Topic: New Forum Surprise

It's the same forum, slightly renamed in an attempt to cut down on the intrusive posting and questions. Let's hope it works.

I need this place to work.....its the only place which fits for me and I'm hoping to find courage and strength here.  Teri

You know a topic caught my eye recently in the active topics (how ironic  LOL) and it was dealing with feeling better and new diet.  So naturally I thought I would look, as I kept reading the thread because it was one of those that suck you in.  People actually thought that they could cure their cancer with diet.  Of course there isn't much you could eat on their diet, maybe a rabbit could live on it....but then again there were alot of restrictions.  I understand that cancer can feed off fat cells but it isn't a prerequosite for cancer.  I don't know why some people feel that if you are skinny???

And old ones back Janice. I am one of the many who disappeared for a while, getting so browned off with the advice given/questions asked by non stage 1V. Whatever the intention of the posters, many of us were getting upset by it all. So....hoping that yet again, this may safeguard the board for those for whom it is intended. I simply cannot understand why non stage 1V feel the need/desire to read and participate in a board for terminally ill people. It would be like me trying to advise someone with heart disease, or some other illness I knew nothing about-and having stage 0-3 cancer does not mean you are knowledgeable/conversant with stage 1V.

So, whether the new board brings in lots of new 1Vs who have perhaps been lurking but not posting , old members back, then let US work together to keep it a safe and supportive place-run by 1Vs for 1Vs.

Ladies,

I am a stage 4 warrior, and felt compelled to tell you that have been a member for almost a year of this group. I appreciate your fierce honesty and of course can totally relate to what some of us endure. I have posted a few times and have to say that I am very intimidated to say anything on the stage 4 board.  Sorry......you gals are tough as nails and I need warm and fuzzy.......so I will return to just lurking.....all the best to you !!!!

I spent the end of the week in the hospital - I had gone in on Thursday for another radiation treatment for my superior vena cava syndrome, and my breathing was so bad that they kept me and admitted me, and did and emergency thoracentesis and placed a chest catheter on Friday.  Oh, and while I was inpatient they did a brain CT since i was in the machine anyhow, and had gamma knife just three weeks ago.......and when I was admitted the surgeon came by and made sure we both understood my intentions in my "DNR" that is on file, under what circumstances he would put me on a respirator, and when he wouldn't.

Yep, feels just like what I was facing when I was Stage II....

But I don't think changing the title or description of the Forum is going to change anything.  I've already, just today, seen some early stagers post the same ole stuff.  I just ignore it and go away for a while.

Luann,

For the record, I was so thin when I was first diagnosed in 2003 that my surgeon came right out and asked me if I was anorexic. I wasn't but I was naturally thin. Just wanted to let you know that being thin didn't keep cancer away for me. Hugs, Mazy