Seems like I continually get bad news. After the removal of the tumor on my chest wall, I started getting extremely bad headaches. I had an MRI on January 9th, and it shows I have thickening of the dural lining of the brain. I am so confused. The radiation oncologist said this is not typical. The mets are not in my brain, nor will transfer from the lining into the brain.
The radiation oncologist says I need treatment to relieve the pressure. She will be targetting a 3x3" area. What I am really upset about is I will loose my hair from radiation, and I will essentially have a permanent bald spot.
Are there any others out there that have had this dural thickening? I am confused because my radiologist says it's not typical. They do not have a large database to draw from as to how effective radiation treatment will be. I have a call into my medical oncoligist to ask if it would be better to start a chemo therapy instead. He recently took me off Arimidex because it obviously not working.
I can not believe how much bad news I continually get. I keep asking why does this have to be in my head because the headaches started to become unbearable. I am now on Percoset/Oxycoton and a steroid anti-inflammatory to control inflammation and the pain.
We were looking forward to going on our vacation to Hawaii from Jan.24 - Feb.8th, but now it will be a fog, because I have to take so much pain med to control these pressure headaches. I am afraid I won't last the year at this pace. My radiation oncologist is confident that treatment will be effective and there's a 95% chance that it will not come back in this area. Has anyone else had radiation on their head? Has it been effective? She says 70% will have less pain after treatment, 20% will have temporary increased pain due to treatment, but will subside.
I am so scared. I want to get these pressure headaches shut-down, but I am worried it will not help at all.
Any advice anyone has would be greatly appreciated. I hoped to have many years left, but at this pace it doesn't look good.
Wishing everyone the best of health, and many, many years more.
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