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All Topics → Forum: HER2/neu Positive Breast Cancer → Topic: ER/PR- HER2+ and local recurrence, anyone???

Topic: ER/PR- HER2+ and local recurrence, anyone???

Forum: HER2/neu Positive Breast Cancer — Testing, Herceptin (trastuzumab) treatment, side effects, and more.

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Posted on: Jan 11, 2012 02:29 AM

KeepingFaith69 wrote:

I'd like to connect with anyone who has the same Onco type; and who has had a recurrence.

1.3cm tumour was removed in November and scan confirm no spread (halleluia!)

Herceptin has been stopped as it 'didnt work' and no further treatment has been planned as there is 'nothing to measure'.

I will be commencing 25 (more) sessions of radiotherapy to the same area.

If had a bit of a down day, worrying about reduced prognosis and feeling 'ripped' off as I can't have Xeloda / Tykerb as there is nothing to measure.

Talk to me please....... anyone

I surrender to God and the Angels and I choose PEACE.
Diagnosis: 11/16/2011, <1cm, Grade 3, 0/13 nodes, ER-/PR-, HER2+
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Jan 11, 2012 02:07 PM Sassa wrote:

I am totally confused by your post.  Have you had a recurrence? If you haven't, how do they know herceptin isn't working as it is given to reduce your risk of recurrence. 

As you can see, I had the same diagnosis (actually my tumor was 1.75 cm but can't get this board to display that size).  My CT/PET scan done before chemo also showed no spread.  I had 4 AC chemos and was given one year of herceptin as the standard of treatment here in the US.

 Five years after the end of chemo (4 after the end of herceptin), I am still NED.

Maybe it is something that your national health care has decided to limit for patients with your diagnosis?


Diagnosis: 12/6/2006, IDC, 1cm, Stage I, Grade 3, 0/9 nodes, ER-/PR-, HER2+
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Jan 11, 2012 04:17 PM tuckertwo wrote:

I had 16 tx of Herceptin as well as 5.5 session of taxotere and carboplatin. If you are her2+ you should have the herceptin tx's.

tucker


Diagnosis: 8/27/2008, IDC, 2cm, Stage II, Grade 3, 0/8 nodes, ER-/PR-, HER2+
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Jan 11, 2012 06:09 PM KeepingFaith69 wrote:

Hi,

I had a recurrece whilst still receiving Herceptin. Thus the conclusion (of the Oncologists) that herceptin isnt working.

I surrender to God and the Angels and I choose PEACE.
Diagnosis: 11/16/2011, <1cm, Grade 3, 0/13 nodes, ER-/PR-, HER2+
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Jan 15, 2012 01:11 AM KeepingFaith69 wrote:

Still NED and loving every day : )

I surrender to God and the Angels and I choose PEACE.
Diagnosis: 11/16/2011, <1cm, Grade 3, 0/13 nodes, ER-/PR-, HER2+
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Jan 31, 2012 10:16 PM tuckertwo wrote:

What, if I may ask, are the docs doing about your recurrence? Can you tell me more? Thankx

tuckertwo


Diagnosis: 8/27/2008, IDC, 2cm, Stage II, Grade 3, 0/8 nodes, ER-/PR-, HER2+
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Apr 24, 2012 01:08 AM KeepingFaith69 wrote:

Having a bit of a panic week.  Finished 25 x rads in February and am feeling great.  Although I have started experiencing slight dizziness and see the odd spot (vision).  Hoping that it is nothing to be concerned about and am too scared to see a doctor.

I surrender to God and the Angels and I choose PEACE.
Diagnosis: 11/16/2011, <1cm, Grade 3, 0/13 nodes, ER-/PR-, HER2+

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