Topic: Why is it....

Posted on: Nov 2, 2009 07:18 pm

Joined: Jul 2008
Posts: 388

DianaT wrote:

I have body aches anytime I think of my scans next week? Sure I have some body aches when I get up in the morning, but nothing to concern me, but I realized my scans are next week and went into panic mode calling my Onc today. I told the nurse that I had my scans set for next Wed and a dr appt the following week. Thankfully I have a great nurse and she said that wouldn't work so she rescheduled the appt for the afternoon after my scan so I won't have to wait but 3 hrs for the results.

So seriously, do any of you go thru that? The panicky feeling about scans, then feeling around your body until you REALLY do hurt and then worry about the hurt? Or am I the only crazy one?

Diana

Posts 1 - 26 (26 total)
claygirl Joined: Dec 2008 Posts: 16	Log in to post a reply Nov 2, 2009 08:25 pm claygirl wrote: Diana, I think everyone gets panicky about scans. So much of what will happen to us is tied up in what the scans show. So many questions: Is the medication working? What protocol is available to us if it isn't and will we respond to it? I wish I knew a good way to quiet our minds. I am so glad you won't have to wait a week for the results. ( You do have a great nurse. ) I am trying to learn how to meditate...it is difficult for me, i don't sit still well and love to talk, but I have a wonderful ninety- year old friend who has found such peace with meditation. I also would appreciate hearing about ways people get through those horrible" scans". Jackie Diagnosis: 7/13/2008, ILC, Stage IV, ER+/PR+, HER2-
lukejessesm… Glen Allen, VA Joined: Oct 2009 Posts: 20	Log in to post a reply Nov 2, 2009 08:27 pm lukejessesmom wrote: I do. It's horrible, but I think a natural thing when you are worried about getting more bad news. Every ache and pain I have...I think it's more cancer. Not good but can't help myself.
Watson Katy, TX Joined: May 2005 Posts: 1,733	Log in to post a reply Nov 2, 2009 08:27 pm Watson wrote: Scanic Attacks are the worst! Hang in there! Watson I'd rather laugh with the sinners than cry with the saints. - Billy Joel Diagnosis: 1/29/2008, Stage IV, mets, ER-/PR-, HER2+
chainsawz Tucson, AZ Joined: Sep 2008 Posts: 259	Log in to post a reply Nov 2, 2009 08:36 pm chainsawz wrote: I have horrible scanxiety!! For days before my last brain MRI, I kept getting lightheaded and felt like I was getting stabbing pains in my head and was just sure it was something new. The minute I heard my results, the symptoms went away. You are not alone!! lisa Lisa -mets to lungs & brain.....the weakest step toward the top of the hill, toward sunrise, toward hope, is stronger than the fiercest storm. Diagnosis: 7/21/2008, IDC, 3cm, Stage IV, Grade 3, 0/2 nodes, mets, ER-/PR-, HER2+
DJ64 Joined: Jul 2008 Posts: 79	Log in to post a reply Nov 2, 2009 08:36 pm DJ64 wrote: I use to have scan attacks. I don't anymore. What will be will be. I pick up my test results within 24 hours from medical records. My waiting time isn't long. I will admit that my hands are shaky until I read the impressions. DJ DJ64
Jollymom Houston, Tx Joined: Oct 2009 Posts: 7	Log in to post a reply Nov 2, 2009 09:21 pm Jollymom wrote: I have a scans next week too. Pet/CT. Every ache,every muscle that hurts here or there freaks me out. As I type this my back hurts, oh and under my right arm where there took the lymphnodes. Its so freaken scarey!! I'd say I'm scared shitless but thats just the Xeloda. Praying that the liver lesions have shrank as well as the one lymphnode. I HAVE TO HAVE GOOD NEWS!!!!! I wish you the best with your scans next week. You have an awesome nurse! Sometimes they make all the difference in the world. I love mine! Org dx Nov 06 stg II DCIS lumpectomy no lymph FACx6-Taxolx6-rad 6wks-Feb09 stge IV met to lung-removed in Feb09 Xempra x6, then Aug 09 met to Liver and Lymph in chest. Currently on Xeloda 3000mg a day- Avastin every 3 weeks. Am Triple Negative
WingsofHope… Washington, DC Joined: Nov 2008 Posts: 225	Log in to post a reply Nov 2, 2009 10:09 pm WingsofHope wrote: You are not alone. Glad you will get your results the same day. I have my scan on on Friday and see the Onc next Thursday. Wishing you good results!!!! ~dana~ Diagnosis: 2/13/2002, IDC, 2cm, Stage IIb, 4/10 nodes, mets, ER+/PR-, HER2-
Duffymom MN Joined: Jul 2006 Posts: 167	Log in to post a reply Nov 2, 2009 10:15 pm Duffymom wrote: Scans are a good thing, bad thing. We want them to reassure us that the pains we're feeling are not cancer taking over our bodies. If we hear good news we can kind of relax until the next scan. But we don't want to have them if the news is bad. I'm happy that you don't have to wait long to get your results. I have most of my scans on a Thursday and a dr. appt the next Tues. The waiting is hard. You are NOT crazy. Thinking positive thoughts for you. Kathy Diagnosis: 10/2008, IDC, 6cm+, Stage IV, Grade 3, 0/12 nodes, ER-/PR-, HER2-
JeninMichig… Blissfield, MI Joined: Feb 2009 Posts: 477	Log in to post a reply Nov 2, 2009 10:21 pm JeninMichigan wrote: Diana The last time I had scans I got the full blown trots. I didn't even realize that I was that stressed about it.... or at least I would tell you that I wasn't. Heck yeah... you are probably one tense woman which is causing muscle aches and pains. Scans are so bitter sweet... I hate them but afterward if they are good I feel like I have a good six month renewed lease on life. Shitty way to live... isn't it???? Wish you the best on your upcoming scans!! I would tell you to relax but I don't think it will do any good. Jennifer Diagnosis: 2/22/2008, IDC, 2cm, Stage IV, Grade 3, 4/9 nodes, mets, ER-/PR-, HER2+
RobinWendy Long Island, NY Joined: Mar 2007 Posts: 1,283	Log in to post a reply Nov 3, 2009 08:02 am RobinWendy wrote: I become a total freak when my scans approach and until I get the results. Your experience reminds me of when I started dating again after my divorce in 1990. AIDS was the big fear and the wonderful cocktail they have now did not exist back then. I started dating this guy whose sister had AIDS and died (sadly she was a drug addict who shared a bad needle) so we both decided to get tested prior to taking our relationship to the next level. Of course, I was pretty sure I was fine, but it's funny how the mind works. Every day until those results came back, I had a sore throat, I was fatigued, and sure somehow that I was positive. Like magic, all those symptoms disappeared when I got the all clear. Scans make us confront our mortality and let's face it, that is just plain terrifying. Diana, know that you symptoms are probably the product of your fear and I hope and pray that your results are fantastic. Your nurse ROCKS! Robin dx Stage II primary BC in Jan. 2001;dx with DCIS on other breast in Jan. 2003; dx with mets to lungs in Jan. 2004 (What's up with me and January, anyway?)
Fitztwins MI Joined: Dec 2004 Posts: 7,731	Log in to post a reply Nov 3, 2009 08:27 am Fitztwins wrote: Love hate relationship. Xanax baby, Xanax. Wash away my troubles, wash away my pain, with the rain of shambala Diagnosis: 12/12/2004, IDC, Stage IV, Grade 2, mets, ER+/PR+, HER2+
rkt MS Joined: Jul 2008 Posts: 249	Log in to post a reply Nov 3, 2009 09:46 am rkt wrote: Dear Diana, I am the same - have scans in two weeks, woke up this morning bothered by my hip and wondered. I travel out of state for scans, so generally have scans/tests one day, and see doctor next day. However, in March, internal med doctor doing surgical clearance told me all my results the day of my tests, rather than letting oncologist tell me next day - I hate to wait also. But I had to act surprised when oncologist told me results, so she wouldn't feel like her opportunity to pass on good news had been stolen :) Glad you were able to schedule doctor's visit so soon after your tests. No need to wait and worry if you can avoid it. Becky Becky, Stage IV, bone mets, ER+/PR+, HER2-, diagnosed June 2008, right mastectomy May 2009, 0/13 nodes
cancerkicke… IA Joined: Oct 2008 Posts: 62	Log in to post a reply Nov 3, 2009 10:48 pm cancerkicker wrote: One word..............Scanxiety. Still get it every time! Diagnosis: 6/19/2008, IDC, Stage IV, 0/0 nodes, mets, ER+/PR-, HER2-
Lena Joined: Mar 2009 Posts: 110	Log in to post a reply Nov 4, 2009 03:21 pm Lena wrote: I'm not afraid of GETTING the scans, I'm afraid of the first oncologist appointment after I've GOTTEN scanned -- because if there's bad news, that's when I'm gonna get it. ~Lena. Diagnosis: 2/9/2009, IBC, 6cm+, Stage IV, mets, ER+, HER2+
andreal wa Joined: Dec 2008 Posts: 11	Log in to post a reply Nov 6, 2009 07:16 am andreal wrote: I'm not afraid of the scans either---just the results. My dream/fantasy is the scan tech says, "I'm not supposed to say anything, but I don't see anything here!!" Still waiting for that one! I have scans Thursday! Diagnosis: 2/12/2004, 2cm, Stage IV, 3/20 nodes, ER+, HER2-
Fitztwins MI Joined: Dec 2004 Posts: 7,731	Log in to post a reply Nov 6, 2009 07:23 am Fitztwins wrote: I actually had one say that to me. Bless her heart. That was over 4 years ago Wash away my troubles, wash away my pain, with the rain of shambala Diagnosis: 12/12/2004, IDC, Stage IV, Grade 2, mets, ER+/PR+, HER2+
JeninMichig… Blissfield, MI Joined: Feb 2009 Posts: 477	Log in to post a reply Nov 6, 2009 09:41 am JeninMichigan wrote: Last Pet scan the tech was very friendly. After my scan he came in and said, "I could see you probably really need to use the bathroom". I said, "that is not fair at all that you can see those things". Then I asked him what else he saw and he said "nothing". So of course I said what do you mean by nothing because I am a "effing" basket case here. Then he said, " I mean I saw nothing. The doc needs to review it but I don't see where he is going to find anything questionable". I swear to you I nearly grabbed him and kissed him. You always wonder if they have their poker face on when they scan you. I hope that dream/fantasy comes true for all of us here. Jennifer Diagnosis: 2/22/2008, IDC, 2cm, Stage IV, Grade 3, 4/9 nodes, mets, ER-/PR-, HER2+
meima Joined: Apr 2008 Posts: 359	Log in to post a reply Nov 6, 2009 01:53 pm meima wrote: Diana, I know what you mean. I'm having pet/ct tomorrow and bone scan on wed. and I'm a real basket case. I'm also having a nerve block injected in my neck on the 20th. just to throw a little extra something to worry about into the mix. Hope I have my favorite technician Sean, with the lovely Irish brogue. He does help to calm me. Best wishes for good scans! Meima Diagnosis: 8/31/2006, Stage IV, mets, ER+/PR+, HER2-
DianaT Joined: Jul 2008 Posts: 388	Log in to post a reply Nov 6, 2009 05:48 pm DianaT wrote: I have made sure my Xanax refill is good to go and praying that I can remain calm. My throat has been scratchy and I am nervous about that too! My first ever PET lit up like a christmas tree on my throat (I had a severe sore throat but didn't think that mattered), my onc thought it was mets from the beginning but thought it was a weird spot in my throat to have mets. After a needle biopsy it was nothing and my onc said he had never been so happy to have one of his patients have a sore throat. Lord knows I don't want to go thru a needle biopsy to the neck again, so here I am praying for my sore throat to go away and nothing on my PET. Meima ~ My favorite tech has an East TX drawl, I love it! I have had the same guy do my PET/CT scans for almost 2 yrs, he said he sees my name and makes sure I have him. He calms me down too. Diana
DianaT Joined: Jul 2008 Posts: 388	Log in to post a reply Nov 11, 2009 07:12 pm DianaT wrote: My scans are over ~ COMPLETE REMISSION!!!!!!!! Wahoo!!!! My onc had to call the radiologist because there was a note of a "fatty liver" but the radiologist went over the scans again with my onc and me on the phone, he said nope he sees nothing. Since I have had 8 PET scans with NED, I don't have to see my onc for another 6 months!!! That is truly exciting for me.... I still have to have brain MRI's every 3 months and follow up with my rad onc. Just wanted to share! Diana
konakat Ottawa, ON Joined: Jun 2007 Posts: 1,616	Log in to post a reply Nov 11, 2009 07:15 pm konakat wrote: CONGRATULATIONS DIANA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Beautiful words - Complete Remission. Sighs of happiness! Ahhhhh. Elizabeth's Mantra: When in doubt, eat cake. When you haven't a clue, add ice cream. Diagnosis: 5/2007, ILC, 3cm, Stage IV, Grade 3, 13/19 nodes, mets, ER+/PR+, HER2+
konakat Ottawa, ON Joined: Jun 2007 Posts: 1,616	Log in to post a reply Nov 11, 2009 07:15 pm konakat wrote: Diana -- why don't you post this good news as a new thread so everyone sees! Love this good news!!! Elizabeth's Mantra: When in doubt, eat cake. When you haven't a clue, add ice cream. Diagnosis: 5/2007, ILC, 3cm, Stage IV, Grade 3, 13/19 nodes, mets, ER+/PR+, HER2+
Reneepals New Haven, Ct Joined: May 2006 Posts: 1,155	Log in to post a reply Nov 14, 2009 10:16 am Reneepals wrote: I am soooooooooooooooo happy for you! Dance on girl! Renee
MJLToday Joined: Nov 2008 Posts: 235	Log in to post a reply Nov 14, 2009 06:05 pm MJLToday wrote: Awesome! 1998 Stage II 2 positive nodes, ER+/PR-/Her2-, 4XAC, Tamoxifen 5 yrs, Sept 2008 hip fracture, bone & liver mets, Doing well on Arimidex, Faslodex & Zometa. 08/2009 CT scan: slowly shrinking liver mets. Postponing chemo for now :)
vivo Greece Joined: Mar 2009 Posts: 329	Log in to post a reply Nov 15, 2009 04:33 am vivo wrote: Wishes for many many years remission! The meaning of life is not what you learn but what you teach
lukejessesm… Glen Allen, VA Joined: Oct 2009 Posts: 20	Log in to post a reply Nov 15, 2009 04:31 pm lukejessesmom wrote: Do any of you have days when you feel totally well, you can do anything you want to, and you forget that you have stage iv cancer?? i have felt so good the past several days, no aches or pains. I have an appt. tomorrow with my oncologist and am praying things are looking up. However, he always wears his poker face and never offers any positive thoughts except "you are stable". I am so holding on to hope when I read messages of NED on this site. I have cancer in ribs, pelvis, spine, nodes, and several vertebrae. How is it I can feel so good??? When I suggest NED to him, he looks at me like I am crazy. Diagnosis: 11/4/2008, Stage IV, mets, HER2-

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