I spent the first two weeks on my latest journey with Xeloda (had it with Taxotere in 2005) dreading the hand/foot stuff coming on. Now, on my off week I have been dealing with, well, gastric problems I didn't have the first time around. Besides the drugs to manage it, have any of you Xeloda girls found any foods that seem to help?
I don't feeling like eating much, and I haven't felt much like eating all the greens and stuff I know I probably should be. But if they'll help, I'll start.
Any ideas would be very welcome.
Paula
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kirby Joined: Jan 2005 Posts: 332 |
Nov 21, 2009 11:38 pm
kirby wrote:
Paula, I have the same problem. I am on my second cycle of Xeloda. I just don't feel like eating much, and when I do nothing healthy is appealing to me. We went out to dinner tonight and I ate about 2 bites of my dinner. It seems my Gurd is giving me more problems as well. Maybe we should just drink an ensure :)- I hope during your week break your appetite improves. xoxo Diagnosis: 9/1/2009, 3cm, Stage IV, Grade 2, 2/7 nodes, mets, ER+/PR+, HER2- |
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donnabee Joined: Feb 2009 Posts: 310 |
Nov 22, 2009 01:38 am
donnabee wrote:
I am a newbie on xeloda, and my onc likes to start with a low does and work our way up. But so far I have been steering my gastro-intenstinal side effects with choice of food: When I'm "loose" (sorry, that's gross) I aim for rice, and when things are "slow" I go for the whole grains. So far this has worked. I'll let you know if it still works when i'm at a higher dose! I do have the experience of looking at food and just being uninspired. Salads seem just horrible to me. So I've been sneaking veggies into casseroles and soup. (Raw veggies aren't good for the loose side). Good luck all-- donna From time to time even a blind squirrel finds a nut
Diagnosis: 2/9/2009, IDC, 2cm, Stage IV, Grade 1, mets, ER+/PR-, HER2+ |
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vivo Joined: Mar 2009 Posts: 427 |
Nov 22, 2009 03:57 am
vivo wrote:
I am at changing treatment prossecc and as I was trying to find infos for Xeloda I read some food suggestions on the Treatment and Side effects page of the site. I also have bought fish oil with vitamins (and orange taste) and read it is good for those who don't feel like eating much. Good luck.. The meaning of life is not what you learn but what you teach
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mason204 Joined: Jan 2006 Posts: 571 |
Nov 22, 2009 01:22 pm
mason204 wrote:
Don't eat Chili!! Yup, I ate it yesterday for lunch and it was bad news. Still recovering from it. Boy, was it good though. Watch the Ensure!! I find if I drink a full container, I'm in the bathroom 20 minutes later. It's just too rich. What works for me.... (I'm on my 5th cycle)... *bananas - works better than Immodium for me to "stop the works". One banana and I'm good. When I don't feel like eating, I usually go the roast chicken and white rice route. There's a "swiss chalet" restaurant in town that I'll order chicken from on "bad nights" when I want something fairly tasty but don't have the energy to cook. Cheryl. Cheryl - Mets dx Aug/06 (lungs, liver, bones, abdomen)
Diagnosis: 12/23/2003, IDC, 5cm, Stage IV, Grade 2, 4/10 nodes, ER-/PR-, HER2+ |
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PJB Joined: May 2004 Posts: 2,703 |
Nov 22, 2009 03:00 pm
PJB wrote:
Oy, no dairy, huh? THAT is a bummer. I guess all those carrots I ate last week were a no-no, too. Lucky for me, I love bananas... Thanks, guys |
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donnabee Joined: Feb 2009 Posts: 310 |
Nov 22, 2009 04:43 pm
donnabee wrote:
question: does it get easier with time? I mean what you can eat on xeloda. Also, is there a marked difference in side effects on your week of? This is my first week off and I'm not sure I feel much better. thanks -- donna From time to time even a blind squirrel finds a nut
Diagnosis: 2/9/2009, IDC, 2cm, Stage IV, Grade 1, mets, ER+/PR-, HER2+ |
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DARLENEDENI
Joined: Apr 2008 Posts: 108 |
Nov 22, 2009 08:12 pm, edited Nov 22, 2009 08:17 PM
by DARLENEDENISE
DARLENEDENISE wrote:
Xeloda has caused me to make my lifetime maximum of "stool soup" and put me in the hospital and two weeks on IV fluids due to GI issues. Food tips mentioned by Cheryl are good. Eat a LOW FIBER diet, I could tolerate the Lactaid milk and ate very small amounts of dairy, yogurt was okay. Only cooked vegetables, no raw. The gas producing ones, cabbage, broccoli, beans etc you should avoid and if you eat them do so in small amounts. Avoid fresh fruit with skin. Canned fruit is okay. Red meat is harder to digest as well as anything with high fat and can cause GI upset. Get rid of all caffeine. I replaced with water and Gatorade Rain. I ate lots of eggs and bread and jello with fruit in it. Add Lactabacillus supplement daily along with an acid suppresant/proton pump inhibitor ie Protonx, Prilocec. I had to take Protonx at 40mg twice a day to control the acid. The acid can aggravate the intestines. If you use Immodium, don't follow the directions, it won't help. Try two tablets after each stool and you can exceed the max dosage per day. Ask your onc for a prescription for Lomotil. It is stronger than Immodium, but it can make you tired. If you use these you will then have constipation for a few days after, don't let it fool you into thinking you can eat what you want, stick with the low fiber diet. I found drinking hot decaf tea helped ease the constipation without setting off the diarrhea again. I finally had to move to Sandostatin injectible due to grade 3 and 4 diarrhea episodes. It works very well and fast. Not fun giving yourself a shot though. Hope some of this info helps and you never have the issues I did!! Plus, I really hope Xeloda knocks your mets to NED. Feel well and good luck...Darlene . Courage is when you are scared to death but saddle up anyway. John Wayne
Diagnosis: 12/14/2007, IDC, 2cm, Stage IV, Grade 2, 5/6 nodes, mets, ER-/PR-, HER2+ |
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wayover20 Joined: Nov 2004 Posts: 623 |
Nov 30, 2009 11:14 am
wayover20 wrote:
Good info, keep it coming! I just finished the second week and take it one week on, one week off as onc says it seems to keep side effects to a minimum doing it this way. So far no stomach issues and everything tastes good. Tips of toes do hurt off and on, not terribly. Fingers ache, especially thumbs and it makes it hard to open jars or turn keys, etc. Keeping them well lubed with the udder cream to help prevent rash. Pat Pat
Diagnosis: 8/3/2008, ILC, 6cm+, Stage IV, 0/17 nodes, ER-/PR-, HER2- |
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