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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: organ donation

Topic: organ donation

Forum: Stage IV and Metastatic Breast Cancer ONLY — A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only or those posting on behalf of a Stage IV patient. There is a separate forum for Stage IV Caregivers/Family in "Support and Community Connections".

Posted on: Feb 13, 2012 04:21PM

bhd1 wrote:

am i correct in assuming metastatic breast cancer survivors cannot sign up for organ donation ?

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Posts 1 - 17 (17 total)

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Feb 13, 2012 04:23PM momof3boys wrote:

Yes

BMX w TE reconstruction 11/11/11, 4 TC, 3/12, 25 Rads 5/12 Tamoxifin 6/12, Prophalactic hysterectomy 12/18/12, Oncotype 16

Dx 10/14/2011, ILC, 4cm, Stage IIa, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Feb 13, 2012 04:36PM bhd1 wrote:

i meant to say metastatic bc survivors cannot donate their own organs.  is that correct?

barb

Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Feb 13, 2012 04:39PM momof3boys wrote:

Yes, cannot donate blood either

BMX w TE reconstruction 11/11/11, 4 TC, 3/12, 25 Rads 5/12 Tamoxifin 6/12, Prophalactic hysterectomy 12/18/12, Oncotype 16

Dx 10/14/2011, ILC, 4cm, Stage IIa, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Feb 13, 2012 04:45PM ma111 wrote:

Correct, you cannot give a kidney while still alive.

Dx 8/4/2009, IBC, <1cm, Stage IV, 19/19 nodes, ER-/PR-, HER2+
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Feb 13, 2012 04:54PM reesie wrote:

There is some kind of eye donation that we can do - I think cornea? Also, we can't get organs either :(

Marie - It's A Great Day To Be Alive. Dx 10/29/2010 ER+/PR+, HER2- Stage IV mets to bones, liver, lungs, skin, pleural effusions

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Feb 13, 2012 05:14PM Druanne wrote:

My Mom was so very sad that she couldn't donate...(Renal mets to many areas including brain twice)....when she did pass away......we found out that she could donate her corneas!!!! :) She would have been so happy to have known that.......

Always be a first rate version of yourself, not a second rate version of somebody else ~ Judy Garland. Lumpectomy 12/15/2011 Clear Margins! YAY! Oncotype Score = 3

Dx 11/28/2011, IDC, 1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Feb 13, 2012 05:52PM carcharm wrote:

I think skin too.  Patients with primary liver cancer from alcohol or hepatitis do get liver transplants.Seems unfair.

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Feb 13, 2012 07:22PM, edited Feb 13, 2012 07:27PM by bedo

This Post was deleted by bedo.
Dx 6/17/2011, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Feb 13, 2012 07:31PM scuttlers wrote:

And we can donate our bodies for medical education or research. I know Las Vegas has MERIN Institute that will use the body for surgical education (my students at the college participated in an International Trauma Surgery workshop. There were top notch surgeons from around the world that they got to work with that day.)

MERIN covers all costs for transport of the body within Clark county and cremation and return to the family. There are other medical schools that will accept for medical education. (the donated are treated very respectfully and modesty is maintained.).

My favorite side effect of treatments is BEING ALIVE!

Dx 2/4/2009, IBC, 6cm+, Stage IV, Grade 3, 11/17 nodes, mets, ER+/PR-, HER2+
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Feb 13, 2012 07:43PM Glenna_E wrote:

There's also a place in MD where you can donate your body. Go to www.anatomicgift.com for more information.

When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople)

Dx 5/2008, IDC, Stage IV, 11/27 nodes, ER+/PR+, HER2-Chemotherapy 04/11/2011 TaxotereChemotherapy 08/14/2011 GemzarChemotherapy 06/13/2012 DoxilChemotherapy 12/12/2012 TaxolChemotherapy 09/11/2013 Cytoxan, fluorouracil, methotrexateChemotherapy 04/16/2014 carboplatin
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Feb 13, 2012 07:45PM CoolBreeze wrote:

Since breast cancer is considered systemic, they don't want to waste organs on us - they think it will just fill with cancer cells.  Same with donations - we could put cancer cells into somebody else, right?  I barely want my own organs, much less give them to somebody else!  :)

They don't give livers to alcoholics unless they quit drinking for six months.  But, many of them go back to drinking later though, and don't you just want to yank that liver right out of them?  

My last cocktail was September 10th, my 17th anniversary. I had a gin and tonic made with homemade tonic at a restaurant.  I may not have another drink until September 10 again, if then.  My liver is stressed enough!  Both of my parents are alcoholics and my mother died of cirrhosis - my dad drinks even more after watching his wife die in front of him.  I'll never understand it in a million years.

I do understand why people wouldn't want a cancer patient's organs though.  :)

I've always been an organ donor but I don't think I'll do a whole body donation.  They can do whatever they want with any parts they can use, but I know this is terrible and I'm an awful person - the thought of med students cutting me up for months creeps me out.  If you read Stiff, by Mary Roach, you will see all the things they can do with you post-death.  Icky some of it.  I don't want to be a crash-test dummy either!  :) 

Ann's cancer blog: www.butdoctorihatepink.com .....multicentric/multifocal IDC/ILC+DCIS/LCIS/ADH Official dx? "Your breast was a mess." ~UniMastectomy/Chemo/Herceptin/Tamoxifen/Recon Almost Done! Oh wait. mets to liver 5/21/11 Now Stage IV

Dx 8/17/2009, IDC, 4cm, Stage IIa, Grade 3, 0/3 nodes, ER+/PR-, HER2+
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Feb 14, 2012 04:44PM dreaming wrote:

I some times work in the transplant section, no person that had cancer, does drugs and other activities are not permitted to donate bone marrow or organs, not even blood.'

I know that some countries are very loose with this , but they buy organs, blood , etc in this places.

Somebody told me in that some states they permit cancer patients in remission to donate blood.

I would not do it, I do not want to have in my conscience that I might pass my cancer to somebody.

There are other ways one can help the living, drive  cancer patients to appointments, volunteer in a cancer center, food banks, etc.

I had corneal transplants years before my dx, and do volunteer work with cancer patients.

After the mastectomy a second diferent cancer was found: Invasive Ductal Carcinoma, C.F.M.:

Dx 7/7/1991, ILC, 1cm, Stage I, Grade 1, 0/18 nodes, ER+/PR+, HER2-
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Feb 14, 2012 04:50PM, edited Sep 19, 2012 08:26PM by Just_Sue

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Susan

Dx 6/23/2010, IDC, 5cm, Stage IV, Grade 2, mets, ER+/PR+, HER2-
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Feb 14, 2012 05:00PM SpecialK wrote:

Decisions on blood donation are made locally, by whatever organization is collecting the blood.  Some say 5 years NED, some only 1 year NED.  I don't see how anyone, in good conscience, could donate blood after a BC diagnosis when we do not know for sure that it is a good idea.  I would not want to be transfused with blood from a cancer patient, and those who are receiving transfusions are compromised, very ill, critically injured, etc.  The better way to help is to volunteer or make a cash donation to your local blood bank.

Dx 9/27/2010, DCIS, Grade 3Dx 9/27/2010, IDC, 2cm, Stage IIb, Grade 3, 2/14 nodes, ER+/PR+, HER2+Surgery 11/01/2010 Mastectomy (Both); Reconstruction: Tissue expander placement (Both)Surgery 12/06/2010 Lymph Node Removal: Axillary Lymph Node Dissection (Right)Surgery 12/21/2010 Reconstruction (Left)Surgery 01/07/2011 Reconstruction (Left)Surgery 01/21/2011 Reconstruction (Left)Chemotherapy 02/17/2011 carboplatin, TaxotereTargeted Therapy 02/17/2011 HerceptinSurgery 07/20/2011 Reconstruction: Tissue expander placement (Left)Hormonal Therapy 08/01/2011 FemaraSurgery 02/24/2012 Reconstruction: Breast implants (permanent) (Both)Hormonal Therapy 06/20/2012 ArimidexSurgery 12/14/2012 Reconstruction (Both)Hormonal Therapy 07/18/2013 FemaraSurgery 03/07/2014 Reconstruction (Both)Surgery 04/02/2014 Reconstruction: Breast implants (permanent) (Left)
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Feb 14, 2012 05:11PM Kicks wrote:

The American Red Cross Blood Bank websites says that you can donate blood if you are a year or more out of TX and are NED. Breast Cancer is one of the cancers that are acceptable to donate but not all cancers are. I give was time again this week but as I'm having cataract surgery tomorrow and the 29th so waiting til after then to donate.

My DL and mil. ID are marked for me to be an Organ Donor. I figure it tis way - they will know what can and cannot be used so it's up to them to know. If nothing else if my skin could keep a burn patient going then great. (Have a friend who was horrible burned when gas was thrown on him and lit - it was a mistaken identity attack - without cadaver skin he'd not have made it.)

Dx 8/7/2009, IBC, Stage IIIc, 19/19 nodes, ER+/PR-, HER2-Chemotherapy 08/25/2009 Adriamycin, CytoxanSurgery 10/21/2009 Mastectomy (Right); Lymph Node Removal (Right)Chemotherapy 11/11/2009 TaxolRadiation Therapy 02/04/2010 ExternalHormonal Therapy 02/11/2010 Femara
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Feb 17, 2012 04:53PM carcharm wrote:

Thank you for posting this kicks... did not know that.

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Feb 17, 2012 05:45PM momof3boys wrote:

I would never donate.... I think they're crazy to accept donations of blood or corneas or any other body part from any person that had cancer. I could never do it in good conscience.
Read the book "Anti Cancer" describes a man that was given an organ from a woman that had passed away... Months later, he became ill and it was discovered that he had breast cancer cells in his body... His organ donor was a long time breast cancer survivor that had died of something else.

BMX w TE reconstruction 11/11/11, 4 TC, 3/12, 25 Rads 5/12 Tamoxifin 6/12, Prophalactic hysterectomy 12/18/12, Oncotype 16

Dx 10/14/2011, ILC, 4cm, Stage IIa, Grade 2, 0/1 nodes, ER+/PR+, HER2-