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Topic: My daughter, 31, breastfeeding2 months postpartum has lump

Forum: Stage IV and Metastatic Breast Cancer ONLY — A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only or those posting on behalf of a Stage IV patient. There is a separate forum for Stage IV Caregivers/Family in "Support and Community Connections".

Posted on: May 25, 2012 03:20 PM, edited May 25, 2012 03:25 PM by kayfh

kayfh wrote:

My daughter developed a lump in outer quad of her R breast during pregnancy. Was seen by our family physician, who sent her for USS, and was told to follow it up if it was still present in postpartum. It is still there. She went for her first well baby care and immmunisation appointment (had a midwife for pregnancy, labour, birth to 6 weeks postpartum) today and told him the lump was still there. He is sending her for USS to same facility that she went to in pregnancy June 1.
She did not want to tell me about her lump in pregnancy -did not want to worry me. She did tell me. (We have been through a lot of shit together. And a lot of good things too.) I was happy she had USS in pregnancy, but what further follow up do you people recommend? Is USS enough? Should she press for a mammogram or other testing? I know that many of you were dx in pregnancy or in the postpartum and I need your words of wisdom.....

Kay
Dx 3/3/2009, IDC, 2cm, Stage IV, Grade 3, 8/8 nodes, mets, ER+/PR-, HER2+
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Posts 1 - 20 (20 total)

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May 25, 2012 03:22 PM Mzmerz wrote:

Hi Kay

I am sorry, that is scary.  I am hoping that it is nothing, keeping my fingers crossed!

Amy 

Dx 6/12/2009, IDC, 1cm, Stage IV, 8/14 nodes, mets, ER+/PR+, HER2-Surgery 06/07/2009 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Chemotherapy 08/07/2009 Cytoxan, TaxotereRadiation Therapy 01/03/2010 ExternalHormonal Therapy 02/22/2010 TamoxifenSurgery 05/08/2010 Prophylactic Ovary Removal (Both)Radiation Therapy 03/27/2012 ExternalHormonal Therapy 05/01/2012 Femara
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May 25, 2012 03:30 PM formygirls wrote:

Kay,
I hope this is nothing but I would press for a mammogram. In my own experience, an ultrasound was not enough.

Initially diagnosed with triple neg stage 3 bc in Feb 2008. Mets dx in Feb 2012 with change in receptors .Mets to liver, brain, bone, lung and nodes.
Dx 2/3/2012, IDC, 6cm+, Stage IV, Grade 3, 2/29 nodes, ER-/PR-, HER2+
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May 25, 2012 03:35 PM, edited May 25, 2012 03:36 PM by Cynthia1962

Well, unless scans and/or a needle biopsy can show it's a cyst, then only a biopsy will definitely show if it's b9 or not.  I was dx'd while bf'g and the mammo and u/s were both inconclusive and the fna showed it was solid and not a cyst.  My surgeon and OB said it needed to come out, but I know that many women here have core biopsies instead of surgical ones like I had.  Most likely her lump is b9, but she needs a biopsy to know for sure.  I was able to continue breastfeeding even though I had an excisional bx and my recovery was quick.  I hope your daughter's lump is b9 and everything goes well for her.

Originally 3A, Jan '07
Dx 11/11/2010, IDC, 2cm, Stage IV, Grade 2, 4/18 nodes, ER+/PR+, HER2-
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May 25, 2012 03:47 PM kayfh wrote:

You women are goddesses!
I will bite my tongue until she has her USS. Actually, I am supposed to do herceptin on June 1 but I will go and hold her baby while she has USS. (if her partner will LET me-he may need to be there-and I totally understand that)

Kay
Dx 3/3/2009, IDC, 2cm, Stage IV, Grade 3, 8/8 nodes, mets, ER+/PR-, HER2+
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May 25, 2012 03:54 PM SPAMgirl wrote:

I initially thought my lump was just a clogged milk duct. It just didn't go away. My doctor agreed that it was just a lumpy milk duct. I was bad and didn't have my next checkup for 1.5 years. By then, it was 2+ cm and I was stage iii. Then, exactly 1 year after my last chemotherapy, they found the liver and bone mets. I did watch them do the ultrasound, and the tech could tell it was cancer by the way it looked. Then the radiologist explained how you could see the difference between the different kinds of lumps. From her explanation, I knew I had cancer before the biopsy came back. I think my mammogram just indicated that I should get the ultrasound. I have a lot of faith and confidence in the ultrasound. Make sure you ask a lot of questions about the color and shape of the lump and what it means.

Dx 8/2/2010, IDC, 2cm, Stage IV, Grade 2, 4/16 nodes, mets, ER+/PR-, HER2+
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May 25, 2012 03:55 PM cheryl1946 wrote:

kayfh

My 2 idc's did not show on mammograms,and they were big. 

She should have a biopsy for definite diagnosis.

I hope hers is b9.

Dx 5/11/2011, IDC, 6cm+, Stage IV, Grade 2, mets, ER+/PR+, HER2-Hormonal Therapy 07/10/2011 Femara
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May 25, 2012 04:10 PM, edited May 25, 2012 04:14 PM by kayfh

I phoned my daughter after the last post and offered to hold her baby while she has USS. She is happy not to go alone. She understands my paranoia, but she is also not one to get too perturbed until she has a documented reason to be perturbed. She is aware that I asked YOU and she is pleased to have had such a response. Thank you.

Kay
Dx 3/3/2009, IDC, 2cm, Stage IV, Grade 3, 8/8 nodes, mets, ER+/PR-, HER2+
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May 25, 2012 08:04 PM rosasmommy wrote:

I second the advice to get a biopsy.  My initial lump was a palplable lump that didn't show up on a mamagrom; utrasound was inconclusive so had an immediate biopsy.  Hoping that everything turns out fine.

Dx 4/8/2011, IDC, 2cm, Stage IV, Grade 3, 2/8 nodes, ER+/PR-, HER2-
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May 26, 2012 01:11 PM, edited May 26, 2012 01:12 PM by kayfh

I will tell my daughter about your considered opinions. It seems that she needs to know about what your experiences have been, how issues were followed up, good and bad, so that she can make an informed decision about her healthcare. As it now stands I think she thinks she is supposed to passively accept what her physician agrees to arrange. It is most likely that she has something entirely benign going on in her breast, but I think that she should know that and not be put off. He said "it doesn't feel like cancer". Mmmm. If we knew exactly what it "felt" like we could avoid mammograms USS Ct scans, MRIs and even biopsy.;)

Kay
Dx 3/3/2009, IDC, 2cm, Stage IV, Grade 3, 8/8 nodes, mets, ER+/PR-, HER2+
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May 26, 2012 01:28 PM Cynthia1962 wrote:

You are absolutely correct!  The only way to know for certain is with a biopsy.  My lump was visible to the naked eye and yet it didn't show on the mammogram and the u/s was inconclusive.  It did not feel like cancer, it wasn't dense and hard and wasn't irregular.  I was very fortunate that my ob immediately referred me to a surgeon before we even had the mammo/us results back, especially since the idiot of a radiologist said he didn't know what it was and I should come back in 6 months. 

You're probably right that it's B9, but I'm glad you're encouraging your daughter to stay on top of this and find out for sure. 

Originally 3A, Jan '07
Dx 11/11/2010, IDC, 2cm, Stage IV, Grade 2, 4/18 nodes, ER+/PR+, HER2-
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May 26, 2012 01:48 PM, edited May 26, 2012 01:58 PM by weety

I agree with all the above posters.  I was diagnosed 6 months post partum during breastfeeding as well.  Although there are some unlucky ones, that doesn't mean that your daughter's lump is not benign.  It just means it can happen.  Definately have her get it checked out asap.  I caught mine at 7mm.  Had I waited and assumed it was pregnancy related, I might have had a totally different story to tell.

Edited to add:  The radiologist that saw me thought it was "low suspicion for malignancy" and even posted this in my exam notes,  but luckily she had me do a biopsy "just to be absolutely certain."  I am so grateful for her being proactive.  Again, a different radiologist might have had me telling a different story, because I would have just walked out and gone on my merry way and not even have given it a second thought.  We are taught to trust our doctors and do what they tell us.  But breast cancer is not a one size fits all, and it comes in so many different sizes, shapes, and irregularities.  It might not be a textbook case but still be cancerous.  I especially urge you to have your daughter pursue it because in young women breast cancers tend to be the more aggressive types.  Do not let her walk away with the mindset of watching and waiting--even if it is just 6 months.  Aggressive cancers can grow and spread quickly.  Demand the biopsy.  It is a needle "punch" guided by an ultrasound--it's an easy procedure, and I doubt if it is very expensive.  It is ALWAYS better to be safe than sorry in my opinion.

Dx 7/17/2009, IDC, <1cm, Stage Ib, Grade 3, 0/1 nodes, ER+/PR-, HER2+Surgery Mastectomy (Left)Chemotherapy carboplatin, TaxotereRadiation Therapy ExternalHormonal Therapy FemaraTargeted Therapy Herceptin
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May 26, 2012 03:23 PM scuttlers wrote:

Ia so agree that a biopsy is the only way to know for sure. Perhaps she could ask the doctor to document in writing that this is positively for sure NOT a cancer. (the doctor won't, of course, and may reconsider the advantage of finding out for sure now rather than watchful waiting, especially with the family history. This statement puts the doctor on the line of responsibility. This is her body, she needs to be absolutely proactive.

My favorite side effect of treatments is BEING ALIVE!
Dx 2/4/2009, IBC, 6cm+, Stage IV, Grade 3, 11/17 nodes, mets, ER-/PR-, HER2+
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May 26, 2012 11:06 PM allisontom911 wrote:

i went thru the exact same thing. I did not find my lump until the baby was 5 weeks, was going the next week for post partum 6 week check up but in between then I found a lump under my arm. I knew it was cancer. My OB sent me for an Ultrasound on a friday  and they knew something wasnt right. I could see the blood flow and they were talking about "fingers" on the lumps. Then I got a mamogram that same day. I had a biopsy on Monday and confirmed cancer on Tuesday.

She could certainly request a biopsy just for peace of mind.

Sending good thoughts that all is just fine and only a clogged milk duct!

Allison
Dx 12/8/2009, IDC, 4cm, Stage IIIa, Grade 3, 1/11 nodes, ER-/PR-, HER2+Dx 5/17/2012, IDC, Grade 3, ER-/PR-, HER2+Targeted Therapy 12/21/2009 HerceptinChemotherapy 12/21/2009 carboplatin, TaxotereSurgery 05/10/2010 Mastectomy (Right)Radiation Therapy 06/15/2010 ExternalSurgery 12/28/2010 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement, Latissimus Dorsi flap (Both)
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May 27, 2012 07:56 AM lynne248 wrote:

I'll just add mine to the list.  I too found mine when I was breast feeding my 8 month old daughter.  My OBGYN thought it was a blocked milk duct, but gave me a script for a mammogram if it didn't get better after a few days.  Mammogram, ultrasound and then biopsy.  Positive for cancer, why else would I be on this board? ; ).

After reading all of these posts, I find it incredibly crazy how many of us were diagnosed when pregnant or shortly there after.  Such a happy time turned into such a scary and sad time.  

Fingers crossed for your daughter and you.

Dx 3/1/2010, 6cm+, Stage IV, 3/21 nodes, mets, ER+/PR+, HER2+
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May 27, 2012 10:03 AM kayfh wrote:

Oh wow. Thank you, all of you, for your advice and the sharing of your experience.

Kay
Dx 3/3/2009, IDC, 2cm, Stage IV, Grade 3, 8/8 nodes, mets, ER+/PR-, HER2+
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Jun 4, 2012 02:38 PM kayfh wrote:

To recap, my daughter age 31, breastfeeding 2 months has lump near armpit.  It was present during prenatal period.  Was seen by family physician who referred her to a community USS facility.  USS did not show anything suspicious for malignancy.  Was advised that if the lump was still present postpartum that she should return for followup.  

At well baby care and immunization at 8 weeks postpartum she told family physician that it was still present.  He assessed, said it did not feel like cancer but referred her for USS at same facility.  We have a Breast Assessment Clinic at local hospital.  After posting here, and hearing your concerns and advice I told my daughter I did not think that the referral was good enough, that she should at least start at the Breast Assessment Clinic. And that if the BAC found anything and suggested watchful waiting that she should instead request a full work up.  So she called her family physicians office, stated her case, they referred her to the BAC. 

She does not have a malignancy.  The radiologist who is a specialist in all things wierd, wonderful, and normal in breasts told her that what she had was ectopic breast tissue.  During fetal development (hers) she developed an incomplete super numerary breast.  Some of them have nipples and will produce milk during lactation.  Hers does not have a nipple.  The breast tissue acts just as any of our normal breasts do during pregnancy and lactation, remodeling to produce milk under hormonal influence and it will regress after lactation is complete.  Amazing.

Apparently witches had supernumerary breasts, who knows, maybe my daughter can fly too Cool!  We are much relieved.  Only down side of this story is now she has three breasts, which she will have to pay attention to as part of her preventive health care, as opposed to the regulation two.

Thank you so much for your concern and advice! 

Kay
Dx 3/3/2009, IDC, 2cm, Stage IV, Grade 3, 8/8 nodes, mets, ER+/PR-, HER2+
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Jun 5, 2012 01:04 AM Cynthia1962 wrote:

I'm so glad she doesn't have a malignancy!!!  Thank you so much for the update...we really need good news around here.  Her situation is definitely unusual but beats some of the other possibilities.  I'm glad she had it checked out.

Originally 3A, Jan '07
Dx 11/11/2010, IDC, 2cm, Stage IV, Grade 2, 4/18 nodes, ER+/PR+, HER2-
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Jun 5, 2012 09:34 AM weety wrote:

Oh gee:)  So glad its not cancer, but it is pretty funny how happy we get when we have something weird going on (instead of the big C!)  I'm sure you all must be so relieved.  Glad it was checked out.

Dx 7/17/2009, IDC, <1cm, Stage Ib, Grade 3, 0/1 nodes, ER+/PR-, HER2+Surgery Mastectomy (Left)Chemotherapy carboplatin, TaxotereRadiation Therapy ExternalHormonal Therapy FemaraTargeted Therapy Herceptin
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Jun 5, 2012 10:12 PM allisontom911 wrote:

what a huge relief. I am so happy to hear that it is all ok! thank you for letting us know

Allison
Dx 12/8/2009, IDC, 4cm, Stage IIIa, Grade 3, 1/11 nodes, ER-/PR-, HER2+Dx 5/17/2012, IDC, Grade 3, ER-/PR-, HER2+Targeted Therapy 12/21/2009 HerceptinChemotherapy 12/21/2009 carboplatin, TaxotereSurgery 05/10/2010 Mastectomy (Right)Radiation Therapy 06/15/2010 ExternalSurgery 12/28/2010 Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement, Latissimus Dorsi flap (Both)Chemotherapy 06/04/2012 Adriamycin, Cytoxan
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Jun 5, 2012 10:36 PM windy2011 wrote:

Biopsy biopsy biopsy!  I had a clear mammogram in September, a clear ultrasound in November, no one could even feel a lump.  I then had a change in the appearance of my breast in December, then a repeat mammo and sonogram, and low and behold, they found something to biopsy.  It turned out to be breast cancer, and I found out in February that it had spread to my liver and bones.  NOTHING but a biopsy will do.  Do whatever you can to make her get one.  My breast cancer would have shown up on an MRI if anyone had ever ordered one for me.  My daughter will be getting MRIs for sure.  

Dx 12/27/2010, IDC, 3cm, Stage IV, Grade 2, 3/6 nodes, mets, ER+/PR+, HER2-