12:51 am chainsawz wrote:

Denise - I know how scary this is and I'm so sorry you are going thru this.  I have read lots of stories of of women still living many years after brain mets and WBR - there is always lots of hope for us!!  lisa 

Lisa -mets to lungs & brain.....the weakest step toward the top of the hill, toward sunrise, toward hope, is stronger than the fiercest storm.
Diagnosis: 7/21/2008, IDC, 3cm, Stage IV, Grade 3, 0/2 nodes, mets, ER-/PR-, HER2+
DARLENEDENI…
Virginia Beach, VA
Joined: Apr 2008
Posts: 96
Oct 4, 2009 11:10 am DARLENEDENISE wrote:

Denise:  Do you have mets in other areas of the body right now?  Since you are Her2+, has there been any discussion about Tykerb?  Are you on Herceptin?

Glad to see  your feeling better post.  By the way, I am a Her2+ brainmetsister.  Dx with the brain mets 08/08 and I was lucky enough to turn 50 years old yesterday!!

Stay strong...Darlene

Courage is when you are scared to death but saddle up anyway. John Wayne
Diagnosis: 12/14/2007, IDC, 2cm, Stage IV, Grade 2, 5/6 nodes, mets, ER-/PR-, HER2+

↑Back to Top

© 2010 Breastcancer.org. All rights reserved.