Posted on: Dec 15, 2009 11:53 PM
MN
Joined: Jul 2006
Posts: 226
Duffymom wrote:
Friday night I was told cancer spread to the brain. I am having nuerosurgery at 3 Wed to insert an ommaya reservois into my skull, Like a port for your brain to admister chemo directlyl. Told I have a poor progrognosis of "months". Anyone had this proceedure before? Currently on Dexadron for brain swelling which is causing elevaged blood sugar. So several day pinpricks and insulin shohtsl
Ambien making me too sleepy to type anymore, so better sleep.. No more food or water til surgery - tough! Hope I wake up just fine!
Diagnosis: 10/2008, IDC, 6cm+, Stage IV, Grade 3, 0/12 nodes, ER-/PR-, HER2-
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konakat
Ottawa, ON
Joined: Jun 2007
Posts: 6,197
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Jan 26, 2010 08:11 AM konakat wrote:
Kathy! Wonderful to see you post. Wow, very scary. I'm relieved that it's cleared up and hope the Advil continues to keep the headaches at bay. You're doing great and I am so impressed! Hugs,
Elizabeth
xoxoxoxooooo
Elizabeth's Mantra: When in doubt, eat cake. When you haven't a clue, add ice cream.
Diagnosis: 5/2007, ILC, 3cm, Stage IV, Grade 3, 13/19 nodes, mets, ER+/PR+, HER2+
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Feb 1, 2010 12:00 PM morgansmom wrote:
Kathy
I am sorry to hear that you are having such a rough time right now. I took xeloda for 18 months before progression. I have a full bottle in the medicine cabinet...send me a pm if you would like it and I will gladly send it to you. At least it might help with your expenses!
Good luck!
Mindy
Diagnosis: 4/2007, IDC, 2cm, Stage IV, mets, ER+/PR+, HER2-
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Feb 28, 2010 11:14 PM Duffymom wrote:
Tues, Mar 1 is another round of Methotrexate and so far I'm feeling pretty "normal". I will have an MRI and PET on Mar 2 and Mar 11. I'll find out if it's working. Same with my Xeloda..
Getting the money end of things worked out. I am pleased that I am having minimal se.
Kathy
Diagnosis: 10/2008, IDC, 6cm+, Stage IV, Grade 3, 0/12 nodes, ER-/PR-, HER2-
ejnova
lancaster, pa
Joined: Feb 2010
Posts: 267
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Mar 1, 2010 07:17 AM ejnova wrote:
hope coming your way. i'm relatively new to this, s you've probably never heard from me before. my thoughts are with you
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Mar 1, 2010 08:02 AM meima-Bev wrote:
Praying for you for healing and good scan results. Meima
Diagnosis: 8/31/2006, Stage IV, mets, ER+/PR+, HER2-
chainsawz
Tucson, AZ
Joined: Sep 2008
Posts: 3,470
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Mar 1, 2010 01:11 PM chainsawz wrote:
I'll be saying the same thing for you that I do when I am in the machines....no whammys, no whammys, no whammys!!! I don't know if you remember that game show?
Lisa -mets to lungs & brain - clear lymph nodes.....the weakest step toward the top of the hill, toward sunrise, toward hope, is stronger than the fiercest storm.
Diagnosis: 7/21/2008, IDC, 3cm, Stage IV, Grade 3, 0/2 nodes, mets, ER-/PR-, HER2+
konakat
Ottawa, ON
Joined: Jun 2007
Posts: 6,197
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Mar 1, 2010 03:37 PM konakat wrote:
Oh Kathy -- my fingers and toes will be crossed for your scans! This is great that you are doing so well on the chemo -- I'll be looking for celebratory news!!
Elizabeth
Elizabeth's Mantra: When in doubt, eat cake. When you haven't a clue, add ice cream.
Diagnosis: 5/2007, ILC, 3cm, Stage IV, Grade 3, 13/19 nodes, mets, ER+/PR+, HER2+
tami444
Navarre, FL
Joined: Jan 2010
Posts: 255
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Mar 1, 2010 06:51 PM tami444 wrote:
... fingers, toes, arms, legs ... they are all crossed! Sending prayers, love, and ))))) HUGS (((((
Diagnosis @ 39 yrs old: Dec 2005, IDC, 8cm, Grade 3, R Mastectomy Jan 06, Stage IV, bone mets, ER+ PR- HER2+, chemo, rads, lymphedema, stacked DIEP Feb 08
ECP33
Joined: Mar 2010
Posts: 3
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Mar 4, 2010 12:07 PM ECP33 wrote:
Duffymom, I am so happy to see you are doing well.
My wife will start on a similar regimen next week and we are going to fight, fight, fight. Please keep us posted. Every post from you gives others hope. Thanks for sharing!
LisaSDCA
San Diego, CA
Joined: Jan 2007
Posts: 2,490
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Mar 4, 2010 03:04 PM LisaSDCA wrote:
I hope you get wonderful news on yours scans, promptly, on the 11th. I haven't heard yet - the MRI was performed Sunday morning and it's mid-Thurs afternoon! Will you really be able to evaluate the Xeloda after such a short, but expensive (!) course on it? I'll be sending CA good vibrations **~~~**~~~** and of course including you in my prayers.
xoxoxo
Lisa
Stage IV mets to brain 11/2008 Mets are Her2 pos (!)
Diagnosis: 1/24/2007, IDC, 2cm, Stage IIa, Grade 3, 0/3 nodes, ER-/PR-, HER2-
mimi1030
Rio Rancho, NM
Joined: Oct 2007
Posts: 661
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Mar 5, 2010 03:49 PM mimi1030 wrote:
Hi There,
I saw this post and wanted to send my good wishes and also to ask a question. My mom was just diagnosed with Brain mets with week and she begin Tykerb and then next week she begins WBR and Xeloda. I saw that you were given a port in your brain for chemo. Was WBR not an option for you, and does the chemo port work better on brian mets than xeloda and radiation.
I am still learning about all this and what is best to help my mom
Hugs Michelle
Mom has Stage IV mets to liver and bones, 8/2004 DCIS with 4mm of IDC, Stage 1, 0 Nodes, Grade 1, Her2+++ cancer. Left side mastectomy with 4 rounds A/C. 9/2007 Mets to Liver and Bones. 1/2010 possible mets to brain.
Diagnosis: 9/29/2007, IDC, <1cm, Stage IV, Grade 1, 0/1 nodes, ER-/PR-, HER2+
LisaSDCA
San Diego, CA
Joined: Jan 2007
Posts: 2,490
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Mar 10, 2010 08:10 PM LisaSDCA wrote:
Kathy ~ I send good vibrations, kind thoughts and sincere supplications for your scans and reports tomorrow. Hope you get the news you long to hear,"It's working!" I cannot believe the resilience you have shown in the face of this daunting (and more than slightly scary) procedure. And doing it while attemtpting to maintain your career! That's incredible.
Michelle, I'm butting in to answer your questions. Kathy's brain mets were not your run-of-the-mill mets. It involved the cells and fluid in the lining of the brain and spinal cord. Localized and acute care are crucial to halt the spread of the mets, commonly called lepto-meningeal mets or meningeal disease. Xeloda and Tykerb may be used to accompany treatment, but they are too slow-acting to address the grave nature and the severity of lepto-meningeal mets.
Your mom's WBR therapy, with Tykerb and Xeloda is entirely appropriate, IMHO. Be prepared for some brutal fatigue, that diminishes more slowly than she (or you!) would like. But this too, shall pass.
Lisa
Stage IV mets to brain 11/2008 Mets are Her2 pos (!)
Diagnosis: 1/24/2007, IDC, 2cm, Stage IIa, Grade 3, 0/3 nodes, ER-/PR-, HER2-
konakat
Ottawa, ON
Joined: Jun 2007
Posts: 6,197
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Mar 12, 2010 05:14 AM konakat wrote:
Just checking in -- I hope you have good news to share! Hugs,
Elizabeth
Elizabeth's Mantra: When in doubt, eat cake. When you haven't a clue, add ice cream.
Diagnosis: 5/2007, ILC, 3cm, Stage IV, Grade 3, 13/19 nodes, mets, ER+/PR+, HER2+
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Mar 12, 2010 05:58 AM JeninMichigan wrote:
Hoping and Praying for good news.
(((hugs)))
Jennifer
Diagnosis: 2/22/2008, IDC, 2cm, Stage IV, Grade 3, 4/9 nodes, mets, ER-/PR-, HER2+