Aug 13, 2012 02:59 AM Mzmerz wrote:
OMG I am speechless! I am so sorry this happened to you!!! So it's been almost a week and they can't get ahold of a drug rep?? I would be screaming from the hilltops about that!! keep us posted!
All Topics → Forum: Stage IV and Metastatic Breast Cancer ONLY → Topic: Has anyone been through this mistake?
Posted on: Aug 13, 2012 02:40 AM
SPAMgirl wrote:
Last Monday, the nurse gave me my Halaven as a shot to my stomach instead of putting in my chemo port through my IV. She gave it to me in my muscle like a flu shot, not like the nupagen which goes in the fat. I've put up with a lot of shots, but this one REALLY hurt.
Everyone knows it happened, but they don't know what is going to happen to my body. They keep trying to get ahold of the drug rep to get more information. Right now, they don't know if it's going to count as a round of chemo or if I'll have to get a replacement treatment this week.
The site of the shot in my stomach is rock hard, deep red and hot. They want me to put warmth on it to disperse the medicine. Right now it's the size of my fist and the spot where the needle went in is scabbing like it was bleeding. And now I see a blister that was no where near the shot site.
Has anyone mistakenly got a chemo shot where it should have been put in an IV? Has anyone had an experience close to this? Is my skin going to die? Do you think the treatment counted? I read the leaflet and I can't find anything.
Posts 1 - 30 (128 total)
Aug 13, 2012 02:59 AM Mzmerz wrote:
OMG I am speechless! I am so sorry this happened to you!!! So it's been almost a week and they can't get ahold of a drug rep?? I would be screaming from the hilltops about that!! keep us posted!
Aug 13, 2012 03:05 AM allisontom911 wrote:
I would contact a VP at the hospital. I can not believe the drug rep has not called back. Did you try and reach out to the drug company yourself? Maybe even the FDA? They need to get on that ASAP. I am so sorry this is happening to you. Is the nurse new? what did she think she was giving you?
Sending you good thoughts and I sure hope everything will be ok.
Aug 13, 2012 03:06 AM susan_02143 wrote:
Forget the drug reps! They are just pretty faces. Call the drug company! Here are the numbers I was able to find for you.
Fax: 1-866-801-5631
Aug 13, 2012 03:10 AM CoolBreeze wrote:
Wow!!! No advice, just really sorry that happened to you!
Aug 13, 2012 03:14 AM llanabeth wrote:
Once on Zometa, the IV needle slipped out of the vein. I had a huge red bump and it was burning hot but it subsided after a few hours. Zometa int nearly as toxic as what you got :(
I agree that you need to contact the drug company directly and the FDA yourself. I was even thinking CDC but not sure they would know what to do, they may.
Aug 13, 2012 03:15 AM soleil505 wrote:
Spam girl, my favorite funny gal.....I hate hearing this.
How awful!!! No advice good enough. Maybe you should go to the ER....only cause they'd look at it. Hoping for you
Aug 13, 2012 03:48 AM lanagraves wrote:
Im not sure if I should post here, but my needle came out of my port during a Taxol tx and the drug spilled out into the surrounding tissue. It burned really bad and was very sore for a couple of weeks but as fat as I can tell, the skin and tissue are ok now.
Aug 13, 2012 04:06 AM SPAMgirl wrote:
I have my next appointment tomorrow morning and I just don't know what to do. I'm just in shock. And it's right on my waistline where my pants sit. I suppose this is what happens when you sleep through chemo and you are just trying to open your eyes when they disconnect your port. When I was in the office Friday so one of the leads could look at it, I got to hear the gossip whispers of, "that's her". At least I'm famous.
I'm pretty scared about this a large area of skin where they cells won't multiply. I don't know how fast skin and tissue are supposed to turnover.
Thanks lanagraves for giving me hope my skin will make it through this.
Aug 13, 2012 04:07 AM itsjustme10 wrote:
Call the drug company...according to them, it is to be given IV, not as a shot. And if it's blistering, I don't think you should mess around with it - call now!!! It's a whole week... that's too long ...
To report SUSPECTED ADVERSE REACTIONS, contact Eisai Inc. at
(1-877-873-4724) or contact FDA at 1-800-FDA-1088 or www.fda.gov/medwatch
dailymed.nlm.nih.gov/dailymed/...
The drug rep? That's who they told you would have a solution? They committed malpractice, so their solution was to call a salesman? I would not be happy...
Aug 13, 2012 04:14 AM Helmie wrote:
Unbelievable! I'm so sorry. Maybe the poison control center would know. Are you taking pictures of the area where you were injected? Maybe you need to see an independent Doctor in a hospital that is not in any way connected to your onc's office. I would also call an attorney.
I just can't believe this happened. That is terrible. Hope and pray you won't have any permanent damage to your body.
Hugs,
Helmie
Aug 13, 2012 04:17 AM K-Lo wrote:
Also have your family call Risk Management, Chief Nurse, dont rest until they are working 24 hours to help you.
Aug 13, 2012 04:21 AM Cynthia1962 wrote:
What a terrible mistake to have to deal with. I would be furious. Who turns an inexperienced nurse loose on patients? I hope you get help and answers soon!
Aug 13, 2012 04:21 AM tammie wrote:
WOW!! Is all i can say to this!! I hope nothing to severe comes of this, if so i too would consider an attorney you would think they would've been on top of this a whole week!! Hugs and hoping alls well and the tissue heals up well
Aug 13, 2012 04:22 AM LuvRVing wrote:
I'm speechless. You've gotten some excellent advice. I'd start with the drug company's advice nurse. And yes, take pictures. Lots of pictures. Document in writing exactly what happened, when and how it happened. I cannot even imagine such a blunder...
Hugs,
Michelle
Aug 13, 2012 04:23 AM K-Lo wrote:
And you should have a family member in there all the time to watch out for you. I know you don't want to be an A-hole, but this is serious. Blame it on your husband or whomever can be an advocate for you in this stressful time.
Hospitals treat such incidents as Sentinel Events. It is very serious for the medication to be given by the wrong route, especially these toxic drugs that the nurses wear gloves to adminsiter! Not trying to scare you but they should be on this. Perhaps they can call in dermatology, or general surgery to evaluate the tissue. Dont wait til its too late. Poor darlin, unfair!
Aug 13, 2012 04:27 AM Iwillwinthisbattle wrote:
My husband, who works as a monitor of clinical drug trials, suggests calling the drug company or the CDC. Do not wait. This could be casing irreparable damage.
Aug 13, 2012 04:41 AM BouncingBetties wrote:
I don't have any advice, I'm just so horrified to read this and to know that you've been waiting a whole week. I hope the nurse isn't allowed to work with cancer patients anymore. That's horrible. We depend on cancer centre staff to know what they're doing. I agree with everyone else - you call right now yourself and you keep calling the drug company until someone answers you.
Aug 13, 2012 04:42 AM itsjustme10 wrote:
SPAMgirl, I just saw your additional information. I don't know what to say - is there another, larger hospital/treatment center where you could make an emergency appointment? Or maybe one with an ER, so you can bypass making an appointment and be seen immediately?
My biggest concern is that they should have had an answer for you by last Monday night - Tuesday at the latest. There is zero excuse under the sun that they made no attempt, in an entire week, to at least mitigate the damages that may still be happening to your body.
"That's her" is not a response. I don't even know you and I'm really angry for you!!
Aug 13, 2012 04:43 AM, edited Aug 13, 2012 04:44 AM by BouncingBetties
Aug 13, 2012 04:46 AM SPAMgirl wrote:
It wasn't a new nurse. They are remodeling one of their offices, so there are a lot of extra patients and nurses there. They told me Thursday that they wanted to see it everyday. My daughter's been taking pictures with it everyday on the iTouch so we can email them. They didn't think the skin would be an issue, but I don't like it when it blisters. I really like my onc and I don't want to make her mad.
There was a discussion on the Halaven thread about whether is was a slow or fast push. She pushed it very slow incase anybody wondered.
My appointment is at 8:00 tomorrow morning. I'll let you guys know who it goes.
Did I mention I have a low grade fever? I'm sure it from the kid's soccer tournament I went to this weekend, but I always like to freak myself out.
Aug 13, 2012 04:48 AM BouncingBetties wrote:
I'm with "it's just me"! I'm so mad and concerned for you and I don't know you. I want to call myself and get you an answer! Please let us know what you find out but also contact the head of your cancer centre about this. As my onc nurse reminds me all the time - YOU MUST ADVOCATE FOR YOURSELF! I wish you weren't going through this. Being where we are is bad enough without something like this.
Aug 13, 2012 04:50 AM BouncingBetties wrote:
Oh, sweetie! I love my oncologist and if someone did that to me, he'd be furious. You're saying you don't want to make your onc mad? It's not about her - it's ALL ABOUT YOU. I'll be checking to see what you post tomorrow. You remember that you're the one that matters, not the nurse, or your onc.
Aug 13, 2012 04:51 AM bhd1 wrote:
Unbelievable. I am so sorry to hear this.
Aug 13, 2012 04:58 AM SPAMgirl wrote:
While I try to know everything that is going on with my disease, I still think they are the ones responsible for figuring this out. I was okay with their take on my skin being red and hard for a few weeks until it started blistering today. And seeing a scab over the area where the needle went in. This is a little Nile next to that where it was bleeding.
I really thought the only answer I would need by tomorrow was if it counted as a treatment. And then it was just a matter of a 5 minute push in my IV:)
Halaven has been a wonder drug for me.
Aug 13, 2012 05:00 AM steelrose wrote:
SPAMgirl...
Don't you worry about making your oncologist mad... she needs to be mad!!!! This should not have happened. It's scary enough getting chemo the correct way! Ugh! We'll all be waiting to hear from you tomorrow and I hope things will improve. Don't let the yahoo nurse off the hook!
Love to you!
Rose.
Aug 13, 2012 05:35 AM nurseronda10 wrote:
I am a nurse and this is totally unacceptable!!! When I was getting chemo, the fulltime chemo nurse was out sick and they had a PRN nurse fill in who looked to be past retirement age. I watched the PRN RN go from patient to patient without washing her hands. She came out of the chemo room with multple IV bags, none of which were labeled. She accessed two ports without washing her hands or wearing gloves. She started my IV and had blood under her nail and I said something to her about it and she said she "quicked" herself that morning. That blood would not have still been there if she had been doing proper handwashing. I was nearly in tears. I asked her what each chemo drug was before she hung it. After the Herceptin and Carboplatin were done, she sat down and was taking the tape off my IV. I asked her what she was doing and she said you are done. I told her I never got the Taxotere and she seemed puzzled, left the room and came back in a couple of minutes and told me I was right. I spoke with the oncologist and told her everything that happened and I would not be back if that nurse was ever there again. I hate to see anyone loose their job, but holy crap, we are trying to extend our lives and to have some idiot space cadet.....I could rant on and on. All I could think about were the poor people there that had no medical knowledge.
I know what happened to you is much worse, but still cannot believe they do not have top notch nurses working in this field. These drugs are dangerous. My prayers are with you and hope you find out something soon.
Aug 13, 2012 07:47 AM, edited Aug 13, 2012 09:04 AM by stagefree
Spamgirl hope it heals soon. I had an IV drip slip in my arm during my red devil infusion which was noticed waay too late by the nurse 20 years ago during my HD treatment. My arm was like rock hard and the infusion area (size of a large pear) purple, the skin turned hard too, at first. I remember the onc trying to comfort my family, but he WAS worried about the tissue which did not get better until after the entire treatment. He said nothing could be done, we had to wait for it to dissolve itself. Aghhh! And it hurt so much even when I tried to do anything with that arm. I can understand how you feel, it sucks. Of course, that arm was never used again for infusion /blood draw for years. I cannot say specifically how long, but it did heal itself, finally. I am saying years, though. Even when it stopped hurting, the pear-shaped skin was hard, the muscles under felt sore when touched.
Years later, it is now my good arm, being used for all IV drips and blood draws.
Aug 13, 2012 08:51 AM banjobanjo wrote:
I think you should get legal representation now - then the medical staff will quickly find answers for you... Hope you are not harmed by this.
Aug 13, 2012 09:29 AM camillegal wrote:
Oh I'm so glad u'r seeing u'r D.tomorrow and let us know exactly what was said. And susan really did a number with all the numbers use whatever u need--wow susan another wonderful thing.
And I am so sorry this happened to u, I can't understand how or why it could happen, She should have known better.
Aug 13, 2012 09:46 AM CoolBreeze wrote:
Hey sweetie,
I said I had no advice but I do, a little. This was not a mistake, it was a legitimate medical error. And, they have not given you answers, whatever they are, in a timely manner.
I hate the kind of people who jump to lawyers, but you have a good reason to talk to one. You don't have to sue, but you should defininitly have answers by now, and if it takes a call from a lawyer to get them, that's what it takes. Your oncologist should be worried about making you mad, not the other way around.
We put so much trust in these nurses putting toxic chemicals in our bodies. She made a horrible, negligent error. It wasn't like a needle slip, that can happen. It was a negligent mistake; she gave yiu the wrong administration of a drug.
At the very least, the drug rep should have called the doctor back with some information. They have it, they test different routes of administration.
Maybe they don't want to tell you something, or maybe it will do no harm, but you have the right to know.
Hope you know more tomorrow. I would go in and insist