We are 144,868 members in 73 forums discussing 114,694 topics.

Help with Abbreviations

All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: Bone and lung metastas, Help please

Topic: Bone and lung metastas, Help please

Forum: Stage IV and Metastatic Breast Cancer ONLY — A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only or those posting on behalf of a Stage IV patient. There is a separate forum for Stage IV Caregivers/Family in "Support and Community Connections".

Posted on: Dec 31, 2013 05:08PM

shaM wrote:

Hi everyone. I really need your survival stories. I need to get encouraged and find hopes within me again. Please help me. My Mother's cancer is back.

Here is my mom's cancer story:

She was diagnosed with breast cancer in 2005. Her breast was not removed but the tumor was. A few of her nodes had cancer too. She received 4 sessions of chemo therapy and about 10 sessions of radiation (if I'm not mistaking) and this was all 4 month before my wedding. :( you can only imagine what a happy bride I was!) She started her normal life after that and was getting checked by her doctor every 6 months. She was on tamoxifen for 6 years.

Her bones started getting weak after menopause.So weak that she had a couple of fractures on two different parts or her body (chest and shoulder) by just working and cleaning the house. This goes back to about 12 years ago. she has been taking Calcium pills regularly. After her cancer treatment with tamoxifen, her bones got even weaker. 

She started complaining about back pain and different part of her body's bone pain from 2 years ago but since she is very timid and she had a bad taste from cancer treatment in her mouth, she refused to go to specialist and everything she went to a doctor, she really didn't tell the doctor how bad she was doing. She was always ended up with pain killers like naproxen or nasal spray to strengthen the bones. This went on for 2 years.

Recently her back pain really bothered her and by our push she agreed to go to a specialist. The dr ordered a full body scan with radioactive injection. Also lung scan (don't know what type). The results shows that she has metastatic cancer in her back/spine, hip, shoulder and a small area in her skull. Also she has lung cancer. The specialist recommended Zometa, Aromasin and Radiation.

Is any of you strong survivor people out there doing through the same thing? Please leave me your messages as I am really looking forward to read your battle story.

God bless you and your loved ones.

Sh


Log in to post a reply

Page 1 of 2 (34 results)

Posts 1 - 30 (34 total)

Log in to post a reply

Jan 1, 2014 02:03PM ibcmets wrote:

Sh,

Sorry to hear of your Mom's progression.  I had stage IV with spinal bone mets from day 1 in 6/09.  I'm doing well.  I've been on Zometa for 4.5 years now which has eliminated most back pain & made my bones stronger.  I switched from Femara recently to Aromoasin/ Afinitor.  I got 4 years out of Femara & just did radiation for a spot on my spine.  My radiologist says I have very little cancer in my body.  I will always be in some kind of treatment but they are keeping me stable.  There are quite a few treatments for ER+ patients.  We can go through all of these b/4 going back on chemo.  Hope your Mom does well with her treatments.  Blessing for the new year!

Terri

6/2009: ibc,stage IV bone mets, ER/PR+, Her2-, 1/2011: BMX/Recon, Femara & Zometa;10/13 Aromasin/Afinitor

Log in to post a reply

Jan 1, 2014 07:46PM, edited Jan 2, 2014 05:44AM by shaM

@ibcmets, thank you very much for your note. I have been keep checking my post to see if someone leave me a note. I am glad to hear your story, It makes me feel positive. I hope that the medication work for her. apparently, her lung problem is spread a lot! I hope that they can take it under control. That is all I am asking God.

Thank you again,

ShaM

Log in to post a reply

Jan 1, 2014 11:24PM Bon_ wrote:

((ShaM & Mom)) hugs to you and hope for successful treatments.

Dx 3/15/2008, IBC, 6cm+, Stage IV, Grade 3, 4/18 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Jan 2, 2014 05:44AM shaM wrote:

@Bon_ thank you so very much.

Log in to post a reply

Jan 2, 2014 05:59PM Lynne wrote:

Hi sh,

I was also diagnosed in 2005. I was stage 1, er and pr +, Her2-,no lymph node involvement. I had a lumpectomy, radiation, and decided to have a complete hysterectomy to get rid of those estorgen ovaries (I was 43 and premenopausal at the time). I started on Arimidex afterward, and later tried Aromosin, Femara, and Tamoxifen and had to stopped taking them all together due to the side effects (joint and bone pain, etc), after 3 years. June 2011, I was having severe back pain. I saw my primary, and she did an x-ray. It showed I had a compression fracture to T9. I was sent for an MRI. It showed tumors in my spine and lungs. I had kyphoplasties to repair the fracture and help the compressed vertabrae above and below T9. I had a thoracentisis (drain my lung) because I was having difficulty breathing (so much better afterwards). I was then put on a monthly treatment of 2 shots of Faslodex (an anti-estrogen drug) and a 1/2 hr infusion of Zometa (a bone builder). I have CT/Bone scans every 3 months, and each scan showed more shrinkage of my lung tumors and lymph nodes that were enlarged. The last 2 showed only scarring where my lung tumors were. Last week I went for my latest scans. I get the report/CD sent to me, so I can see how they came out before my appointment. Well it shows that some of the lymph nodes that shrunk have enlarged and also shows new lymph nodes enlarged. I don't know if this means I'll have to change treatment or if they wait till there are actual new tumors first. My appointment is tomorrow morning. The next treatment will be a chemo pill called Xoleda. It doesn't cause hair loss or nausea. It sometimes causes peeling of the fingers and toes though. We'll see what she says in the morning. 

I'm sorry that your Mom has to go through this again. The people on here are wonderful though and will give you lots of support. 

Saying prayers for you and your family.

Lynne

Mets in spine, lungs, and liver. Carpe Diem-Live for Today

Dx 5/26/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-Dx 6/26/2012, Stage IV, mets, ER+/PR+, HER2-Surgery 06/06/2005 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Radiation Therapy 06/30/2005 ExternalHormonal Therapy 12/20/2005 ArimidexHormonal Therapy 12/18/2006 FemaraHormonal Therapy 03/20/2007 AromasinHormonal Therapy 12/19/2007 TamoxifenHormonal Therapy 07/20/2012 FaslodexRadiation Therapy 07/30/2012 External
Log in to post a reply

Jan 2, 2014 10:02PM shaM wrote:

@Lynn,

Your issue seems very close to my moms. She had excruciating pain in her back. she was telling us that the pain moves!!! But to not go to doctor, she always handled the pain! She never had problems with her lungs though. I remember about 2 month ago, she told me that Naproxen pills not only not help her, but makes her breath short!! We never thought this could be lung cancer since she never complains about any pain or anything that is wrong with her unless it is VERY SEVERE. 

Tonight I talked to her on the phone. She could not breath very well! She told me that she has to sit in the middle of the stairways to get to her bedroom on the second floor. Her issue got bad very quickly, She barely had any lung problems 2 month ago!! Now she says she cant even walk that much before her breath gets short! Doctors has told my brother that her lung cancer is very spread over and that if the injection he recommended doesn't work, she has to go through Chemo again.

I just hope that Aromasin helps her lung cancer and let her breath better. By the way, if Aromasin works for her, will her breathing really gets better?

Thank you again @Lynn, God bless you and your loed ones. Your message made me get positive and feel much better. I hope that your visit with your doctor goes very well.

ShaM 

Log in to post a reply

Jan 3, 2014 02:13AM M360 wrote:

I'm sorry to hear about your mom.  I'm stubborn and didn't want to see a doctor right away when I had pain around mastectomy site.  My GP told me it was likely arthritis but I knew it wasn't.  Got PET Scan and had mets to lung, ribs. spine T1-T11 and L4, then it went to liver and kidneys and L3.  I had biopsy and two tumors removed in lungs and did Faslodex and Cytoxan.  I got bad reactions to the Faslodex but the two stopped the growing of the tumors in my lung.  Then I went on Xeloda and it has kept all my cancer stable not NED, but stable which I will take.  I'm told I could live five more years or even longer.  That's with have three Pulmonary Embolisms.  Today there is so many ways to treat.  You have to find the one that works for you.  But for sure you're mom can survive this.  Keep positive for her and let her know that she can beat this and that her family will be there.  Having a positive family really helps the mind and positive life is a way to calm and heal.

Dx 12/3/2009, IDC, 3cm, Stage IIIb, Grade 3, 6/12 nodes, ER+/PR+Dx 12/12/2012, IDC, Stage IV, Grade 3, mets, ER+/PR+Dx 1/29/2013, IDC, 2cm, Stage IV, Grade 3, 6/9 nodesDx 2/16/2013, IDC, Stage IV, Grade 3, mets, ER+/PR+Surgery 03/26/2010 Mastectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection, Axillary Lymph Node Dissection (Left)Chemotherapy 04/14/2010 Cytoxan, TaxotereHormonal Therapy 10/27/2010 FemaraHormonal Therapy 02/28/2013 FaslodexChemotherapy 04/02/2013 Cytoxan, Xeloda
Log in to post a reply

Jan 3, 2014 09:07AM Helmie wrote:

Hi shaM,
sorry to hear about your mom. I have metastatic disease in my bones and in my right lung since 2009. You write that your mom has lung cancer. Is that what her oncologist told her it is? If this is really lung cancer and not metastatic breast cancer which has spread to her lungs, her treatment should be different.

If your mom has breast cancer which has spread to her bones and lungs the treatment with Aromasin for the cancer and Zometa for bone strengthening will hopefully help her. However, I would recommend to have her oncologist check her lungs and see if she might have fluid build up, since she is in pain and can't breath very well. I used to have a lot of fluid build up in my lung and needed frequent thoracentesis procedures. These help a lot, breathing is so much easier afterwards.
How often does her oncologist check her blood and her tumor markers? If the markers do not go down from the Aromasin alone she probably needs to have a chemo drug added to her treatment. There are so many chemo drugs out there and some of them have very tolerable side effects.
 
Since August I'm on Abraxane ones a week and for the bones I get an Xgeva shot ones a month. So far so good, my tumor markers have gone down a lot, and I feel pretty good too.  Aromasin, which I took back in 2010, did not work for me. My cancer progressed. But that's how it goes once cancer becomes metastatic. Drugs work for a while, and then they stop working and the cancer progresses. So you have to move on to the next drug, and the next, and the next.
Metastatic breast cancer is not curable. Your mom will have to be in some form of treatment for the rest of her life, which can be many years as you can see from the stories of so many here on this web site.

Good luck to your mom. It's so wonderful that you are there for her during this tough time.
Sending you both lots of warm (((Hugs))),
Helmie    

"Life is like a box of chocolates. You never know what you're gonna get." (Forrest Gump) - thank God for chocolate and puppy dogs -

Dx 2/8/2010, Stage IV, Grade 3, ER+/PR+, HER2-
Log in to post a reply

Jan 8, 2014 09:12PM shaM wrote:

@M360:

Thank you very much for sharing your fighting story with me. It makes me feel much stronger when dealing with my mom's illness. When survivors like you are out there, then my mother can be one as well. God bless. My prayers will be with you, please keep my mother in your prayers as well.

@Helmie:

I also would like to thank you very much for sharing your treatment story with me. You guys are troopers. Hats off to you guys. My mom has metastatic breast and bone cancer. Her medication is #Aromasin and #Zometa along with #radiation. She already has got her first Zometa shot. I am not sure how many more she should get!! It showed her a very severe side effect though. Her breath got so short that they had to take her to the hospital. They had to inject her some medicine which along with the oxygen they gave her, corrected the breathing issue right away. She is taking Aromasin also. It has only been 4 days but she tells me that she already can breath better!!! Do you by chance know that if Aromasin can work really that quickly??? I am very pleased to hear that... I hope that it is really working for her!! She has got one radiation session also. My brother told me that she has cancer in her back bones, shoulder, hips and a little spot on his skull but they are only radiating her back and shoulder. Do you by chance know why is that? Why the doctor is skipping the hip and skull tumors??

My mom should be visited by her doctor within 25 days. Is she supposed to take the Zometa every month for as long as it works for her? or will the doctor stops it after a few month? I am almost positive that she has to get another scan from her body and lungs so that the doctor determines if the medicines are working for her or not.

God bless you and heal all you troopers and make you healthy and whole. Please keep my mother in your prayers.

ShaM

Log in to post a reply

Jan 9, 2014 04:57AM Helmie wrote:

Hi shaM,

I have bone and lung metastasis, but I have never gotten radiation treatment for shortness of breath. As far as I know radiation treatment is used to shrink tumors and/or relieve bone pain. My lung mets caused me to have fluid build up in the lining of my lung. The more fluid build up - the more shortness of breath. I had to have several thoracentesis procedures done (which is the draining of the fluid). After each procedure my breathing improved immediately. do you know if your mom had a thoracentesis done? Zometa is for bone strengthening and Aromasin is an aromatase inhibitor which blocks estrogen. Since she is only on Aromasin for 4 days I doubt that it helped her breathing.
I'm not on Zometa, I'm on ones a month shots of Xgeva, and yes, I have to stay on this drug for a very long time, maybe forever. It depends on the SEs, how severe they are, and how well your mom handles them, her medical oncologist might switch her from Zometa to Xgeva. 

Hope this will help a little.
Hugs and good luck to you and your mom,
Helmie

"Life is like a box of chocolates. You never know what you're gonna get." (Forrest Gump) - thank God for chocolate and puppy dogs -

Dx 2/8/2010, Stage IV, Grade 3, ER+/PR+, HER2-
Log in to post a reply

Jan 15, 2014 02:06PM Lynne wrote:

I also had a thoracentisis done to drain my lung, at the beginning of my treatment. I breathed so much better afterwards, and haven't had another since. They should check for fluid, that could be what she needs. It's outpatient, and you are awake for it, but because they go into your back while you are sitting down and leaning over a table, you don't see it. I couldn't believe how much fluid came out of me. It almost filled the bottle. 

I am getting another CT scan of my abdomen and pelvis. I was sick the day after the last scan with a stomach bug. My oncologist thinks that may be why my lymph nodes were enlarged. If they are still enlarged, I'll have to switch to the next treatment. I hope not. I want to stay on each treatment for a very long time. That way, I'm here longer. 

I hope your Mom is feeling better. If the Aromosin works, it will shrink the tumors in her lungs, and she will breathe better. The tumors in my lungs shrunk each time, and I now have only scarring where the tumors were. Right now I have a horrible cold (thanks to my son, he's still sick after 2 weeks!) and am having a hard time breathing. I will be calling the doctors tomorrow. It's been a week, and now I'm getting sinus headaches (probably a sinus infection) and the nebulizer is not helping much. Wish me luck!

Hugs!

Lynne

Mets in spine, lungs, and liver. Carpe Diem-Live for Today

Dx 5/26/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-Dx 6/26/2012, Stage IV, mets, ER+/PR+, HER2-Surgery 06/06/2005 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Radiation Therapy 06/30/2005 ExternalHormonal Therapy 12/20/2005 ArimidexHormonal Therapy 12/18/2006 FemaraHormonal Therapy 03/20/2007 AromasinHormonal Therapy 12/19/2007 TamoxifenHormonal Therapy 07/20/2012 FaslodexRadiation Therapy 07/30/2012 External
Log in to post a reply

Jan 15, 2014 03:13PM Australia wrote:

Hi sham, I now have blood clots in both lungs as well as numerous lesions in liver. Zometa is given as an infusion,like chemo and xgeva is given as an injection. These are purely to strengthen the bone and can go on for years or months, depends on the patient response. I have stopped after a year as my calcium levels are good now. Aromasin is used to stop the body producing estregen and would have no effect on your mums breathing.The radiation would be to ease the bone spots that are painful. As an area can only be radiated once they will save radiation till it hurts. It can bring wonderful relief as can medication such as oxycontinen or endone. I have been on Abraxane chemotherapy and found it was easy on my body with a good reponse,apart from loosing my hair. I went on another chemo that gave me a heap of issues, and now I start abraxane again next week. Hope this helps you, and your mum finds the right chemo and meds . Love Gai

Bc 2006 17 of 25 nodes ca. Lump/chemo/rads. 7/ 2012 mets spine/ribs/pelvis/mediastinal /pl.eff. Femara 3 months progression in spine o abraxane 4 months followed by affinitor/aromasin combo

Log in to post a reply

Jan 15, 2014 03:22PM NYCchutzpah wrote:

Saw my onc yesterday. She explained my latest pet scan. There was good and bad news. Most of the bone mets are stable,one fractured rib, and a node in my lung is bigger than it was in the last scan. She added another drug to my treatment so I am on monthly shots of falsodex xgeva and now another pill exemestane (similar to femera).She had me schedule an appointment for next week to see how I am tolerating the exemestane. I am so relieved to hear other's stories about survivng with lung mets on top of everything else.I was flipping out after learning about it spreading to my lung, especially when the onc started talking about plans A-C. Haven't had chemo yet but it is in my future. My onc is being considerate about scheduling my treatment  Right now I am helping my daughter plan her wedding in August 2014. Rather work on wedding stuff than cancer stuff.Regarding the side effects of the falsodex and xgeva for me is the pleasure of experiencing menopausal symptoms all over again, hot flashes (not too bad) and night sweats that wake me up and I have to change my PJs. I am sure that your mom is as if not more thankful that we both have wonderful daughters. When I was diagnosed my daughter moved from OC Cali back to Jersey. I am so glad that she did. I don't want to imagine going through this without her.

Dx 12/27/2011, Stage IV, mets, ER+Radiation Therapy 04/09/2012 External
Log in to post a reply

Jan 16, 2014 07:26AM Lynne wrote:

NYCchutzpah,

I too am experiencing the hot flashes from Faslodex. I had my ovaries (and everything else) removed, the year I was first diagnosed with stage 1 in 2005, at age 43. I was have 30 a day from my instant menopause. They had me take effexor. It helped, but I felt like a zombie on it. After a year, I switched to Nuerotin (Gabapentin, generic). It takes away most of the hot flashes, and I feel like myself on it. I also use a
Chillow Pillow at night. It keeps your head cool, so you don't get woken up with the night sweats. It helps.

Good luck!

Lynne

Mets in spine, lungs, and liver. Carpe Diem-Live for Today

Dx 5/26/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-Dx 6/26/2012, Stage IV, mets, ER+/PR+, HER2-Surgery 06/06/2005 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Radiation Therapy 06/30/2005 ExternalHormonal Therapy 12/20/2005 ArimidexHormonal Therapy 12/18/2006 FemaraHormonal Therapy 03/20/2007 AromasinHormonal Therapy 12/19/2007 TamoxifenHormonal Therapy 07/20/2012 FaslodexRadiation Therapy 07/30/2012 External
Log in to post a reply

Jan 16, 2014 10:08AM chele wrote:

I was diagnosed stage IIb in October 2009, stage IV with mets to my spine, marrow, and sternum in March 2011.  I was put on chemo immediately since Tamoxifen had failed me and because the mets were extensive. I had 11 radiation treatments to T9/10.   I made it almost 3 years before it spread to my liver too.  I was on Xgeva injections which really helped my bones, but did not stop the spread.  My bone mets are now in my femurs, pelvis, and ribs.  I'm on my 6th chemo and still enjoy a high quality of life with very little pain.

I will say though that if your Mothers breathing is that tough she needs to go back to the doctor. 

Chocolate for Breakfast! Mets to lots of bones, sternum, marrow, liver.

Dx 11/2/2009, IDC, 2cm, Stage IIb, Grade 2, 3/9 nodes, ER+/PR+, HER2-Dx 3/11/2011, IDC, Stage IV, metsSurgery 11/18/2009 Mastectomy (Left); Prophylactic Mastectomy (Right)
Log in to post a reply

Jan 19, 2014 08:51PM, edited Jan 20, 2014 07:38AM by shaM

@ HelmieHelmie: My mom never had thoracentesis done. Is it painful? Thank you for being here for me, I feel much better reading these messages. Do you happen to know why my mom is experiencing so much paint? Have you experienced the pain during your initial treatment after your first metastatic treatments? XXX

@ LynneLynne: I hope that you are over your cold and that your lymph nodes were enlarged because of the cold. I hope that Aromasin works for my mom and it shrinks her tumors also. Did you experience any pain when you were first diagnosed with metastatic cancer and started your treatment? XXX

@ Australia, thank you for the information. I hope that you are feeling great. My mom has got about 7 radiation treatments and another 7 or 8 to go, but she says her pain is un bearable and that if she doesn't take pain killer, she wont be able to move. My mom is VERY STRONG when it comes to handeling pain..... and I mean VERY VERY STRONG!!! But the way she describes her pain is stressing me out. She says the pain gets very tolerable when she takes pain killer. Why should she be in this much pain if radiation is supposed to help her with her pain? Thank you XXX 

@ NYCchutzpah, I am pleased to hear that medicines work on most of the patients including you. It is so heartwarming. When My mom was diagnosed with Cancer, it was about 3-4 month before my wedding also. She had to go through lumpectomy, chemo and radiation. On my wedding she was with a wig but I was happy that she was there and strongly handled her mediation. I am sure that your daughter is very proud of you also. Do you happen to know why my mom is experiencing so much pain at the moment? Is it because the medicines are working (perhaps)? Or the radiation is making it painful? I am not sure, but she can not be without painkillers. XXX

@ chele Chele: Thank you for your message; you go girl. Yu are very strong and inspiring to so many people out there including me. :) Please let me know if you experienced any pain when you were diagnosed with metastatic cancer. XXX


Log in to post a reply

Jan 20, 2014 08:19AM Bestbird wrote:

shaM, I am sorry for what your mother is going through, and you are a wonderful and loving advocate to reach out on her behalf!

Your mother's breathing difficulties are likely due to either liquid (effusion) around the lining of the lung, and/or heart issues.  Id strongly suggest that the doctor examines her for pleural effusion and orders a full check on her heart.

If liquid is found around the lungs, it should be drained to ease her breathing.  There are three options for this:

Thoracentesis (sometimes referred to as “tapping”)is an outpatient procedure thatinvolves placing one needle per required side into the pleural space. Although local anesthesia is administered, this procedure can be uncomfortable and can cause scarring if repeated over time, and the procedure may not impede fluid buildup again.

Pleurx or Aspira Catheter: This is the surgical insertion, under general anesthesia, of a small tube placed temporarily into the pleural space that allows you or your family member to drain the fluid into a bottle as needed.  Once there is no more drainage, the catheter is removed.  This procedure seems to help prevent the fluid from building up again, provided that systemic treatment such as chemotherapy or hormonal therapy is working.  The Pleurx catheter works via suction, and the newer gentler model is the Aspira catheter, which uses gravity for draining.

Pleurodesis (sometimes referred to as a “talc procedure”) is a process in which substances, such as talc, are used to try to get the edge of the lung to stick to the chest wall to decrease the chance of the fluid returning.  Although this procedure seems to help prevent the fluid from building up again (provided that systemic treatment such as chemotherapy or hormonal therapy is working) it can be painful and usually requires a brief hospital stay.

I hope your mother feels much better very soon!

Dx 10/6/2011, IDC, Stage IV, ER+/PR+, HER2-
Log in to post a reply

Jan 20, 2014 03:39PM shaM wrote:

@ Bestbird: Thank you very much for the thorough explanation, I sincerely appreciate the time you took to write this for me/everyone on this forum. XXX

Log in to post a reply

Feb 4, 2014 04:55PM Lynne wrote:

shaM, I was having pain in my back when I was first diagnosed with the mets. I had a compression fracture to one of my vertebra (T9). The follow up CT scan I had showed the lymph nodes as stable with one enlarged. My local oncologist checked with my Boston oncologist, and was told that the measurements are within the margin for error and were ok. It also showed I have a new compression fracture in L5 (the lowest one). I also had an MRI that showed it and am having another kyphoplasty (cement injection) this Friday, wish me luck. At least I know why my back has been killing me for so long. They will also biopsy it to see if it's the cancer or the bones being thinned by the treatment (although, they give me Zometa once a month with the Faslodex). They couldn't tell by the CT or MRI if it was the cancer. If it's the cancer causing it again, I will be switching to a new treatment most likely, aromosin and everolimus (maybe xoleda). Both are pills, so it would be wonderful not to have those awful shots anymore. I'm glad that they have worked for the past year and a half though. Hopefully, it's not the cancer, I would like to stay on each treatment for a long time. That means a longer life. : )

I hope your Mom is doing better.

Lynne

Mets in spine, lungs, and liver. Carpe Diem-Live for Today

Dx 5/26/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-Dx 6/26/2012, Stage IV, mets, ER+/PR+, HER2-Surgery 06/06/2005 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Radiation Therapy 06/30/2005 ExternalHormonal Therapy 12/20/2005 ArimidexHormonal Therapy 12/18/2006 FemaraHormonal Therapy 03/20/2007 AromasinHormonal Therapy 12/19/2007 TamoxifenHormonal Therapy 07/20/2012 FaslodexRadiation Therapy 07/30/2012 External
Log in to post a reply

Feb 4, 2014 11:25PM shaM wrote:

@Lynne, I wish you all the luck. I hope that it is not cancer and that your bones have lost density through the treatment. That is what I think my mom's problem is. Although I may sound optimistic, but my mom got her first fracture on her collar bone about 13 years ago. We were told that the reason is because she has week bones. Throughout all these years, she got fractures in different parts of her body. Then after being diagnosed with breast cancer, chemotherapy, radiation and being on hormonal pills for 5 years, we figured that her bones has lost even more density. The last 1.5 years she had severe back pain. Each time she was complaining about different places on her back. We never even in our wildest dreams thought she has bone cancer since she has had this problem long before even being diagnosed with breast cancer. I don't know why, but I think maybe my mom doesn't have bone cancer either!!!! 

Thank you @Lynne and good luck to you. 

Sham

Log in to post a reply

Feb 11, 2014 04:32PM Lynne wrote:

I had my kyphoplasty on Friday. When I woke up in recovery, my left leg hurt quite a bit. I mentioned it to the nurse, and she said they went in from the left side. The incision is right at my waistline in the middle of the left side of my back. The pain is still here 4 days later. It feels like the sciatic nerve is being pinched. The pain runs down to my ankle. I called the office yesterday, and they sent me for another MRI last night. I called this  morning for my results of both the MRI and biopsy, and they didn't have them yet (which I found hard to believe). She said they would call me once they had the results. The radiologist that did the kyphoplasty, is on vacation for 2 weeks. I'm seeing my oncologist for the biopsy results on Friday. I will be asking her about the MRI too, if I don't hear from radiology by then. The pain is driving me crazy, and 2 vicodin and a flexiril are not helping with it. I haven't worked all week, and have made the decision to go out on disability. I've been working for the past year and a half since I was diagnosed, and I want to spend the time I have left doing what I want to do. I'm exhausted most of the time, and my back has been in pain the entire time. I can no longer sit in front of a computer for 8-9 hrs. I can no longer concentrate on my work either. Hopefully,  they will call me tomorrow, so they can do something about this shooting pain!

Lynne

Mets in spine, lungs, and liver. Carpe Diem-Live for Today

Dx 5/26/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-Dx 6/26/2012, Stage IV, mets, ER+/PR+, HER2-Surgery 06/06/2005 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Radiation Therapy 06/30/2005 ExternalHormonal Therapy 12/20/2005 ArimidexHormonal Therapy 12/18/2006 FemaraHormonal Therapy 03/20/2007 AromasinHormonal Therapy 12/19/2007 TamoxifenHormonal Therapy 07/20/2012 FaslodexRadiation Therapy 07/30/2012 External
Log in to post a reply

Feb 11, 2014 11:05PM, edited Feb 12, 2014 11:16PM by shaM

@lynne,

I am so glad to hear back from you and so sorry to hear that you have a lot of pain. If you really think that the pain is sciatic pain, (which by the shooting pain to your ankles I also think it should be) then I think only anti inflammatory medicine such as iboprophen or naproxen (not sure about the pronunciation) will work on it. I hope that you get better very soon. Please keep us posted on your recovery progress. 

Blessings

Sham

Log in to post a reply

Feb 12, 2014 03:15PM Lynne wrote:

Well, after many phone calls, I got the results of my biopsy from my compression fracture. It's breast cancer again. I am seeing my oncologist to see what the next treatment will be. They put me on predisone to help with the pain/inflammation (yes it is sciatic, I've had it before in the other leg years ago). I can't take ibuprofen or naproxen because I am taking meloxicam (also an NSAID). I am scheduled to have an injection (nerve blocker or epidural/steroid) 2/24, when the radiologist who did my kyphoplasty gets back from vacation. I can get in earlier with him than with the pain management people, and he will let me take the predisone and meloxicam before the surgery where the pain management people are really strict and won't. I just wish he hadn't taken 2 weeks off! Hopefully the drugs kick in. I'm sick of being in pain all the time.

Hope things are going better with your mother Shar.

Lynne

Mets in spine, lungs, and liver. Carpe Diem-Live for Today

Dx 5/26/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-Dx 6/26/2012, Stage IV, mets, ER+/PR+, HER2-Surgery 06/06/2005 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Radiation Therapy 06/30/2005 ExternalHormonal Therapy 12/20/2005 ArimidexHormonal Therapy 12/18/2006 FemaraHormonal Therapy 03/20/2007 AromasinHormonal Therapy 12/19/2007 TamoxifenHormonal Therapy 07/20/2012 FaslodexRadiation Therapy 07/30/2012 External
Log in to post a reply

Feb 14, 2014 10:56PM shaM wrote:

hi Lynne,

Just wanted to see how everything is going. Have the drugs kicked in and reduced your pain? I sure hope so. You are in my partings. 

My mom is doing better. Other that extreme fatigue and minor breathing issues every now and then, she doesn't seem to have any major issues. I just am hoping that she start gaining some energy back because she says sometimes getting up from her seat to get herself water seems impossible!!!!! Does everyone go through this lack of energy after chemo and radiation? She has appointment with her oncologist in this coming week. I'm sure that he will send her for scans and tests. I hope that the chemo is working for her so that the doctor does not move on to another type of chemo. Please have my mom in your partings. 

Blessings

Sham

Log in to post a reply

Feb 15, 2014 06:23AM phoebe007 wrote:

Hi, I'm sorry about your mom, but I have the Exact same diagnosis, bone mets to hips, spine, neck, right shoulder, and my cancer was also diagnosed in 2005. Her treatment isn't enough! Please check into interventional radiology or chemoembolization. These are minor outpatient procedures with Huge Amazing, Pain Free results. They can kill tumors in bone with heat and fill weakens areas with cement for strength. 3 states are now doing this STAR procedure. My oncologist is amazing. If your calcium pills contain calcium carbonate(eggshells), that is bad and the calcium seeping into her bloodstream will make her sick. I went through that as well. There is a new chemo drug available in July which is aimed toward mets. Please look into these pain treatments for now.

Dx 7/2005, DCIS, 4cm, Stage IV, mets, ER+/PR-, HER2-
Log in to post a reply

Feb 15, 2014 06:34AM phoebe007 wrote:

Omg, please have your oncologist do the calcium lab draw. Her symptoms are what I had, extremely tired, weak, trouble breathing, sweats, chills, no appetite, etc. Drink lots of water, calcium will also cause her liver and kidneys to flare up. Please check into this

Dx 7/2005, DCIS, 4cm, Stage IV, mets, ER+/PR-, HER2-
Log in to post a reply

Feb 19, 2014 09:30PM shaM wrote:

@ phoebe007 ,

Thank you very much for the information, I sincerely appreciate it. I passed the information to my mom. Regarding the calcium pills, she used to take caltrate. She told me that I felt them making me sick so I stopped taking them. Now she is on a calcium citrate pill.

She is going to the hospital for a blood test as I am typing this message. I hope that her results are favorable.

After her diagnosis, she was put on Aromasin pills nad Zometa injection for one month. Then her oncologist recommended chemo for her. She already has received one session of Cisplatin chemo and in 2 days she is scheduled to receive the second one. On this treatment she will be receiving Cisplation + Vinorelbine (Navelbine). I hope that she can handle it well. I am not sure how severe the side effects of Navelbine is, I could not find it on this forum. I sure hope that it is mild.

Blessings,

Sham

Log in to post a reply

Feb 19, 2014 10:02PM Bon_ wrote:

Hope your mom does well on new treatment. Bless you both.

Searched navelbine in this forum for you, here are results that you can read pick and read. http://community.breastcancer.org/posts/search?se...

Dx 3/15/2008, IBC, 6cm+, Stage IV, Grade 3, 4/18 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Feb 20, 2014 02:00PM shaM wrote:

thank you very much @Bone_

Log in to post a reply

Feb 21, 2014 05:36PM Lynne wrote:

The predisone helped a lot. Took my last pill today. Only a little pain on my left leg, but it is now starting on my right. I am getting the shot Monday morning. Hope it works. I tripped over my grandchildren's toy yesterday, and landed face first on the hardwood floor.  I broke my second metacarpal for my index finger in my right hand. Seeing ortho on Tuesday. Boston agreed with my oncologist here that the cancer they found in my latest biopsy was probably there before, and they are keeping me on the same treatment and will check on the next scans in April. I am having that treatment on Friday. Busy week.

shaM, I will be praying your Mom does better on the new treatment. Hugs!

Lynne

Mets in spine, lungs, and liver. Carpe Diem-Live for Today

Dx 5/26/2005, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-Dx 6/26/2012, Stage IV, mets, ER+/PR+, HER2-Surgery 06/06/2005 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Radiation Therapy 06/30/2005 ExternalHormonal Therapy 12/20/2005 ArimidexHormonal Therapy 12/18/2006 FemaraHormonal Therapy 03/20/2007 AromasinHormonal Therapy 12/19/2007 TamoxifenHormonal Therapy 07/20/2012 FaslodexRadiation Therapy 07/30/2012 External

Page 1 of 2 (34 results)