Hi everyone!
i'm new here--was diagnosed with breast cancer in 2001 and then again,
this year, with mets to liver and lungs... ive been on abraxane( and avastin for a short time but had adverse effects) from late march until early october (had to interrupt treatment because of a staph infection near my port site--port was also removed to help clear infection-- am currently on antibiotics. the plan is to resume chemo when the infection is gone. dont have all the data in front of me--but my biggest tumor is 1.5 cm at this point in time--and the others are under a centimeter.. improving!
i'm looking into alternative medicine to complement conventional treatment(chemotherapy).i also like using guided imagery... very empowering!
I'm wondering if any of you have tried milk thistle(?) --to those who are unfamiliar with it, generally, it's supposed to help make chemo more effective and less toxic... it supports the liver and has the potential to stop/slow growth of cancer cells--
I tried it for a short while but then forgot to take them regularly-- am planning on restarting...
i told my mother about the milk thistle--she's been taking it faithfully. she was diagnosed with metastatic colon cancer(one day after i was diagnosed with breast cancer mets)...insert twilight zone theme here.. :) she is improving dramatically and credits the milk thistle--her doctor was even happy to see how much se improved--tho he is more conventional in treatment and thinks its solely the chemo that's benefiting her... doctors can of course be biased and subjective regarding treatment(well, that applies to everyone--but you know what i mean)... we, as patients, know the importance, and the healing power of having an open mind to find what resonates with us personally...
love and blessings to all on your journey <3
looking forward to sharing hope with all of you...
take care,
Sheridan
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donnabee Joined: Feb 2009 Posts: 310 |
Nov 21, 2009 02:02 am
donnabee wrote:
So sorry you get to join this club. The women here are awesome, though, and helped me so much. I go to massage therapist that turns out to be more of a hands on healer. Which is good because I'm not supposed to get massages because of the bone mets. All I know is that I feel absolutely uplifted and wonderful after I see her. And that's one of the things that alternative/complementary therapies are supposed to do for us, right? Nice to meet you, Sheridan. Hugs --donna From time to time even a blind squirrel finds a nut
Diagnosis: 2/9/2009, IDC, 2cm, Stage IV, Grade 1, mets, ER+/PR-, HER2+ |
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Reneepals Joined: May 2006 Posts: 1,331 |
Nov 21, 2009 01:25 pm, edited Nov 23, 2009 06:38 AM
by Reneepals
Reneepals wrote:
Sheriden, I am sorry about your dx. It sucks in plain English. Before you take any kind of supplement, herb or vitamin. Ask your Oncologist if it interacts with the treatment you are taking. We have to be careful. Especially if ER+ breast cancers. I would wonder if the Milk Thistle was ok to take with Liver mets. I know it is benificial to people who suffer from Hep C. Stay away from Soy, Parabens & anything Flax if you are ER+. Even if you are ER- you really need to question if there would be any interactions to change the efficacy of a drug. I was just told today by my hair dresser to take GNC hair, skin & nails.( a little hair thinning, DAMN!) But I see that it has Biotin listed as the main ingredient. I am pretty sure that is a no- no for me, being highly er+ . So I will ask my Onc at the next visit. Well this is definitly the best place to be, if you need answers for whatever side effects treatments bring. This is a great group of ladies. Renee
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loneplume Joined: Nov 2009 Posts: 36 |
Nov 21, 2009 02:38 pm
loneplume wrote:
donna and renee, thanks for the warm welcome--i'll respond soon! |
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tania_s Joined: Aug 2008 Posts: 44 |
Nov 21, 2009 06:47 pm, edited Nov 21, 2009 06:47 PM
by tania_s
tania_s wrote:
I was diagnosed with mets to the bones three years ago. At the time I saw a doctor of integral medicine who put me on heaps of supplements. One is milk thistle and have been taking 3 a day for 3 years. However, only 2 weeks ago I a 4.5 cm tumour was found in my liver. I wonder if milk thistle did anything or did it control the liver thus far. I just don't know. I will continue to take it and hope for the best. I am doing yoga, and qi gung (with a Master of qui gung that swears by it and has had good results. I will do anything to get better. anything. I hope you do to. Love Tania Diagnosis: 12/8/1999, LCIS, 6cm+, Stage IV, 12/12 nodes, mets, ER+/PR-, HER2- |
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Denny123 Joined: Jan 2004 Posts: 2,516 |
Nov 22, 2009 09:39 am
Denny123 wrote:
I asked about milk thistle when I was on Gemzar and Herceptin for liver mets and was told by my onc and nurses to avoid it completely. Some alternative supplements won't allow the chemos and monoclonal antibodies to work as well as they should since the supplements protect the cancer cells. Denise Diagnosis: 12/14/2002, IDC, 5cm, Stage IV, 4/40 nodes, mets, ER+/PR-, HER2+ |
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roseg Joined: Sep 2004 Posts: 8,600 |
Nov 22, 2009 10:06 am, edited Nov 22, 2009 10:08 AM
by roseg
roseg wrote:
My husband had a bone marrow transplant last year and the docs at Hopkins have been uniformly anti-supplement. They want him on a balanced diet - and that's all. He had daily monitoring of his liver function during his transplant and any little blip was a cause for concern. We have a couple of bottles of very expensive drugs that he got taken off of because they messed with his liver function. When it came down to it they were more concerned about his liver than the various possible transplant-related problems the drugs were supposed to prevent. If your liver goes there is not a lot they can do for you. Recognizing that many people have more positive views about supplements and alternative medicine I second the advice to check with your traditional doctor before doing anything. Just recently it was publicized that green tea diminishes the actions of the drug Velcade, which is used for blood cancers. So much is unknown, why take a chance that something you are taking might make your treatments less effective? Rose
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loneplume Joined: Nov 2009 Posts: 36 |
Nov 22, 2009 09:08 pm
loneplume wrote:
Hi everyone, It's interesting to see the various responses. Thanks for sharing your views... I hadn't mentioned in my first post, though I had already asked my oncologist( one who was standing in for my regular oncologist) if taking milk thistle would interfere with my chemo(abraxane); she said it supports the liver and isn't a problem. Further research and study on my own, including my mothers test results, makes me very hopeful:) On her most recent scan(number 3), her liver showed marked improvement after she started the milk thistle(3 or so months on supplements)--scan number 2(after 3 months on chemo inc. avastin with no milk thistle), she was much worse than her very first scan. I do think we have many modalities to heal ourselves-- the mind is powerful-and positive, hopeful, and proactive thinking can be very healing. To me, personally, I'm not afraid of death--tho i'd love to hang around for awhile:) I think having a healed heart is the most important thing-- when i leave the world--and NO ONE knows when no matter what their credentials--we're individuals, not statistics!! i'm going with forgivness, acceptance, and love in my heart for all...(which brings up a whole new subject, i'd love to touch upon here soon-im sure it may have already been discussed-but i'd love to join in on that one). Im thankful and so grateful to have this forum and be among my soul sisters:) Anyway, I'm sure we can all agree that many conventional doctors don't know the benefits of herbal supplements as this modality was not a part of their medical training. So in turn, they're likely to advise against use of the supplement in question. Of course there are so many variables, some doctors are informed about herbs, some arent--and in the case that they aren't, i think it's helpful for us to seek out medical professionals who've had some experience with the herb(or any other supplement that we've heard about that may prove beneficial). I do agree, that everyone should ask their oncologist before venturing out on their own so they are aware of the undesirable/dangerous effects of taking supplements while on chemo(or in general, for that matter). And if the oncologist isnt knowledgable, perhaps they can refer the patient to a naturopathic physician who can work with the oncologist on the best treatment for the patient. I know, I definitely need a nutritionist..I think we'd all function optimally if we were well nourished during therapy(and beyond), I'm going to resume taking milk thistle--and i suggest that anyone who is interested or curious--to ask their oncologist--and perhaps even find yourself a naturpathic physician to assist with treatment... I believe that 'belief' is powerful... so many of us have ourown beliefs in what may or may work for us personally, as we are each unique individuals.. i wish everyone success, hope , and joy...and to celbrate NOW-- now is all we ever have--every moment is made up of NOWS--carpe diem! i wish i could have responded to each of you personally-but it's easier for me and my scattered mind to do it in this context(community style)--i know you guys understand. i didnt edit--am submitting.. love to all! |
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loneplume Joined: Nov 2009 Posts: 36 |
Nov 22, 2009 09:13 pm
loneplume wrote:
i'm going to try to answer more tomorrow... take care, everyone! <3 |
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loneplume Joined: Nov 2009 Posts: 36 |
Nov 23, 2009 12:41 am
loneplume wrote:
hi tania, i love your attitude and perspective--definitely, we do what we feel is the best for us!:) |
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loneplume Joined: Nov 2009 Posts: 36 |
Nov 23, 2009 12:42 am
loneplume wrote:
hi denise, yes i agree that we need to check before adding any supplements... |
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loneplume Joined: Nov 2009 Posts: 36 |
Nov 23, 2009 12:45 am
loneplume wrote:
hi rose yes, there are many interactions with various drugs and so many conflicting views amongst medical professionals-- i think we each must decide the best route for ourselves as unique individuals. all the healing power to your husband! |
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Reneepals Joined: May 2006 Posts: 1,331 |
Nov 23, 2009 06:44 am
Reneepals wrote:
Lone, Just an observation...... Was it the Chemo or the Milk Thistle that brought you great results? Just being the devils advocate.... I am not trying to persuade you either way. Renee
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ElaineD Joined: Feb 2008 Posts: 1,361 |
Nov 23, 2009 07:01 am
ElaineD wrote:
I was on the verge of saying the same, Renee. Of course, it's nice to believe that something natural may have astounding properties, but if taken in conjunction with conventional chemo there's no way of telling. A similair situation for example, arose with me-when on taxotere+herceptin, I had great results-when cut back to herceptin alone, the tumours quickly regrew. So we were easily able to establish which of the therapies had helped. I admit I am a sceptic -if the answers were as easy we'd all be doing it! Even if the positive thinking to which you alluded doesn't actualy produce any tangible benefits, I do agree taht it makes you feel better in yourself.I simply refuse to bow down before cancer, allow it to dominate my thoughts and life-in that way it really does win a major battle. If along the way, this is enabling some sort of physical healing-then that is a fantastic bonus. But the mindset for me is more about being as accepting as I can about what is happening in my life-carpe diem, indeed! My exact sentiments-I'll worry about tomorrow, when it comes, rather than waste my precious energies today. Diagnosis: 11/4/2007, 5cm, Stage IV, Grade 3, ER+/PR-, HER2+ |
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konakat Joined: Jun 2007 Posts: 3,344 |
Nov 23, 2009 01:43 pm
konakat wrote:
Hey Renee -- Let me know about the Biotin -- I took some when my hair was growing back...I don't think it made much of a difference though... But I had no idea about it and ER+ not being a good combo. I'm tossing it! Elizabeth's Mantra: When in doubt, eat cake. When you haven't a clue, add ice cream.
Diagnosis: 5/2007, ILC, 3cm, Stage IV, Grade 3, 13/19 nodes, mets, ER+/PR+, HER2+ |
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Reneepals Joined: May 2006 Posts: 1,331 |
Nov 23, 2009 02:17 pm, edited Nov 23, 2009 02:18 PM
by Reneepals
Reneepals wrote:
I will!............................ I remember I asked my Onc if I could use it and she said no-way. I'll find out why, my memory is terrible. But I am asking here again. Renee
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loneplume Joined: Nov 2009 Posts: 36 |
Nov 24, 2009 10:01 am
loneplume wrote:
hi all, i am ER pos. though milk thistle was ok'd for me and my particular treatment/diagnosis... again, through my personal experience, i really think it depends on the particular doctor as to what each thinks is advisable according to their experience in the field-- i feel i must find a physician whose treatment plan resonates with what feels right for me as an individual. we must always question, and stay informed(even get second opinions). for me, being the alternative type, i think it's so very important to have a doctor who is flexible and open-minded with adjunctive therapy--
<3 No telling which it could be-- most likely, it could be a combination of the two, as they're not mutually exclusive-- milk thistle is known to make chemo less toxic and more effective--they work together(though again, people should ask their physician for any contraindications with their particiular chemo), my mother believes the milk thistle is benefiting her (it's been around for thousands of years and has been used to assist the liver in removing toxins). more power to her and to all who have hope with their treatment-- but not just the hope in extending one's life--but living a life that inspires hope, no matter how long one might live... 'what is important is not how many years we live, but the life we put into those years'... we've all heard that one before, in so many words--i agree, wholeheartedly. there's something life-affirming about hope-though i agree with the gal here who mentioned 'acceptance'--it doesn't mean we give up or lose hope== we just make the best of our situation-- we're reminded of what's important in life: to find the joy and to love all and forgive all--to live LOVE NOW, to find the joy in life, now. (i could get hit by a truck tomorrow-- to me stage IV is a soul reminder--keeping me awake and aware(that is a blessing), keeping me 'present' more often than not--i'm reminded of my oneness with others-- and that kindness matters-- so when i do leave this planet, as we all will eventually-- i do it, with a peaceful heart... i beleive in the great time continuum --there is no death, only transition... if i'm moving on, i want to travel light...my soul feels lighter without the heavy baggage:) |
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